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Kathryn Almond. MSc, BAcC, IFPA, BSCAH, CNHC. Chair north of England Cancer Network Complementary Therapy Group Complementary Therapy Service Mowbray Suite Friarage Hospital Northallerton DL6 1JG Complementary Therapy Service Telephone: e-mail: 01609 762676 [email protected] Complementary therapy service: a pilot exploration utilising the north of england cancer network holistic assessment tool. March to April 2011 Kathryn Almond Complementary Therapy Service Oncolology & Haematology Friarage Hospital, Northallerton Kathryn Almond NECN – Holistic Assessment Pilot 1 Contents Introduction 3 Drivers 3-4 Aims 4 Definition 4 Materials and Methods 5 Results 5-8 Conclusion 8 References 9 Appendix 1 – Adapted Holistic Assessment Tool 10 Appendix 2 – Consent form 11 Kathryn Almond NECN – Holistic Assessment Pilot 2 NECN – Holistic Assessment Pilot Introduction NECN would like to adopt a unified approach to the assessment and recording of patients needs. The assessment tool that the NECN has chosen to adopt is the distress thermometer developed by the National Comprehensive Cancer Network 2005. January 2007 saw the publication of the Holistic Common Assessment (HCA) of Supportive and Palliative care Needs for Adults with Cancer. This holistic assessment tool is aimed to encourage professionals and patients to explore current problems and issues that may be affecting patients’ physical, psychological, social and spiritual well-being. This pilot exploration aims to measure the effect of complementary therapy treatments by using an adapted version of the tool to record the patients own assessment before and after their complementary therapy treatment. The complementary therapy service aspires to contribute to a better understanding of the demand for therapies and their effects on patient-centred outcomes among patients with cancer. The service is focused upon therapies as an adjunct to conventional forms of treatment and in palliative / supportive care, by providing both psychological care through relaxation and promotion of well being along with specific treatments to address symptom management during chemotherapy and radiotherapy. The data is shown as 122 episodes of care over 1 month, equating to 20 days of service delivery. Drivers The drive for improvement in patient assessments stems from the National Institute of Clinical Excellence (NICE) 2004, ‘Guidance in Improving Supportive and Palliative Care for Adults with Cancer’. This report highlighted the nature of the care that should be provided to ensure that patients and their families are supported and their needs addressed when coping with cancer and its treatment. There is increasing public interest in, and use of, complementary and alternative medicine (CAM); particularly among patients with cancer, surveys indicate that one-third of patients with cancer sought and received some form of complementary and alternative medicine treatment (Department of Health, 2008). As far back as 2000 the House of Lords Select Committee 3 called for more evidence to support the use of complementary therapy which was echoed by NICE guidelines, improving supportive and palliative care for adults with cancer (2004) 5 Kathryn Almond NECN – Holistic Assessment Pilot 3 11.18 Evaluative research is needed into the cost effectiveness and safety and efficacy of different complementary therapies 11.19 Research is needed to determine the best way to provide and deliver information about complementary therapies The Cancer Reform Strategy (2009) 6 announced the establishment of the National Survivorship Initiative to deliver services and support to those living beyond cancer and states that complementary therapies may have a role in filling service gaps. The complementary therapy (safeguarding practice) measures 1 for the manual of cancer services (2009) support the quality assurance and act as a driver for quality improvement in the commissioning and delivering of service. Aims By piloting the use of the Holistic Common Assessment tool within the context of complementary therapy treatment it is hoped to capture data to: Identify the characteristics of service that are likely to have a significant impact on health outcomes. Give support to planning, commissioning and organising complementary therapy services and to identify gaps in provision, ensuring the appropriateness and quality of the existing service. Definition Participants were asked to verbally assess their own perceived level of stress and anxiety before and after their complementary therapy treatment. The National Institute of Health and Clinical Excellence (2009)4 define ‘complementary therapy’ as: “Complementary therapies are used alongside orthodox treatments with the aim of providing psychological and emotional support through the relief of symptoms.” And by the Manual of Cancer Services (2010) 2 as: “a range of specific therapies, which are offered to patients with cancer, as having potential benefit, but which are not