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D Improving Midland Cancer Multidisciplinary Meetings Action Plan 2015 1 Table of Contents 1 Executive summary ............................................................................................ 3 2 Introduction ........................................................................................................ 5 3 Background ........................................................................................................ 5 4 Summary of progress in 2013-14 ....................................................................... 6 5 The Way Forward – Midland Cancer MDM Action Plan 2015 ............................. 8 6 Summary proposed expenditure for July 2014 – June 2015 ............................. 10 7 Conclusion ....................................................................................................... 10 Appendix 1: Current cancer multidisciplinary meetings............................................ 11 Appendix 2: VC connectivity .................................................................................... 12 Appendix 3: National tumour standards – summary of MDM requirements ............. 13 2 1 Executive summary Cancer MDMs are a deliberate, regular, face-to-face (or videoconference) meeting to facilitate prospective multidisciplinary discussion of options for patients’ treatment and care. Prospective treatment and care planning refers to making recommendations in real time, with an initial focus on the patient’s primary treatment. These recommendations can only be as good as the information available to the range of specialists (surgeons, radiologists, pathologists, medical and radiation oncologists etc.) at the meeting. The final decision on the treatment is made by the patient in discussion with their lead clinician. Improving cancer multidisciplinary meetings is a national priority contributing to the achievement of the faster cancer treatment health target, faster cancer treatment wait times, achievement of national tumour standards and improved patient outcomes. The Ministry of Health published the national guidance document Achieving best practice cancer care: Guidance for implementing quality multidisciplinary meetings (MDM Guidance) in 2012 to inform DHB best practice related to MDMs. The Ministry of Health has directed that pharmacy savings ($2m by PBFF to DHBs) be utilised for the establishment of MDMs for all cancer types and increasing the number of cases discussed at MDMs. Midland funding allocation Bay of Plenty: $110,207.51 Lakes: $50,301.28 Total: $359,719.07pa Waikato: $173,617.82 Tairawhiti: $25,592.46 This funding builds on prior investment by the Ministry of Health and regional cancer networks. DHBs are required to report quarterly on the expenditure of these funds and progress against this regional action plan. Phase 2 of the national tumour standards work programme will include the development of tumour stream data sets and prioritisation criteria for discussion of patients at cancer multidisciplinary meetings (December 2015). More information will be available in April 2015 about Budget Bid 2014 and tools for data capture to support clinical decision making that will be associated with data available at MDMs. What we have achieved Established new regional myeloma MDM which is held fortnightly. Lakes Breast Cancer MDM now has participation by Waikato-based oncologists and surgeon via video conferencing. Implementation of video conferencing for clinicians to participate in regional cancer MDMs and for Waikato specialists to participate in local MDMs; Tairawhiti surgeons connect into the Waikato Breast and GI Oncology MDMs; Whakatane surgeons connect to the Bay of Plenty Breast and Surgery Pathology MDMs; Bay of Plenty clinicians connect to the regional Head and Neck and Chest Conference; Lakes clinicians connect to the GI Oncology MDM, Chest Conference and as required Melanoma MDM. Waikato clinicians have been connecting to the CMDHB Sarcoma MDM. Video conference connectivity with associated audio visual equipment is located in the Waikato, Tauranga, Rotorua and Whakatane radiology conference rooms, Thames, L4 Meade Clinical Centre and more recently, Kathleen Kilgour Centre. Enhanced regional lung cancer eMDM proforma and database aligned to the National Lung Cancer Standards and data set (draft). 3 Employment of MDM coordinators at Waikato, Lakes and Bay of Plenty DHBs to support the administration of cancer MDMs. Development of agenda, proformas and terms of reference for an increasing number of MDMs to comply with the national guidance. Improved data capture related to MDMs. Discussion regionally and with Auckland DHB gynae-oncology surgical services on MDM service improvements (work in progress). What we need to focus on Current scheduling of MDMs regionally means that there are no fit for purpose video conference facilities to enable clinicians to participate in supra-regional MDMs held at the same time as Midland MDMs e.g. Auckland Gynae-Oncology MDM on Wednesday and CMDHB Sarcoma MDM on Thursday at Waikato with the only option being the CEO Meeting room VC which has only one monitor (two required). Development of MDM terms of reference. Only the Breast MDMs, Chest Conference, and Melanoma MDMs have finalised terms of reference and the GI Onology MDM one is in draft. Responsibility was assigned to MDM Chairs, MDM Coordinators and clinical nurse specialists. Most have experienced competing priorities and terms of reference were not considered a high priority despite a generic draft being available in the MDM Guidance document. Little integration of DHB source information systems or implementation of MDM management systems to enable the auto-population of eProformas (once developed) to reduce the administrative workload in the preparation for MDMs and associated data entry into tumour stream databases for audit and clinical decision making. Only one MDM (Chest Conference) has an associated database able to be populated by data download from the eProforma. The Head and Neck eProforma is in development with