Download PAN BIRMINGHAM CANCER NETWORK

WEST MIDLANDS STRATEGIC CLINICAL NETWORK – CANCER
MINUTES OF WEST MIDLANDS METASTATIC SPINAL CORD COMPRESSION
(MSCC), ACUTE ONCOLOGY AND CANCER OF THE UNKNOWN PRIMARY EXPERT
ADVISORYGROUP
Held on Tuesday 23 September 2014 at Crowne Plaza Hotel, NEC
Present:
Dr Peter Correa
PC
Mrs Mandy Wilson
Ms Nicky Adams
Ms Jas Brent
Ms Andrea Chatterley
Dr Caroline Connolly
Dr Alison Franks
MW
NA
JBren
AC
CC
AF
Ms Alison Herbert
Mr Paul Hickman
Ms Lisa Kembery
AH
PH
LK
Mrs Anita Killingworth
Dr Rakesh Mehra
Dr Sarah Pickstock
Dr Ben Ritzenthaler
Ms Nicola Robottom
Ms Clair Turner
AK
RM
SP
BR
NR
CT
1.
University Hospital Coventry and Warwickshire NHS
Trust
West Midlands Strategic Cancer Network
Walsall Healthcare NHS Trust
Heart of England NHS Foundation Trust
University Hospital North Staffordshire NHS Trust
University Hospital North Staffordshire NHS Trust
University Hospital Coventry and Warwickshire NHS
Trust
Walsall Healthcare NHS Trust
Sandwell and West Birmingham Hospitals NHS Trust
University Hospital Coventry and Warwickshire NHS
Trust
Royal Orthopaedic Hospital NHS Foundation Trust
Royal Wolverhampton Hospital NHS Trust
Mid Staffordshire Hospital NHS Trust
Dudley Group NHS Foundation Trust
Royal Wolverhampton Hospital NHS Trust
University Hospital North Staffordshire NHS Trust
Apologies:
Ms Jayne Breen
Ms Julie Bliss
Ms Caroline Hunt
Ms Charlotte Jackson
Ms Michelle Judge
Mrs Jill Kneale
Ms Caroline Pemberton
JBree
JBl
CH
CJ
MJ
JK
CP
Ms Lynn Reaper
Dr Andrea Stevens
LR
ASte
Mr Alistair Stirling
Ms Shona Underwood
Ms Di Waldron
ASti
SW
DW
Heart of England NHS Foundation Trust
Heart of England NHS Foundation Trust
Shrewsbury and Telford Hospital NHS Trust
Heart of England NHS Foundation Trust
Worcestershire Acute Hospital NHS Trust
Heart of England NHS Foundation Trust
Robert Jones and Agnes Hunt Orthopaedic Hospital
NHS Foundation Trust
Heart of England NHS Foundation Trust
University Hospital Birmingham NHS Foundation
Trust
Royal Orthopaedic Hospital NHS Foundation Trust
Shrewsbury and Telford Hospital NHS Trust
University Hospital Birmingham NHS Foundation
Trust
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ACTION
2.
Minutes of the Meeting Held on 23 June 2014
These were agreed with the following amendment:CT and AK apologies to be added.
MW will amend the minutes accordingly.
3.
Matters Arising
There were no items of matters arising.
4.
Confirmation of Appointment of Deputy Chair Representing
Cancer of the Unknown Primary
The Group were informed that following the last meeting AF had
expressed an interest in becoming the Cancer of the Unknown
Primary Deputy Chair and this announcement had been circulated
via e-mail to members to seek their approval which was duly given.
AF was congratulated on her new appointment. Clarification was
then given over the roles of Deputies for this Group:PJ
AF
BR
5.
Acute Oncology
Cancer of the Unknown Primary
Metastatic Spinal Cord Compression
Acute Oncology Database – update on progress and review of
database form
PJ began this item by informing members that she had been in
contact with Stuart Baiby who used to work for Greater Midlands
Cancer Network and who had been responsible for the acute
oncology database.
