Download (eds) patient awareness day

PROGRAMME FOR EHLERS-DANLOS SYNDROME (EDS) PATIENT AWARENESS DAY
Friday 16th May 2012
Garrod Building, Barts and The London School of Medicine and Dentistry, Whitechapel, London UK
Purpose: to provide state of the art information to EDS patients about the causes of symptoms and their
treatments based on the latest research developments in the field. Leading experts in the field will be
invited to provide lectures that would be easily understood by the patients. Discussion groups will be
held and patients will be provided with information about resources that they can access in the future.
1-2pm Registration and Lunch:
2pm – 2.10pm Welcome and introduction to the programme by Miss Lara Bloom – EDS UK
EDS and joints
2.10pm-225pm: What is connective tissue, and how is it different in EDS patients? Professor Rodney
Graham, Professor of Rheumatology, St John and Elizabeth Hospital, London.
225-240pm: Why do joint problems and muscle problems occur in EDS patients? and how can they be
prevented? Dr Hana Kazkaz, Consultant Rheumatologist, University College Hospital
240-255pm: What is the medical treatment of joint and muscle pain in EDS? Dr Alan Hakim, Consultant
Rheumatologist, Whipps Cross Hospital, London.
355-310pm: What does physiotherapy have to offer in patients with EDS to prevent and treat symptoms
and disability? Dr Jean Simmonds, Great Ormond Street, London
310pm – 330pm : panel discussion
3.30-4pm tea break
EDS and the Gut and Bladder
4pm-4.20pm: Gut problems in EDS: Dr Asma Fikree, Clinical Lecturer, Barts and The London.
420pm-440pm: EDS and bladder problems: why they occur and how they are managed. Mr Vik Khullar,
Consultant urogynaecologist, St Mary’s Hospital, London
440-5pm: Postural Orthostatic Tachycardia Syndrome in EDS: Prof Chris Mathias, Institute of Neurology
and Neurosurgery , London.
5pm – 520pm: panel discussion