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GUIDE TO WELCOMING PEOPLE WITH DISABILITIES IN ONTARIO’S EMERGENCY RECEPTION CENTRES JUST IN TIME MANUAL for emergency centre staff This document was developed in partnership with the Accessibility Directorate of Ontario, Ministry of Community and Social Services, through an EnAbling Change Partnership Program. The Inclusive Emergency Preparedness Canada (IEPC) is a partnership between March of Dimes Canada, the Canadian Red Cross, and The Inclusive Preparedness Center. © Inclusive Emergency Preparedness Canada 2010 INTRODUCTION Ontario’s Emergency Reception Centres and People with Disabilities Ontario emergency reception centres provide services to all people who need them because of an emergency. An emergency centre may be open for a day or two, or for a longer time depending on the intensity, scope, and effects of the emergency that endangers people. To perform their function, reception centres must be accessible to all people – including people with disabilities – who need their services. While no one expects luxury accommodations in an emergency reception centre, everyone should be able to find a centre that respects their dignity and independence. Ontario reception centres are committed to accommodating people with disabilities, in similar ways and in the same places as everyone else. Some reception centre managers, staff and volunteers may have little experience working with people with disabilities. They can avoid problems by learning simple techniques in advance for assisting people who use wheelchairs or scooters, have vision loss, are deaf or hard of hearing, or who have significant but less visible disabilities. Centre workers do not have to become experts in disabilities, they just need to learn effective ways of listening to people with disabilities, assisting them when help is needed, and providing information and directions in useful formats. For people with disabilities who come to a centre, like everyone else who comes, asking “May I help you?” is the first step in providing accessible centre services This document is designed to be carried by reception centre workers and provides information on interacting with people with disabilities. Centre Statement of Commitment to the Ontario Customer Services Standard What is laid out below is a draft statement of commitment that each reception centre management/organization (or emergency centre provider) might consider adopting and putting into practice to meet the new standard. POLICY, PROCEDURES AND PRACTICE Emergency reception centres are committed to serving all people, including people with disabilities. Emergency centre operational policy, procedures, and practices will be consistent with the customer service standard and will respect the rights and dignity of all people seeking centre services. COMMUNICATION Emergency reception centre staff will communicate with a person with a disability in a manner that takes into account the person’s disability. Emergency centres will offer multiple means of communication. Staff and volunteers will be trained how to communicate effectively and politely with people with various types of disabilities. ASSISTIVE DEVICES Emergency reception centres will allow people to use their own personal assistive devices to access centre services. Staff will be trained and become familiar with assistive devices frequently used by people with a disability. When a centre provides assistive devices such as wheelchairs or lifts, centre staff and volunteers will be trained to use those devices. DOCUMENTATION Emergency reception centres are committed to providing accessible information to all people. Documentation will be available in multiple formats, including large print, audio and picture text formats. Documentation will be in a format that takes into account the person’s disability. SERVICE ANIMALS Emergency reception centres are committed to welcoming people with disabilities who are accompanied by a service animal. Staff will be trained to interact properly with a person accompanied by a service animal, and centres should arrange for accommodations for the service animal. 1 An animal is a service animal for a person with a disability: If it is readily apparent that the animal is used by the person for reasons relating to his or her disability; or If the person provides a letter from a physician or nurse confirming that the person requires the animal for reasons relating to the disability. Disclosure or identification of the specific disability that the service animal is being used for is not a requirement and this information is protected as private and confidential of the person with the disability unless the person volunteers the information. Centre workers should avoid asking or making any assumptions why a person with a disability may have a service animal accompanying them, and consider food, water, and other necessary accommodations to the service animal. SUPPORT PERSONS Emergency reception centers are committed to welcoming people with disabilities who are accompanied by a support person, including family caregivers. Any person with a disability and his or her support person will be allowed to enter centres and stay together. A support person is any person who accompanies a person with a disability in order to help them with communication, mobility, personal care, medical needs or other facets of daily living. NOTICE OF TEMPORARY DISRUPTION Emergency reception centre staff will provide centre occupants with notice in the event of a planned or unexpected service disruption in the centre services being used by people with disabilities. This notice will include information about the reason for the disruption, its