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11/24/2013 Rita C.Voth, LMSW Shiloh Jiwanlal CNS, APRN Describe the road for the aggressive and assaultive behaviors. Identify approaches to manage aggressive tendencies. Identify the Caregivers’ grief reconciliation in managing aggressive behaviors. 1 Brain Function vs. Malfunction Types of Dementia Frontotemporal Vascular Lewy Body Alzheimers 2 Chronic slow brain death Dementia is Dementia 3 Early-law of encoding Unable to form new memories Disorientation in an unfamiliar environment Disorientation of time Same questions repeated Loses track of conversations Less able to learn new things Easily loses things Unable to recall people whom they have recently met Appointments are quickly forgotten Experiences anxiety and stress 4 5 Delirium Depression Dementia 6 1 11/24/2013 Sleep Disturbance- Bright Light therapy Sexual Behaviors: Assess patient’s awareness Delusional mistaken identity Capacity to say no Aware of risk Inappropriate: form, context, frequency, contributing factors, problem for whom Participants competent? ABC- method Mid stage- Law of Roll-Back memory Early childhood remains Loss of daily skills such as using kitchen appliances Memory loss of events most recent such as last holiday Decreased vocabulary and inability to find words Inability to recognize relatives, family Flashbacks Self care skills Change in personality Believe they are younger 7 8 Male vs. Female Naming aggression Pain, UTI, Dental, Pneumonia All behavior has meaning A verbal or physical act of an explicit or perceived sexual nature, which is unacceptable within the social context in which it is carried out.- Stubbs, B. Sex talk, sexual acts, implied sexual acts Indecent exposure in public places Obscene sex language, public masturbation, touching others breasts or genitals, inappropriate propositions to others 9 Lack of usual sexual partner- skin hunger Lack of privacy Under stimulating environment Misinterpretation of cues Unfamiliar environments Premorbid patterns Alcohol and benzo – disinhibit L-dopa can cause hyper sexuality in people with Parkinson's 11 10 Men vs. Women Physical vs. Verbal Recruit compensatory network 12 2 11/24/2013 ABC Activity focused care Repeat, Reassure, Redirect Correct sensory impairment Simplify Structure Multiple cueing Repetition Guiding and demonstration Relaxation Techniques/breathing exercises Distraction techniques/soft ball, teddy, dolls Reminiscence Needs-led therapy Snozelen therapy- cranial nerve therapy: music, tactile Social skills Consistency Light therapy- Circadian rhythm 13 14 Bean bag juggling Washing Clothes- washboards MAKS- German (Graessel E, 2011) Motor stimulation, practicing activities of daily living Cognitive stimulation (K-Kognitiv) Spiritual element Culture Age Gender Space Time 15 Reinforcement Reducing choices Optimal stimulation Determine and use over-learned skills Avoid new learning Minimize anxiety Using redirection Patient’s present level of functioning Minimize danger through environment change Value what is here and now and not what has been lost 17 16 Life Story Premorbid personality 18 3 11/24/2013 Medical Evaluation Head to Toe Dental Records- DPOA; Living Will; Code Status Life inventory- Personality/ interests/habits The person with dementia, significant caregivers and family members are a resource when gathering information for the initial assessment and the on-going evaluation of care needs. Environmental Assessment Visual sweep Color response Windows/curtains Favorite piece of furniture Favorite personal item Label directions Music type response 19 Room over stimulation vs. under stimulation Mobility, activity, needs Staff contact: trigger positive/negative Mirrors/ clocks Room temperature Time line for activity completion Food type/enjoyment- Progressive Dinner 20 Sense of self Where you begin Where she/he ends When to stop- Markers 21 Acceptance Care giving Promises made Looking back 22 23 Emotional reconciliation Readily available in home guidance Grief Process Changing role Loss of support Emotional Supportive groups Problem Focused groups Combined group with structured time boundaries 24 4 11/24/2013 Person’s happiness Comfort Security Quality of life 25 Dodd, K Psychological and other non-pharmacological interventions in services for people with learning disabilities and dementia Advances in Mental Health and Learning Disabilities vol.4 issue 1, March 2010 pages 28-35 O’Neil et. A Systematic Evidence Review of Non-pharmacological Interventions for Behavioral Symptoms of Dementia, Department of Veterans Affair, March 2011 Duedon A., et. Non-pharmacological management of behavioral symptoms in nursing homes; International Journal of Geriatric Psychiatry, 24: 1386-1395 2009 Gitlin, L.N., et. Nonpharmacologic Management of Behavioral Symptoms in Dementia, Journal of The American Medical Association, 308,19 November 12, 2012 pages 20202029 Hong, S., et. Maximizing a Nurturing Care Style for Persons with Dementia: A Person-Centered Analysis, American Journal of Geriatric Psychiatry 21:10, October 2013 pages 987-998 26 Meyer, R.T., et. Psychosocial interventions for reducing antipsychotic medication in care home residents (Review) The Cochrane Library 2012, Issue 12 pages 1-43 Norton, M.J. et. Predictors of need-driven behaviors in nursing home residents with dementia and associated certified nursing assistant burden, Aging & Mental Health, 14,3 April 2010 pages 303-309 Nguyen Vi T, et. Preventing aggression in persons with dementia, Geriatrics 63,11, November 2008, pages 21-26 Kverno,K et. Research on treating neuropsychiatric symptoms of advanced dementia with non-pharmacological strategies, 1998-2008: a systematic literature review. International Psycho-geriatrics, 21:5 2009 pages 825-843 Okura, T et. Caregiver Burden and Neuropsychiatric Symptoms in Older Adults with Cognitive Impairments: The Aging, Demographics and Memory Study (ADAMS) NIH Public Access Author Manuscript, April 2012 Ozkan, B et. Pharmacotherapy for Inappropriate Sexual Behaviors in Dementia: A Systematic review of Literature. American Journal of Alzheimer’s Disease & Other Dementias, 23,4, 2008, pages 