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ANNUAL REPORT 2008/2009 BSWRICS Barwon South Western Regional Integrated Cancer Service index BSWRICS Agencies INDEX & BSWRICS AGENCIES ��������������������������������������� 2 MESSAGE FROM THE DIRECTORS ������������������������������������ 3 The following agencies have signed a Memorandum of Understanding to form part of BSWRICS: SHORT HISTORY OF BSWRICS ��������������������������������������� 4 Balmoral Bush Nursing Centre GOVERNANCE �������������������������������������������������� 4 Barwon Health SNAPSHOT OF THE REGION ���������������������������������������� 5 Bellarine Community Health FOUR KEY PRIORITY AREAS ����������������������������������������� 6 Casterton Memorial Hospital VCAP & STRATEGIC PLAN ������������������������������������������ 7 Colac Area Health INITIATIVES: MULTIDISCIPLINARY CARE PROJECT ���������������������������������� 8 BSWRICS CANCER COORDINATION MODEL ����������������������������� 9 SUPPORTIVE CARE PROJECT �������������������������������������� 10 CANCER PATIENT INFORMATION CENTRE ������������������������������ 11 POLO RALPH LAUREN PINK PONY CAMPAIGN ��������������������������� 12 VICTORIAN CANCER OUTCOMES NETWORK ���������������������������� 13 MULTIDISCIPLINARY CANCER EDUCATION NETWORK ���������������������� 14 PROFESSIONAL DEVELOPMENT GRANTS ������������������������������ 15 HIGHLIGHTS & COLLABORATIONS ����������������������������������� 16 FUTURE DIRECTIONS �������������������������������������������� 17 Dartmoor Bush Nursing Geelong Private Hospital Hesse Rural Health Service Heywood Rural Health Lorne Community Hospital Moyne Health Services Otway Health & Community Services Portland District Health South West Healthcare St John of God Health Care Geelong St John of God Health Care Warrnambool FINANCIAL STATEMENT ������������������������������������������ 18 Terang & Mortlake Health Service BSWRICS TEAM ������������������������������������������������ 19 Timboon & District Health Service Western District Health Service 2 BSWRICS Annual Report 08/09 a message from the directors It is our pleasure to present the Barwon South Western Regional Integrated Cancer Service 2008 – 2009 Annual Report. This report highlights the progress and key achievements of BSWRICS during the 2008 – 2009 reporting period. Following the launch of Victoria’s Cancer Action Plan 2008 – 2011 in December 2008, work has commenced on the development of BSWRICS strategic plan 2009-1011. The strategic plan will set the goals for our continued progress toward improving the experience and outcomes of patients and their families, affected by cancer in the Barwon South Western Region. This year has seen the maturation of projects into programs and the inception of new projects that build on the strategic directions of Victoria’s Cancer Action Plan 2008-2011. We have had the privilege of our Polo Ralph Lauren Pink Pony Campaign web cam communication project being recognised by the National Breast and Ovarian Cancer Centre as an integral method of support for women and their families affected by breast cancer. The National Breast and Ovarian Cancer Centre have expressed interest in developing the project into a national program. Another activity in the key area of Care Coordination is the Psychosocial Assessment Tool for Supportive Intervention (PATSI) project funded by a grant from the Victorian Cancer Agency. The self-assessment tool identified the levels of psychosocial distress of cancer patients newly referred to the Andrew Love Cancer Centre. The Multidisciplinary Care team’s work has been recognised internationally. In September 2008 Cancer Care Ontario contacted BSWRICS regarding our use of technology to support multidisciplinary meetings. BSWRICS was one of thirteen organisations worldwide, and one of two from Australia, to be included in a global assessment scan of technologies being used to support the organisation and running of multidisciplinary meetings, to archive content from the meetings, and to track data from the multidisciplinary meetings centrally. Following the global assessment, BSWRICS has continued to customise and further develop CANMAP, an online database used to support multidisciplinary meetings. This customisation is working toward meeting the targets set in action area four of Victoria’s Cancer Action Plan 2008-2011. The multidisciplinary meetings were also recognised in Victoria’s Cancer Action Plan 2008-2011 for the collaboration between public and private healthcare providers resulting in both public and private patient cases being discussed at the meetings held in the Andrew Love Cancer Centre, with networking via videoconferencing. Victoria’s Cancer Action Plan 2008-2011 gives clear targets for cancer services to achieve. Two of the targets are measured through the Department of Health’s audit process. The Department of Health has