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Transcript
Submitting Anonymous and Sensitive Records to SUS v2.0
Submitting Anonymous
and Sensitive Records
to SUS
This Document
This document describes the processes
that data senders must follow when
submitting CDS data to SUS via XML, and
the built-in ‘safety-net’ features that are
incorporated as part of SUS processing.
The information provided should be used in
conjunction with the guidance provided on
the NHS Data Dictionary.
www.datadictionary.nhs.uk
1 CDS XML Submission
On submission of records of sensitive
treatments or conditions, or where a
patient has submitted a withdrawal of
consent request, personal confidential data
items should not flow into SUS via the CDS.
Under these circumstances, providers must
anonymise the record by removing the
following personal confidential data items
from the CDS before sending data to SUS.
 NHS Number (and/or Patient Name and
Address if also present within the record)
 Local Patient Identifier
 Date of Birth
 Postcode
Note: Any patient withdrawing consent must
have their identity verified by the provider in
line with the Data Protection Act 1998 and
local information governance policy. It may
be appropriate for this to be managed by
the information governance department
where applicable.
NHS Number Status Indicator
Organisations sending anonymised records
must populate NHS Number Status
Indicator of these records with the value 07
(NHS number not present and trace not
required).
1
Withheld Identity Reason
Organisations sending anonymised records
are also advised to populate Withheld
Identity Reason of these records with the
appropriate value.
2 SUS Processing
SUS incorporates pseudonymisation and
anonymisation processing of records
containing sensitive diagnosis and
procedure codes. A list of the
Confidentiality Category
PbR and SEM (Standard Extract Mart) data
records extracted from SUS include the
‘Confidentiality Category’ derived data item
which is applied as follows.
[blank]
Not marked as confidential
2 Extremely sensitive
All personal confidential data items will be
NULL
3 Sensitive
If personal confidential data is supplied by
provider it is pseudonymised by SUS.
4 Other sensitive
All personal confidential data will be set to
NULL by SUS.
Records where additional SUS processing
has been applied can be identified in PbR or
SEM using Confidentiality Category of 2, 3
or 4.
These records are also assigned an NHS
Number Status of 91 which indicates that
SUS has anonymised or pseudonymised the
data.
Records with a Confidentiality Category of
3 will contain pseudonymised values. Users
should refer to the SUS PbR Extract
Specification for details of the format of
pseudonymised values.
The following data items will be either
anonymised or pseudonymised for these
records:
Copyright © 2014, Health and Social Care Information Centre. All rights reserved.
Submitting Anonymous and Sensitive Records to SUS v2.0










NHS Number
Local Patient ID
ALL VGP (very general purpose) fields
Name
Patient Usual Address
Postcode of Usual Address
Date of Birth
Hospital Spell Number
Local CCMDS ID
Mothers details (on birth CDS):
Local Patient ID (Mother)
NHS Number (Mother)
Birth Date (Mother)
Patient Usual Address
(Mother)
Postcode of Usual Address
(Mother)
 Babies details (for all babies on
delivery CDS):
Local Patient ID (Baby)
NHS Number (Baby) Birth Date
(Baby)
 Patient Pathway Identifier
 UBRN Converted
Handling of Sensitive Records in SUS
PbR
The PbR algorithm for spell construction
relies on the ability to join records using
patient identifiable criteria such as NHS
Number or Hospital Provider Spell
Number. Where some or all episodes from a
multi episode spell are anonymised (i.e.
sensitive) the episodes cannot be constructed
into spells with either the anonymous or the
clear records.
APC episodes with sensitive conditions are
treated as single episode spells which means
that each episode will be assigned its own
spell HRG and tariff if they are not excluded
from PbR.
As with other single episode spells these will
appear in both the PbR Spells and Episode
extracts and will have the same PbR Spell ID
in both.
2
Copyright © 2014, Health and Social Care Information Centre. All rights reserved.
