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The 2015 Cancer Experience:
A National Study of Patients and Caregivers
INSIGHTS REVEAL HEALTHCARE LEADERS NEED TO
ENHANCE COORDINATED CARE MODELS
Overall satisfaction among cancer patients and
caregivers with the care they received has nearly
doubled since the study was first held in 2012.
However, major gaps in cancer care remain.
Key findings from this year’s survey:
1
COORDINATED CARE IS THE KEY TO IMPROVING
OVERALL PATIENT SATISFACTION.
62%
32%
74%
OF CANCER PATIENTS said that having a specific
individual to coordinate care is important, however only
OF CANCER PATIENTS experienced coordinated care.
OF THOSE PATIENTS who received coordinated care
were “completely satisfied.”
WHAT DOES THIS MEAN? There is a direct correlation between the delivery of
coordinated patient care and significantly improving the overall patient experience.
2
PATIENTS AND CAREGIVERS STRUGGLE TO UNDERSTAND
COMPLEX HEALTHCARE TERMINOLOGY.
46%
49%
Precision
Genomic
Cancer
Testing Treatment
ONLY
OF PATIENTS AND
OF CAREGIVERS
understand terms such as genomic testing and immunotherapy,
and even fewer know the benefits of such terms.
Immunotherapy
WHAT DOES THIS MEAN? In order to make informed decisions about their
care plans, patients and caregivers must clearly understand treatment options.
3
LACK OF CONFIDENCE IN CARE TEAMS CAUSES PATIENTS
AND CAREGIVERS TO SWITCH PROVIDERS.
20%
NEARLY
OF CAREGIVERS switched the patient’s
healthcare provider due to lack of confidence in treatment
plans and care teams.
WHAT DOES THIS MEAN? Establishing a coordinated and trusting
relationship between the provider’s care team, patients and caregivers is vital.
4
THE NEXT GENERATION OF PATIENTS IS
MORE ACTIVELY INVOLVED.
40%
NEARLY
OF CANCER PATIENTS seek a
second opinion, and these are typically younger patients.
GEN Y
WHAT DOES THIS MEAN? Younger cancer patients take a more proactive role in
treatment decisions, which could be due to greater access to information. Other possibilities
may include uncertainty about initial diagnosis or lack of confidence in the first opinion.
ABOUT THE CANCER EXPERIENCE: A NATIONAL STUDY OF PATIENTS AND CAREGIVERS
The Cancer Experience survey is a national online survey of 1,060 cancer patients and 1,051 caregivers who
received treatment at hospitals across the United States, including at least 250 patients diagnosed at each
stage of cancer, no more than three years prior to their participation in the survey. This third annual edition
of the survey was conducted April 14 through May 18, 2015. It is intended to measure the comprehensive
experience of cancer patients and caregivers, providing a barometer for the quality of the cancer care
experience in the U.S. The survey, which is authored by Cancer Treatment Centers of America®, measures
gaps between patients’ expectations about their care and the actual care they received.
© 2015 Rising Tide