anticipated duration, and a description of alternative accommodations available. Service disruption notification systems shall be made available in accessible formats to facilitate information delivery that accommodate the needs of various forms of disabilities TRAINING Training on how to interact and communicate with people with disabilities will be available for all emergency reception centre staff as part of general training in centre policies, practices, and procedures. A Guide to assisting people with disabilities will be used to deliver the training. A just-in-time training kit for staff members to use before beginning work and while providing services will be provided. A trainer’s supplement explaining how to use the Guide and just-in-time 2 documents for training will also be provided. Changes and updates in the training will be made in connection with changes to policies, practices and procedures. FEEDBACK PROCESS To evaluate and improve reception centre services, each centre will establish a process for people to provide feedback on how the centre and its staff provide services to people with disabilities. Staff will be trained to request and welcome feedback from any centre users orally, in writing or otherwise. The process will include information about how the centre will respond to feedback and take action on any complaints. The process will be publicized in each reception centre, and information about the process will be made readily available to the public. MODIFICATIONS TO THIS POLICY Emergency reception centres are committed to developing and implementing customer service polices that respect the personal independence, dignity, integration and equality of all people. No changes will be made concerning the operation of centres before considering in detail the impact of the changes on people with disabilities. 3 Words to Use in Speaking With or About People with Disabilities Words used when talking to, referring to, or working with a person with a disability can be appropriate or inappropriate, and will have positive or negative consequences. Outmoded, disrespectful language can make people feel excluded and can be a barrier to successful centre operations. Use words and phrases that show respect for the dignity of people with disabilities. There are no strict rules of politically correct language you have to learn; just use good judgment and the general recommendations given here. It is rarely necessary to refer to a person's disability at all when you are talking to them or assisting them. Unless you are a doctor, it is rarely polite to ask what their medical diagnosis is or “what’s wrong” with them. Put the person first, not the disability. Say person with a disability rather than disabled person. Use terms like mobility aides, intellectual/developmental disability, or mental illness. Don’t use inaccurate and outmoded terms (such as dumb when referring to a person who doesn’t speak). Such words are very demeaning and disrespectful. Use active language such as she uses a wheelchair, not she is confined to a wheelchair. It is okay to say people who are blind or people who are deaf. When talking about people without disabilities, it is better to say people without disabilities instead of “normal people” or similar terms. Useful terms are sighted people, ambulatory people, and similar words. When talking about parking places, building entrances, or other accommodations for people with disabilities, use the term accessible rather than disabled or handicapped (accessible parking or entrance). It’s also okay to use words or phrases such as disabled, disability, or people with disabilities when talking about disability issues (How are we going to make the serving line more accessible?) 4 Words to Describe Different Disabilities This table includes respectful language to use to describe different disabilities. If you do not know the person or if you are not familiar with the disability, ask the person to explain what help they need, rather then making your own assumptions. Disability Mobility or Physical Disability Blind or Low Vision Deaf or Hard of Hearing Deafblind Speech/Communication Disability Mental Illness Intellectual / Developmental Disability Autism Chronic Medical Condition Respectful Language Wheelchair user, Person who uses a wheelchair, Physical Disability, Person with a mobility or physical disability. Blind/Visually Impaired, Person who is blind/visually impaired Deaf or Hard of Hearing, Person who is deaf or hard of hearing Person who is deafblind Person with a speech/communication disability Person with a mental health disability, Person “living with” a specific disability (e.g., someone living with depression) Person with a intellectual disability, Person with a Development Disability Person with autism, Person who has autism Someone “living with” a specific disability (e.g., someone living with cancer) 5 People who use Mobility Aids Always ask the person how you can help before attempting any assistance. Do not attempt to move a person and/or his or her devices without permission. Ensure that the person’s wheelchair, scooter, walker, crutches or cane is accessible to them at all times. When talking to someone in a wheelchair, make eye contact, talk naturally without being patronizing. If a conversation is expected to last longer than a few minutes, find somewhere to sit down, or squat down to the wheelchair user’s eye level. To a wheelchair user, his or her wheelchair is part of his or her body and personal space and should be treated as such. Do not interfere with the person’s movement unless asked to do 6 People who use Mobility Aids Assistance by Centre Area Registration Area Make sure the area is accessible to those with