Download informational powerpoint

Survey
yes no Was this document useful for you?
   Thank you for your participation!

* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project

Document related concepts

Hematopoietic stem cell transplantation wikipedia , lookup

Transcript
PINER HIGH SCHOOL BE THE MATCH.
SAVE A LIFE.
COMMUNITY ENGAGEMENT REPRESENTATIVE:
Operated by the National Marrow Donor Program ®
JENNIFER SAWLE
1
Every 3 minutes
someone in the United States is diagnosed with a
blood cancer.
Each hour more than 6 people die
from a blood cancer — that’s nearly
152 people each day.
Operated by the National Marrow Donor Program ®
2
Be The Match® is the world’s leading nonprofit organization focused on
saving lives through marrow and cord blood transplantation
Operated by the National Marrow Donor Program ®
3
200 research
In 2015 alone…
6,400
studies underway
537,000 new potential donors
added to Be The Match
Registry, including
patients received a
marrow transplant
50% with diverse
ancestry
$3.4 million in patient
assistance to 2,000
Operated by the National Marrow Donor Program ®
families
Volunteers donated
131,000 hours, a
value of more than $3 million
4
How does
“the match” happen?
Donors and patients are matched by their human leukocyte antigen (HLA) type.
•
•
•
More complex than matching
blood types
HLA is inherited
70% of patients don’t have a fully
matched donor in their family
The closer the match, the better
the outcome.
Operated by the National Marrow Donor Program ®
5
MYTHS
VS.
FACTS
Operated by the National Marrow Donor Program ®
6
All donations
involve surgery.
MYTH
Operated by the National Marrow Donor Program ®
7
The majority
don’t.
Most are done using a peripheral
blood stem cell (PBSC) donation
procedure. Whichever way you
donate, you’d typically go home the
same day.
Operated by the National Marrow Donor Program ®
FACT
8
There are
two ways to donate.
PBSC
MARROW
(peripheral blood stem cell) donation
donation
Operated by the National Marrow Donor Program ®
9
Transplants by Cell Source
Nearly 6,400 in 2015
Total of 74,000 transplants since 1987
10
Black/African Americans, 71 find a match
… 29 do not
Hispanic/Latino, 83 find a match
… 17 do not
Asian/Pacific Islanders, 80 find a match
… 20 do not
American Indian/Alaska Native, 84 find a match
… 16 do not
We need to
increase
the ethnic
diversity
of the registry.
… 3 do not
Caucasian, 97 find a match
Operated by the National Marrow Donor Program ®
11
Donating is
painful and
involves a long
recovery.
Operated by the National Marrow Donor Program ®
MYTH
12
Some PBSC donors report mild flulike symptoms that vanish within a few
days.
Typically back to normal routine: 1-2 days
Marrow donors can expect to feel
some soreness in their lower back for
one to two weeks afterwards.
Typically back to normal routine: 2-7 days
Operated by the National Marrow Donor Program ®
FACT
13
Donating is
dangerous and
weakens the
donor.
Operated by the National Marrow Donor Program ®
MYTH
14
PBSC and
Marrow donation
are very safe.
Only a fraction of a donor’s marrow is
needed – the immune system stays
strong and cells replace themselves
within a few weeks.
Operated by the National Marrow Donor Program ®
FACT
15
Donating is
expensive and
it’s difficult to
make time for it.
MYTH
Operated by the National Marrow Donor Program ®
16
Donors never pay to
donate.
Out-of-pocket expenses are covered.
Be The Match provides
scheduling support.
Toolkits and other resources are available
to donors as they discuss their time
commitment with employers and educators.
Operated by the National Marrow Donor Program ®
FACT
17
WHO CAN JOIN?
AGE 18 - 44
Operated by the National Marrow Donor Program ®
FULLY
COMMITTED
MEET HEALTH
GUIDELINES
18
HEALTH GUIDELINES
THESE CONDITIONS PREVENT YOU FROM JOINING:
Hepatitis B or C
HIV
Organ, marrow or stem cell transplant recipient
Stroke or TIA (transient ischemic attack)
THESE CONDITIONS REQUIRE FURTHER EVALUATION:
Autoimmune illness
Brain injury or surgery
Blood cancer or disorder
Cancer
Chronic neck, back, hip or spine pain
Diabetes
Heart diseases, a heart attack, or other heart-related issues
Currently taking certain prescribed medications on a regular basis for pain, heart
issues, cancer, and other serious diseases
Operated by the National Marrow Donor Program ®
19
HOW DO I JOIN?
join.bethematch.org
PROMO CODE: PinerHigh
Operated by the National Marrow Donor Program ®
1
SWAB KIT WILL BE
MAILED TO YOU
2
SWAB YOUR
CHEEKS
3
MAIL YOUR
KIT BACK
20
THEN WHAT?
ANSWER THE CALL IF YOU ARE IDENTIFIED AS A
POTENTIAL MATCH
GIVE AN ADDITIONAL CHEEK SWAB OR BLOOD
SAMPLE TO CONFIRM YOU ARE THE BEST MATCH
ATTEND AN INFORMATION SESSION
DONATE THROUGH THE PBSC OR MARROW
METHOD (BASED ON THE DOCTOR’S REQUEST)
RECOVER & RECEIVE FOLLOW-UP SUPPORT
Andrew: donor, student at Clemson University
Operated by the National Marrow Donor Program ®
FEEL GREAT, KNOWING THAT YOU GAVE SOMEONE
A SECOND CHANCE AT LIFE
21
WANT TO GET INVOLVED?
THERE’S MORE WAYS THAN ONE!
Operated by the National Marrow Donor Program ®
22
RAISE
ADVOCATE
VOLUNTEER
bethematch.org/getinvolved
Operated by the National Marrow Donor Program ®
23
VOLUNTEER
bethematchvolunteer.org
HELP AT A LOCAL
EVENT
Operated by the National Marrow Donor Program ®
SERVICE
INTERNSHIPS
24
14,000 PATIENTS ARE
WAITING FOR A MATCH…
Operated by the National Marrow Donor Program ®
25
ADAM
31 YEARS OLD
MYELOFIBROSIS, A RARE BONE MARROW CANCER
DIAGNOSED IN JULY OF 2016
CURRENTLY UNDERGOING CHEMOTHERAPY BUT
DOCTORS SAY HE IS GOING TO NEED A LIFESAVING, BONE MARROW TRANSPLANT.
ADAM IS WAITING FOR HIS MATCH.
Operated by the National Marrow Donor Program ®
26
BUT THERE IS
HOPE.
Dalton: Marrow transplant recipient
Operated by the National Marrow Donor Program ®
MORE THAN 14,000 PATIENTS, EVERY YEAR,
WHO ARE DIAGNOSED WITH LIFETHREATENING BLOOD CANCERS OR OTHER
DISEASES ARE RELYING ON MARROW
TRANSPLANT AS THEIR BEST, AND
SOMETIMES ONLY, HOPE FOR A CURE.
27
PATIENTS DEPEND ON ALL OF US
to
JOIN, GIVE AND VOLUNTEER.
AND TOGETHER, WE ARE
SAVING LIVES.
Operated by the National Marrow Donor Program ®
28
THANK YOU
QUESTIONS?
[email protected]
Operated by the National Marrow Donor Program ®
510.427.9336
29