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INTRODUCTION This booklet has been written to help you understand what will happen when you have your pacemaker fitted. NORMAL HEART CONDUCTION Within the heart there are specialised pacemaker cells which discharge electrically to stimulate heart muscle action. These pacemaker cells are situated in the Sino Atrial Node within the upper chambers of the heart. This is the heart’s natural pacemaker which starts an electrical impulse which is then passed to the lower chambers through connecting fibres called the Atrio Ventricular Node to activate the lower chambers of the heart and cause the major pumping action of the heart. The life of a pacemaker is normally around 6 to 8 years, after which time your pacemaker will need replacing. It will be carefully monitored each time you visit the pacemaker clinic and when the pacemaker begins to show signs of running down you will be asked to come back more frequently to have it checked. When the pacemaker needs changing, you will need to come back into hospital for 1 or 2 days. Now that you have your pacemaker fitted there should be no restrictions or limitations to your lifestyle (besides those mentioned in this booklet). It is important that you continue to live a normal, happy, healthy life and enjoy the benefits that your pacemaker will provide for you. Diagram showing the Heart’s Electrical System TOP OF HEART ATRIO VENTRICULAR NODE SINO ATRIAL NODE www.yourheart.org.uk is one of the first interactive web sites for heart patients and their relatives and friends in the UK. This site will offer heart and health related information available. TRANSLATION BOTTOM OF HEART If you would like this information in another language or format, please contact the Service Equality Manager on 0116 258 4382. Sometimes the electrical system of the heart can become damaged leading to serious slowing of the heart. This may be intermittent or constant and can lead to a variety of problems. A pacemaker may then be needed to help the heart to beat normally returning the person to improved health. -1- - 10 - When travelling abroad IT IS important that you avoid walking through archway weapon detector devices. Tell someone at the security area that you have a pacemaker and show them your pacemaker card. They will then hand search you, to give you clearance to continue with your travelling. The pacemaker clinic at Glenfield Hospital has addresses of pacemaker clinics throughout Europe. If you have any worries about travelling abroad now that you have a pacemaker fitted, our pacemaker clinic will gladly give you the addresses of the nearest pacemaker centre to where you will be staying. Now that YOU have a pacemaker it is important that you attend the pacemaker clinic for your check-ups. The first check-up is after 4-6 weeks The second check-up is after 4 months The third check-up is after 12 months If all is well after the third check-up then you will usually only have to attend the pacemaker clinic once a year. If you are unable to attend any appointments, just phone the pacemaker clinic as soon as possible and a new appointment will be given to you. If possible, we encourage patients to make their own way to the pacemaker clinic or get a relative to bring you. However, if no transport is available or no one can bring you, then you should contact your GP at least 3 working days in advance to your appointment and book ambulance transport (Northamptonshire patients should telephone the pacemaker clinic at least 7 days before their appointments). -9- WHAT IS A PACEMAKER SYSTEM? A system includes a pacemaker and connecting wire(s) that hook to the heart. This allows internal activity to be recognised and if absent the pacemaker will stimulate heart activity. The wire(s) is passed into the heart along a vein and is connected to the pacemaker, which is then positioned usually on the left side of the chest just below the collarbone. Pacemakers may also be fitted on the right side and less commonly these days, under the left armpit or in the abdomen. HOW A PACEMAKER WORKS The pacemaker has an electrical system, which is increasingly complex, but the basic function is to send an electrical impulse after sensing when the heart’s natural electrical system fails and slows the heart below a pre-set level. A pacing system may have one or two wires (single or dual chamber) placed in either the upper, lower or both chambers of the heart depending on where the fault is in the heart’s electrical system. Pacemakers usually have a variable rate although the person’s own beats may be faster than the pacemaker at times but should not fall below a present baseline. WHAT ARE THE RISKS OF DISORDERS OF THE HEART CONDUCTION SYSTEM? The slowing down of the heart can be serious and even life threatening on occasions and pacemaker insertion is vitally important. Occasionally a temporary system is needed urgently before a later permanent implant. A pacemaker may also advised