set in place audits of cancer patient medical records across the Integrated Cancer Services health services to measure progress in multidisciplinary care, care co-ordination and supportive care. We look forward to every opportunity of working together to meet these challenges and to improve cancer care delivery. The BSWRICS team remain committed to improving the experiences and outcomes for cancer patients as we continue to build on the initiatives introduced in previous years. We take this opportunity to thank all who have contributed their time, skills and support to BSWRICS progress in the past year. We look forward to working with you in 2009-2010. Associate Professor Richard BellDr Lucy Cuddihy Co-director, BSWRICS Co-director, BSWRICS 3 a short history of bswrics 2003Cancer Services Framework for Victoria published. The major theme is an integrated approach to service delivery, which focuses on delivering the right treatment and support to patients, as early as possible in their cancer journey. 2004The Integrated service model adopted resulted in the establishment of three metropolitan and five regional Integrated Cancer Services (ICS), based on geographic populations and one statewide paediatric ICS. BSWRICS Steering Committee established. 2005Barwon South Western Regional Integrated Cancer Service established in January. Mapping of cancer services across the region undertaken. Regional multidisciplinary education network established. Multidisciplinary Cancer Care Project commenced. governance BSWRICS STEERING COMMITTEE Strategic planning Corporate governance MEMBERSHIP Chair, Geoff Iles, CEO, Colac Area Health Jim Fletcher, CEO, Western District Health Service John Krygger, CEO, South West Healthcare Alexander Morrison, General Manager Medical Services, Barwon Health Kate Birrell, Group Director of Nursing, St John of God Healthcare (Resigned Dec 08) Community Hospital Representative - TBA Chris Faulkner, Regional Department of Human Services Associate Professor Richard Bell, Co-director, BSWRICS Dr Lucy Cuddihy, Co-director, BSWRICS Clinical Representatives: Dr Theresa Hayes, Medical Oncologist Warrnambool and Dr John Hounsell, Clinical Haematologist, Warrnambool 2006BSWRICS Cancer Services Plan 2006-2008 developed. Regional Clinical Reference Group and Regional Continuum of Care Reference Group commenced. CANMAP (Online database) customised and developed for use in Multidisciplinary Meetings and Care Coordination. Cancer Support Group Project started. 2007Cancer Patient Information Centre opened. Barwon South Western Regional Cancer and Palliative Care Directory for Health Professionals launched in March. Electronic Regional Oncology System developed, Charm (electronic chemotherapy prescribing software) implemented at Barwon Health. 2008Psychosocial Screening Project commenced. Community Cancer Services Directory launched in November. BSWRICS South West office established. Victorian Cancer Outcomes Network – Evaluation of Cancer Outcomes project and trial commenced. 2009Care Coordination Cancer Link Nurse Project commenced. Polo Ralph Lauren Pink Pony Campaign, webcam communication project for families affected by breast cancer operational. Strategic Plan 2009 – 2011 being developed in line with Victoria’s Cancer Action Plan 2008 - 2011. 4 BSWRICS EXECUTIVE Geoff Iles Jim Fletcher Alexander Morrison BARWON HEALTH Host Agency BSWRICS TEAM REGIONAL CLINICAL REFERENCE GROUP Multidisciplinary care Harmonisation of oncology treatment protocols Clinical research Clinical data management and reporting CONTINUUM OF CARE REFERENCE GROUP Care co-ordination Psychosocial & supportive care Consumer participation Multidisciplinary Cancer Education Network Representatives Medical oncology Radiation oncology Haematology Surgical oncology Oncology pharmacy Clinical trials Oncology social work Oncology nursing General practice Radiology Pathology Palliative Care Representatives Directors of nursing Community nursing District nursing Palliative care nursing Oncology nursing Oncology social work Local government Consumer General practice Barwon South West Regional DHS Representative BSWRICS Annual Report 08/09 a snapshot of the region Within the BSWRICS region, in an average week 36 People will be diagnosed with cancer 3 Multidisciplinary Meetings will be held 271 Radiotherapy treatments will be given 622 Chemotherapy treatments will be given 5 Four Key Priority Areas Victorian State-Wide Key Priority Areas for service improvement have been identified and are the focus of the BSWRICS cancer service improvement initiatives. Supportive Care Multidisciplinary Care is an ‘umbrella’ term for all services, both generalist & specialist, that may be required to support people with cancer & their carers. It includes self-help and support, information, psychological support, symptom control, social support, rehabilitation, spiritual