The purpose of contacting Stuart was to ask whether it would be
possible for him to undertake a review and analysis of the data
already entered and to also, if possible, make the database fit for
purpose and easy to use.
It was clarified that the first task would require members,
predominately Clinical Nurse Specialists, looking at what information
is needed and identifying what format and information the reports
should include.
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MW
ACTION
It was also reported that West Midlands Cancer Intelligence Unit and
Somerset Database have also been approached to see if new data
fields could be added on to their systems thus making the acute
oncology database and their systems more compatible.
It was clarified that the ultimate aim is to have a database that is a
working document with mandatory fields that must be completed.
Although discussions will need to be undertaken with Stuart to
ascertain whether the system could be a “live” one.
It was acknowledged that the majority of Clinical Nurse Specialists,
especially in acute oncology, are single handed and therefore the
easier the database was to enter information the better.
It was reported that acute oncology on the Somerset system has
been put on hold until 2015 mainly for them to concentrate on the
cancer of the unknown primary sections.
PJ has ensured that the people running the Somerset system have
received the fields that are being asked to be added and she has
also informed them that it would be preferable for the system to be a
working tool rather than just a by-product to collect data.
Discussions on the database fields and what information should be
collected had been undertaken by the Nurses Group and some
amendments were made and PJ agreed to provide members with a
copy of the latest version of the proposed database to enable them
the ability to comment.
PJ
It is hoped that the data collected can be used as part of the
evidence gathering procedure for future Peer Review visits\reports.
Members were also informed that a new acute oncology service
specification is being produced by the Health Education Service and
as PJ is a member of this Group she can provide members with a
copy of the specification to enable them to review and comment
upon. It is intended for a wider consultation process to be
undertaken but by PJ circulating the document to members of this
Group it ensures everyone has the opportunity to review and
comment.
PJ then undertook a discussion against some of the categories
within the specification and some members present expressed their
concern that the collection of some of the items was not feasible.
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PJ\
Group
ACTION
PJ outlined that some of the data fields have the potential to become
mandatory, similar to SACT, which means it will be a Trust
requirement to ensure they are collected thus taking the onus off
Clinical Nurse Specialists having to be responsible.
Members were also informed that once the service specification had
been finalised it would generate a review and rewrite of the Peer
Review Measures to ensure that they are aligned which essentially
means that no “new” data will need to be gathered.
In terms of the next steps the Group were informed that Stuart Baiby
had offered to attend the next meeting of the Nurses Group to
identify what exactly is needed.
It was outlined that currently the database in existence is a
standalone model which means it is not able to communicate\share
information with other Trusts. It was felt by some of those present
that this would be more advantageous if the database could share
information.
It was then reported that such a database used to be in existence for
collection of data for MSCC and this had been developed and
managed by Pan Birmingham Cancer Network. It was reported that
although the database was very good at collecting data it was not
particularly good at generating reports.
MW agreed to speak to Alison Davies, Quality Improvement Lead
within West Midlands Strategic Clinical Network and Senate, to see if
the Pan Birmingham database can still be accessed and amended.
If so she will arrange a meeting for PJ with Alison to review how this
could be done and also to review what data fields were being
collected.
6.
Scoping Exercise
MW reported that responses had been received from the majority of
Trust and a report showing these responses was tabled at the
meeting. Members were informed that MW hopes to be able to
transpose the information into graphs showing what service is
provided and where.
The report tabled showed that the Acute Oncology Service across
the West Midlands was reasonably covered and that the gaps in
service provision appeared to be MSCC and Cancer of the Unknown
Primary.
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MW\
PJ
ACTION
7.
As outlined earlier MW hopes to be able to produce a West Midlands
wide graph showing where services are provided and for those
Trusts who have gaps in their service PC, as Chair of this Group,
would write to them seeking information on what their plans are to
rectify this.
PC
In the meantime MW reported that she intends to chase the Trusts
who have not yet responded to enable a true reflection of service
provision across the West Midlands to be given.