when the severity of the heart slowing is less severe (eg be intermittent) or it is thought to be likely to deteriorate and serious consequences can be prevented. -2- WHAT ARE THE RISKS OF PACING? As with all invasive procedures there are some risks which we feel should be outlined in advance. Overall it should also be stated that the complications can be remedied and are rarely life threatening. Microwave ovens are normally safe to use, although unserviced or early models should be checked. At all times follow the manufacturers operating and servicing instructions. Mobile telephones are safe to use when you follow these guidelines: a) At the time of the procedure Accidental damage to blood vessels when placing the pacemaker wires into the heart Puncture of lung causing an air leak from the lung (2-3%) Discomfort/bleeding during the procedure and damage to the new (or old) pacing wires (rare). b) After the procedure Movement of the pacemaker wires requiring repositioning (2-3%) Bleeding from the wound (2-3%) Infection of the wound or wires within the circulation (1-2%) Failure of pacemaker equipment (rare) PREPARATION FOR YOUR PACEMAKER Some preparation will be needed before you have your pacemaker fitted. The procedure will be explained by the nurse caring for you. The doctor will explain what will happen during the procedure. You will need to sign a consent form; if you are unsure of anything then ask the doctor or your nurse before signing the form. Keep the mobile telephone 15cm (6 inches) away from your pacemaker. Hold the telephone to the ear opposite the pacemaker. When the telephone is being carried, store it in a location opposite the side of the pacemaker. This is suggested because some telephones emit a signal when they are turned to the ‘on’ position buy are not in use. It is important that when attending any hospitals, clinics or dentists for treatment that you inform them that you have a pacemaker. It is also in your own interest that you carry your pacemaker card with you at all times. After your pacemaker is fitted you will not be able to drive for 1 week. But we would suggest not to drive a car until you have had your pacemaker checked at your first out-patient appointment. After you have had this check-up you will be able to drive your car again, unless an adjustment has to be made to the pacemaker or the wire, you will be told at the time and the appropriate action will be taken by the hospital. The procedure is undertaken using x-ray screening therefore it is important that if you think you may be pregnant you must let us know before coming into hospital. It is in your own interest and indeed a requirement that you now inform your car insurance company and the DVLA, Swansea (telephone: 01792 772151). Explain that you have had a pacemaker fitted, that it has been checked after 4/6 weeks and that it is working efficiently. Inform them of your doctor’s name and the pacemaker clinic that you are attending. Having a pacemaker fitted should NOT affect your insurance premiums. -3- -8- Car alarms that use a remote control to switch the alarm on and off, should NEVER be pointed at your pacemaker. Ordinary household equipment will not present any hazards to your pacemaker. However, some powerful electrical equipment may generate interference if you get too close. You may experience your heart rate speeding up or becoming irregular. These symptoms will subside if you move away from the source of the interference. Things to avoid are: Before your pacemaker is fitted: We ask that you have nothing to eat for four hours or drink for two hours. You will need to have a wash and put on a gown. You may be given a tablet known as a ‘pre-med’ to help you relax. You will be transferred to the pacemaker room on your bed. IN THE PACEMAKER ROOM Household appliances that are improperly earthed. If you are unsure, have the plugs checked to make sure the wires are properly connected. Short-wave therapy treatment, eg, slendertone machines, electrolysis treatment. Direct contact with car ignition systems. High powered radar, radio and TV transmitters (your own TV and radio are perfectly safe). Welding equipment. Close contact with electrical spark producing equipment. Never place any large magnets near your pacemaker. Before using any electrical exercising sports equipment, seek advice from the gym instructor or the manufacturers to check whether it is safe for you to use. Tens machines can be used by people with pacemakers, however caution is required with placement of the tens. Tens placed on the lower back will usually cause no interference with the pacemakers functions, however it is advisable to get thoroughly assessed in the pacemaker clinic with the tens machines in use. It is recommenced not to use the tens on the shoulders. -7- You will be awake during the time your pacemaker is fitted. Your skin in the area where your pacemaker will be implanted will be cleaned with some cleaning solution and sterile green