mobility devices (e.g. have tables that can accommodate a person using a wheelchair) and does not have any restrictions such as steps that would prohibit registering. Dormitory Area Ask first before assuming that people with mobility disabilities need help. Ask them if they need any support aids that will make them more comfortable (e.g. lift equipment, cots). Meal Preparation and Serving Area Provide physical support to those who need it for navigating the dormitory area or transferring between wheelchair and cot. Determine if there are any special dietary needs. Ask those using a mobility aid if they need help to see, select, or transport their food items to dining tables. Self-care needs Restrooms and Shower areas Assistance may be needed to clear tables after meals. Ask if he or she may need assistance in using restroom or shower areas. Ask him or her if any support aids are needed in this area (e.g. shower seats). Suggested Lift equipment ● Medical cots Accommodations Mattress pads ● Privacy screens Portable ramps ● Shower seats Facilities for charging assistive devices Bedside commodes with screens Transfer boards Table-level access to tools like telephones 7 People who are Blind or have Low Vision In one-to-one conversation or in groups that include a person with vision loss, remember that people who are blind or have very low vision cannot see the usual non-verbal cues used in conversation. Replace gestures and vague verbal references (over there) with more precise statements from the vantage point of the person with vision loss (to your right). Think before speaking or acting; ask if help is needed; tell the person what you are doing or going to do (here is my arm). Speak to the individual when you approach him or her, and clearly state who you are. Give verbal cues that you are listening and that you understand them (I see, Yes, Oh, OK, and so forth.) When conversing in a group, identify yourself and make clear to whom you are speaking (use each person’s name) Do not attempt to lead the individual without first asking; allow the person to hold your arm and control her or his own movements. To guide the person, offer them your arm instead of taking theirs and walk at their pace. Keep half a step ahead of them. Be descriptive when giving directions; verbally give the person information that is obvious to sighted individuals. Watch for overhangs or protrusions the person could walk into and advise them in advance of actions they should take and when. If the person uses a cane or has a service animal or guide dog, ask them which side you should walk on to avoid distracting them or their animal. 8 People who are Blind or have Low Vision Assistance by Centre Area Registration Area Provide important information in multiple formats (e.g. large print, Braille or adjustable on-screen computer font size). Provide a verbal orientation to the centre. Give clear and concise directions and be descriptive (e.g. the dormitory area is down the main hall and to your left). Dormitory Area Assign a cot space in an area where access is unobstructed to other areas like food service, restrooms, and emergency exits. Verbally explain where the person is located in the dormitory area in relation to other service areas. Meal Preparation and Serving Area Ask the person if he or she would like you to read the menu, help with a tray or silverware, and so forth. Self-care needs Restrooms and Shower areas Ask if he or she needs assistance in locating the restroom or shower facilities. Answer any questions, and offer to help guide the person to the restroom or shower.Explain how the shower or restroom is laid out, e.g., where the sink and towels are. Suggested Accommodation Braille signs Braille centre forms Being prepared to read forms and signs out loud Large print materials Audio recordings Use accessible standard fonts – e.g. Verdana or Arial font minimum size 12 pts 9 People who are Deaf, Oral Deaf, Deafened or Hard of Hearing Individuals who do not hear well or at all may describe themselves as members of distinct groups of people: the Deaf, oral deaf, deafened or the hard of hearing. Some individuals who are medically deaf or hard of hearing and who identify with and participate in the culture of Deaf people, which is based on use of visual sign language, refer to themselves as “Deaf”. A sign language interpreter may accompany a Deaf person. Individuals who are oral deaf, in contrast, often prefer modes of communication that rely on speech and listening. Still other people refer to themselves as people who are deafened or hard of hearing. Their hearing loss ranges from mild to profound and their usual means of face-to-face communication is speech. A reception centre worker who is aware of these differences is better prepared to help a person with any of these disabilities, and can avoid treating all “deaf” people alike. Always ask the person how he or she would prefer to communicate. Hearing aids do not guarantee that a person can hear well. They increase volume but may not increase clarity. Get the person’s attention via a visual cue (such as a wave) or a gentle touch on their arm before speaking to them. Face the person and make eye contact when speaking to them, not the interpreter, as they may rely on speech reading. If speaking through an interpreter, pause occasionally to allow him or her time to translate completely and accurately. Use gestures and facial expressions to help explain the meaning of what you are trying to communicate to the person. Speak clearly at a normal pace. Avoid obscuring your lips or face with hands, papers, or by chewing gum. Make sure that you have been understood and repeat if necessary Offer a paper and pencil. Write slowly and let the person read as you write. Written communication may also be important if you are unable to understand the person’s speech. 