Download Bladder Cancer Advocacy Network Clinical Trial Matching Service

Bladder Cancer Advocacy Network
Clinical Trial Matching Service
CONFIDENTIAL | © EmergingMed 2012
EmergingMed Provides a Pathway to Clinical Trials
Cancer Patient
Where to find
information?
EmergingMed Clinical
Trial Navigators
1.
2.
3.
4.
CONFIDENTIAL | © EmergingMed 2012
Educate
Match patients to trials
Broker solutions to
addressable barriers
Provide phone-based
support
IRB-Approved
Clinical Trial Sites
» Informed Consent
» Patient Screening
and Selection
BCAN Homepage – Clinical Trial Matching Service
CONFIDENTIAL | © EmergingMed 2012
BCAN Clinical Trial Matching Page – Getting Started
Profiles can be
created by phone
or online
Free and
confidential service
After completing a
brief questionnaire
and treatment
history, Navigators
can narrow and
personalize your
match results.
CONFIDENTIAL | © EmergingMed 2012
Bladder Cancer Clinical Trials: Overview
Currently there are over 600 trials that
would accept a bladder cancer patient –
only 49 of these trials are specifically
designed for bladder cancer.
All Bladder Cancer Trials
93% of treatment trials are enrolling
patients with locally advanced or
metastatic disease (46)
7% of treatment trials are specifically
looking for patients with early stage or
superficial bladder cancer (3)
Your personalized matches
CONFIDENTIAL | © EmergingMed 2012
When to Consider a Clinical Trial
Before a biopsy (to study tissue from a tumor)
Before the first surgery or radiation treatment (neoadjuvant studies)
After surgery or radiation treatment (adjuvant studies)
When cancer has recurred or spread (metastasized)
When cancer is spreading despite current treatment
(refractory)
Each time you and your doctor are making a new
treatment decision, it is appropriate to consider
clinical trials.
Clinical Trials Navigators: Role
Clinical Trials Navigators
are there to:
Keep your profile up to date
Help you understand what to expect from clinical trials
Provide detailed contact information for trial sites
Offer additional resources
Trouble-shoot on your behalf to make sure you have the
information and connections your need to explore clinical
trial options
CONFIDENTIAL | © EmergingMed 2012
Why It’s Important for Patients to Learn About Clinical Trials
85% of patients unaware of clinical trials (Harris Interactive 2001)
• 75% of those patients said they would have participated in trials
Clinical trials are a natural part of the continuum of care for cancer
• When standard of care is proven it is recommended
• When there is uncertainty about treatment, clinical trials may be offered
Patients have the right to make informed decisions
• Understand how treatment decisions are made
• Correct misperceptions: treatment trials rarely use placebos
• Understanding questions to ask; risks and benefits
Patient have the right to know all options when making decisions
• Narrow window of eligibility / dependant on prior treatments
• We never want to hear “I wish I would have known about that”
CONFIDENTIAL | © EmergingMed 2012
Bladder Cancer Advocacy Network
Create a profile online:
Bladder Cancer Advocacy Network
http://www.bcan.org/
Or call:
1-800-504-7442
CONFIDENTIAL | © EmergingMed 2012