support, palliative care and bereavement care. aims to ensure that members of the treatment and care team can discuss all aspects of a patient’s physical, supportive care needs and other impacting factors. A regular meeting of all health practitioners involved in the treatment and care of a cancer patient is an essential feature of multidisciplinary care. Care Coordination Reducing Unwanted Variations in Care enhances the experience of patients through the creation of improved links between services to ensure that care is delivered in an integrated, coordinated and timely manner. The aim is to create sustainable systems for care co-ordination, therefore assisting patients to access the full range of cancer treatment, information and support services as close to home as possible. 6 recognises that cancer care needs to be integrated and coordinated around the needs of people, rather than service types, professional boundaries, organisation structures and funding. A range of mechanisms such as standards, performance indicators, peer review and role designation were highlighted in the Cancer Services Framework for Victoria to achieve high quality cancer care across tumour streams. BSWRICS Annual Report 08/09 Victoria’s Cancer Action Plan 2008-2011 Victoria’s Cancer Action Plan 2008 – 2011(VCAP) was released in December 2008 The Cancer Action Plan will ensure that cancer prevention and care Victorians receive is the best it can be, informed by the latest research and state-ofthe-art technologies. The Cancer Action Plan outlines a medium-term vision for cancer reform that will offer standardised and high-quality cancer care to all Victorians, regardless of whether they live in metropolitan, regional or rural Victoria. This is a comprehensive action plan with measurable targets across four key action areas. Action Area 1: Action Area 2: Priority 1: Reduce the prevalence of established risk factors for cancer in the Victorian population Priority 2: Increase participation rates in population-based cancer screening programs Priority 1: Sustain and strengthen Victoria’s leadership role in linking cancer research to clinical outcomes within Australia Priority 2: Invest in translational research and develop partnerships with industry Priority 3: Increase access to genetic screening and new diagnostic technology Action Area 3: Priority 1: Improve cancer service capacity across Victoria Priority 2: Improve the quality of cancer services through the consistent implementation and monitoring of evidence-based care Priority 3: Improve access to cancer diagnostic and treatment equipment and ensure a sustainable cancer workforce PATIENT CENTRED CARE Priority 3: Further develop institutional structures, platforms and support systems to facilitate cancer research and its effective translation into clinical practice in Victoria Action Area 4: Priority 1: Create better experiences for cancer patients and carers Priority 2: Ensure the needs of adolescent and young adults with cancer are addressed and that long-term effects of treatment for survivors of childhood cancers are managed Priority 3: Increase capacity of palliative care services to provide care for patients in the place of their choice The BSWRICS Strategic Plan 2009-2011 is currently being developed. The strategic plan will align with Victoria’s Cancer Action Plan 2008-2011, primarily focusing on key action areas three and four. The Cancer Services Framework for Victoria will also guide the BSWRICS Strategic Plan 2009-2011. 7 initiative Multidisciplinary Care Project AIM • upport tumour stream specific Multidisciplinary Care Meetings (MDMs) in Geelong and S multi tumour stream MDMs in the region. • Liaise with GP Division for GP representation for each MDM. • Streamline meeting processes to enable maximum number of patient discussions at MDMs. • ork collaboratively with imaging providers across the region to streamline the process of W gathering imaging for preview & presentation at meetings. • CAP target – 80% of newly diagnosed cancer patients have a documented multidisciplinary V care treatment plan by 2012. 2008-09 has continued to see strong growth in the area of Multidisciplinary Care. The establishment of the Upper Gastro-Intestinal multidisciplinary care meeting in June 2009 has increased the BSWRICS facilitation of meetings to cover 6 tumour streams over a fortnightly rotation. Overall, there has been a 20% rise in the amount of cases put forward for discussion since last year’s report, a number that is indicative of the commitment by the multidisciplinary care team members to the Department of Health’s model for multidisciplinary care. Meeting processes have been reviewed and changes made to improve the distribution of the recommendations of the meeting to all treating team members, including GP’s. During the past 12 months we have welcomed our 4th GP representative to the