Submitting Anonymous and Sensitive Records to SUS v2.0
Confidentiality Category 2
(Extremely Sensitive)
Code
OPCS
N341
N342
N343
N344
N345
N346
Q131
Q132
Q133
Description
Classification of Interventions and Procedures
Fertility investigation of male NEC
Collection of sperm NEC
Male colposcopy
Microsurgical epididymal sperm aspiration
Percutaneous epididymal sperm aspiration
Testicular sperm extraction
Transfer of embryo to uterus NEC
Intracervical artificial insemination
Intrauterine artificial insemination
Q134
Description
Y963
In vitro fertilisation with intracytoplasmic
sperm injection
Y964
In vitro fertilisation with intracytoplasmic
sperm injection and donor egg
Y965
In vitro fertilisation with pre-implantation for
genetic diagnosis
Y966
Y968
Y969
ICD10
In vitro fertilisation with surrogacy
Other specified in vitro fertilisation
Unspecified in vitro fertilisation
International Classification of Disease
B20
Human immunodeficiency virus [HIV] disease
resulting in infectious and parasitic diseases
Intrauterine insemination with superovulation
using partner sperm
B200
HIV disease resulting in mycobacterial
infection
Q135
Intrauterine insemination with superovulation
using donor sperm
B201
HIV disease resulting in other bacterial
infections
Q136
Intrauterine insemination without
superovulation using partner sperm
B202
HIV disease resulting in cytomegaloviral
disease
Q137
Intrauterine insemination without
superovulation using donor sperm
B203
B204
B205
HIV disease resulting in other viral infections
HIV disease resulting in candidiasis
HIV disease resulting in other mycoses
Q138
Other specified introduction of gamete into
uterine cavity
B206
HIV disease resulting in Pneumocystis
jirovecii pneumonia
Q139
Unspecified introduction of gamete into
uterine cavity
B207
HIV disease resulting in multiple infections
Q211
Transmyometrial transfer of embryo to uterus
B208
HIV disease resulting in other infectious and
parasitic diseases
Q218
Other specified other introduction of gamete
into uterine cavity
B209
HIV disease resulting in unspecified infectious
or parasitic disease
Q219
Unspecified other introduction of gamete into
uterine cavity
B21
Human immunodeficiency virus [HIV] disease
resulting in malignant neoplasms
Q382
Q383
Q48
Endoscopic injection into fallopian tube
Endoscopic intrafallopian transfer of gamete
Oocyte recovery
B210
B211
HIV disease resulting in Kaposi sarcoma
HIV disease resulting in Burkitt lymphoma
Q481
Endoscopic transurethral ultrasound directed
oocyte recovery
B212
HIV disease resulting in other types of nonHodgkin lymphoma
B213
HIV disease resulting in other malignant
neoplasms of lymphoid, haematopoietic and
related tissue
B217
HIV disease resulting in multiple malignant
neoplasms
B218
HIV disease resulting in other malignant
neoplasms
B219
HIV disease resulting in unspecified malignant
neoplasm
B22
Human immunodeficiency virus [HIV] disease
resulting in other specified diseases
B220
HIV disease resulting in encephalopathy
B221
HIV disease resulting in lymphoid interstitial
pneumonitis
B222
HIV disease resulting in wasting syndrome
B227
HIV disease resulting in multiple diseases
classified elsewhere
B23
Human immunodeficiency virus [HIV] disease
resulting in other conditions
B230
Acute HIV infection syndrome
Q482
Q483
Q484
Q488
Q489
Q561
Q562
U321
X866
X15
X151
X152
X154
X158
X159
Y961
Y962
3
Code
Endoscopic transvesical oocyte recovery
Laparoscopic oocyte recovery
Transvaginal oocyte recovery
Other specified oocyte recovery
Unspecified oocyte recovery
Fertility investigation of female NEC
Fertiloscopy
Human Immunodeficiency Virus blood test
Antiretroviral drugs Band 1
Operations for sexual transformation
Combined operations for transformation from
male to female
Combined operations for transformation from
female to male
Construction of scrotum
Other specified operations for sexual
transformation
Unspecified operations for sexual
transformation
In vitro fertilisation with donor sperm
In vitro fertilisation with donor eggs
Copyright © 2014, Health and Social Care Information Centre. All rights reserved.
Submitting Anonymous and Sensitive Records to SUS v2.0
Code
Code
B231
HIV disease resulting in (persistent)
generalized lymphadenopathy
B232
HIV disease resulting in haematological and
immunological abnormalities, not elsewhere
classified
B238
HIV disease resulting in other specified
conditions
B24X
F64
F640
F641
F642
F648
F649
F651
F656
F66
F660
F661
F662
F668
F669
N46X
N97
N970
N971
N972
N973
N974
N978
N979
N98
4
Description
Unspecified human immunodeficiency virus
[HIV] disease
Gender identity disorders
Transsexualism
Dual-role transvestism
Gender identity disorder of childhood
Other gender identity disorders
Gender identity disorder, unspecified
Fetishistic transvestism
Multiple disorders of sexual preference
Psychological and behavioural disorders
associated with sexual development and
orientation
Sexual maturation disorder
Egodystonic sexual orientation
Sexual relationship disorder
Other psychosexual development disorders
Psychosexual development disorder,
unspecified
Male infertility
Female infertility
Female infertility associated with anovulation
Female infertility of tubal origin
Female infertility of uterine origin
Female infertility of cervical origin
Female infertility associated with male factors
Female infertility of other origin
Female infertility, unspecified
Description
procreation
Z318
Z319
Other procreative management
Procreative management, unspecified
Z350
Supervision of pregnancy with history of
infertility
Z717
Human immunodeficiency virus [HIV]
counselling
Z830
Family history of human immunodeficiency
virus [HIV] disease
Key
Introduced 04 April 2016
Complications associated with artificial
fertilization
O987
Human immunodeficiency [HIV] disease
complicating pregnancy, childbirth and the
puerperium
R75X
Laboratory evidence of human
immunodeficiency virus [HIV]
Z114
Special screening examination for human
immunodeficiency virus [HIV]
Z206
Contact with and exposure to human
immunodeficiency virus [HIV]
Z21X
Asymptomatic human immunodeficiency virus
[HIV] infection status
Z31
Procreative management
Z310
Tuboplasty or vasoplasty after previous
sterilization
Z311
Z312
Z313
Z314
Z315
Z316
Artificial insemination
In vitro fertilization
Other assisted fertilization methods
Procreative investigation and testing
Genetic counselling
General counselling and advice on
Copyright © 2014, Health and Social Care Information Centre. All rights reserved.
