Download Patient and Caregiver Orientation Program 021517.pptx

Welcome to Patient & Caregiver Orientation Class
Patient Privacy: The information discussed in this class is protected by the Health Insurance Portability
and Accountability Act (HIPAA).
Goals
Reduce
Stress
Help you have
best possible
experience
Introduce you
to Support
Services team
You
Prepare you
for
appointments
Tell you about
amenities
onsite
Discussion…
What to Bring to Your Appointments
!  Someone to help remember what is said
!  Paper and pen to take notes
!  List of questions to ask your healthcare professional (handout)
!  List of all current medications, vitamins, herbs and their doses
!  Medical information, x-rays, or other tests, if requested
!  Forms you were asked to bring
!  Contact information for your referring doctor, if you have one
!  Insurance information, insurance cards or Medicare card
!  Photo ID card
!  Calendar to keep track of appointments
!  Items to help pass time (books, crossword puzzles, computer)
!  Assistive devices: canes, walkers, crutches, etc.
When You Arrive
Parking and Wheelchair Assistance
Plan to arrive 30 minutes before
your appointment time.
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Free Parking
–  Lee Street garage
–  11th Street garage
–  Registration will validate your ticket
Valet Parking
–  Cost $6 (cash only)
–  Monday – Saturday, 7 a.m. - 7 p.m.
–  Free for handicapped or disabled veteran license plates,
tags, or placards.
Wheelchair assistance is provided by the front door team.
Registration
You will register on the 1st floor for most of your appointments.
Remember to bring:
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Photo ID
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Insurance cards
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Prescription cards
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Co-pays
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Parking ticket for validation
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Social Security Number
Patient Experience Program (PEP) Badge
You will receive a badge at Registration. The badge is used to
improve your experience at UVA Cancer Center. It helps:
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Your care providers to find you
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Reduce your wait times
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Improve communication with your care team
Return your badge to Registration after your last appointment.
Questions to Ask Your Healthcare Team
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Do I have cancer? If so, what type of cancer do I have?
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What is the stage or extent of my disease?
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What treatment do you recommend?
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What is the goal of treatment?
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What are the possible risks or side effects?
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How will you know my treatment is working?
Questions to Ask Your Healthcare Team
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What can I do to be ready for treatment?
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What patient education do you provide?
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Will my insurance cover treatment?
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What costs will I have?
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Who do I contact if I have a question?
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What types of services are available?
MyChart® – Access Your Medical Record Online
Your health record online or on the go. Use MyChart to:
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Request or see appointments
Communicate with your doctor’s office
Request prescription renewals
View test results
Review information from recent visits
Enter or view your medical history
Call 434.243.2500 or ask your healthcare provider to help you
set up your MyChart account.
Cancer Center Amenities
Café
Located on the 1st floor, the small café
offers a variety of healthy options:
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Hot breakfast items
Soup, salads, and sandwiches
Snacks
Beverages
Free Fruit Infused Water
They accept all major credit cards and cash payment options.
Hours: 7:30 a.m. – 2:30 p.m.
There is a full-service cafeteria across the street in the main
hospital.
Flourish Positive Image Boutique
The boutique offers products to
help with your treatment side effects.
Items include:
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Skin care products
Wigs
Scarves
Jewelry
Other gifts
Patient & Caregiver Learning Resource Center
Located on the 3rd floor, the Learning Resource Center offers:
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Access to computer, printer, Internet, phone
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Free print and electronic materials
about diagnosis, treatment,
caregiving and more!
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Research assistance from a librarian
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Help signing up for MyChart
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Office hours to get information and help from our Health
Educator
Cancer Center Amenities
Quiet Spaces
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Meditation Room on the 1st floor
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Tranquility Garden at the corner of Lee Street and Jefferson
Park Avenue
Patient & Caregiver Support Services
UVA Cancer Center Support
Services team helps you and your
caregivers through your journey
with cancer.
Most services are located
on the 1st floor. A member of the
team may also meet with you in
the clinic. Most of the services
are free to patients and caregivers.
To schedule an appointment for any of these services
please call 434.924.9333 or toll-free 800.223.9173.
American Cancer Society Patient Navigator
In partnership with the American Cancer Society, UVA Cancer Center offers
free support from an ACS Patient Navigator. She helps cancer patients and
caregivers with the practical concerns of diagnosis and treatment.
Practical Concerns
-  Will I have a hard time getting to and from treatment?
-  Am I worried about paying medical bills?
-  Am I worried about paying for medications?
-  Do I need lodging information?
-  Do I want to connect with others in a community support group?
-  Do I need to know about hair loss resources?
-  Do I want to talk about how my diagnosis impacts my work?
-  As a caregiver, do I want to talk about how the diagnosis of my loved
one impacts my work?
American Cancer Society Patient Navigator
Free Resources
•  American Cancer Society programs and services
•  Resources in your community
•  Other reliable and relevant national organizations
Meet with the ACS Patient Navigator
•  During a clinic or treatment appointment
•  In a separate visit in the Support Services clinic
•  Over the phone
You do not need an appointment. It can be helpful to make an
appointment to make sure you have plenty of time to discuss
your concerns and problem solve together.