an associated database. The Neurosurgery MDM has an associated database. Development of proformas and eProformas. While work has occurred at Bay of Plenty to develop these for Breast and Surgery Pathology MDMs, there is reluctance to use them at MDMs. At Waikato work was halted on further development of proformas due to the imminent implementation of Orion Clinical Portal. A decision was later made not to proceed and work has not yet resumed in HealthViews. Proformas are completed by hand at the Breast MDMs. Not all MDMs have a designated Chair and deputy. Bay of Plenty Breast and Urology MDMs do not have medical oncology participation. Waikato Genito-urinary and Urology Oncology MDMs meet in facilities that are not fit for purpose, as does the Colorectal Pathology MDM. resource constraints include shortage of specialists to prepare for and participate in cancer MDMs especially pathologists and radiologists; oncologists at Bay of Plenty. The focus of the 2015 Midland MDM Action Plan includes: requirement for all cancer MDMs to comply all aspects of the national guidance and with requirements in the recently published national tumour standards all MDMs to have a designated Chair, deputy and terms of reference to ensure an efficient and effective use of staff time investigating MDM database requirements and keeping a watching brief on development of National Cancer Information Strategy, tumour stream data sets and Budget Bid 2014 for improving quality clinical decision making 4 FTE for data entry to comply with recommendations from regional tumour standards reviews for lung and bowel cancers regional agreement for Midland clinicians including oncologists to connect to Auckland Gynae-Oncology MDM additional VC endpoint at Waikato with 2 landscape monitors for connection to supraregional MDMs establishment of a regional Genito-urinary MDM or sub-regional MDM to enable patients from Lakes and Tairawhiti to be discussed at an MDM. 2 Introduction The Midland Cancer Network has updated the 2013-14 gap analysis for cancer multidisciplinary meetings and is continuing a regional approach to the improvement of these meetings on behalf of Midland Cancer Network DHBs. Regional oversight and leadership is critical for the implementation of consistent best practice cancer MDMs across Midland supporting the Faster Cancer Treatment work programme and ensuring better outcomes for those diagnosed with cancer. Cancer MDMs are a deliberate, regular, face-to-face (or videoconference) meeting to facilitate prospective multidisciplinary discussion of options for patients’ treatment and care. Prospective treatment and care planning refers to making recommendations in real time, with an initial focus on the patient’s primary treatment. These recommendations can only be as good as the information available to the range of specialists (surgeons, radiologists, pathologists, medical and radiation oncologists etc) at the meeting. The final decision on the treatment is made by the patient in discussion with their lead clinician. Implementing quality cancer MDMs supports the faster cancer treatment programme. In October 2012 an updated guidance document Achieving best practice cancer care: Guidance for implementing quality multidisciplinary meetings (MDM Guidance) was released by the Ministry of Health to inform DHB best practice related to MDMs http://www.health.govt.nz/publication/guidance-implementing-high-quality-multidisciplinarymeetings. Phase 2 of the national tumour standards work programme will include the development of tumour stream data sets and prioritisation criteria for discussion of patients at cancer multidisciplinary meetings (December 2015). More information will be available in April 2015 about Budget Bid 2014 and tools for data capture to support clinical decision making that will be associated with data captured at MDMs. 3 Background Midland Cancer Network priority 2011-12 The network has had improving cancer MDMs as a priority since 2009-10. In 2011-12 the network prioritised one-off Ministry of Health funding ($200,000) for improving cancer MDMs with agreement for upgrading audiovisual equipment to high definition (HD) in radiology conference rooms at Rotorua, Tauranga and Waikato hospitals. This was to enable best practice local meetings where radiology, pathology, summary of clinical information for each patient (proforma) could be viewed simultaneously providing high quality information for discussion by clinicians. It was also preparation for connecting the three rooms by video conferencing which would allow clinicians to participate in regional meetings and supraregional meetings as well as for Waikato oncologists to participate in Bay of Plenty and Lakes MDMs. All audiovisual upgrades were completed by 1 September 2012. The Tauranga Hospital upgrade was completed in December 2011. At that time Tairawhiti DHB participated in the Central Cancer Network MDM project. 5 DHB new sustainable funding 2012-13 To support achievement of Faster Cancer Treatment indicators the Ministry of Health directed that pharmacy savings ($2m by PBFF to DHBs) be utilised for the establishment of MDMs for all cancer types and increasing the number of cases discussed at MDMs. MDMs are an essential component of care pathways supporting DHBs to meet the Faster Cancer Treatment wait time indicators. Midland funding allocation Bay of Plenty: $110,207.51 Lakes: $50,301.28 Total: $359,719.07pa Waikato: $173,617.82 Tairawhiti: $25,592.46 The Ministry of Health advised that the funding is to be used for additional MDM activity including: MDM coordination roles increasing MDM connectivity reviewing existing MDMs and streamlining processes so more cases are discussed implementing MDMs across all main tumour types implementing electronic clinical agendas and forms across all MDMs implementing information system and data collection for MDM monitoring and audit across all MDMs. The action plan within this document outlines the priorities for cancer MDM development across the region for this funding. Some DHBs have stated that after two years of specified funding, this is now included in national oncology prices and have not included it as a separate stream in their provider arm price volume schedules. The network approached the Ministry of Health for clarification and they responded “The expectation is that the funding be applied on going, at the same rate to support MDM improvements, and that this continues to be reported on quarterly” (email communication 7 May 2014). This will continue in 2015-16. 