344-354 27 5 The Global Deterioration Scale for Assessment of Primary Degenerative Dementia The Global Deterioration Scale (GDS), developed by Dr. Barry Reisberg, provides caregivers an overview of the stages of cognitive function for those suffering from a primary degenerative dementia such as Alzheimer's disease. It is broken down into 7 different stages. Stages 1-3 are the pre-dementia stages. Stages 4-7 are the dementia stages. Biginning in stage 5, an individual can no longer survive without assistance. Within the GDS, each stage is numbered (1-7), given a short title (i.e., Forgetfulness, Early Confusional, etc. followed by a brief listing of the characteristics for that stage. Caregivers can get a rough idea of where an individual is at in the disease process by observing that individual's behavioral characteristics and comparing them to the GDS. For more specific assessments, use the accompanying Brief Cognitive Rating Scale (BCRS) and the Functional Assessment Staging (FAST) measures. Level 1 No cognitive decline 2 Very mild cognitive decline (Age Associated Memory Impairment) 3 Mild cognitive decline (Mild Cognitive Impairment) 4 Moderate cognitive decline (Mild Dementia) Clinical Characteristics No subjective complaints of memory deficit. No memory deficit evident on clinical interview. Subjective complaints of memory deficit, most frequently in following areas: (a) forgetting where one has placed familiar objects; (b) forgetting names one formerly knew well. No objective evidence of memory deficit on clinical interview. No objective deficits in employment or social situations. Appropriate concern with respect to symptomatology. Earliest clear-cut deficits. Manifestations in more than one of the following areas: (a) patient may have gotten lost when traveling to an unfamiliar location; (b) coworkers become aware of patient's relatively poor performance; (c) word and name finding deficit becomes evident to intimates; (d) patient may read a passage or a book and retain relatively little material; (e) patient may demonstrate decreased facility in remembering names upon introduction to new people; (f) patient may have lost or misplaced an object of value; (g) concentration deficit may be evident on clinical testing. Objective evidence of memory deficit obtained only with an intensive interview. Decreased performance in demanding employment and social settings. Denial begins to become manifest in patient. Mild to moderate anxiety accompanies symptoms. Clear-cut deficit on careful clinical interview. Deficit manifest in following areas: (a) decreased knowledge of current and recent events; (b) may exhibit some deficit in memory of ones personal history; (c) concentration deficit elicited on serial subtractions; (d) decreased ability to travel, handle finances, etc. Frequently no deficit in following areas: (a) orientation to time and place; (b) recognition of familiar persons and faces; (c) ability to travel to familiar locations. Inability to perform complex tasks. Denial is dominant defense mechanism. Flattening of affect and withdrawal from challenging situations frequently occur. Page 1 of 2 5 Moderately severe cognitive decline (Moderate Dementia) 6 Severe cognitive decline (Moderately Severe Dementia) 7 Very severe cognitive decline (Severe Dementia) Patient can no longer survive without some assistance. Patient is unable during interview to recall a major relevant aspect of their current lives, e.g., an address or telephone number of many years, the names of close family members (such as grandchildren), the name of the high school or college from which they graduated. Frequently some disorientation to time (date, day of week, season, etc.) or to place. An educated person may have difficulty counting back from 40 by 4s or from 20 by 2s. Persons at this stage retain knowledge of many major facts regarding themselves and others. They invariably know their own names and generally know their spouses' and children's names. They require no assistance with toileting and eating, but may have some difficulty choosing the proper clothing to wear. May occasionally forget the name of the spouse upon whom they are entirely dependent for survival. Will be largely unaware of all recent events and experiences in their lives. Retain some knowledge of their past lives but this is very sketchy. Generally unaware of their surroundings, the year, the season, etc. May have difficulty counting from 10, both backward and, sometimes, forward. Will require some assistance with activities of daily living, e.g., may become incontinent, will require travel assistance but occasionally will be able to travel to familiar locations. Diurnal rhythm frequently disturbed. Almost always recall their own name. Frequently continue to be able to distinguish familiar from unfamiliar persons in their environment. Personality and emotional changes occur. These are quite variable and include: (a) delusional behavior, e.g., patients may accuse their spouse of being an impostor, may talk to imaginary figures in the environment, or to their own reflection in the mirror; (b) obsessive symptoms, e.g., person may continually repeat simple cleaning activities; (c) anxiety symptoms, agitation, and even previously nonexistent violent behavior may occur; (d) cognitive abulla, i.e., loss of willpower because an individual cannot carry a thought long enough to determine a purposeful course of action. All verbal abilities are lost over the course of this stage. Frequently there is no speech at all -only unintelligible utterances and rare emergence of seemingly forgotten words and phrases. Incontinent of urine, requires assistance toileting and feeding. Basic psychomotor skills, e.g., ability to walk, are lost with the progression of this stage. The brain appears to no longer be able to tell the body what to do. Generalized rigidity and developmental neurologic reflexes are frequently present. Reisberg, B., Ferris, S.H., de Leon, M.J., and Crook, T. The global deterioration scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 1982, 139: 1136-1139. Copyright © 1983 by Barry Reisberg, M.D. Reproduced with permission. Page 2 of 2