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Submitting Anonymous and Sensitive Records to SUS v2.0 Submitting Anonymous and Sensitive Records to SUS This Document This document describes the processes that data senders must follow when submitting CDS data to SUS via XML, and the built-in ‘safety-net’ features that are incorporated as part of SUS processing. The information provided should be used in conjunction with the guidance provided on the NHS Data Dictionary. www.datadictionary.nhs.uk 1 CDS XML Submission On submission of records of sensitive treatments or conditions, or where a patient has submitted a withdrawal of consent request, personal confidential data items should not flow into SUS via the CDS. Under these circumstances, providers must anonymise the record by removing the following personal confidential data items from the CDS before sending data to SUS. NHS Number (and/or Patient Name and Address if also present within the record) Local Patient Identifier Date of Birth Postcode Note: Any patient withdrawing consent must have their identity verified by the provider in line with the Data Protection Act 1998 and local information governance policy. It may be appropriate for this to be managed by the information governance department where applicable. NHS Number Status Indicator Organisations sending anonymised records must populate NHS Number Status Indicator of these records with the value 07 (NHS number not present and trace not required). 1 Withheld Identity Reason Organisations sending anonymised records are also advised to populate Withheld Identity Reason of these records with the appropriate value. 2 SUS Processing SUS incorporates pseudonymisation and anonymisation processing of records containing sensitive diagnosis and procedure codes. A list of the Confidentiality Category PbR and SEM (Standard Extract Mart) data records extracted from SUS include the ‘Confidentiality Category’ derived data item which is applied as follows. [blank] Not marked as confidential 2 Extremely sensitive All personal confidential data items will be NULL 3 Sensitive If personal confidential data is supplied by provider it is pseudonymised by SUS. 4 Other sensitive All personal confidential data will be set to NULL by SUS. Records where additional SUS processing has been applied can be identified in PbR or SEM using Confidentiality Category of 2, 3 or 4. These records are also assigned an NHS Number Status of 91 which indicates that SUS has anonymised or pseudonymised the data. Records with a Confidentiality Category of 3 will contain pseudonymised values. Users should refer to the SUS PbR Extract Specification for details of the format of pseudonymised values. The following data items will be either anonymised or pseudonymised for these records: Copyright © 2014, Health and Social Care Information Centre. All rights reserved. Submitting Anonymous and Sensitive Records to SUS v2.0 NHS Number Local Patient ID ALL VGP (very general purpose) fields Name Patient Usual Address Postcode of Usual Address Date of Birth Hospital Spell Number Local CCMDS ID Mothers details (on birth CDS): Local Patient ID (Mother) NHS Number (Mother) Birth Date (Mother) Patient Usual Address (Mother) Postcode of Usual Address (Mother) Babies details (for all babies on delivery CDS): Local Patient ID (Baby) NHS Number (Baby) Birth Date (Baby) Patient Pathway Identifier UBRN Converted Handling of Sensitive Records in SUS PbR The PbR algorithm for spell construction relies on the ability to join records using patient identifiable criteria such as NHS Number or Hospital Provider Spell Number. Where some or all episodes from a multi episode spell are anonymised (i.e. sensitive) the episodes cannot be constructed into spells with either the anonymous or the clear records. APC episodes with sensitive conditions are treated as single episode spells which means that each episode will be assigned its own spell HRG and tariff if they are not excluded from PbR. As with other single episode spells these will appear in both the PbR Spells and Episode extracts and will have the same PbR Spell ID in both. 2 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. Submitting Anonymous and Sensitive Records to SUS v2.0 Confidentiality Category 2 (Extremely Sensitive) Code OPCS N341 N342 N343 N344 N345 N346 Q131 Q132 Q133 Description Classification of Interventions and Procedures Fertility investigation of male NEC Collection of sperm NEC Male colposcopy Microsurgical epididymal sperm aspiration Percutaneous epididymal sperm aspiration Testicular sperm extraction Transfer of embryo to uterus NEC Intracervical artificial insemination Intrauterine artificial insemination