10 People who are Deaf, Oral Deaf, Deafened or Hard of Hearing Assistance by Centre Area Registration Area Post general information in various locations. Provide important information in written handouts or online in the centre. Use communication aids if available (interpreters, communication boards, electronic notice screens). Relay information about the disaster and about changes in centre routines. Dormitory Area Give visual alerts if there is an emergency in the centre. Communicate dormitory rules and other safety rules in multiple formats. Clearly mark emergency exits and hold drills if centre is open for an extended time. Meal Preparation and Serving Area Post information on meal service and schedules. Self-care needs Restrooms and Shower areas Most people who are Deaf, oral deaf, etc. but otherwise without disabilities will need no assistance in this area, but in case some do, post information explaining that accommodations are available on request. Suggested Accommodation Well-designed signage Qualified interpreters Closed caption televisions Telephone handset amplifiers Telephones compatible with hearing aids Telecommunication devices or TTYs Pen and paper 11 People with Mental Health Care Needs People who are coping with an emergency reception centre situation will have various reactions as they struggle with the disruption and loss caused by the disaster. A person’s mental health needs may not be immediately clear. A range of mental health problems may surface at different times during a centre stay. A person may have a mental health diagnosis or complications from substance abuse that will not be apparent to you. They or their support person may choose not to disclose this information because of the stigma and misinformation that surround mental illness. A small percentage of persons with mental illnesses may speak or act in unusual ways that others could find frightening or disruptive of centre routines. Centre staff should expect such events to be very rare, and most persons with mental illnesses to adapt well to the centre. When providing services to persons you believe to have a mental illness, be careful to ensure their rights are not violated and they receive the assistance needed to access centre services. If you feel that a person may have mental health care needs: Speak calmly – loud stern tones will likely have either no effect or a negative effect on the individual Use non-threatening body language – keep your hands by your sides if possible, don’t intrude into their personal space Eliminate or reduce commotion – if possible move away from loud sounds, bright lights and crowds Look for personal identification – medical ID may indicate a mental illness and offer a contact name and telephone number Ask a support person for advice if one is present, or call the caregiver organization of the person being helped, if known – they are usually the best resources for specific advice on calming the person and ensuring everyone’s safety Prepare for a longer interaction – the person should not be rushed. Be patient and supportive. Use short direct phrases – too much talking can distract the person or confuse the situation 12 People with Mental Health Care Needs Assistance by Centre Area Registration Area Be mindful of your non-verbal communication (body space, body language, tone of voice) and monitor theirs for signs of discomfort. Ask first instead of assuming that they need assistance. Dormitory Area Ask him or her if any assistance is needed in this area (if necessary, consult their support person for guidance). Be patient and supportive. Meal Preparation and Serving Area Ask him or her if any assistance is needed in this area (if necessary, consult their support person for guidance). Be patient and supportive. Self-care needs Restrooms and Shower areas Ask him or her if any assistance is needed in this area (if necessary, consult their support person for guidance). Be patient and supportive. Suggested Accommodation Quiet rooms for calming and counseling Privacy screens 13 People with Intellectual / Developmental Disabilities Intellectual disabilities are sometimes called cognitive disabilities, or if occurring early in life, developmental disabilities. People with intellectual disabilities, like everyone else, deserve to be treated with dignity and respect. Each person with such disabilities has a unique personality and their own feelings, preferences, and abilities to understand and act. Reception centre workers can make centre services more accessible to people with intellectual disabilities by using effective communication techniques to explain centre activities. Always ask before you assist a person, and then listen carefully to any information or requests Expect it may take extra time to communicate information or to complete everyday activities Read written notices or other centre information aloud; be available for a private discussion of the information Break down information into simple steps, using a calm tone and consider using non-verbal symbols to identify centre areas or activities 14 People with Intellectual / Developmental Disabilities Assistance by Centre Area Registration Area Provide information gradually and clearly. Adjust your method of communication if necessary. If he or she is accompanied by a support person, speak primarily to the individual unless they ask you to speak to their caregiver. . Be patient and supportive. Dormitory Area Ask him or her if any assistance is needed in this area (if necessary, consult their support person for guidance). Meal Preparation and Serving Area Determine if there are