MDM meetings. To reflect the change in meeting processes the MDM policies and procedures have been adapted to a terms of reference for each meeting. Jacqui Hennock & Shayne Ryan, Multidisciplinary Care Coordination Team KEY PRIORITY AREA INFLUENCED 8 • Multidisciplinary Care • Care Coordination • Reducing Unwanted Variations in Care BSWRICS Annual Report 08/09 initiative BSWRICS Cancer Coordination (CC) Model AIM • Enhance continuity of care for cancer patients • Improve communication links between clinicians • Increase availability of cancer nurses • Create sustainable regional links in cancer care Phase 1 of the BSWRICS CC project began in 2006. It involved mapping of complex cancer journeys that provided data on patient needs, referral pathways and gaps in the delivery of cancer care and support. Phase 2 of the CC model saw the appointment of a South West Cancer Coordinator to conduct in-depth mapping, assist patients, and enhance multidisciplinary care and referral pathways. The BSWRICS office in Warrnambool was opened in February 2008. In June 2008 two Supportive Care Project Officers were appointed to address the Cancer Information and Supportive Care needs of patients in the South West. Data analysed from the project has identified access to specialist nurses as the highest gap. This evidence has informed the development of phase 3 of the CC project, the introduction of Cancer Link Nurses into Barwon South West rural health services. A Cancer Link Nurse pilot project, in partnership with Colac Area Health, commenced in June 2009. It is anticipated that the project will be expanded to other health services within our region. A total of 105 patients were referred to the BSWRICS team in the South west from July 08 to June 09. Maggie Stowers, Melinda Williams, Sharon Petering, Shane Timms, Kathryn Wooles and Marg Vesey. Cancer Coordination Team 30 27 21 KEY PRIORITY AREA INFLUENCED • Care Coordination • Supportive Care 10 7 4 2 2 1 1 9 initiative Supportive Care Project AIM • Trial a supportive care screening tool at the Andrew Love Cancer Centre (ALCC). • Identify the psychological/emotional needs of cancer patients and families across the Barwon South Western Region. The “Supportive Care Self Assessment Screening Tool Project” commenced in July 2008 and was funded by the Victorian Cancer Agency. Oncology Psychologist, Mary Harvey, was employed from June 08 – June 09 to support this project and streamline referrals between psychiatric and cancer services. A supportive care screening tool called “Distress Thermometer” was used to screen patients for psychological distress and their need for supportive services. Seventy-nine newly diagnosed patients consented to participate in the project which involved completing a Distress Thermometer on three occasions at twelve week intervals. They were asked to fill out a feedback survey at the end of the project. Feedback from the patients regarding the supportive care screening tool and support services was very positive. Many patients who were referred to the Psychologist commented that access to this service, onsite at the ALCC, was an invaluable resource. Overall patients were very impressed with the support they received during their cancer treatment by the clinicians at the ALCC. A supportive care team was set up in conjunction with the project to assist with referrals. This team consisted of the Oncology Social Workers, Cancer Coordinator, Pastoral Care Worker and Psychologist. It was identified during the project that health clinicians and patients needed more education about the various supportive care team roles. This lead to the development of the “Support for you & your family throughout your cancer journey” brochure, currently on trial at the Andrew Love Cancer Centre. The results from this project are in the process of being written into a report that is planned for release late 2009. Melinda Williams, Project Manager Shayne Ryan and Mary Harvey, Project Team. • Care Coordination “ I am personally very thankful to all the staff at the ALCC that I came in contact with during my radiotherapy treatment; their kindness, understanding and professionalism to their job” • Supportive Care (Project Participant, June 09) KEY PRIORITY AREA INFLUENCED “The support afforded to me from the resident psychologist was the most valuable resource the Andrew Love Cancer centre could provide. It relieved my burden of needing to talk about my cancer without distressing my friends and family. It helped not only myself but the recovery of our family” (Project Participant, June 09 ) 10 BSWRICS Annual Report 08/09 initiative Cancer Patient Information Centre AIM • Extend access to cancer information across the whole Barwon South Western region. • Investigate the type of information available to support the cancer patient’s emotional and psychological needs. The Cancer Patient Information