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Language Discourse with dementia in mind Presented By: Joshua DeAngelo Avery Dr. Boyd Davis Gerontology 5050 Language, Aging and Health University of North Carolina at Charlotte Spring 2006 Topics of Discussion Aging Dementia Chemotherapy Factors Issues Interventions Introduction With life, comes aging… a natural process which should not be deemed as a negative to society. Unfortunately, many societies pessimistically identify individuals as they age and as research has shown, this can be detrimental to an individual’s well being. For example, in attempt to reject the aging process as much as possible, many Americans seek plastic surgery to counterbalance the effects of aging. Yet, as this project will show, aging should not be rejected, nor should people feel pressure from society to reject the natural aging process. Aging As aging occurs in each of us, we must all be prepared to handle what I will call the “side effects” of this process. Here, side effect can mean any perimeters that the individual or the society create as a constraining mechanism. In other words, when a person believes that they are “too old” to participate/do something, then they are suffering from the side effects of aging. Some research would point the finger at societal attributes and social ideologies, while it is also important to understand that this idea of “too old” can be based on an individuals cultural and ethnic background as well. In many cases, the side effects of aging are not as detrimental to either the individual or the society, yet some minimize their place in the overall scheme of society based on their age. This is sad in a lot of cases because it is not an absolute. Age should not act as a barrier or necessarily a bridge, but “ability” rather than age should be identified as a more accurate factor in ones place in society. Aging In America, production is a general key to success, thus the American society often gauges an individual’s value based on their ability. Success and productivity are frequently understood to be the markers of importance and therefore as people age, an inaccurate correlation can be disproportionately made. To some, elderly people loose their productive value as they age and though this may be true to some extent, it is also not an absolute. Some sociologists would even note that an elderly individuals labor productivity should not be the sole qualifier of their social worth. For there are many parts to a successful society, and ironically elderly individuals metaphorically become the pistons that drive the social engine. Dementia Since health issues are often associated with aging, it is not unusual for negative health issues to be viewed as a natural side effect of the aging process. Though this is not always true for each individual across the board, it can be the case for the larger percentage of aging adults. Along with those who face the ordinary obstacles of aging, when other severe ailments, such as dementia are also present in the body, the challenges in communication and autonomy both increase. Dementia Individuals with dementia face several factors when considering treatment options that are not as common to individuals who do not suffer from the disorder. This becomes particularly important when identifying the use, effectiveness, and accuracy of communication through language discourse. In many instances, language discourse can be the cornerstone of correct and accurate treatment, therefore patients with dementia are at high risks when language becomes a barrier of communication rather than a bridge. Dementia To this end, it is important that when studying individuals with dementia, factors that encourage correct treatment are embraced. Though Dementia is seen as a scary disease with no present cure, that doesn’t mean patients with dementia deserve to be treated inhumanely. Unfortunately, along with cognitive skills, language and communication functions are also affected when dementia intrudes the human mind. For physicians and medical professionals, it becomes even that much more important to accurately assess an individual with dementia’s needs, particularly when they struggle with an underlying communication barrier within themselves. Chemotherapy This treatment uses powerful drugs to kill cancer cells. In cases of small cell lung cancer, chemotherapy may be used to slow the cancer's growth, to prevent it from spreading further, or to relieve symptoms and make you more comfortable (palliative care). A combination of drugs usually is given in a series of treatments over a period of weeks or months, with breaks in between so your body can recover. Even so, because the drugs damage healthy cells along with malignant ones, they can cause serious side effects. In fact, for many people, side effects from chemotherapy are the most disturbing aspect of cancer treatment. Factors Fast-growing cells such as those in your digestive tract, bone marrow and hair are especially likely to be affected. But although side effects are common, their severity depends on the drugs used and your response to them. To elderly patients who also suffer from dementia, the question becomes, “do the benefits outweigh the costs?” This becomes an extended issue when communication may be compromised. Since elderly adults with dementia often lack recall and recognition, the use of several drugs, particularly in chemotherapy can offer additional decision-making challenges that aren’t as prevalent with those who do not suffer from dementia. Issues Studies have shown that when communication between patient and physician is compromised, treatment practices can also be questioned. Particularly, in the sensitive area of chemotherapy treatments for patients with dementia, there are several factors that can influence the ethical dilemma of this issue. Mental Issues: Understanding what the treatments are for Understanding what the treatments are doing Understanding the side effects of the treatments Physical Issues: Inability to sit still for long periods of time during treatment Intervention Ultimately, many studies have developed similar conclusions. In the area of aging, research has often shown that individuals who share similar backgrounds or ethnic identities may find it easier to accurately converse with each other, rather than with a person from another cultural background. As we saw in the metaphor analysis completed earlier this semester, even the same phrase can be interpreted a variety of ways by several different individuals. In medical practices, this should also be considered even in everyday communication between patient and physician. Intervention In accessing language with aging it is also imperative to acknowledge the loss of memory found with aging adults. It is no secret that diagnosing treatment options for cancer patients altogether can be challenging in several ways. However, specifically when these individuals happen to be riddled by dementia, considering the mere use of chemotherapy as a treatment option can become a tricky and potentially problematic decision all to itself. When faced with these obstacles, people with dementia need the contributions and support of their family and those who care about their overall well being. The importance of proactive care through advanced directives such as advanced care planning becomes all the more vital when dealing with people who suffer from the ailments caused by dementia. Intervention Even when both autonomy and competency become questioned, legal procedures such as substituted judgment and Power of Attorney allow method for the best interest of the individual to be implemented. Furthermore, with any aging individual and especially those with dementia, along with the family and an active support network, they should all work as a team in taking proactive steps towards accommodating the specific needs of the person. I believe if the physicians and medical staff are able to fulfill their roles as the information providers and caretakers, families should also be able to act as positive contributors in assisting the person to gain the best care available. As stated earlier, family involvement and accurate assessments are the key. When a person’s autonomy and competency are both in question, it is the family or guardian’s responsibility to be involved in making sure that the individual’s well being is satisfied to their own personal standards. Conclusion All in all, I believe the question of “should chemotherapy be used for people with dementia” needs to be reexamined. Instead, I would suggest that chemotherapy can be used as means to assist cancer patients – including those with dementia – only if certain strategies are implemented to affectively contribute an individual’s well being. Inclusive measures should be taken so that the individual still feels like a part of the society and the society still acknowledges that the individual is a key component that keeps the societies engine revved up.