any special dietary needs, or need for items like easy-grip utensils, bendable straws, or no-skid placemats. Provide alternative feeding methods if necessary and/or different types or texture of food. Provide refrigeration for special diets with refrigerators or coolers. Allow for more time or assistance at meals if necessary. Self-care needs Restrooms and Shower areas Ask him or her if any assistance is needed in this area (if necessary, consult their support person for guidance). Suggested Accommodation Communication boards using pictures or symbols for meals, sleep, etc Speech simulator devices such as micro or adaptive computers Specialty supplies like straws, paper products and plastic utensils 15 People with Autism Autism is a complex condition that may affect social interaction and communication. Different people with autism can have very different symptoms, from mild to more severe. Very different levels of accommodation may be needed for different people with autism. Every person and every situation is unique. A person may or may not communicate with words. Approach the person in a gentle manner using a soft, calm tone. High levels of sensory input may cause tension or unusual behaviours. Unless absolutely necessary, do not touch a person with autism. Many people with autism are very sensitive to touch. Understand that behaviours such as rocking, repetitive hand motions and repeating words or phrases may be comforting to a person with autism. Avoid loud noises, bright lights and high levels of activity if possible. Understand that people with autism may become anxious when their daily routine is disrupted. 16 People with Autism Assistance by Centre Area Registration Area Adjust your method of communication if necessary. If he or she is accompanied by a support person, speak primarily to the individual unless they ask you to speak to their caregiver. Ask first instead of assuming that the person needs assistance. Dormitory Area Do not separate the person from their support person or aids. Assess if the individual will be able to reside in the general dormitory area or will need a separate living space (due to the noise level and stimulus of dormitory area). Ask if the person will need any help or support aids if available to make them more comfortable. Meal Preparation and Serving Area Determine if there are any special dietary needs. Provide alternative feeding methods if necessary and/or different types or texture of food. Modify food supply, storage, and preparation processes to accommodate special diets, Allow more time for meals if necessary. Self-care needs Restrooms and Shower areas Ask the person or their support person if they need any supplies or equipment when using restroom or shower areas Suggested Accommodations Quiet rooms for calming and counseling Privacy screens Communication boards using pictures or symbols for meals, sleep, etc Speech simulator devices such as micro or adaptive computers 17 People with Temporary or Chronic Medical Conditions From time to time, almost everyone has special medical needs. Some people have chronic medical conditions such as diabetes, or high blood pressure, for which they take regular medications. Others with a cast on a broken leg or a bad case of flu may also need medication or care, but only temporarily. Some will enter a reception centre with support persons and their own medicines or medical devices, while others will not need any special equipment or assistance at all. Providing assistance will vary from person to person. Know your centre’s policies on people with contagious illnesses such as colds and flu. Learn what medical care, equipment, and supplies are available to the centre and procedures for obtaining them. Since disaster conditions such as stress or extreme temperatures can contribute to rapid worsening of a chronic illness, implement a process for frequently checking on people with chronic conditions Know the procedure for transporting a person to a hospital or medical clinic if their condition deteriorates. 18 People with Temporary or Chronic Medical Conditions Assistance by Centre Area Registration Area Ask people if they have chronic medical conditions that require medications, care, or medical equipment and supplies. When admitted to the shelter, record their condition(s), medications, and medical equipment; determine if they need any special accommodations (e.g. refrigerated medications, electricity). If accompanied by a support person, speak only to the individual unless they ask you to speak to their caregiver. Dormitory Area Do not separate him or her from their medical equipment or support aids. Assess if the person will be able to reside in the general dormitory area or will need a separate living space (due to allergies, dependency on electricity) Ask if the person will need any help or support aids (e.g. medical cots) if available to make her or him more comfortable. Meal Preparation and Serving Area Determine if there are any special dietary needs. An alternative feeding method may require different types of food and the consistency of food. Modify food supply, storage, and preparation processes to accommodate special diets. Allow for more time at meal time if necessary. Self-care needs Restrooms and Shower areas Ask him or her if assistance or special accommodations are needed for using restroom or shower areas (e.g. commodes, shower seats). Suggested Accommodations Privacy screens ● Medical cots Mattress pads ● Shower seats Generators for medical equipment Coolers or refrigerators for medications Bedside commodes with screens 19 Contact: Inclusive Emergency Preparedness Canada 10 Overlea Boulevard Toronto ON M4H 1A4 Tel: 417-425-3463 1-800-263-3463 Fax: 416-425-1920 20