Survey
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The 2015 Cancer Experience: A National Study of Patients and Caregivers INSIGHTS REVEAL HEALTHCARE LEADERS NEED TO ENHANCE COORDINATED CARE MODELS Overall satisfaction among cancer patients and caregivers with the care they received has nearly doubled since the study was first held in 2012. However, major gaps in cancer care remain. Key findings from this year’s survey: 1 COORDINATED CARE IS THE KEY TO IMPROVING OVERALL PATIENT SATISFACTION. 62% 32% 74% OF CANCER PATIENTS said that having a specific individual to coordinate care is important, however only OF CANCER PATIENTS experienced coordinated care. OF THOSE PATIENTS who received coordinated care were “completely satisfied.” WHAT DOES THIS MEAN? There is a direct correlation between the delivery of coordinated patient care and significantly improving the overall patient experience. 2 PATIENTS AND CAREGIVERS STRUGGLE TO UNDERSTAND COMPLEX HEALTHCARE TERMINOLOGY. 46% 49% Precision Genomic Cancer Testing Treatment ONLY OF PATIENTS AND OF CAREGIVERS understand terms such as genomic testing and immunotherapy, and even fewer know the benefits of such terms. Immunotherapy WHAT DOES THIS MEAN? In order to make informed decisions about their care plans, patients and caregivers must clearly understand treatment options. 3 LACK OF CONFIDENCE IN CARE TEAMS CAUSES PATIENTS AND CAREGIVERS TO SWITCH PROVIDERS. 20% NEARLY OF CAREGIVERS switched the patient’s healthcare provider due to lack of confidence in treatment plans and care teams. WHAT DOES THIS MEAN? Establishing a coordinated and trusting relationship between the provider’s care team, patients and caregivers is vital. 4 THE NEXT GENERATION OF PATIENTS IS MORE ACTIVELY INVOLVED. 40% NEARLY OF CANCER PATIENTS seek a second opinion, and these are typically younger patients. GEN Y WHAT DOES THIS MEAN? Younger cancer patients take a more proactive role in treatment decisions, which could be due to greater access to information. Other possibilities may include uncertainty about initial diagnosis or lack of confidence in the first opinion. ABOUT THE CANCER EXPERIENCE: A NATIONAL STUDY OF PATIENTS AND CAREGIVERS The Cancer Experience survey is a national online survey of 1,060 cancer patients and 1,051 caregivers who received treatment at hospitals across the United States, including at least 250 patients diagnosed at each stage of cancer, no more than three years prior to their participation in the survey. This third annual edition of the survey was conducted April 14 through May 18, 2015. It is intended to measure the comprehensive experience of cancer patients and caregivers, providing a barometer for the quality of the cancer care experience in the U.S. The survey, which is authored by Cancer Treatment Centers of America®, measures gaps between patients’ expectations about their care and the actual care they received. © 2015 Rising Tide