4 Summary of progress in 2013-14 The table below outlines progress on achievement of the actions as outlined in the plan. Action Progress 1. Support and enhance clinical leadership for cancer MDMs in each DHB 2. Tairawhiti DHB to facilitate identification of alternate venue for VC for MDMs – current room unsuitable. Additional monitor and larger monitors recommended and to be fixed on wall. 3. Complete technical changes to Lakes Radiology Conference Room to enable Lakes Breast MDM to have Waikato oncologists and surgeons participate via VC. 4. Explore web-based MDM meeting management software for use across the region – national initiative 5. Ensure processes for Tairawhiti clinicians to refer to cancer MDMs are clearly defined Partially achieved. Andy Simpson and Clare Possenniskie (MoH) attended MDMs at Bay of Plenty DHB on 12 November. Feedback provided to DHB. Achieved New room identified and VC equipment upgraded September 2014. Achieved VC connectivity to Lakes Breast MDM established. Meeting time changed to 1330 Wednesdays. Commenced 5 February 2014. Completed September 2014. Midland Cancer Network project manager participated on steering group for CCN/SCN Orion Clinical Portal proof of concept. Awaiting NHB decision. Achieved MDM Group email established. Policy and processes implemented. TDH clinicians 6 Action Progress 6. Ensure there are agreed secure processes for MDM Coordinators to communicate/send agendas and proformas across Midland DHBs regularly VC into Waikato Breast and GI Oncology MDMs. Partially achieved Secure email confirmed between Auckland, Waikato, Bay of Plenty and Lakes DHBs. Yet to be confirmed for Tairawhiti. Generic emails set-up for MDMs at each DHB. Completed 7. Develop processes for completed MDM proformas to be sent back to the DHB of domicile for loading into the electronic patient record and to be sent to patient’s GP 8. Ensure all proformas clearly state who will communicate the recommendation to the patient and by what method 9. MCN project manager and MDM coordinators work with MDM Chairs to streamline MDM processes and ensure each has Agenda Electronic proforma Terms of reference Attendance register Working towards full implementation of the MoH Guidance for MDMs 10. MDM Coordinators at Lakes and Waikato DHBs enter record of those discussed at MDMs into the patient management system 11. Develop intranet resource for cancer MDMs to outline schedule at each DHB: day, time, agenda cut-off, MDM coordinator contact details, cancer nurse specialist contact details, referral process, proformas and/or registration process. 12. Negotiate any necessary venue/schedule changes to more appropriate venues including: Waikato Head & Neck MDM to Meade L4 for 2014 Waikato Melanoma MDM to Meade L4 for 2014 13. Work with Radiology Managers to progress use of video conferencing for cancer MDMs particularly regarding scheduling of meetings in conference rooms 14. Identify training needs for successful use of video conferencing for MDMs 15. Review MDM database requirements for audit and implement recommendations. Support development of national tumour stream data sets and implement once In progress. Serious incident at Waikato related to patient referred to an MDM but action assigned to clinician not related to the MDM. Audit June 2015. Ongoing See Appendix 2 for progress. At Waikato further proforma development was halted with planned move to Orion Clinical Portal. Waikato – Record of those discussed at most MDMs and outcome entered into iPM at Waikato. Yet to be implemented for Breast MDM. Lakes – data entry ceased with resignation of initial MDM Coordinator. Some progress but not yet complete. Venue changes implemented for Head and Neck, Melanoma, Myeloma. Urgent venue change required for Genitourinary, Urology Oncology and Colorectal Pathology MDMs. Ongoing. Training needs to be identified for Waikato with recent transfer of endpoints from Bay of Plenty. Lakes completed. Ongoing Tumour stream data sets yet to be completed. Budget 2014 announcement for clinical decision making yet to be clarified. 7 Action approved 16. Investigate access to national and/or supra-regional MDMs and facilitate appropriate referrals particularly Auckland Gynae-Oncology MDMs 17. Work with Regional IS to progress VC into production for MDMs 18. Implement specific tumour standards requirements for MDMs – see Appendix 1 19. Support development of prioritisation criteria for tumour stream MDMs and once developed and agreed nationally 20. Ensure all MDMs have appropriate representation from all required disciplines including medical and radiation oncologists 21. Ensure annual leave approved at peak holiday times does not compromise the ability to hold regional MDMs 22. Streamline meeting preparation processes ensuring MDM agenda cut-off times allow appropriate time for preparation – radiology and pathology 23. Keep watching brief on NZ Cancer Registry initiative to collect staging data from MDMs (Cancer Control NZ lead this work) Progress Ongoing Access to Auckland MDMs now available and tested through Connected Health VMRs. Access to Sarcoma MDM from CEO Meeting Room VC at Waikato. Completed Waikato endpoints transferred to Waikato infrastructure in November/December with associated software upgrade. Lakes transferred to HealthShare domain. Ongoing MDM Chairs Midland Cancer Network Project Manager Lung cancer MDM prioritisation criteria developed. Other tumour streams in progress nationally. No medical oncology attendance at Bay of Plenty Breast and Urology MDMs. Schedule of MDMs for December/January communicated to referrers in November. Waikato cut-offs for radiology and pathology changed to earlier