Download Sibling of a Child with FASD

Our score
4.8 Fundamental labor rights
are effectively guaranteed
4.7 Freedom of assembly and
association is effectively
guaranteed
(<<World Justice Index 2012)
4.1 Equal treatment and
absence of discrimination
0.9
0.8
0.7
0.6
0.5
0.4
0.3
0.2
0.1
0
4.6 Freedom from arbitrary
interference with privacy is
effectively guaranteed
Score 6.2
4.2 The right to life and security
of the person is effectively
guaranteed
4.3 Due process of law and
rights of the accused
4.4 Freedom of opinion and
expression is effectively
guaranteed
4.5 Freedom of belief and
religion is effectively
guaranteed
Racism and health (stress metabolic
immune systems)
(Williams 1997)
Embodiment and determinants of health
Need to avoid stigmatizing risk discourses
Intergenerational loop, perpetuating poor health (social epigenetics)
(Krieger 2011)
(Lupton 1995)
The Public Health Genomics Enterprise (Bellagio Model)
Source: Bellagio Statement. Genome-based Research and Population Health, Report of the expert workshop
held at the Rockefeller Foundation Study and Conference Center, Bellagio, Italy, 14-20 April 2005
SOCIETY
Communication and Stakeholder Engagement
Knowledge
Generation
Population
Sciences
Genomebased Science
and
Technology
Humanities
and Social
Sciences
Informing Public Policy
Knowledge
Integration
Within And
Across
Disciplines
Policy Development
Assessment
Assurance
Developing and Evaluating
Health services
Education and Training
RESEARCH
Improvement
in Population
Health
• Aim 1:
– Social readiness preparation for study
implementation
• Aim 2:
– Develop survey, recruitment plan, study
implementation
• Aim 3: Biological samples
– Blood and/or saliva and buccal swabs
• Aim 4:
– Stewardship & biobanking model
• SOPs
• Analysis/authorship process
• Respectful approaches to
knowledge mobiliation
Translating to the Community: A Social Epigenetic Cohort Study of FASD
Father
N=100
FASD
Outcome
• Age
• Sex
• Ethnicity
• Region
• Age specific questions
related to:
• Education
• Justice or Social Service
engagement
• Mental health conditions
• Physical health
• Trauma histories
• Risk Behaviors (drinking,
smoking, drug use,
substance use)
• Social Behaviors
• Sleep patterns
• Nutrition
N=100
• Both Maternal
(Mo)/Paternal (Fa)
• Age
• Sex
• Ethnicity
• Region
• Socioeconomic
• Justice engagement
• Mental health conditions
• Physical health
• Trauma histories
• Risk Behaviors (drinking,
smoking, drug use,
substance use, current, past
and during pregnancy for
mother)
• Parenting style
• Nutritional status
• Age
• Sex
• Ethnicity
• Region
• Age specific questions
related to:
• Education
• Justice engagement
• Mental health conditions
• Physical health
• Trauma histories
• Risk Behaviors (drinking,
smoking, drug use,
substance use)
• Social Behaviors
• Sleep patterns
• Nutrition
• Potential Maternal factors
• Gravidity
• Parity
• Body Size
Nmo+fa=100
N=100
Parents of Healthy Child Control
• Education
• Justice or Social Service
engagement
• Mental health conditions
• Physical health
• Trauma histories
• Risk Behaviors (drinking,
smoking, drug use,
substance use)
• Social Behaviors
• Sleep patterns
• Nutrition
Alcohol in
Pregnancy
Healthy Child Control
• Age specific questions
related to:
Child
Child
Parents of Child with FASD and Sibling
• Age
• Sex
• Ethnicity
• Region
Mother
Mother
Sibling of a Child with FASD
Child with FASD
Social
Biological
Characteristics
• Both Maternal
(Mo)/Paternal (Fa)
• Age
• Sex
• Ethnicity
• Region
• Socioeconomic
• Justice engagement
• Mental health conditions
• Physical health
• Trauma histories
• Risk Behaviors (drinking,
smoking, drug use,
substance use, current,
past, and during pregnancy
for mother)
• Parenting style
• Nutrition
• Potential Maternal factors
• Gravidity
• Parity
• Body Size
Nmo+fa=100
Interdisciplinarity is about
inter-dependencies to
make a difference
FN PTOs
FN
Community
Leaders and
Members
Water Rights
Groups
Consortium
Projects
Multiple
Academic
Disciplines
Funding
Agencies
Students
• Solutions generated in
First Nations space
• Guided by a multitude
of traditions
• Traditions representing
north, south, east and
west
• Goal to advance the
mental, emotional,
physical and spiritual
health of community
members, on and off
reserve.
Hart, Elias, Hall, 2011
Why a prairie NCE for Indigenous Peoples
In honour of the League of Indian Nations in Western Canada
held on the Keeseekoowenin Indian Reserve (Mb), circa 1920