Social Workers
A cancer diagnosis can bring emotional and psychological
distress. Our Clinical Social Workers help with adjusting to the
illness, anxiety, and depression. They can help with difficult
family or social situations. They draw from your strengths to
find solutions, increase coping skills, and seek out resources.
Their services are free.
Services Include
•  Individual, family and group counseling and support
•  Advance Directive guidance and support. An Advance
Directive informs healthcare professionals of your wishes for
medical care in the event that you are unable to. Everyone
over the age of 18 should have an Advance Directive.
•  Support groups
Health Educator
Educational Resources
There is a lot of information available on the Internet. It is important to
get your information from reliable sources to ensure it is accurate, easy
to understand and up-to-date. Here are a few resources we recommend
using when looking for health information:
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American Cancer Society – www.cancer.org
CancerCare – www.cancercare.org
Cancer Legal Resource Center – www.disabilityrightslegalcenter.org
LIVESTRONG FoundationTM – www.livestrong.org
MedlinePlus® - www.medlineplus.gov
National Cancer Institute – www.cancer.gov
National Coalition for Cancer Survivorship – www.canceradvocacy.org
Programs & Resources for Patients & Caregivers
We provide a monthly calendar that informs you of the support
groups, educational, and recreational offerings available.
Events may include:
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ACS Look Good Feel Better Program
Art Therapy
Caregiver Café
Educational Classes
Support Groups
Financial Coordinators
We may be able to help:
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Enroll you in a drug assistance program to reduce your co-pay
for certain medications.
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Combine bills and arrange payment plans.
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Review and explain your insurance benefits.
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Work with you to get a cost estimate for the services you need
if insurance does not cover them.
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Help you apply for financial assistance.
This service is free. Their offices are in the Registration area, 1st floor.
Flourish Positive Image Boutique
Our certified mastectomy fitter provides free fittings for
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Bras
Prostheses
Camisoles
Wigs
Flourish is also home to Ramon’s Room, which provides free
wigs, scarves, and caps.
Nutrition Counseling
Good nutrition is an important part of your cancer treatment. It
can help reduce side effects and speed up your recovery. Our
dietitian offers free services that can help you with:
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Weight gain or weight loss
Loss of appetite
Taste changes
Meal planning
Meeting with the dietitian as early as possible into treatment is
ideal. She can see you at your clinic or treatment visits or meet
one-on-one with you. Tell your healthcare provider you want to
meet with the dietitian or call to make an appointment.
Psychologist
Our Clinical Psychologists help you and your loved ones adjust
to cancer and cancer treatments. They can clinically assess and
treat:
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Addictions
Anxiety
Depression
Eating disorders
Fatigue
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Insomnia
Pain
Sexual difficulties
Other psychological disorders
They provide psychotherapy for individuals, groups, and/or
couples and families. They can also work with Psychiatrists to help
facilitate the use of medications as needed.
There may be a co-pay required for this service.
Spiritual Care and Guidance
The chaplain is available to help support you and your
caregiver during this stress-filled time. Her services are free
and include:
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Listening to you
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Helping you reflect on your own emotional or spiritual
concerns
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Provide support whether you are part of a specific faith
tradition or not
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Offer prayer
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Simply sit and talk
Tobacco Treatment
This free service helps tobacco users address their addiction to
tobacco. Our tobacco treatment specialist can meet with you in
person or by phone to help you create a custom plan to quit.
She can help you address:
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Nicotine withdrawal
Anxiety
Coping with stress
Recovery from relapse
Maintaining your weight
Palliative Care
Palliative Care is a special team approach to managing
symptoms such as:
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Pain control
Shortness of breath
Sleep problems
Mood changes
Fatigue
Emotional stress
Palliative care eases suffering for patients and caregivers. The
goal is for you to have the highest quality of life possible. Your
doctor can refer you to our Palliative Care clinic. There is a copay required for this service.
Caregivers: A Community of Support
Family and caregivers play an important role in a patient’s cancer
journey. Caregivers can be spouses, children, family members,
friends, and others.
Counseling and educational materials are available to provide support
to stay emotionally strong and healthy.
Caregiver Café – Session for caregivers held twice each month.
Caregivers can stop by to get free support and educational materials.
Our social workers can provide resources for your children, or help
you to talk to your children/teens about cancer.
Caregivers: A Community of Support
Find more helpful information for caregivers at:
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Patient & Caregiver Learning Resource Center, 3rd floor
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American Cancer Society
https://www.cancer.org/treatment/caregivers/
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National Cancer Institute
http://www.cancer.gov/publications/patienteducation#family-and-caregivers
We Are Here to Help
Remember, we are here to support you during your diagnosis,
treatment, and beyond. Please don’t hesitate to meet with the
Support Services team to get help with many of the issues that
are normal when someone receives a cancer diagnosis.
To schedule an appointment for any of these services please
call 434.924.9333 or toll-free 800.223.9173.
Thank you for allowing us to care for you.
Questions?
Did we meet your expectations?
!  Reduce your stress during this difficult time.
!  Prepare you for your appointments.
!  Tell you about the amenities onsite.
!  Introduce you to the Support Services team.
!  Provide you with the best possible experience.