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Information booklet for patients and families Understand heart failure Take control Jewish General Hospital 3755 Côte St Catherine Road Montreal, Québec H3T 1E2 www.jgh.ca (514) 340-8222 Important - Please read carefully This information should not be considered as medical advice. It is not to be used in place of a visit with a doctor, nurse or other healthcare professional. If you have questions about your individual medical situation, please consult with your healthcare professional. © October, 2014 Prepared by Valerie Labelle, RN Laurence Lebel, RN Illustrated by Laurence Lebel Special thanks for the contribution to this project: Isabelle Cormier, RN Emilie Gauthier, RN Nicole Lebel, RN Paule Lebel, M.D. Caroline Michel, M.D. Richard Sheppard, M.D. Monique Van Ockenburg, RN 2 Table of contents What is heart failure? ................................................................................. 4 Sympoms of heart failure ........................................................................... 6 Treatment for heart failure ........................................................................ 7 1) Medications ......................................................................................... 8 2) Diet ...................................................................................................... 9 a) Control how much fluid you drink ..................................................... 9 b) Control your sodium intake (salt) .................................................... 10 c) Consider the meditarranean diet ..................................................... 12 d) Do not drink any alcohol ................................................................. 13 3) Smoking cessation.............................................................................. 13 4) Weight ............................................................................................... 14 5) Exercise .............................................................................................. 15 6) Rest and relaxation ............................................................................ 16 7) Vaccination ........................................................................................ 16 8) Psychological adapatation ................................................................. 17 9) Recognition of increased heart failure symptoms ............................. 18 Resources and websites ........................................................................... 20 References ................................................................................................ 21 Crosswords ............................................................................................... 22 3 What is heart failure? Heart failure is a medical condition in which the heart muscle has been weakened or becomes stiff. The heart is not able to pump blood as well as it should to supply needed oxygen and nutrients to your body. Heart failure can be managed successfully, but it can’t be cured. Over time, the degree of heart failure usually gets worse. Your symptoms may appear, disappear for a while, and then reappear. This can happen very quickly, or gradually over a long period of time. Heart failure affects the whole family, not just one person. When symptoms appear or reappear, healthcare professionals can help you and your family. 4 Some of the causes of heart failure are: High blood pressure; Damage to the heart muscle from a heart attack; Heart valves that do not open and close well; Toxins such as alcohol, chemotherapy, cocaine and other drugs; A virus or bacteria that attacks the heart muscle; Severe lung disease; A heart defect that has been present since birth; Unknown. Heart failure means your heart has stopped beating. True False False! Heart failure does not mean your heart has stopped beating. Heart failure occurs when your heart muscle has been weakened and so your heart is not able to pump blood around your body as well as it should. Heart failure is a normal consequence of getting old. True False False! Although most people with heart failure are elderly, heart failure does not have to be a part of the aging process. It is a very serious condition that can be prevented and greatly helped with available treatments. 5 Sympoms of heart failure Heart failure symptoms can vary widely from person to person, depending on the type of heart failure you have. Therefore, you may have all of the symptoms described here or just a few of them. Both men and women can have some or all of these symptoms. Tip! Place me in sight. 6 Treatment for heart failure You are the most important person in managing your heart failure. You can help yourself feel better and enjoy a better quality of life. You can live a longer and healthier life. You can prevent or reduce the number of hospital visits related to heart failure. Tip! Place me in sight. 