Q134 Description Y963 In vitro fertilisation with intracytoplasmic sperm injection Y964 In vitro fertilisation with intracytoplasmic sperm injection and donor egg Y965 In vitro fertilisation with pre-implantation for genetic diagnosis Y966 Y968 Y969 ICD10 In vitro fertilisation with surrogacy Other specified in vitro fertilisation Unspecified in vitro fertilisation International Classification of Disease B20 Human immunodeficiency virus [HIV] disease resulting in infectious and parasitic diseases Intrauterine insemination with superovulation using partner sperm B200 HIV disease resulting in mycobacterial infection Q135 Intrauterine insemination with superovulation using donor sperm B201 HIV disease resulting in other bacterial infections Q136 Intrauterine insemination without superovulation using partner sperm B202 HIV disease resulting in cytomegaloviral disease Q137 Intrauterine insemination without superovulation using donor sperm B203 B204 B205 HIV disease resulting in other viral infections HIV disease resulting in candidiasis HIV disease resulting in other mycoses Q138 Other specified introduction of gamete into uterine cavity B206 HIV disease resulting in Pneumocystis jirovecii pneumonia Q139 Unspecified introduction of gamete into uterine cavity B207 HIV disease resulting in multiple infections Q211 Transmyometrial transfer of embryo to uterus B208 HIV disease resulting in other infectious and parasitic diseases Q218 Other specified other introduction of gamete into uterine cavity B209 HIV disease resulting in unspecified infectious or parasitic disease Q219 Unspecified other introduction of gamete into uterine cavity B21 Human immunodeficiency virus [HIV] disease resulting in malignant neoplasms Q382 Q383 Q48 Endoscopic injection into fallopian tube Endoscopic intrafallopian transfer of gamete Oocyte recovery B210 B211 HIV disease resulting in Kaposi sarcoma HIV disease resulting in Burkitt lymphoma Q481 Endoscopic transurethral ultrasound directed oocyte recovery B212 HIV disease resulting in other types of nonHodgkin lymphoma B213 HIV disease resulting in other malignant neoplasms of lymphoid, haematopoietic and related tissue B217 HIV disease resulting in multiple malignant neoplasms B218 HIV disease resulting in other malignant neoplasms B219 HIV disease resulting in unspecified malignant neoplasm B22 Human immunodeficiency virus [HIV] disease resulting in other specified diseases B220 HIV disease resulting in encephalopathy B221 HIV disease resulting in lymphoid interstitial pneumonitis B222 HIV disease resulting in wasting syndrome B227 HIV disease resulting in multiple diseases classified elsewhere B23 Human immunodeficiency virus [HIV] disease resulting in other conditions B230 Acute HIV infection syndrome Q482 Q483 Q484 Q488 Q489 Q561 Q562 U321 X866 X15 X151 X152 X154 X158 X159 Y961 Y962 3 Code Endoscopic transvesical oocyte recovery Laparoscopic oocyte recovery Transvaginal oocyte recovery Other specified oocyte recovery Unspecified oocyte recovery Fertility investigation of female NEC Fertiloscopy Human Immunodeficiency Virus blood test Antiretroviral drugs Band 1 Operations for sexual transformation Combined operations for transformation from male to female Combined operations for transformation from female to male Construction of scrotum Other specified operations for sexual transformation Unspecified operations for sexual transformation In vitro fertilisation with donor sperm In vitro fertilisation with donor eggs Copyright © 2014, Health and Social Care Information Centre. All rights reserved. Submitting Anonymous and Sensitive Records to SUS v2.0 Code Code B231 HIV disease resulting in (persistent) generalized lymphadenopathy B232 HIV disease resulting in haematological and immunological abnormalities, not elsewhere classified B238 HIV disease resulting in other specified conditions B24X F64 F640 F641 F642 F648 F649 F651 F656 F66 F660 F661 F662 F668 F669 N46X N97 N970 N971 N972 N973 N974 N978 N979 N98 4 Description Unspecified human immunodeficiency virus [HIV] disease Gender identity disorders Transsexualism Dual-role transvestism Gender identity disorder of childhood Other gender identity disorders Gender identity disorder, unspecified Fetishistic transvestism Multiple disorders of sexual preference Psychological and behavioural disorders associated with sexual development and orientation Sexual maturation disorder Egodystonic sexual orientation Sexual relationship disorder Other psychosexual development disorders Psychosexual development disorder, unspecified Male infertility Female infertility Female infertility associated with anovulation Female infertility of tubal origin Female infertility of