Submitting Anonymous and Sensitive Records to SUS v2.0
Confidentiality Category 3
Code
Description
(Sensitive)
A560
Chlamydial infection of lower genitourinary
tract
A561
Chlamydial infection of pelviperitoneum and
other genitourinary organs
A562
Chlamydial infection of genitourinary tract,
unspecified
A563
A564
Chlamydial infection of anus and rectum
Chlamydial infection of pharynx
A568
Sexually transmitted chlamydial infection of
other sites
A57X
A58X
A59
Chancroid
Granuloma inguinale
Trichomoniasis
Code
ICD10
A50
A500
A501
A502
A503
International Classification of Disease
Congenital syphilis
Early congenital syphilis, symptomatic
Early congenital syphilis, latent
Early congenital syphilis, unspecified
Late congenital syphilitic oculopathy
A504
Late congenital neurosyphilis [juvenile
neurosyphilis]
A505
A506
A507
A509
A51
A510
A511
A512
Other late congenital syphilis, symptomatic
Late congenital syphilis, latent
Late congenital syphilis, unspecified
Congenital syphilis, unspecified
Early syphilis
Primary genital syphilis
Primary anal syphilis
Primary syphilis of other sites
A513
Secondary syphilis of skin and mucous
membranes
A514
A515
A519
A52
A520
A521
A522
A523
A527
A528
A529
A53
A530
A539
A54
Other secondary syphilis
Early syphilis, latent
Early syphilis, unspecified
Late syphilis
Cardiovascular syphilis
Symptomatic neurosyphilis
Asymptomatic neurosyphilis
Neurosyphilis, unspecified
Other symptomatic late syphilis
Late syphilis, latent
Late syphilis, unspecified
Other and unspecified syphilis
Latent syphilis, unspecified as early or late
Syphilis, unspecified
Gonococcal infection
A540
Gonococcal infection of lower genitourinary
tract without periurethral or accessory gland
abscess
A60
Anogenital herpesviral [herpes simplex]
infection
A600
Herpesviral infection of genitalia and urogenital
tract
A601
Herpesviral infection of perianal skin and
rectum
A609
Anogenital herpesviral infection, unspecified
A63
Other predominantly sexually transmitted
diseases, not elsewhere classified
A630
Anogenital (venereal) warts
A638
Other specified predominantly sexually
transmitted diseases
A64X
A65X
A740
A749
B171
Unspecified sexually transmitted disease
Nonvenereal syphilis
Chlamydial conjunctivitis
Chlamydial infection, unspecified
Acute hepatitis C
O981
Syphilis complicating pregnancy, childbirth and
the puerperium
O982
Gonorrhoea complicating pregnancy, childbirth
and the puerperium
O983
Other infections with a predominantly sexual
mode of transmission complicating pregnancy,
childbirth
R762
False-positive serological test for syphilis
Z113
Gonococcal infection of lower genitourinary
tract with periurethral and accessory gland
abscess
Special screening examination for infections
with a predominantly sexual mode of
transmission
Z202
Contact with and exposure to infections with a
predominantly sexual mode of transmission
A542
Gonococcal pelviperitonitis and other
gonococcal genitourinary infections
Z224
Carrier of infections with a predominantly
sexual mode of transmission
A543
Gonococcal infection of eye
A544
Gonococcal infection of musculoskeletal
system
A545
A546
A548
A549
A55X
Gonococcal pharyngitis
Gonococcal infection of anus and rectum
Other gonococcal infections
Gonococcal infection, unspecified
Chlamydial lymphogranuloma (venereum)
A541
A56
5
Description
Other sexually transmitted chlamydial diseases
Copyright © 2014, Health and Social Care Information Centre. All rights reserved.