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TB Awareness / Perceptions Questionnaire Gender: M / F How old are you? (circle one) 10 -19 20-29 30-39 40-49 50-59 60 and above Nationality: ______________________________ Marital status: (circle one) Never Married / Married / Divorced / Widowed Educational background: (circle one) None Primary Secondary College University and above Residence: ____________________ 1. Have you heard of TB? Yes / No 2. What do you call it in your culture? ____________________________________ 3. Have you ever been infected with TB? Yes / No 4. If you answered “yes” to question 3, how long ago were you infected? _______________ 5. Do you know someone who has been infected with TB? Yes / No 6. Do you know what TB (tuberculosis) is? Yes / No 7. How is it spread? 8. What causes TB? Cough (Air) / Unclean food or water / Public area / Hereditary / Sexual contact with TB patient / Don’t know / Other reason _________________ Bacteria / Virus / Evil eye / Satan or witchcraft / Don’t know / Other cause _________ 9. Is it infectious? Yes / No / Don’t know 10. Is it preventable? Yes / No / Don’t know 11. How? _________________________ 12. Is it treatable? Yes / No / Don’t know 13. How long does the treatment take? 14. Is the recovery complete? 1 month / 2months / 3months / 6 months / 1 year Yes / No / Don’t know 15. If you had cough with blood, what would you do? (circle ONE of the 4 choices) Self treatment: traditional medicine / Modern medicine Consult someone: traditional medicine / Modern medicine 16. If you had a persistent cough with no blood, what would you do? 1 Nothing / Ask a family member or a friend / Self –treatment / Wait for sometime before consulting a health care provider / Other ______________________ 17. If you answered ‘wait for sometime’, in question 16, how long would you wait for? 1 week / 2 weeks / 1 month / 2 months / 3 months / more than 3 months The questionnaire was adapted from the following resources: Abebe G, Deribew A, Apers L, Woldemichael K, Shiffa J, et al. (2010) Knowledge, Health Seeking Behavior and Perceived Stigma towards Tuberculosis among Tuberculosis Suspects in a Rural Community in Southwest Ethiopia. PLoS ONE 5(10): e13339. doi:10.1371/journal.pone.0013339 Liefooghe, R., J.B. Baliddawa, E.M. Kiruto, C. Vermeire, and A.O. De Munynck. (1997) From their own perspective. A Kenyan community’s perception of tuberculosis . Tropical Medicine and International Health 2.8: 809-821. Web. 24 Oct 2010. 2 SEMI-STRUCTURED INTERVIEW GUIDE FOR TB PATIENTS Gender: Age: Nationality: Educational background: Year of arrival in Qatar: Questions to elicit cultural and traditional beliefs regarding the disease and its treatment: 1. What is the name of this disease in your region/tradition/culture? 2. Are the symptoms of the “named” disease similar to your symptoms? 3. What do you think is the reason for contracting this disease? 4. Are there any other cultural conditions/symptoms related to this disease, besides the medical symptoms that you have mentioned? 5. Can this disease be treated? If not, why? 6. How is this disease treated? 7. Should the disease be treated immediately? Why should/should not the disease be treated immediately? 8. Is this disease indicative of another disease or does it cause any other disease? If yes, please describe the symptoms of the disease. Questions designed to elicit social response to patients with TB from the patient’s viewpoint: 1. Have you informed your family about your disease? If yes, what is their response to your disease? 2. Has there been a change in your family’s interaction with you since you contracted the disease? 3. Why do you think your family’s interaction with you has changed? 3 4. Have you informed your co-workers about your disease? 5. Do your co-workers/friends visit you? 6. Has there been a change in their attitude towards you? 7. Why do you think their attitude towards you has changed? Questions designed to elicit patient’s response to the treatment they are receiving: 1. Do you know why you are here? 2. What kind of treatment are you receiving? 3. Are you satisfied with your treatment? Do you feel like its changing you or helping you? 4. Do you think you need some other form of treatment? If yes, what is that form? Do you know of any other treatments? 5. How would you describe your interaction with the medical staff? Sources used to design questions: R Shrestha-Kuwahara, M Wilce, HA Joseph, JW Carey, R Plank, and E Sumartojo. (2004). Tuberculosis Research and Control. Encyclopedia of Medical Anthropology (I)5 www.findtbresources.org/material/Anthrop_Contrib.PDF Hansel N, Wu A, Chang B, Diette G. (2004) Quality of life in tuberculosis: Patient and provider perspectives. Quality of Life Research. 13: 639-652 4