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Disabled Fathers: Identifying Research, Policy and Practice Agendas Workshop University of Hull, 22nd February 2007 BreakAway Group Feedback Group 1 Facilitated by Simon Unsworth A number of points were made around the way in which assumptions are made when considering disabled fathers and their families: Is “carer” or “young carer” automatically a negative position? “Caring” can be a positive thing if supported properly. However, organisations/individuals need to be clear that they should never impose or enforce the label ‘carer’ on someone. “Disability” does not mean that everything is negative – disabled fathers can provide as much stability, support, learning and participating environments, etc, for their children, they may simply have to do things in different ways from their able-bodied counterparts Work needs to be carried out with professionals to see what assumptions they are making about disabled fathers and how these assumptions are affecting their working methods/attitudes/decisions, etc. These assumptions should then be challenged through professional education and undergraduate training courses. There needs to be a clear understanding that “disabled” does not necessarily mean “service user” – if research concentrates on “service users”, a large number of disabled people’s opinions and knowledge will be missed. For disabled fathers, being a ‘service user’ may be seen as a weakness, and they may therefore end up not admitting to a disability (because of the implied assumption that they are also a service user) or not asking for help (i.e. becoming a service user) in case they are seen as less masculine or capable “Parenting” does not necessarily equal “mothering” Just because a disabled person is employed, it does not mean that they do not require help. Disabled fathers can and will have a range of positive impacts on their children’s lives, including: Children of disabled fathers may learn earlier about things like responsibility, interdependence, etc The following were identified as areas that require further work/research: More understanding about what’s important to disabled fathers and their families. Ways need to be identified and put into practice of engaging with disabled fathers at every stage of setting the research agenda, carrying out the research, assessing the result and drawing conclusions, etc. Further work needs to be carried out to identify the factors that are involved in negotiating childcare within dual parenting relationships, and where ‘disability/impairment’ fits in this i.e. do disabled fathers consider their position weakened or otherwise altered because of their disability. The following points were made regarding research methodology: The research needs to ensure that disabled fathers undertaking all fathering roles are included, not just the traditional ones of biological and/or social. This may include foster fathers, adoptive fathers, stepfathers, etc. Men, and especially disabled fathers themselves, need to be central in the research as researchers/interviewers as well as participants. Disabled fathers participating in research should be given a choice of who they speak to when being interviewed to ensure they are as comfortable as possible and therefore more prepared to speak honestly and openly. Some general points were made around areas that require improvement and/or development: More information aimed at fathers is required at all stages of contact with health/social care organisations, for example, information at first contact may be around the effect of a particular condition on a man’s ability to become a father or the effects on his ability to parent. This information should be up to date, available in a range of appropriate formats and revisited at various points with the father to ensure that he has what he needs. Cultural representations of disabled fathers need to be challenged as they are currently rare and then overwhelmingly negative. Disability should be taught within all undergraduate and professional training course, and the focus of this should be to emphasis the equality and diversity aspects of impairment rather than simply the negative/biological aspects (i.e. not simply treated as an abnormality). Companies should ensure that their employment policies are ‘joined-up’ – currently, disabled fathers may be wary of accessing a firm’s Disability support policy as well as its fatherhood policy for fear of being seen as difficult or unable to satisfactorily do the job.