times. Watching brief maintained. Now being considered as part of the National Cancer Information Strategy and National Patient Flow. 5 The Way Forward – Midland Cancer MDM Action Plan 2015 Assumptions There is no additional oncology, radiology or pathology resource available. Most medical oncologists and all radiation oncologists are based at the Regional Cancer Centre. There are three medical oncologists based at Bay of Plenty DHB The implementation of the Kathleen Kilgour Centre may affect MDM configuration in Bay of Plenty Tairawhiti cancer patients are to be included in Waikato MDMs Provisional agreement for Midland gynae-oncology clinicians to VC into Auckland MDM 0830-0900 in 2015. Action Plan 2015 Action When Who leads 1. Each MDM must have a designated Chair and deputy June 2015 2. Each MDM must have a terms of reference agreed and signed off March 2015 MDM Chair Midland Cancer Network project manager/Clinical Director MDM Chair Midland Cancer Network 8 Action When 3. Implement MDM recommendations from regional lung cancer review including revision of terms of reference to incorporate provisional prioritisation criteria March 2015 4. Implement MDM recommendations from regional bowel cancer review including: Terms of reference Proforma changes 5. Implement MDM recommendations from regional gynaecological cancer review and Midland Gynae-oncology model of service improvement project 6. Midland DHBs connect to Auckland Gynae-Oncology MDM: Agree time for all including oncologists Identify VC endpoints 7. Waikato Breast MDM to implement MDM proforma for oncology cases June 2015 8. Ensure all proformas clearly state who will communicate the recommendation to the patient and how. June 2015 9. Develop intranet resource for cancer MDMs to outline schedule at each DHB: day, time, agenda cut-off, MDM coordinator contact details, cancer nurse specialist contact details, referral process, proformas and/or registration process. 10. Implement tumour standard guidance for MDMs – See Appendix 3 March 2015 11. Identify appropriate facilities for Urology and Colorectal Pathology MDMs at Waikato and implement 12. Investigate options to ensure Lakes and Tairawhiti patients have access to a Genito-urinary MDM 13. Identify training needs for successful use of video conferencing for MDMs including VC etiquette 14. Review MDM database requirements for audit and implement recommendations. Support development of national tumour stream data sets and implement once approved 15. Support development of prioritisation criteria for tumour stream MDMs and implement March 2015 16 Ensure all MDMs have appropriate representation from all required disciplines including medical and radiation oncologists Ongoing Who leads project manager/Clinical Director Chest Conference Chair Midland Cancer Network project manager Assistant GM Internal Medicine MDM Chair Midland Cancer Network project manager June 2015 MDM Chair Midland Cancer Network project manager Waikato Clinical Director Midland Cancer Network Project Manager MDM Coordinators January 2015 June 2015 MDM Chair Midland Cancer Network project manager Midland Cancer Network Project Manager MDM Chairs MDM Coordinators Midland Cancer Network Project Manager MDM Coordinators December 2015 To determined be MDM Chairs Midland Cancer Project Manager Midland Cancer Project Manager Network Network Midland Cancer Project Manager Network Ongoing Midland Cancer Project Manager Network Ongoing Midland Cancer Network Manager and Project Manager MDM Chairs and specialists When developed Midland Cancer Network Manager, Midland clinical work group chairs MDM Chairs DHBs and MDM Chairs 9 Action 17. Continue development proformas and eProformas of MDM When Who leads Ongoing Midland Cancer Network Project Manager MDM coordinators Clinical Nurse Manager Midland Cancer Network Project Manager MDM coordinators Tairawhiti P&F 18. Appoint MDM Coordinator at Tairawhiti 19. Implement process for Tairawhiti breast pathology slides to be shown at MDM TLab (Medlab Central) March 2015 March 2015 20. Planning and Funding to work with urology providers to ensure future MDM data requirements are To determined be 6 Summary proposed expenditure for July 2014 – June 2015 Allocation of funding for cancer MDMs across Midland Cancer Network DHBs in 201415 Ongoing operational funding Audiovisual support contract Cisco SmartNet MDM Coordinator Spark MDM VC endpoint Corporate overheads (20%) Depreciation Support for MDMs Proforma development Updates TGA and WHK Transfer MDM AV and VC equipment to new room Total Bay of Plenty Lakes 110,207.51 50,301.28 9,780 6,180.00 7,054.04 2,679.00 25,981 21,963.00 18,482.52 10,060.00 13,782.00 10,900.00 15,761.40 15,000.00 4,000.00 109,840.96 51,782.00 Tairawhiti Waikato 25,592.46 173,617.82 7,320 5,584.00 14,900 50,000 5,580 5,118 34,723.56 30,418.28 25,598 For consideration Data entry lung cancer database 0.2FTE @$50k Data entry/data capture all tumour streams 0.4 FTE @ $50k Additional MDM endpoint Cisco Smartnet for above endpoint (1 yr) Contingency for unplanned maintenance MDM database/s Total Underspend/overspend 4,988.00 133,034 10,000 17,000 5,000 * 1,870 * 10,000 ** 109,840.96 51,782.00 25,598 176,904 366.55 - 1,480.72 -5.54 -3,286.02 *Provision for VC endpoint Capex $15k depreciated at 33% **Provision for Database Capex $50k depreciated 20% 7 Conclusion While an increasing number of cancer MDMs almost meet the new Guidance requirements there are a number of gaps and issues to be addressed to ensure all cancer MDMs in Midland comply. This is complex, will take time and it is envisaged that changes may take more than one year. The action plan signals the way forward utilising the MDM funding to support both one-off and ongoing initiatives ensuring the infrastructure is in place to support best practice cancer MDMs. A key focus in 2015 is the development of tumour stream data sets and data capture for clinical decision making with cancer MDMs being a key component. Please note that the funding will not meet all MDM service requirements in particular, workforce gaps. 10 Appendix 1: Current cancer multidisciplinary