Centre (CPIC), established in August 07, continues to provide cancer patients, carers, friends and health professionals with accredited cancer information. From July 2008 - June 2009 there have been 567 people that have accessed 5197 booklets and brochures. The CPIC monthly awareness theme at the Andrew Love Cancer Centre continues with success. We have given out 449 pieces of literature from the CPIC as a result of these monthly displays. A growing demand for cancer information for surgical cancer patients has led to the introduction of a more formalised restocking system for perioperative services by the CPIC. A new area has been developed in the CPIC to cover psychological/emotional support of the cancer patient and their family. This was a direct result of the ‘Supportive Care Self Assessment Screening Tool Project’. South West Coordination Team (SWCT) has extended cancer information provision to cancer patients and families in the South West. The BSWRICS CPIC team has collaborated with Portland Health Service and Colac Health Service during the implementation of two new Cancer Patient Resource Centres. Melinda Williams and Shayne Ryan. Cancer Patient Information Project Team. KEY PRIORITY AREA INFLUENCED • Care Coordination • Supportive Care 11 initiative Polo Ralph Lauren Pink Pony Campaign Seeding Grant 2008 The Polo Ralph Lauren Pink Pony Campaign is an international initiative which aims to address the disparities in care for women with breast cancer. The National Breast and Ovarian Cancer Centre (NBOCC) administers the Australian arm of the initiative. BSWRICS was awarded a grant to trial the use of web cam communication for women with breast cancer from rural communities in the Barwon South West region. Project Title: G’day Mum: Webcam Communication and Support for Rural Women with Breast Cancer and their Children AIM • To decrease the separation anxiety experienced by women and their families with the provision of on screen communication whilst away from home. • To provide a mode of communication that allows for vision of gradual changes in physical appearance due to side effects of treatment. The project was conducted from June 2008 till June 2009. Laptops were configured to allow video communication. Families were trained in the use of the laptops by the BSWRICS team in Warrnambool and Geelong. OUTCOMES • Women found that the regular contact with their children reduced their children’s anxiety. • Partners stated that they felt less stressed about their wife attending a Cancer Treatment Centre which was far away. • Women who participated in the project found that being able to see their family, via the webcam, reduced their anxiety levels. • Webcam communication reduced the cost of regular telephone calls. • All women stated that the laptops were easy to use. • All women stated that they felt the training and education of the laptop was easy. Following early success of this project the NBOCC visited the BSWRICS team and evaluated the processes and outcomes. As a result the NBOCC were awarded funding from the Australian Government to expand the project as part of a broader program to support rural women with breast cancer. BSWRICS would like to acknowledge the willing participation of the women and their families involved in this project. Project Team: Maggie Stowers, Melinda Williams, Shane Timms, Lilian Falero and Sharon Petering. KEY PRIORITY AREA INFLUENCED • 12 Supportive Care Mum linked in every night at 7pm to hear each child’s news and say goodnight. The kids just loved it BSWRICS Annual Report 08/09 initiative Victorian Cancer Outcomes Network – Evaluation of Cancer Outcomes (ECO) A joint project between The Cancer Council Victoria, BSWRICS and Department of Health. AIM • rial a model of cancer data collection across a regional area of Victoria, T which has an urban/rural mix similar to the whole state. • Improve collection of cancer data. According to Professor David Hill of The Cancer Council Victoria, the current lack of population based cancer stage and treatment information in Victoria makes a difficult task of analysing survival and patient/community outcomes. The ECO Trial aims to improve this by collecting clinical data across the Barwon South West (BSW) region for all patients diagnosed with cancer. Over the last 12 months the ECO Team has worked with all clinicians in the BSW region, the health services of Barwon Health, Colac Area Health, South West Healthcare, Western District Health Service, Portland District Health, St John of God Healthcare and the South West Alliance of Rural Health (SWARH) to collect data relating to diagnosis, staging, treatment, outcomes, mortality and recurrence for all patients newly diagnosed with cancer from January 1, 2008. More specifically the team has worked with the Public Health Services within the region to build comprehensive data repositories at