uterine origin Female infertility of cervical origin Female infertility associated with male factors Female infertility of other origin Female infertility, unspecified Description procreation Z318 Z319 Other procreative management Procreative management, unspecified Z350 Supervision of pregnancy with history of infertility Z717 Human immunodeficiency virus [HIV] counselling Z830 Family history of human immunodeficiency virus [HIV] disease Key Introduced 04 April 2016 Complications associated with artificial fertilization O987 Human immunodeficiency [HIV] disease complicating pregnancy, childbirth and the puerperium R75X Laboratory evidence of human immunodeficiency virus [HIV] Z114 Special screening examination for human immunodeficiency virus [HIV] Z206 Contact with and exposure to human immunodeficiency virus [HIV] Z21X Asymptomatic human immunodeficiency virus [HIV] infection status Z31 Procreative management Z310 Tuboplasty or vasoplasty after previous sterilization Z311 Z312 Z313 Z314 Z315 Z316 Artificial insemination In vitro fertilization Other assisted fertilization methods Procreative investigation and testing Genetic counselling General counselling and advice on Copyright © 2014, Health and Social Care Information Centre. All rights reserved. Submitting Anonymous and Sensitive Records to SUS v2.0 Confidentiality Category 3 Code Description (Sensitive) A560 Chlamydial infection of lower genitourinary tract A561 Chlamydial infection of pelviperitoneum and other genitourinary organs A562 Chlamydial infection of genitourinary tract, unspecified A563 A564 Chlamydial infection of anus and rectum Chlamydial infection of pharynx A568 Sexually transmitted chlamydial infection of other sites A57X A58X A59 Chancroid Granuloma inguinale Trichomoniasis Code ICD10 A50 A500 A501 A502 A503 International Classification of Disease Congenital syphilis Early congenital syphilis, symptomatic Early congenital syphilis, latent Early congenital syphilis, unspecified Late congenital syphilitic oculopathy A504 Late congenital neurosyphilis [juvenile neurosyphilis] A505 A506 A507 A509 A51 A510 A511 A512 Other late congenital syphilis, symptomatic Late congenital syphilis, latent Late congenital syphilis, unspecified Congenital syphilis, unspecified Early syphilis Primary genital syphilis Primary anal syphilis Primary syphilis of other sites A513 Secondary syphilis of skin and mucous membranes A514 A515 A519 A52 A520 A521 A522 A523 A527 A528 A529 A53 A530 A539 A54 Other secondary syphilis Early syphilis, latent Early syphilis, unspecified Late syphilis Cardiovascular syphilis Symptomatic neurosyphilis Asymptomatic neurosyphilis Neurosyphilis, unspecified Other symptomatic late syphilis Late syphilis, latent Late syphilis, unspecified Other and unspecified syphilis Latent syphilis, unspecified as early or late Syphilis, unspecified Gonococcal infection A540 Gonococcal infection of lower genitourinary tract without periurethral or accessory gland abscess A60 Anogenital herpesviral [herpes simplex] infection A600 Herpesviral infection of genitalia and urogenital tract A601 Herpesviral infection of perianal skin and rectum A609 Anogenital herpesviral infection, unspecified A63 Other predominantly sexually transmitted diseases, not elsewhere classified A630 Anogenital (venereal) warts A638 Other specified predominantly sexually transmitted diseases A64X A65X A740 A749 B171 Unspecified sexually transmitted disease Nonvenereal syphilis Chlamydial conjunctivitis Chlamydial infection, unspecified Acute hepatitis C O981 Syphilis complicating pregnancy, childbirth and the puerperium O982 Gonorrhoea complicating pregnancy, childbirth and the puerperium O983 Other infections with a predominantly sexual mode of transmission complicating pregnancy, childbirth R762 False-positive serological test for syphilis Z113 Gonococcal infection of lower genitourinary tract with periurethral and accessory gland abscess Special screening examination for infections with a predominantly sexual mode of transmission Z202 Contact with and exposure to infections with a predominantly sexual mode of transmission A542 Gonococcal pelviperitonitis and other gonococcal genitourinary infections Z224 Carrier of infections with a predominantly sexual mode of transmission A543 Gonococcal infection of eye A544 Gonococcal infection of musculoskeletal system A545 A546 A548 A549 A55X Gonococcal pharyngitis Gonococcal infection of anus and rectum Other gonococcal infections Gonococcal infection, unspecified Chlamydial lymphogranuloma (venereum) A541 A56 5 Description Other sexually transmitted chlamydial diseases Copyright © 2014, Health and Social Care Information Centre. All rights reserved.