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About PINCC 2015 PREVENTING CERVICAL CANCER (PINCC) Developing Sustainable, Affordable, Quality Cervical Cancer Prevention Centers In Africa, Latin America and Asia Who We Are: Prevention International: No Cervical Cancer (PINCC), dba Preventing Cervical Cancer, is a non-profit medical training and community education organization that establishes selfsufficient cervical cancer prevention and treatment centers for women in underserved countries in Africa, Latin America and Asia. How We Began: Dr. Kay Taylor, a gynecologist, and Dr. Pat Sax, a clinical social worker, founded PINCC in 2005 following a one-week medical mission to Honduras, where Dr. Taylor saw more cases of deadly cervical cancer than she had during her entire career in Northern California. Dr. Taylor and Dr. Sax, with a single volunteer, returned to the Mosquito Coast later that year to begin training healthcare workers in cervical cancer screening and treatment. Since that first trip, PINCC has trained approximately 700 medical personnel and certified 35 clinics in 10 countries in Africa, Latin America and Asia. PINCC continues to expand its training to new clinics in more countries. Our Mission: Prevent cervical cancer among women in under-resourced countries worldwide. Our Goals: 1. To expand the availability of cervical cancer prevention programs to under-resourced countries around the world where screening for and treating cervical cancer precursors is uncommon. 2. To improve women’s health and enhance healthcare delivery in underresourced countries. 3. To optimize benefits for women by teaching doctors in host countries how to train other healthcare workers in cervical cancer screening and treatment. About PINCC 2015 4. To promote awareness of cervical cancer, influence public health policy, and aid government and educational institutions to implement and support practical, medically sound, and economically viable methods of cervical cancer prevention. 5. To raise organizational visibility, build support, and generate the resources necessary to continue and expand this program in under-resourced countries around the world. Where We Work: Since 2005, PINCC has partnered with health ministries, local health organizations and clinics, and other non-profits to build sustainable cervical cancer prevention programs in El Salvador, Honduras, Nicaragua, Guatemala, Peru, Cameroon, Kenya, Uganda, Tanzania and India. PINCC is currently exploring invitations to collaborate with partners in Bangladesh, Ethiopia, and Burma (Myanmar). What We Do: 1. We focus on women in underserved parts of Africa, Latin America, and Asia to prevent suffering and death due to cervical cancer. Because cervical cancer takes up to 15 years to develop, it can be prevented through periodic screening and treatment of cancer precursors. 2. We collaborate with medical professionals, government agencies and civil society organizations in the host countries to build sustainable screening and treatment programs. 3. We partner with clinics and hospitals to train health care providers to become proficient in screening for and treating cervical cancer precursors, donating the equipment and community outreach and education materials necessary to support sustainable programs. 4. We utilize evidence-based techniques approved by the World Health Organization (WHO) that are affordable and accessible for local health care providers. 5. We offer screening and treatment training at no cost to the facility or the community. 6. We equip clinics with essential medical equipment for ongoing screening and treatment services for community women. 7. We refer women with invasive cervical cancer to hospitals able to provide advanced medical or hospice services. 8. We educate communities in the developing countries about cervical cancer and its prevention. 9. We provide services on an invitation basis, and in accordance with bilateral contracts. About PINCC 2015 10. We engage with government departments, institutions, and women’s organizations in the host countries to influence public health policy and establish sustainable programs to reduce cervical cancer. How We Do What We Do: 1. We bring teams of volunteer doctors, nurses, health educators and support personnel to provide training of community health workers, medical providers, and other clinic/hospital staff, at no cost to the host facility. 2. Our cervical cancer screening training utilizes Visual Inspection with Acetic Acid (VIA) and VILI (Lugol's Iodine), and the treatments are Cryotherapy (ablation by freezing) and LEEP (Loop Electrical Excision Procedure). We enhance medical care services by also providing training in breast and gynecologic examination, and diagnosis and treatment of common problems such as infections. 3.The health care providers who commit to this training program are required to conduct many cervical examinations and treatments over a year, with proctoring by experienced personnel. 4. PINCC commits to three or four training visits per site, returning approximately every 6 months. Between visits, the local staff trainees agree to perform 10 to 20 examinations per month. Trainees maintain a log book with patient details and medical results for each woman examined. 5. Women with positive or questionable results are re-examined during PINCC’s follow-up visits by proctored medical staff and treated as needed. 6. PINCC provides both didactic and clinical instruction, with manuals, visual aids, and direct experience. Trainees are assessed with written and visual testing, and must master a list of skills for certification. Facilities are certified only after they have established regularly occurring screening and treatment clinics, community health education, record-keeping, follow-up systems, and the means of procuring necessary materials to carry out the program. 7. PINCC also trains and equips community health workers at each site, with educational flipbooks in English and one or more local languages, designed to be understandable by a semiliterate audience, and posters for the centers. 8. PINCC works with in-country trained personnel to provide interim proctoring and support between training visits. A two-day clinical proctoring visit to a training site reinforces goals and accelerates training.. Why We Do What We Do: Cervical cancer is the most common cancer in women in many developing nations and is the fourth most common cancer among women worldwide. In 2012, WHO reported an estimated About PINCC 2015 528,000 new cases of cervical cancer with 85% of the global burden in the less developed regions. High-risk regions include Eastern Africa, Melanesia, Southern and Middle Africa. There were an estimated 266,000 deaths from cervical cancer worldwide in 2012. Yet death due to cervical cancer is 100% preventable with early detection and treatment, which is the case in the United States and other developed countries PINCC is committed to bringing the benefits of developed world screening and treatment to women worldwide. The Biggest Challenges: 1. Global Challenges a. In developing countries, cervical cancer kills more women than any other cancer. Over 80% of women newly diagnosed with cervical cancer live in these areas. Most have never been screened; many are diagnosed too late to have any realistic hope of recovery. b. Cervical cancer is one of the easiest cancers to detect, treat, and prevent when caught early. If every woman were screened just once in her lifetime, global cervical cancer rates would drop by 30%; screened twice, rates drop to 60%. c. Women in developing nations are more susceptible to the disease than their sisters in the first world. Yet they do not have access to screening and treatment. d. Women with HIV/AIDS have a six-fold higher risk of cervical cancer, and lower response rates to treatment. Yet most HIV/AIDS programs do not include cervical cancer education, screening or treatment. 2. Local Challenges a. While VIA/cryotherapy is low cost, many women cannot pay for biopsies or Pap lab services, which are sometimes needed when the lesion is deep or severe. PINCC is working with partners to develop a fund to cover the cost of pathology for the women that require biopsy/Pap lab services. b. For those found to have invasive cervical cancer, it is challenging to navigate the distances, scarcity and complex medical systems and protocols in the host countries. The lack of timely and affordable specialist care often result in women dying due to lack of specialized treatment. PINCC continues to work with hospitals to develop priority service for referrals from PINCC and its clinic partners. c. Maintaining cryotherapy equipment, including gas tanks, is challenging. PINCC provides technical support to each site on an ongoing basis.