offered as an alternative tumour reduction (cancer reduction, tumour ablation or removal) method to any of the conventional treatments offered by the network (surgery, radiotherapy, chemotherapy, endocrine therapy or biological therapy)”. Kathryn Almond NECN – Holistic Assessment Pilot 4 Materials & Methods Please identify the number (1-10) that best describes how stressed you were before treatment and again after treatment. If “0” is no stress and “10” is high levels of stress or anxiety. The holistic assessment tool is divided into five domains; background, physical, social, psychological and spiritual by utilising an adapted version we aim to get a snapshot of the patients self assessed wellbeing. Snapshot assessment of wellbeing takes minimal time although varied at certain points in the patients pathway. Consent must be obtained prior to undertaking the assessment Complementary therapy service at the Friarage is ideally placed as patients are referred at every stage of the pathway and across all tumour sites Kathryn Almond NECN – Holistic Assessment Pilot 5 Results self assessed scores pre and post episode of care holistic assessment (0-10) 6 5 4 3 2 1 0 pre treatment post treatment 5.35 3.03 average scores Comparing the mean average scores pre and post treatment demonstrates a reduction of 43.36% Completion 12% 0% answered 81% 19% forgot not appropriate 7% During the pilot there were 23 treatment interventions without scores because the question was overlooked, on reviewing the data this was much more prevalent at the beginning of the study showing that the tool was used more as it became part of the clinical routine. There were a further 15 episodes of care in which it was judged inappropriate to ask. On examining the feedback in all cases this was due to the patient being too emotional to ask, whether they had received bad news in clinic or were struggling it was felt that the use of the tool would not have been helpful Kathryn Almond NECN – Holistic Assessment Pilot 6 in that situation. There may be an argument that this would have been especially useful data to collect however, there are equally as strong case against pressing patients for information. Perhaps further training and support in using the tool would be useful. For the 99 interventions that were recorded the information was given freely. holistic assessment (0-10) treatment comparison 8 6 4 2 0 auricular acupuncture acupuncture aromatherapy combination pre 4.57 5.29 7.05 5.23 post 2.14 3.36 4.91 2.77 The data was also used to investigate the different effects of each intervention, there was not a significant difference between the treatments however a combination of both acupuncture and massage seemed to provide the biggest reduction of 2.46 from pre to post scores. Kathryn Almond NECN – Holistic Assessment Pilot 7 site specific group comparison 8 hloistic assessment (0-10) 7 6 5 4 3 2 1 0 pre post pre post pre breast 2.69 bowel 1 carer post pre post pre post pre 2.4 gynaecology 2 haematology1.84 post lung pre post prostate 2.2 pre post staff By comparing the effects of treatments on each site specific group the largest movement of self assessed score is from breast with a reduction of 2.69. To draw any further conclusions about the impact of complementary therapy treatments it would also be useful to explore data from different stages of the cancer pathway. Conclusion Assessment forms an integral part of patient care and should be seen as continuous exercise, the continual modification of the service to adapt and develop the best service for patients. This exploration into using the holistic assessment tool has demonstrated: Has been a useful tool to support the day to day appraisal of individuals needs and inform service developments. A way to support patients to reflect and assess their own feelings as well as indicating services and resources that may help to resolve other concerns and needs. Demonstrate active and equal membership of the multidisciplinary team within the north east cancer network and nationally. Contributing towards the development of standardised; practice, research and audit, information and service delivery. However, we strive to adapt, and modify the service to accommodate as many patients as possible ensuring an integrated approach to care by combining the best of conventional cancer treatments with the timely application of complementary therapy treatments. Over the past ten years we have continued to analyse, reflect and adjust service delivery to ensure clinical and cost effectiveness. Kathryn Almond NECN – Holistic Assessment Pilot 8 References 1. National Cancer Peer Review Programme. (2009) Manual for Cancer Services 2008: Complementary Therapy (Safeguarding Practice) Measures. Gateway No. 12532 National Cancer Action Team 2. National Institute for Clinical Excellence (2004) Guidance on Cancer Services, Improving Supportive and Palliative Care for Adults with Cancer. London NICE. 3. House of Lords Select Committee on Science and Technology. (2000) 6th report: Complementary and alternative medicine. London: The Stationary Office. 