each site in order to facilitate transfer of data to the Victorian Cancer Registry. The ECO Trial has been extended to December, 2010. Eco Team: Linda Batson, Nicole Hopgood, Lilian Falero, Leigh Matheson and Rachael Clemson. KEY PRIORITY AREA INFLUENCED • Reducing Unwanted Variations in Care 13 initiative Multidisciplinary Cancer Education Network AIM • Record forums to DVD • Improve video conferencing capabilities • Conduct forums at different sites around region “I have just had a patient who had radiotherapy referred to me & I can now answer questions re side effects as they occur.” South West Community Clinician The Barwon South Western Cancer Education Network forums continue to be conducted each month and video linked within the region. The topics selected are in direct response to the annual survey conducted each year. The attendee base for selected forums has been broadened to include consumers and support groups representatives. This has provided much interest and support group leaders are able to report any new developments and news back to their members. All attendees are eligible to receive Certificates of Attendance. Following completion of the Authorised Provider Course BSWRICS are able to continue to endorse the forums on behalf of the Royal College of Nursing, Australia. This allows for accrual of professional development points for nurses. BSWRICS has a commitment to promoting professional development and this year we have sponsored 90 health professionals from throughout the BSW region to attend seminars, workshops and conferences on various areas of cancer treatment and care. Maggie Stowers and Carmel Winstanley Cancer Education Network Team Topic and Presenter Targeted Therapies (Professor Richard Bell) Regional Sites Attended Total / Video Linked Nos Colac, Hamilton, Heywood, 42 Warrnambool KEY PRIORITY AREA INFLUENCED • 14 Multidisciplinary Care • Care Coordination • Supportive Care • Reducing Unwanted Variations in Care Sexuality in Cancer Care (Frances D’Arcy-Tehan) Warrnambool 29 Lymphoedema Update (Dr Deb Harley and Theresa Suto) Port Fairy, Portland 39 Multidisciplinary Care (Jacqui Hennock and Shayne Ryan) Warrnambool 22 Leukaemia Update (Dr Helen Fairweather) Colac, Hamilton 48 Social, Emotional & Spiritual Aspects of a Long Term Camperdown, Colac, Hamilton, 58 Cancer Journey (Karen Todd and Russell Armstrong) Portland, Warrnambool Management of Head & Neck Cancer (Dr Rohen White) Hamilton, Warrnambool 25 Clinical Trials Update (Anne Woollett) Colac, Warrnambool 31 Diagnostic Imaging in Breast Cancer (Dr Linda West) Warrnambool, Hamilton 32 BSWRICS Annual Report 08/09 professional development grants Continuing professional development of health professionals in our region has again been a focus of BSWRICS. Grants to attend Conferences, Seminars and Workshops have been made available to the following: RECIPIENTS 2009: 11th National Breast Cancer Nurse Conference, Melbourne Nurses: Portland District Health, Western District Health Service, St John of God Geelong, Colac Area Health, Barwon Health, BreastScreen and South West Healthcare Bone Marrow & Stem Cell Short Course, Melbourne Nurses: Barwon Health, Colac Area Health Haematological Associations 2009 Annual Scientific Meeting, Adelaide Nurse: Barwon Health Clinical Oncological Society of Australia Annual Scientific Meeting, Gold Coast Nurses: Barwon Health “I simply would not have been able to attend the conference without your assistance” Palliative Care Nurse, South West Healthcare Source: Cancer Council 11th National Breast Cancer Nurses Conference 2009 website “I found the Conference invaluable and felt encouraged to do further study in Breast Cancer” Breast Care Nurse, Barwon Health Colorectal Cancer – A Multidisciplinary Approach, Melbourne Surgeons: South West Healthcare, St John of God Geelong; Nurses: St John of God Geelong; GPs: Geelong Grief and Bereavement Conference, Geelong Nurse: Barwon Health Australia & New Zealand Childrens Haematology & Oncology Group Conference, Melbourne Nurse: Barwon Health Cancer Nurses Society Australia, Newcastle, NSW Nurses: Colac Area Health, South West Healthcare, Barwon Health “The conference was outstanding, not only the key speakers but the opportunity to network” Nurse, Western District Health Service Living with Cancer Facilitator Course, Melbourne Nurses: Geelong Private Hospital, St John of God Geelong, Colac Area Health, South West Healthcare, Western District Health Service Social Worker: Barwon Health Living with Cancer Facilitator Course, Portland Nurses: South West Healthcare, Portland District Health; Psychologists: Portland District Health; District Nurses: Timboon & District Health Service, Portland District Health Social Worker: Portland District Health “The support of BSWRICS has really made it possible to expand the Living with Cancer Program in the Barwon region” Sue