meetings Bay of Plenty DHB Regional or Local Breast (weekly) Local Surgical Pathology meeting includes colorectal (weekly) Urology (monthly) Lakes DHB Breast (weekly) Urology (To be established) Tairawhiti DHB No cancer-related MDMs on site Waikato DHB Breast (weekly) Chest Conference (weekly) Endocrine (monthly) GI Oncology (weekly) Colorectal Pathology (fortnightly) Gynae-oncology (weekly) Head and Neck (weekly) Lymphoma (weekly) Melanoma (fortnightly) Neurosurgery Genito-urinary Urology Oncology (Alternate weeks) Myeloma (Fortnightly) – Local VC available √ √ Full MDT Agenda membership No medical oncology √ √ √ Proforma Database √ Terms of reference √ Not in use at MDM √ Not in use at MDM No medical oncology √ √ √ √ N/A N/A N/A N/A N/A √ √ √ Hand written Screening √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ √ BOP and Lakes Local Local Waikato and Tairawhiti Regional Regional Waikato Lakes Tairawhiti Local Local Regional Regional Local Regional Local Regional √ √ √ √ (Draft) √ √ √ 11 Appendix 2: VC connectivity Video conferencing equipment at each site for Midland cancer MDMs DHB Room Directory name Codec Waikato Radiology Conference Room (RCR) Meade L4 meeting room 1 Thames Seminar Room Tauranga RCR Whakatane RCR Waikato DHB Hamilton MCC L1 MDM Radiology Cisco C90 Waikato DHB Hamilton MCC L4 meeting room 1 Cisco SX20 1 landscape + 1 portrait Waikato DHB Thames MDM Cisco SX20 2 landscape + 1 portrait BOPDHB.TGA.MDM_RAD Cisco C90 BOPDHB.WHK.MDM_RAD Cisco C60 Kathleen Kilgour Centre Polycom Group 500 Cisco C60 2 landscape + 2 portrait 2 landscape + 2 portrait 1 large landscape + 46” portrait 3 landscape + 1 portrait 1 landscape and 1 monitor able to be rotated – both 50” 3 landscape monitors in host room Bay of Plenty Lakes Rotorua RCR Lakes DHB MDM Tairawhiti (Spark Digital) Northern DHB VMRs (Vivid) Tui Te Ora Tairawhiti DHB MDM Cisco SX20 Various Gynae-Oncology MDM Sarcoma MDM Polycom Monitor configuration (all 55” unless specified) 2 landscape + 2 portrait 12 Appendix 3: National tumour standards – summary of MDM requirements Tumour type Standard Good practice point Breast Standard 5.1 All women with a confirmed breast cancer have their treatment plan discussed at an MDM, and the outcomes of this are clearly documented in the woman’s medical records and communicated to the woman and her GP. Bowel Standard 11 Patients with non-metastatic colon cancer 5.1 Every specialist involved in breast cancer care regularly participates in a breast MDM. For further information on expected frequency of attendance, refer to the professional requirements section of the BreastScreen Aotearoa National Policy & Quality Standards (NSU 2008). 5.2 The breast cancer MDT should meet weekly or at least fortnightly (NSU 2008). 5.3 The breast MDM membership should include at least the following: a radiologist, a pathologist, oncologists – radiation and medical, breast surgeons, a breast cancer or cancer nurse coordinator, a breast radiographer and psychosocial service representation (as appropriate) (NHS Quality Improvement Scotland 2008). Core members are present for the discussion of all cases where their input is needed. 5.4 Locally agreed referral pathways clearly establish who can refer, how to refer and the timeframes within which referrals are expected (along with processes for late referrals) (Ministry of Health 2012d). 5.5 Treatment recommendations should be available as an electronic record and accessible to other members of a woman’s health care team, including her GP (expert opinion). 5.6 The MDM identifies women at high risk for inequitable care so that a special effort can be made to avoid this outcome. 5.7 The MDM report may be used as a basis of referral to a treatment provider, to reduce referral to treatment waiting times. 5.8 Breast cancer core data are collected prior to and during MDMs. Data sets are consistently and routinely captured for use in clinical audit and pathway monitoring for ongoing quality improvement. 5.9 Women are informed about the MDM’s recommendations and, in consultation with members of the treating team, make final decisions about their own treatment and care plan. MDM membership 4.1 Minimum core membership of a bowel cancer MDM consists of two 13 are presented in the bowel cancer MDM within three weeks after surgery for consideration of adjuvant therapy. Standard 12 All patients with non-metastatic rectal cancer or a new diagnosis of metastatic colorectal cancer have their treatment plan discussed at a bowel cancer MDM; recommendations are clearly documented in the patient’s medical records and communicated to the patient and their GP. Standard 13 MDMs identify patients at high risk of receiving inequitable care, and auditable data on these patients is collected from them along their cancer journey. Gynaecological Standard 11 All women with gynaecological cancer, borderline ovarian tumours or gestational trophoblastic neoplasia have their treatment plan discussed at an MDM; recommendations are clearly documented in the woman’s medical records and communicated to the woman and her GP. surgeons, a medical and radiation oncologist, a radiologist, a pathologist, an expert colonoscopist, a colorectal clinical nurse specialist, an appropriate allied health professional and an MDM coordinator. A palliative care team member (specialist or nurse) should be included where appropriate. 4.2 Each MDM keeps an attendance register and reviews core membership annually to ensure members have sufficient scope in their job to adequately contribute to their roles. 4.3 MDM outcome forms record which members of the team were present for each case the MDM discussed. 4.4 If a core member is the sole representative of a specialty and is unable to attend an MDM, a deputy attends in their place. Case discussion 4.5 A patient’s MDM notes document whether the patient is potentially eligible for clinical trials. 4.6 MDMs review patients with apparently isolated colorectal metastases to determine their eligibility for further surgery by an MDM with the relevant expertise (e.g. hepatobilary or thoracic). 