7 1) Medications Do not stop, add or reduce the dosage of your medications without your doctor’s advice. Always check with your pharmacist before purchasing over the counter medications. Some medications available without prescription may make your heart failure worse. Avoid using natural products without talking with your pharmacist or your doctor. Some of these products can react badly with your medication and create side effects. Always keep your list of your medications on you. Prepare your medication using pill boxes or ask your pharmacist to do it. If you have a headache, you should take Advil® or Motrin®. True False False! These over the counter medications can cause a build-up of fluid that makes your heart failure worse. Choose Tylenol®. If you forget to take a pill, 2 pills can be taken at the next scheduled dosage time. True False False! It is important not to double dose. It is very crucial to take medication as prescribed. 8 2) Diet With heart failure, you should... a) Control how much fluid you drink Drink less than 6 cups (48 oz) or 1500 ml (1.5 litre) of fluid per day. This includes all types of fluids that you drink, at meals and between meals. Some examples of fluid are: o water (including what you use to take your medications) o juice o soft drink o Jell-O ® o milk o ice cream o alcohol o coffee o ice cubes o soups o tea TIPS to help you control your thirst! Rinse your mouth with cold water or mouth wash; Brush your teeth often; Suck on ice cubes; Eat frozen fruit (lemon slices, grapes, strawberries, orange quarters); Chew sugar free gum or suck on sugar free candies; Use artificial saliva (available in pharmacies). The pitcher method Step 1 Step 2 Step 3 Take an empty pitcher of 1.5 liters or more When you drink a liquid, add the same amount of liquid to the pitcher When the pitcher is full, you have reached the amount of liquid allowed for the day 9 b) Control your sodium intake (salt) Limit your sodium (salt) intake to 2,000 mg or less per day. Too much salt intake may cause a build-up of fluid in your body. Do not use the salt shaker. Avoid salt substitutes that contain potassium. Improve the taste of food by using these alternatives: o Fine herbs o Ginger o Garlic o Aromatic vinegars o Onion o Tomato juice with reduce salt content o Lemon juice o Spices (paprika, celery powder, curry, o Pepper oregano, chives, bay leaf, parsley, etc.) 10 o o o o o ATTENTION! The following terms mean "salt": Sodium o Sulfite or sodium o Monosodium Sea salt sulphite glutamate or sodium Natural salt o Sodium benzoate monoglutamate Garlic or onion salt Sodium or soda (GMS) Vegetable salt bicarbonate or o Monosodium baking soda phosphate Make a habit of reading the food labels Sodium Mg per serving High Medium Low 400+ 200-400 0-200 Sea salt is a low sodium alternative to table salt. True False False! Chemically, sea salt is the same as table salt. 11 c) Consider the meditarranean diet If you're looking for a heart-healthy eating plan, the mediterranean diet might be right for you. Here are some specific steps to get you started: 12 d) Do not drink any alcohol Alcohol may change how your medication works. Alcohol makes your heart pump more weakly. Alcohol may cause or worsen irregular heart rhythm. Alcohol weakens the heart muscle, which means the heart can't pump blood as well. 3) Smoking cessation Smoking or breathing second hand smoke harms the heart widely. The best action you can take to manage heart failure is to stop smoking. 13 4) Weight Weigh yourself every day when you first get up in the morning, after going to the bathroom, but before you get dressed or have breakfast. MONTH: __________________ 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 26 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 Important Contact your doctor if you gained more than 5 lbs (3 kg) in a week. Tip! Photocopy me and keep me with you at your next appointment. 14 5) Exercise Regular physical activity: Is part of the treatment for heart failure; Improves quality of life; Helps to slow the progression of heart failure; Improves physical and psychological health. Walking is an ideal activity. It can be done outdoors or indoors at your own pace. These symptoms mean that you should stop the activity and talk to your doctor: Pain Dizziness Palpitations More short of breath than usual Tightness in your chest Nausea People with heart failure should avoid exercise. True False False! Exercise makes muscles, including your heart, stronger 15 6) Rest and relaxation After any period of activity, it is important to allow the heart to rest and catch up with the body’s demands on it. Rest is meals. also important after Resting does not have to be sleeping. It can be a quiet time of listening to music, relaxing or reading. 7) Vaccination You should get a flu shot every year and a one-time pneumonia shot. 16 8) Psychological adapatation Heart failure puts new limits on you and the people around you. You will need to adapt to many changes. This will require time, courage, determination and support. Your healthcare professionals can help you and your family: If you have a hard time accepting your diagnosis of heart failure, your new limits; If you have a hard time following the advice of your health care team; If you feel depressed or anxious. Tips to maintain balance! Continue your activities (social, professional, physical, sexual) as much as possible; Prioritize; Accept the help you can get; Express your emotions and your needs; Share your feelings with someone you trust. Never forget to take care of yourself at all times: You are the priority! 