Hegarty, Cancer Services Coordinator, Cancer Council Victoria BSWRICS Workshops: Lunch and Learn Presentation, Geelong Nurses: St John of God Geelong BSWRICS Workshop on Responding to People experiencing Distress, Warrnambool Nurses: South West Healthcare, Portland District Health, St John of God Hospital Warrnambool, Western District Health Service, Colac Area Health Doctor: Portland District Health 15 highlights & collaborations CNSA AWARD TASMANIA CARE COORDINATION Maggie Stowers was awarded with a certificate of appreciation recognising the substantial contribution made to the Cancer Nurses Society of Australia and thanking her for her commitment and dedication to cancer nursing. BSWRICS provided advice and consultation on the development of a Cancer Care Coordination Role for Tasmania to the Department of Health and Human Services, Tasmania. POLO RALPH LAUREN PINK PONY CAMPAIGN WEBCAM COMMUNICATION PROJECT “ Big Thanks to Maggie Stowers and team at BSWRICS for all your support, inspiration and help with databases, and everything else.” National Breast and Ovarian Cancer Centre (NBOCC) and Breast Cancer Network Australia (BCNA) have been awarded funding of $2.7 million by the Australian Government to undertake a joint program of work to provide information and supportive care to women in rural areas diagnosed with breast cancer. Renae Grundy with the Tasmanian Care Coordination poster presented at Cancer Nurses Society of Australia Winter Congress 2009. As part of this program, NBOCC will be undertaking a project to link rural families through online video communication when women travel away from home for long periods of time to undergo breast cancer treatment. “NBOCC is grateful to the team at Barwon South Western Regional Integrated Cancer Service for sharing the successes and learnings of their pilot program, ‘G’Day Mum’, to assist in the development of this project,” said Associate Professor Christine Giles, General Manager and Director Policy and Government Relations, NBOCC. ELECTRONIC REGIONAL ONCOLOGY SYSTEM Linda Batson and Marilyn Wendt presented a poster outlining EROS at the Clinical Oncology Society of Australia Annual Scientific Meeting, Sydney in November 2008. INTERNATIONAL SUPPORTIVE CARE CONFERENCE Melinda Williams attended the International Psycho-Oncology Society 11th World Congress of Psycho-Oncology, Vienna, Austria – June 2009. This conference provided Melinda with the opportunity to: • G ain an international perspective on the challenges health clinicians from other cancer centres face when providing psychosocial support for cancer patients. • L earn from others about the challenges and strategies utilised in implementing a psychosocial screening tool for routine use in cancer centres. • B roaden her knowledge of psychosocial screening tools for use with people dealing with cancer. 16 COMMUNITY FORUM, APOLLO BAY Shayne Ryan presented at the Apollo Bay Community Forum organised by Otway Health and Community Services in June 2009 on the supportive care services available at Barwon Health’s Andrew Love Cancer Centre. INTERNATIONAL RECOGNITION OF BSWRICS MULTIDISCIPLINARY CARE MEETINGS. BSWRICS was invited to participate as one of thirteen organisations worldwide, and one of two from Australia, to be included in a global assessment scan of technologies being used to support the organisation and running of multidisciplinary meetings, to archive content from the meetings, and to track data from the multidisciplinary meetings centrally. EVALUATION OF CANCER OUTCOMES TRIAL PUBLISHED IN A REFEREED JOURNAL Hopgood, N. A World First in Cancer Data Collection Trial, Health Information Management Journal, vol 38 No 2, 2009. CANCER NURSES SOCIETY OF AUSTRALIA WINTER CONGRESS 09 Maggie Stowers presented “Cancer Link Nurses: Cornerstones for Regional and Rural Cancer Care”, outlining the pilot Link Nurse project. BSWRICS Annual Report 08/09 future directions ELECTRONIC REGIONAL ONCOLOGY SYSTEM The Electronic Regional Oncology System (Charm) has been used successfully at Barwon Health, Geelong since April 2007, and Western District Health Service, Hamilton since November 2008, providing oncology treatment pathways that are consistent and evidence based to the residents of the Barwon South Western Region of Victoria. In 2009, oral chemotherapy protocols were loaded into Charm. Clinicians can now provide the patient with a Charm order to take to the pharmacy with their handwritten prescription, this will provide legible information for the pharmacist to check doses, as well as provide the patient with complete information about their oral chemotherapy treatment. Work is in progress to install Charm at South West Healthcare in Warrnambool, enabling SWH to join EROS ensuring patients across the region receive consistent treatment. It is anticipated that this work will be completed early in 2010. Marilyn Wendt, Charm