4.7 MDMs consider preoperative or post-operative adjuvant radiotherapy for all patients with rectal cancer (NZGG 2011b). 4.8 MDMs document distance to the circumferential margin in all cases of rectal cancer. Post-operatively, the same rectal cancer MDM that determined the preoperative therapy discusses those patients with a histologically involved (<2 mm) circumferential margin. 4.9 For patients in whom rectal cancer recurs locally, the same MDM that determined the preoperative therapy discusses the case post-operatively. 4.10 MDMs discuss and record comorbidities. 4.11 MDMs record family history of bowel cancer. 4.12 Public hospital MDMs may discuss private and public patients. 4.1 A comprehensively staffed gynaecological MDM includes, at minimum: a gynaecological oncologist, a medical oncologist, a radiation oncologist, a radiologist, a clinical nurse specialist or care coordinator and a pathologist, all of whom regularly attend gynaecological cancer MDMs. The referring clinician or delegated deputy is also present, and there is an adequately resourced dedicated MDM coordinator/data manager. 4.2 Discussion at the MDM includes: 14 Standard 12 The MDM discussion takes place within 14 days of referral (provided referral criteria are met). Head and neck Standard 5.1 Patients diagnosed with head and neck review of pathology by a pathologist with a special interest in gynaecological pathology, who regularly attends the gynaecological oncology MDM documentation of treatment recommendations agreed by the MDM participants formal allocation and documentation of staging, as per the FIGO system Documentation of MDM proceedings is collected and made available as part of a woman’s medical record. 4.3 Criteria and information requirements for referral to regional MDMs are developed and agreed nationally. 4.4 For women with gynaecological cancer or a high clinical suspicion of ovarian cancer, MDM review occurs prior to definitive management (unless acute illness requires immediate intervention) and after surgery, to plan postoperative treatment. 4.5 Women are informed about MDM recommendations by an identified clinical team member. Following consultation with members of the treating team, women make the final decision about their treatment and care plan. 4.6 Review at MDM is considered for women with gynaecological cancer who have recurrent disease. 4.7 Options for fertility preservation are discussed with all women of childbearing age prior to definitive management. 4.8 Discussion between paediatric and gynaecological oncology MDMs is appropriate for women under the age of 20 with gynaecological tumours. 4.9 Discussion between MDMs is appropriate in cases of gynaecological melanoma, sarcoma and haematological tumours. 4.10 To ensure sustainability and contingency for absence, multiple team members from single specialty groups attend the MDM regularly. 4.11 The MDM takes a regional team approach to use and foster regional expertise in gynaecological pathology and radiology services. 4.12 Protocols for expedited MDM review are agreed nationally. 4.13 MDM protocols are consistent with Ministry of Health guidance for implementing quality MDMs (Ministry of Health 2012c). 5.1 Ideally, MDMs are held weekly, or at least fortnightly, to minimise delays in initiation of patient treatment and patient anxiety. 15 cancer (excluding T1, 2 N0 cutaneous) are assessed at an MDM for staging and treatment planning; recommendations are clearly documented in the patient’s medical records. Lung Standard 9 All patients with lung cancer should be discussed at a multidisciplinary meeting. (Expert opinion) 5.2 Treatment plans are agreed and documented prior to the initiation of treatment, noting the reasons for any variation from standard practice. Plans are available electronically, and are accessible to other members of the health care team. 5.3 All referrals to a MDM include demographic data; provisional staging information; and data on clinical factors such as current symptoms, performance status, weight loss, medical co-morbidity and clinical findings (including through endoscopy, relevant imaging and pathological diagnosis) to maximise the chance of making appropriate clinical decisions. 5.4 Treating clinicians record reasons for not following a treatment plan recommended by the MDT. 5.5 Patients undergoing treatment for cancers of the oral cavity/pharynx/larynx are assessed by a speech-language therapist and dietitian prior to treatment. 5.6 Malnutrition screening is undertaken with a validated tool. 5.7 In order to meet Māori needs and reduce inequalities, cancer care services are focused on Māori priorities. This may involve the reorientation of existing services or the development of new services or initiatives, as well as strengthening the role of effective service delivery models. Some specific areas of good practice include: involving Māori expertise and the range of relevant Māori services and providers in MDTs and networks prioritising Māori in the piloting of developments or initiatives in service delivery developing tools (such as Whānau Ora assessments) to meet the needs of Māori, which can be used to inform patient treatment plans and care coordination involving Māori patients and their family/whānau in MDMs to discuss treatment options and plans. 5.8 All Māori patients and their family/whānau are offered access to Whānau Ora assessments and cultural support services. 