cloths placed around the area. There will be an x-ray camera above you and you will be attached to a heart monitor. Some medication (local anaesthetic) will be injected to numb your skin and tissues. Once this has taken effect, a cut about 2 or 3 inches long will be made to fit your pacemaker. When the wire(s) and the pacemaker are in place, the technician will check the function of the pacemaker. The doctor will view it on the x-ray equipment and then your cut will be stitched and a dressing applied. The whole procedure normally takes about 45 to 90 minutes. You will then be ready to return to the ward ON RETURN TO THE WARD On return to the ward your wound will be checked regularly for any bleeding or swelling. You will need to stay resting on your bed for at least two hours or may be longer. You will be advised to limit the movement of your arm on the side that the pacemaker has been fitted in order to reduce the potential risk of the wire moving. -4- You will have your pacemaker function checked to ensure it is properly working. At this check you will be given an appointment for four to six weeks to return to the pacemaker clinic plus a pacemaker card containing information about your type of pacemaker which you should always carry around with you. You will also need to have a chest x-ray to ensure that the pacemaker wire is in a good position and to check there are no other complications. Usually, you are able to go home or are transferred back to a hospital near your home the day after your pacemaker was fitted. ADVICE FOR AT HOME When a pacemaker has been fitted into a person, it will be electronically programmed to beat at a certain rate. This rate is written on your pacemaker card, your pulse may be higher than this number by natural heart activity but should not fall below it. If on taking your pulse it varies greatly from the figure shown and you are feeling unwell, contact your doctor straight away in case you need to have the pacemaker checked. How to take your pulse CARE OF YOUR WOUND The dressing to your wound may be removed two days after the pacemaker has been fitted and the wound should then be left uncovered. You may see some bruising around the wound area. It may be advisable for the first couple of weeks to wear loose clothing, so that your clothes do not catch on your wound. While your wound is healing you must be careful how it is cleaned. Having a bath or shower however is fine provided that your wound is fully dried afterwards. You are advised not to use any strong smelling soaps, talc’s, body lotion, deodorants, perfumes near your wound whilst it is healing. Your wound will have a dissolvable stitch, which may have a small anchor stitch visible at both ends of your wound. These anchor stitches will drop off by themselves if left but this may take a few weeks. If this does not occur, they can be cut off when you see the district nurse or return to the clinic. Your nurse will show you your wound before you leave hospital. If any further bruising, swelling or bleeding develops, or if your wound starts to ooze any secretions or becomes hot and tender to touch, go to see your GP straight away. He may need to prescribe anti-biotics and he will do this himself or he may prefer you to ‘phone the Pacemaker Clinic on: 0116 258 3837 -5- The easiest place for you to take your pulse is in the wrist. This can be found by holding your hand out with the palm upmost and placing two fingers on your wrist in line with your thumb. When you have found the pulse, count how many beats you feel for one minute. It is important that until you come back for your first pacemaker clinic appointment, you are careful with any activities you carry out using your arm on the side of the pacemaker. This will give the wound time to heal and the wire to settle into place. Therefore, avoid any heavy lifting, strenuous exercise, stretching for example, carrying shopping bags, hanging clothes on the washing line for the first four to six weeks. Household jobs like hoovering, ironing, lifting heavy saucepans must be done with caution. If you have to lift anything heavy, make sure you use both hands to take the weight. You may resume a normal sex life when you feel fit but for the first four weeks avoid pressure being placed on your wound. -6- Haddaad rabto warqadan oo turjuman oo ku duuban cajalad ama qoraal ah fadlan la xiriir, Maamulaha Adeegga Sinaanta 0116 2584382. GLENFIELD HOSPITAL CARDIAC SERVICES Eĝer bu broşürün (kitapçıĝın) yazılı veya kasetli açıklamasını isterseniz lütfen servis müdürüne 0116 258 4382 telefonundan ulaşabilirsiniz. HAVING A PACEMAKER This booklet has been produced by: The Cardio-Respiratory Patient Information Group Origination date: September 1999 Updated: April 2003 A GUIDE FOR PATIENTS University Hospitals of Leicester NHS Trust Glenfield Hospital Groby Road Leicester LE3 9QP Telephone: 0300 303 1573 Fax: 0116 2583950 Minicom: 0116 2879852 University Hospitals of Leicester NHS Trust Glenfield Hospital