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Unit 7 Psychosocial, Emotional and Spiritual Needs of A Cancer Patient Module 1:Cultural Diversity Cancer is a family disease no matter what your cultural background. Moreover, cultural diversity effects pre-diagnosis, diagnosis, treatment and survivorship. The American Cancer Society has been instrumental in gathering statistics regarding cultural differences of cancer differences African Americans: • African Americans are more likely to develop and die from the disease • African Americans are more likely to be diagnosed at a later stage than whites • African Americans are more likely to die within the first five years no matter what stage they were diagnosed. • African Americans develop colorectal cancer 17% more than Caucasians and are more likely to die from this disease. This disease is highly treatable with early screening. • African American have a lower incidence of breast cancer than whites but have a higher death rate because of late stage diagnosis. • Hispanics and Latinos have some of the similar statistical variations as compared to whites. • Hispanics have a lower incidence of cancers but often their cancers are related to certain infections as in uterine cervical, liver, gallbladder and stomach cancers. • Breast cancer is the most widespread diagnosis of cancer for women and again usually is diagnosed at a much later stage than in Caucasians. • Liver Cancer is twice as likely in this population, while colorectal cancer is the second highest diagnosed cancer. • 20% of all deaths for Hispanics and Latinos is because of a cancer diagnosis. American Indians and American Natives have similar disparities to whites regarding cancer statistics. • As is true with the Latino culture, cancer is the 2nd leading cause of death over the age of 45 among this group • Lung and colorectal cancers have high incidence rates Breast cancer and cervical cancers are less likely to be diagnosed in earlier stages than Caucasians. Colorectal cancers are diagnosed in later stages also. Asian Americans • Heart disease is the leading cause of death for this group while cancer deaths are least among any other ethnicity. • Different country of origin relates to cancer diagnosis: Colorectal is highest for Chinese Filipino’s have the highest instance for prostate cancer. And finally Vietnamese have higher statistics for cervical cancer. In all of these instances we need to use a psychosocial tool to assess the needs of the patients and their caregivers. Distrust of the medical community Low perceptions of risk/poor education Communication Lack of access in care Linguistic and language barriers Embarassment about specific procedures According to the Centers for Disease Control, there will be a 99% increase of cancer for minorities by the year 2050 and a 31% increase for Non-Hispanic Whites. Smoking Diet Environmental Hazards Traditional Practices Infections These are all related to lifestyle and this appears to cause up to 80% of all cancers. Screening and Early Detection Treatment Survivorship End of Life Care Module 2: Discharge Planning The patient's length of stay should be analyzed before the patient comes to the facility (non-emergency) or at the beginning of the admission process (emergency). Discharge Planning 1) Plan the date and time 2) Plan the discharge before the peak in admissions 3) Plan discharge for 7 days a week 4) Patients discharged based on certain criteria Plan discharge according to their culture and their understanding 1) Educate patient and family 2) Make appointments 3) Tests and results 4) Confirm their medications 5) Communicate with PCP and all physicians 6) Plan with family 7) Telephone reinforcement 8) Organize postcharge services Understanding the patient and the family will give a safe and viable discharge plan. Often discharge planning is not conducive to the patient and the family because of failure to recognize the entire cultural, psychosocial, religious and practical concerns. Module 3: Spiritual Needs Spirituality of any patient has long been recognized as essential in coping with loss, stress and illness. Clara Barton who began the American Red Cross even utilized eastern orthodox texts. JCAHO, The Joint Commission on Accreditation for Health Care Organizations and CARF, The Commission on Accreditation Of Rehabilitation Facilities have required that it is necessary to make arrangements for all patients spiritual needs. “....the human spirit is not easy to define and therefore some insist it is indescribable.” Moya & Brnykczyka Seven Dimensions of Spirituality 1) The need to relate to an Ultimate Other. 2) The need to be positive, to have hope and gratitude. 3) The need to give and receive love 4) The need to review beliefs 5) The need to have meaning 6) The need for religiousity 7) The need to prepare for death Patient Needs Assessment Results Regarding Spirituality Love/belonging/ respect To be accepted as a person To give/receive love To feel a sense of connection with the world For companionship For compassion and kindness For respectful care of your bodily needs Divine To participate in religious or spiritual services To have someone pray with or for you To perform religious or spiritual rituals To read spiritual or religious material For guidance from a higher power Positivity/gratitude/ hope/peace To feel hopeful To feel a sense of peace and contentment To keep a positive outlook To have a quiet space to meditate or reflect To be thankful or grateful To experience laughter and a sense of humor Meaning and purpose To find meaning in suffering To find meaning and purpose in life To understand why you have a medical problem Morality and ethics To live an ethical and moral life Appreciation of beauty To experience or appreciate beauty To experience or appreciate music To experience or appreciate nature Resolution/death To address unmet issues before death To address concerns about life after death To have a deeper understanding of death and dying To forgive yourself and others To review your life