Project Officer CANCER LINK NURSE PROJECT Following the successful pilot of a Regional Cancer Link Nurse at Colac Area Health, further Cancer Link Nurse roles are in development for South West Healthcare, Western District Health Service and Portland District Health. SUPPORTIVE CARE MULTIDISCIPLINARY MEETINGS After attending the International Psycho-Oncology Society 11th World Congress of Psycho-Oncology, Vienna, Austria – June 2009 Melinda Williams is working towards establishing a supportive care team multidisciplinary meeting. The meeting has been modelled on the tumour stream multidisciplinary care meetings with the assistance of the MDM Coordinator Shayne Ryan. CANCER PATIENT INFORMATION TRACKING AND ANALYSIS LIBRARY (CAPITAL) An online library database has been developed to accurately track the provision of information to cancer patients, their families and the community across the region. The database will be used by cancer patient information centres in Colac, Portland and Warrnambool. CaPITAL is expected to be operational in the second half of 2009. HEALTH PROFESSIONAL DIRECTORY UPDATE The Barwon South Western Regional Cancer and Palliative Care Directory for Health Professionals is to be updated during the next year. BSWRICS WEBSITE BSWRICS are working towards establishing a user friendly website. It is anticipated that the website will contain an online version of the Health Professionals and Community Directories. The website will also contain information about current BSWRICS projects, staff, strategic directions inline with VCAP and general cancer care information for the region. QUALITY FRAMEWORK Once the BSWRICS Strategic plan 2009-2011 is completed a quality framework will be developed for the Barwon South West region. The Department of Health’s Clinical excellence in care: A model for safety and quality in Victorian cancer services will also inform the BSWRICS Quality Framework. The framework will be integrated with the current quality processes within each health service. Source: www.lighthouse.net.au. The Griffiths Island Lighthouse, Port Fairy. 17 Financial STATEMENT 2009 STATEMENT OF INCOME, GRANTS AND EXPENDITURE Income Leadership & ICS Management Quality Improvement and Tumour Stream Activities Multidisciplinary Care Coordination & Development Care Coordination Support Quality Monitoring and Support Psychosocial Care Development Victorian Cancer Agency Grant and other Funds Total Income Expenditure Salaries Motor Vehicles Computers, software and IT services Telephone/Postal Services Repairs and Maintenance Travel and Accommodation Printing and Stationery Catering Conferences/Professional Development Membership expenses CHARM Installation, training & implementation South West Rental. Rates and costs for South West Office Cancer Education Network Capital Expenditure Barwon Health Administration and other expenses Total Expenditure Net Surplus 2008 268,000 643,000 107,000 80,967 1,098,967 561,592 7,235 30,051 7,111 44,994 12,340 19,259 2,943 23,377 1,743 287,046 4,729 32,004 1,054,424 44,543 2009 281,623 168,972 168,072 247,822 90,121 112,650 5,000 1,075,160 710,662 17,193 59,868 12,008 5,651 12,187 22,032 2,772 38,958 9,030 8,023 36,361 16,703 23,219 974,667 100,493 Surplus in 2008-09 due to Program Managers position being vacant for the majority of the year. BARWON HEALTH DECLARATION As host agency and fund holding body of the Barwon South Western Regional Integrated Cancer Service we certify that the following statement of income, grants and expenditure for the 2008/2009 financial year is a true and correct record. The following statement has not been independently audited. Supporting documentation for this statement may be requested from Barwon Health. Brandon Howard Finance Manager - Barwon Health 18 BSWRICS Annual Report 08/09 BSWRICS Team CO DIRECTORS Associate Professor Richard Bell Dr Lucy Cuddihy CANCER COORDINATION MANAGER Maggie Stowers BARWON CANCER COORDINATOR Melinda Williams MULTIDISCIPLINARY CARE /QUALITY MANAGER Jacqui Hennock MULTIDISCIPLINARY CARE/ CANCER INFORMATION OFFICER Shayne Ryan HEALTH INFORMATION MANAGER VCON team leader Nicole Hopgood HEALTH INFORMATION MANAGER Leigh Matheson DATA ANALYST Lilian Falero HEALTH INFORMATION OFFICER Rachael Clemson ADMINISTRATION/ PUBLICATIONS OFFICER Carmel Winstanley PHARMACY CONSULTANT Marilyn Wendt SOUTH WEST PROJECT OFFICER SUPPORTIVE CARE Sharon Petering We would like to acknowledge the achievements and contributions to the BSWRICS Project by Linda Batson, Shane Timms, Kathryn Wooles and Mary Harvey who left the BSWRICS team in 2008/2009. 19 Southern Grampians Lake Elizabeth Otway National Park Dartmoor Camperdown BSWRICS Barwon South Western Regional Integrated Cancer Service Bellarine Peninsula Warrnambool Andrew Love Cancer Centre 70 Swanston Street, Geelong 3220 Phone (03) 5260 3051 Fax (03) 9012 4493 Email: [email protected]