4. Department of Health (2008) Research on the role of complementary and alternative medicine (CAM) in the care of patients with cancer. London DoH. 5. National Institute for Clinical Excellence (2004) Guidance on Cancer Services, Improving Supportive and Palliative Care for Adults with Cancer. London NICE. 6. Department of Health (2007) The Cancer Reform Strategy. London DoH. . Kathryn Almond NECN – Holistic Assessment Pilot 9 Appendix 1 Kathryn Almond. MSc, BAcC, IFPA, BSCAH, CNHC. Complementary Therapy Service Mowbray Suite Friarage Hospital Northallerton DL6 1JG Telephone: e-mail: 01609 762676 [email protected] Complementary Therapy Service Holistic Assessment Pilot Please would you contribute to piloting this assessment tool? We would like to record your own assessment of your stress before and after you complementary therapy treatment. This screening tool is aimed to encourage professionals and patients to explore current problems and issues that may be affecting patients’ physical, psychological, social and spiritual well-being. Please identify the number (1-10) that best describes how stressed you were before treatment and again after treatment. If “0” is no stress and “10” is high levels of stress or anxiety. If you do not wish to contribute to this particular project, please just let us know. Please be reassured that your treatment will not be affected in any way. Thank you. version: 1 date: feb 2011 adapted from the NECN Holistic Assessment of Concerns Tool revised v2 26.09.08 Kathryn Almond NECN – Holistic Assessment Pilot 10 Appendix 2 Consent to Complementary Therapy Treatment Introduction Everything we do has to be evaluated. We would like to be able to use information you have given us to investigate what effects, if any, complementary therapy treatments may have. Your experience is what we would like to explore. We hope to share our findings with other healthcare professionals by presenting the outcomes at meetings and publishing scientific articles that describe the study and results. If you would like to be informed of any projects then please let us know, and we will be happy to forward information to you. Please read the following information and share it with your family and friends if you wish. We are happy to provide alternative explanations or additional information if you have any questions. confidentiality Your anonymity and confidentiality will be respected and any information will be subject to the Data Protection Act (1998). Your practitioner is bound by the confidentially policy of South Tees Foundation Trust and their professional code of ethics. All personal details and your anonymity will be respected at all times. Complaints If you are dissatisfied or wish to complain about any treatment or information you have received please contact: Patient Advise and Liaison Service (PALS) on free phone: 0800 0282462 Side Effects and risks: Generally Complementary Therapies are very safe. Serious side effects occur in less than 1 in 10,000 treatments. You need to be aware that … Acupuncture drowsiness can occur after a treatment, and if affected you will be advised to stay and recover before driving or advised not to drive if seriously affected. fainting can occur following a treatment in a very small number of patients. your blood sugar levels may fall so it is advised that you eat a light meal or snack before a treatment. symptoms can exacerbate for a short while following a treatment; you should tell your practitioner if this occurs, but is usually seen as a good response minor bleeding or bruising can occur (approximately 3% of treatments) pain occurs in 1% of patients during a treatment. Aromatherapy should you have any reaction to the oils, wash the area with cool milk, preferably full cream. Milk is a natural emulsifier and will reduce any soreness or inflammation. Do not use soaps or creams. It is unlikely that you will have any long term reaction but please call for advice if anything lasts for more than 2 hours. drink plenty of water, as this aids the body to dispel toxins and waste products that have been encouraged into the bloodstream by the treatment. If there are any particular risks that apply in your case, your Practitioner will discuss these with you. STATEMENT OF CONSENT I confirm that I have read and understood the above information and I consent to having Complementary Therapies. I understand I can refuse treatment at any time. I understand that complementary therapy is not an alternative method of tumour reduction and this treatment does not promise a particular benefit or cure I understand the information will be stored in accordance with the principles of the Data Protection Act (1998) and may be used for audit and research purposes. Signed ………………………………………………………...……… Date ……………………............................ author: issue: review date: Kathryn Almond kathryn almond 3 (April 2011) April 2013 NECN – Holistic Assessment Pilot 11