MW
It is intended, if MW is able to produce the graphs, for this item to be
discussed again at the next meeting.
Agenda
Patient Survey for Cancer of the Unknown Primary
Even though this is a Peer Review requirement it appears that some
Trusts have struggled to produce this document largely because of
the nature of the disease area to be surveyed.
NR did report that some Cancer of the Unknown Primary patients
have been identified who will be approached, ahead of their
outpatient appointments, asking them if they would be happy to
complete the survey and specifying that it is not compulsory.
Some concern was raised by members present in relation to how do
you “target” palliative care patients.
It was outlined that the aim of the survey needs to be clarified ahead
of anything being distributed for example is it looking at patients who
have an unknown primary, is it to identify how patients were
managed\dealt with etc.
It was clarified that although there is a National patient survey in
circulation this focuses more on the chemotherapy element of the
patient pathway and looks more at whether patients were given
information leaflets.
It was agreed that a copy of the National survey would be circulated
to members to allow them the opportunity to review and also copies
of the survey produced by NR would be circulated to ascertain if this
could be adopted by the Group.
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NR\
Group
ACTION
8.
Patient Information Leaflet for MSCC
PJ informed members that she had approached Macmillan Cancer
Support to ascertain if they would be happy to take over the
development and production of the patient alert card.
It was acknowledged that nationally there are various versions and
designs of the alert card in circulation and the aim is to have a
generic version produced which will be based on the current
versions taking into account the best bits of each of them.
PJ agreed to keep members informed in respect of Macmillan
Cancer Support developing and producing the cards.
9.
PJ
MSCC, Acute Oncology and Cancer of the Unknown Primary
Work Programme – to be reviewed
This was a document produced initially by Pan Birmingham Cancer
Network and it is intended that MW and PJ will meet to amalgamate
the constitutions from the “old” Cancer Networks to produce a West
Midlands wide version.
MW\
PJ
Some concern was expressed by those present in relation to the
current lack of a West Midlands Chemotherapy Expert Advisory
Group especially as a lot of the Measures for chemotherapy are
connected to MSCC, Acute Oncology and Cancer of the Unknown
Primary.
To try and raise the awareness of the importance of having a West
Midlands Chemotherapy Expert Advisory Group PJ reported that she
will shortly be meeting with Rob Gornall, Clinical Director for the
West Midlands Strategic Cancer Network to try and take this issue
forward.
Discussions were then undertaken in relation to the Macmillan
Cancer Support e-learning tool for Acute Oncology Nurses. It was
felt by those present that this is an excellent tool that should be more
widely adopted and used. Of course this should be undertaken in
conjunction with any local training that is also available.
In respect of 24 hour Consultant cover it was outlined that this was
managed and provided by the “old” Cancer Networks and again the
intention is to produce a West Midlands wide version.
It was acknowledged that the MSCC specification is a priority that
again needs to be produced on a West Midlands footprint. This is
something MW and PJ will undertake.
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MW\
PJ
ACTION
In the meantime PJ agreed to recirculate the Cancer of the Unknown
Primary guideline initially produced by Greater Midlands Cancer
Network to all Clinical Nurse Specialists to provide them with the
opportunity to review and identify whether the contents are still
appropriate.
10.
PJ\
CNSs
Any Other Business
Website
MW reported that the West Midlands Strategic Clinical Network and
Senate is now live (www.wmscnsenate.nhs.uk) and it is intended for
this Group to have their own section with the Cancer Network tab.
MW agreed to ascertain if it was possible to have a Drop Box facility
within this Group’s section.
MW
MSCC Workshop
This is to be held on 19 November 2014 at the Holiday Inn,
Birmingham. MW agreed to circulate information on this event and
how to register.
11.
MW
Date and Time of Next Meeting
The date and time of the next meeting is Thursday 17 December
2014 at 10.00 a.m. – venue to be confirmed.
At the meeting a date for early 2015 was also agreed, which is Tuesday 10 March 2015
commencing at 10.00 a.m. – venue to be confirmed.
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