5.1 All referrals to a multidisciplinary meeting should include demographic data, provisional staging, and clinical factors such as: current symptoms, performance status, weight loss, medical co-morbidity, bronchoscopy, relevant imaging, pathological diagnosis (if available) and lung function to 16 Lymphoma Standard 4.1 All patients with confirmed lymphoma have their treatment plan discussed at an MDM; recommendations are clearly documented in the patient’s medical records and communicated to the patient, the treating clinician and the patient’s GP within one week. maximise the chance of making appropriate clinical decisions. (Expert opinion) 5.2 The multidisciplinary team should record information in a database that can be collated and analysed locally, regionally and nationally. (Expert opinion) 5.3 The multidisciplinary discussion report should include treatment recommendations and intent, where possible, as well as reasons for any variation from standard practice. (Expert opinion) 5.4 The treating clinician should record the reason for not following the treatment plan recommended by the multidisciplinary team. (Expert opinion) 5.5 Patients and their GP should be informed of the recommendations of the multidisciplinary discussion within two working days of the meeting. (Expert opinion) 5.6 The recommendations of the multidisciplinary discussion should be available as an electronic record and accessible to other members of the health care team. (Expert opinion) 4.1 MDMs are governed by agreed terms of reference, and written protocols describe the organisation and content of the meeting. 4.2 A chair is appointed according to the terms of reference. Core members (see Ministry of Health 2012b) are present for the discussion of all cases where their input is needed. 4.3 Locally agreed referral pathways are established with clear information as to who can refer, how to refer and the timeframes within which referrals will be expected (along with processes for late referrals). Agreed criteria determine which patients should be discussed at the MDM. 4.4 A role representing a single point of coordination for MDMs is established, to supports clinicians participating. Treatment recommendations agreed by participants are documented during the meeting and recorded in patients’ medical records. 4.5 Lymphoma-specific core data is collected prior to and during the MDM. Data sets for use in clinical audit and pathway monitoring are consistently and routinely captured, for ongoing quality improvement. 4.6 Patients are informed about the MDM prior to the presentation of their case. They are then informed about the MDM’s recommendations and, in consultation with members of the treating team, make their own final decisions about their treatment and care plan. 17 Melanoma Standard 5.1 Patients with the following are discussed at an MDM: stage III and IV cutaneous melanoma desmoplastic melanoma melanoma under 18 years of age non-cutaneous melanoma The outcome of the MDM is documented and communicated to the treating clinician, GP and patient within one week. Myeloma Standard 4.1 All patients diagnosed with myeloma have their treatment plan discussed at an MDM; recommendations are clearly documented 4.7 Established processes govern communication of recommendations to patients, GPs and clinical teams within locally agreed timeframes. The MDM identifies a lead clinical team member to discuss the MDM’s recommendations with the patient. 5.1 Minimum core membership of a melanoma MDM consists of a general surgeon and/or plastic surgeon, a pathologist, a radiation oncologist, a medical oncologist, a radiologist and a clinical nurse specialist. Other MDT members may be involved, including dermatologists, GPs, adolescent and young adult key workers and palliative care team members. 5.2 The melanoma MDM process within each hospital and region is documented, including: appointment of MDM members, referral pathways, meeting frequency and videoconferencing links between regional and provincial hospitals, where appropriate. 5.3 Details of patients discussed at the MDM are recorded on a standardised MDM template. 5.4 A dedicated clinical nurse specialist or other health professional is appointed to coordinate written and verbal communication (including use of a dedicated melanoma MDM referral proforma). 5.5 Adequate support staff and resources are available to the MDM. Smaller provincial MDTs or treating clinicians present patients to regional MDMs in person or via teleconferencing. 5.6 The MDM records and discusses patients with stage Ib melanoma and above if required. 5.7 The MDM records information in a database that can be collated and analysed locally, regionally and nationally. 5.8 Treating clinicians record reasons for not following treatment plans recommended by the MDM. 5.9 Recommendations from MDM discussions are available as an electronic record and accessible to other members of a patient’s health care team. 5.10 All Māori patients and their family/whānau are offered an opportunity to access Whānau Ora assessments and cultural support services. 4.1 MDMs are governed by agreed terms of reference, and written protocols describe the organisation and content of the meeting. 4.2 A chair is appointed according to the terms of reference. Core members (see Ministry of Health 2012a) are present for the discussion of all cases 18 in the patient’s medical records and communicated to the patient, the treating clinician and the patient’s GP within one week. Sarcoma Standard 4.1 All patients with the following confirmed sarcomas are presented at a sarcoma MDM: bone sarcoma soft tissue sarcoma of extremities, trunk and retroperitoneum. where their input is needed. 4.3 Locally agreed referral pathways are established with clear information as to who can refer, how to refer and the timeframes within which referrals will be expected (along with processes for late referrals). Agreed criteria determine which patients are discussed at the MDM. 4.4 A role representing a single point of coordination for MDMs is established, to support clinicians participating. Treatment recommendations agreed by participants are documented during the meeting and recorded in patients’ medical records. 4.5 Myeloma-specific core data are collected prior to and during the MDM. Data sets for use in clinical audit and pathway monitoring are consistently and routinely captured, for ongoing quality improvement. 4.6 Patients are informed about the MDM prior to the presentation of their case. They are then informed about the MDM’s recommendations and, in consultation with members of the treating team, make their own final decisions about their treatment and care plan. 4.10 Established processes govern communication of recommendations to patients, GPs and clinical teams within locally agreed timeframes. The MDM identifies a lead clinical team member to discuss the MDM’s recommendations with the patient. 