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PINER HIGH SCHOOL BE THE MATCH. SAVE A LIFE. COMMUNITY ENGAGEMENT REPRESENTATIVE: Operated by the National Marrow Donor Program ® JENNIFER SAWLE 1 Every 3 minutes someone in the United States is diagnosed with a blood cancer. Each hour more than 6 people die from a blood cancer — that’s nearly 152 people each day. Operated by the National Marrow Donor Program ® 2 Be The Match® is the world’s leading nonprofit organization focused on saving lives through marrow and cord blood transplantation Operated by the National Marrow Donor Program ® 3 200 research In 2015 alone… 6,400 studies underway 537,000 new potential donors added to Be The Match Registry, including patients received a marrow transplant 50% with diverse ancestry $3.4 million in patient assistance to 2,000 Operated by the National Marrow Donor Program ® families Volunteers donated 131,000 hours, a value of more than $3 million 4 How does “the match” happen? Donors and patients are matched by their human leukocyte antigen (HLA) type. • • • More complex than matching blood types HLA is inherited 70% of patients don’t have a fully matched donor in their family The closer the match, the better the outcome. Operated by the National Marrow Donor Program ® 5 MYTHS VS. FACTS Operated by the National Marrow Donor Program ® 6 All donations involve surgery. MYTH Operated by the National Marrow Donor Program ® 7 The majority don’t. Most are done using a peripheral blood stem cell (PBSC) donation procedure. Whichever way you donate, you’d typically go home the same day. Operated by the National Marrow Donor Program ® FACT 8 There are two ways to donate. PBSC MARROW (peripheral blood stem cell) donation donation Operated by the National Marrow Donor Program ® 9 Transplants by Cell Source Nearly 6,400 in 2015 Total of 74,000 transplants since 1987 10 Black/African Americans, 71 find a match … 29 do not Hispanic/Latino, 83 find a match … 17 do not Asian/Pacific Islanders, 80 find a match … 20 do not American Indian/Alaska Native, 84 find a match … 16 do not We need to increase the ethnic diversity of the registry. … 3 do not Caucasian, 97 find a match Operated by the National Marrow Donor Program ® 11 Donating is painful and involves a long recovery. Operated by the National Marrow Donor Program ® MYTH 12 Some PBSC donors report mild flulike symptoms that vanish within a few days. Typically back to normal routine: 1-2 days Marrow donors can expect to feel some soreness in their lower back for one to two weeks afterwards. Typically back to normal routine: 2-7 days Operated by the National Marrow Donor Program ® FACT 13 Donating is dangerous and weakens the donor. Operated by the National Marrow Donor Program ® MYTH 14 PBSC and Marrow donation are very safe. Only a fraction of a donor’s marrow is needed – the immune system stays strong and cells replace themselves within a few weeks. Operated by the National Marrow Donor Program ® FACT 15 Donating is expensive and it’s difficult to make time for it. MYTH Operated by the National Marrow Donor Program ® 16 Donors never pay to donate. Out-of-pocket expenses are covered. Be The Match provides scheduling support. Toolkits and other resources are available to donors as they discuss their time commitment with employers and educators. Operated by the National Marrow Donor Program ® FACT 17 WHO CAN JOIN? AGE 18 - 44 Operated by the National Marrow Donor Program ® FULLY COMMITTED MEET HEALTH GUIDELINES 18 HEALTH GUIDELINES THESE CONDITIONS PREVENT YOU FROM JOINING: Hepatitis B or C HIV Organ, marrow or stem cell transplant recipient Stroke or TIA (transient ischemic attack) THESE CONDITIONS REQUIRE FURTHER EVALUATION: Autoimmune illness Brain injury or surgery Blood cancer or disorder Cancer Chronic neck, back, hip or spine pain Diabetes Heart diseases, a heart attack, or other heart-related issues Currently taking certain prescribed medications on a regular basis for pain, heart issues, cancer, and other serious diseases Operated by the National Marrow Donor Program ® 19 HOW DO I JOIN? join.bethematch.org PROMO CODE: PinerHigh Operated by the National Marrow Donor Program ® 1 SWAB KIT WILL BE MAILED TO YOU 2 SWAB YOUR CHEEKS 3 MAIL YOUR KIT BACK 20 THEN WHAT? ANSWER THE CALL IF YOU ARE IDENTIFIED AS A POTENTIAL MATCH GIVE AN ADDITIONAL CHEEK SWAB OR BLOOD SAMPLE TO CONFIRM YOU ARE THE BEST MATCH ATTEND AN INFORMATION SESSION DONATE THROUGH THE PBSC OR MARROW METHOD (BASED ON THE DOCTOR’S REQUEST) RECOVER & RECEIVE FOLLOW-UP SUPPORT Andrew: donor, student at Clemson University Operated by the National Marrow Donor Program ® FEEL GREAT, KNOWING THAT YOU GAVE SOMEONE A SECOND CHANCE AT LIFE 21 WANT TO GET INVOLVED? THERE’S MORE WAYS THAN ONE! Operated by the National Marrow Donor Program ® 22 RAISE ADVOCATE VOLUNTEER bethematch.org/getinvolved Operated by the National Marrow Donor Program ® 23 VOLUNTEER bethematchvolunteer.org HELP AT A LOCAL EVENT Operated by the National Marrow Donor Program ® SERVICE INTERNSHIPS 24 14,000 PATIENTS ARE WAITING FOR A MATCH… Operated by the National Marrow Donor Program ® 25 ADAM 31 YEARS OLD MYELOFIBROSIS, A RARE BONE MARROW CANCER DIAGNOSED IN JULY OF 2016 CURRENTLY UNDERGOING CHEMOTHERAPY BUT DOCTORS SAY HE IS GOING TO NEED A LIFESAVING, BONE MARROW TRANSPLANT. ADAM IS WAITING FOR HIS MATCH. Operated by the National Marrow Donor Program ® 26 BUT THERE IS HOPE. Dalton: Marrow transplant recipient Operated by the National Marrow Donor Program ® MORE THAN 14,000 PATIENTS, EVERY YEAR, WHO ARE DIAGNOSED WITH LIFETHREATENING BLOOD CANCERS OR OTHER DISEASES ARE RELYING ON MARROW TRANSPLANT AS THEIR BEST, AND SOMETIMES ONLY, HOPE FOR A CURE. 27 PATIENTS DEPEND ON ALL OF US to JOIN, GIVE AND VOLUNTEER. AND TOGETHER, WE ARE SAVING LIVES. Operated by the National Marrow Donor Program ® 28 THANK YOU QUESTIONS? [email protected] Operated by the National Marrow Donor Program ® 510.427.9336 29