17 9) Recognition of increased heart failure symptoms You should seek help if you have these symptoms: More shortness of breath than usual; More swelling of ankles or abdomen than usual; Gained more then 5 lbs (3 kg) in a week; Need to sleep with more pillows; Waking up at night short of breath; More fatigue than usual; Cough that won't go away. Once a person needs to go to the hospital for treatment of heart failure, little can be done to improve his or her condition. True False False! For people who need to go to the hospital because of worsening heart failure, there are several options. In the hospital, the health care professionals work together to relieve your symptoms. Once you are stable, the team will help you manage heart failure at home. People with heart failure should weigh themselves once a week. True False False! Weighing yourself every day at the same time is a key step in keeping an eye on heart failure. Weight gain may be a sign that your heart failure is getting worse. Weight gain can also mean that you are holding onto fluids, which may cause swelling, especially in the feet and ankles. 18 If you have some symptoms and your health worries you, please contact: CLSC Telephone: ( HEALTH INFORMATION ) . 8-1-1 FAMILY DOCTOR Name: Telephone: ( CARDIOLOGIST Name: Telephone: ( PHARMACY Name: Telephone: ( OTHER Name: Telephone: ( . ) ) 9-1-1 19 . - . . ) - . . ) You have extreme difficulty breathing; You feel heart palpitations, or rapid thumping inside your chest; Chest discomfort that does not go away after using Nitro®. Go to: . If you cannot wait or have the following symptoms: EMERGENCY - - . Resources and websites For more information on heart failure, visit: JGH Patient & Family Resource Centre www.jgh.ca/pfrc Heart & Stroke Foundation www.heartandstroke.qc.ca Canadian Heart Failure Network www.chfn.ca/patients-caregivers Montreal Heart Institute www.icm-mhi.org/en/patients-and-visitors Public Health Agency of Canada www.phac-aspc.gc.ca/cd-mc/cvd-mcv/index-eng.php MedlinePlus www.nlm.nih.gov/medlineplus/heartdiseases.html American Heart Association www.heart.org/ Centers for Disease Control and Prevention (CDC) www.cdc.gov/heartdisease/ Health Canada www.hc-sc.gc.ca/hc-ps/dc-ma/heart-coeur-eng.php Canada's Food Guide www.hc-sc.gc.ca/fn-an/food-guide-aliment/index-eng.php For more information on smoking cessation, visit: Quebec Council on Tobacco and Health www.iquitnow.qc.ca/ Canadian Cancer Society www.smokershelpline.ca 20 References Arnold, J.M., Liu, P., Demers, C., Dorian, P., Giannetti, N., Haddad, H., … White, M. (2006). The Canadian Cardiovascular Society consensus conference recommendation on heart failure 2006: Diagnosis and management. Canadian Journal of Cardiology, 22, 23-45. Dickstein, K., Cohen-Solal, A., Filippatos, G., McMurray, J., Ponikowski, P., PooleWilson, P., & ... Swedberg, K. (2008). ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2008: the Task Force for the diagnosis and treatment of acute and chronic heart failure 2008 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association of the ESC (HFA) and endorsed by the European Society of Intensive Care Medicine (ESICM). European Journal Of Heart Failure, 10(10), 933-989. Lindenfeld, J., Albert, N., Boehmer, J., Collins, S., Ezekowitz, J., Givertz, M., & ... Walsh, M. (2010). HFSA 2010 Comprehensive Heart Failure Practice Guideline. Journal Of Cardiac Failure, 16(6), e1-e194. Hunt, S., Abraham, W., Chin, M., Feldman, A., Francis, G., Ganiats, T., & ... Riegel, B. (2005). ACC/AHA 2005 Guideline Update for the Diagnosis and Management of Chronic Heart Failure in the Adult: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: endorsed by the Heart Rhythm Society. Circulation, 112(12), e154-e235. Canadian Heart Failure Network (CHFN) (n.d.). Patients & caregivers. Retrieved from http://www.chfn.ca/patients-caregivers. Heart & Stroke Foundation. Managing heart failure. Retrieved from http://www.heartandstroke.com/site/c.ikIQLcMWJtE/b.3751087/k.919B/Heart_dise ase__Managing_Heart_Failure.htm. 21 Crosswords 2 1 9 4 3 6 5 7 L 12 I V I N G B E T T E R 11 8 10 1 Action to take after a period of activity 2 Habit that can harm your heart widely 3 Healthy alternative to meat 4 Should be replaced by lemon juice, spices, herbs 5 To record every day and to bring to your next appointment 6 Minimal number of pounds gained in a week for which you should consult a doctor 7 Limited to 1.5 liter (48 oz) per day 8 Replaces butter in the Mediterranean diet 9 Even if I experience no symptoms, I should take them as prescribed 10 A good source of fiber, protein and healthy fats 11 Common salt synonym 12 Improves physical and psychological health 22