4.1 Core membership of a sarcoma MDT ideally includes the following: a specialist sarcoma radiologist, a specialist sarcoma pathologist, a specialist sarcoma surgeon, a radiation oncologist, a medical oncologist, a palliative care specialist and a clinical nurse specialist/cancer nurse. Paediatric oncologists, AYA key workers and allied health practitioners such as a physiotherapists, orthotists, psychologists and occupational therapists may also be involved. 4.2 The agreed terms of reference governing the MDM are based on Ministry of Health guidance (2012a), and include written protocols that describe the organisation and content of the meeting, including agreed criteria outlining which patients should and should not be discussed. 4.3 Hospitals support members of the MDT to attend MDMs either virtually or physically. 4.4 The MDT records information in a database that can be collated and analysed locally, regionally and nationally. 4.5 One national sarcoma MDM is held every week, with core members of 19 Thyroid Standard 5.1 Patients with the following are discussed at an MDM: differentiated thyroid cancer greater than a micro carcinoma (>1 cm in diameter) or any size cancer with adverse histology (e.g., medullary, anaplastic) a preoperative diagnosis of thyroid cancer with suspicion of extrathyroidal invasion or lymphadenopathy recurrent thyroid cancer metastatic thyroid cancer. the sarcoma MDT present either in person or via videoconferencing facilities where their input is required (expert opinion). 4.6 Patients and their GPs receive the MDT’s recommendations on diagnosis, treatment options and treatment care plans in writing within two working days of the MDM. 4.7 Final decisions on treatment and care plans are made by patients and their family/whānau, in consultation with members of the treating team (expert opinion). 4.8 Treating clinicians record reasons for not following a treatment plan recommended by the MDT (expert opinion). 4.9 A clear pathway exists for patients with a sarcoma who require management under a site-specific MDT (such as those for head and neck, gastrointestinal stromal, gynaecological or skin cancers) or paediatric services (NCCN 2012a). 4.10 Specific cultural services and expertise are involved through the MDT where appropriate. 4.11 Multidisciplinary meetings formally audit their operations and review complications outside the routine MDM at regular intervals, as deemed appropriate by the members of the group. 5.1 Most patients with thyroid cancer are discussed at an MDM. 5.2 One clearly identified lead clinician is responsible for coordinating patient care. 5.3 The core membership of a thyroid MDM includes: an endocrinologist a thyroid surgeon a radiologist specialist pathologists (histopathology and cytopathology) a clinical nurse specialist or team care coordinator/data clerk at least one team member trained and licensed to give radioactive iodine (a nuclear medicine physician, a radiation oncologist or a radiologist). 5.4 The MDT has contact with and appropriate access to the following support services: FNA cytology flexible laryngoscopy 20 radiation oncology medical oncology clinical genetics clinical biochemistry adolescent and young adult services psychology/social work. 5.5 Smaller provincial MDTs or treating clinicians from smaller centres aim to present patients to their regional MDT in person, via teleconferencing or via email discussion (i.e., to attend a ‘virtual MDM’). 5.6 Meeting frequency is dictated by patient numbers. 5.7 The multidisciplinary discussion report includes treatment recommendations and intent where possible, as well as reasons for any variation from standard practice. 5.8 Treating clinicians record reasons for not following treatment plans recommended by the MDM. 5.9 Patients and their GPs are informed of the MDM’s recommendations within seven days of the meeting. 5.10 Recommendations of the MDM are available as an electronic record, and accessible to other members of the health care team. 5.11 The MDT records information in a database that can be collated and analysed locally, regionally and nationally. 5.12 An electronic MDM reporting system is developed and available online, for uniform recording of information at a national level. 5.13 In order to meet Māori needs and reduce inequalities, cancer care services are focused on Māori priorities. This may involve the reorientation of existing services or the development of new services or initiatives. Some specific areas of good practice include: involving Māori expertise and the range of relevant Māori services and providers in MDTs and networks prioritising Māori in the piloting of developments or initiatives in service delivery developing tools (such as Whānau Ora assessments) to meet the needs of Māori, which can be used to inform patient treatment plans and care coordination involving Māori patients and their family/whānau in MDMs to discuss 21 Upper gastrointestinal Standard 5.1 All patients with the following are presented at an MDM: a confirmed diagnosis of HBP/upper GI cancer a high suspicion of HBP/upper GI cancer. treatment options and plans offering all Māori patients and their family/whānau access to Whānau Ora assessments and cultural support services. 5.1 Agreed terms of reference govern MDMs, based on Ministry of Health guidelines (Ministry of Health 2012b); these include written protocols that describe the conduct and content of the meeting, including criteria outlining which patients should be discussed. 5.2 A designated chairperson guides discussion and encourages consensus within the MDM. 5.3 Each case is presented by the referring doctor or designee, unless the patient has already been seen by a specialist. 5.4 An optimal number of cases is discussed at each MDM. 5.5 The MDM meets weekly, and not less frequently than bimonthly. 5.6 The MDM discusses patients prior to their first cancer treatment, to ensure they are staged appropriately and can be offered neo-adjuvant therapy if appropriate. 22