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Faculty of Public Health Of the Royal Colleges of Physicians of the United Kingdom Working to improve the public’s health OSPHE 144 Cancer delays OSPHE 144 QUESTION 5 Cancer delays CANDIDATE PACK OSPHE 144 Candidate task You are a public health professional working in a Primary Care Organisation1 (PCO). A research study in another PCO has recently explored the reasons for delays referring patients with symptoms suggestive of cancer to specialists. This has been widely shared locally. Your local service user representative2, who is also a member of the local cancer planning forum, has seen the research and wants to meet with you and sort out a plan to remedy what they see to be the failings of General Practitioners in your PCO. You have 8 minutes to prepare for the station. You are not required to prepare any visual aids. At the station you will present the research findings (2 to 3 minutes) and spend the remainder of the 8 minutes discussing the task with a role-player. You may use paper notes to aid your verbal briefing. Outline of situation Speedy access to appropriate investigation, diagnosis and treatment is recognised to be central to improving outcomes for patients with cancer. This is enshrined in various national waiting time standards and also in referral guidelines to support appropriate and timely primary care referrals. Nevertheless only the minority of patients have their cancers diagnosed in this way because they may not fit the guidelines, may be referred to a different service and have it picked up there, incidentally, or may present as an acute emergency. Overall delays to initial referral can come about because of the behaviour of patients or clinicians. It is the clinicians’ role in this delay that the user has already indicated they are most concerned about. Candidate guidance You are to meet with the user representative to summarise and discuss the research and agree on any subsequent actions in discussion. At the station You will be greeted by a marker examiner who will take your candidate number and name, and then hand over to the role-player by saying: “This is the service user representative. They will now start the station”. 1 A Primary Care Organisation (PCO) is a health organisation that provides community and primary health care and commissions health care from community and hospital services. In England these are called Primary Care Trusts (PCTs). A Health Board in Scotland performs some similar functions. PCTs and Health Boards generally cover designated areas and populations within those areas. 2 A member of the public who is involved in providing a representative patient view about a specific service (in this case cancer services) or services in general across an organisation responsible for providing healthcare. In this case they are also a member of the local cancer planning forum, a multidisciplinary group helping to plan and develop cancer services. Page 1 of 2 OSPHE 144 Candidate Briefing Pack The study The work took place outside your PCO, about one year previously. A 10% systematic sample was drawn from existing lists of patients in active contact with a hospital1. Six specialities were involved and patients who responded were given semi-structured interviews by cancer nurse specialists attached to each speciality. Table 1 - Response Rate Cancer site Gynaecology Haematology Head & neck Lung Skin Urology Total Number invited 36 11 31 29 18 22 114 Number responding 12 4 9 10 4 19 58 Response rate % 33 36 29 34 22 86 51 Results 53% of patients were referred at the first contact with the General Practitioner (GP) as a result of a decision made at that first contact/consultation. Table 2 - Pattern of delays Cancer site Gynaecology Haematology Head & neck Lung Skin Urology Median delay (weeks) 13 0 5 10 67 8 % delayed by site Number delayed 50 0 44 60 25 55 6 0 4 6 1 10 Why were patients being delayed? Descriptions of main reasons given by respondents: Symptoms were still being investigated (57%). Symptoms were being investigated but patient saw another GP, who made a referral (13%). Lack of GP skills (as reported by the patients) (22%). System failings (appointments missed, wrong addresses, no transport) (9%). 1 Source – unpublished data – drawn from a student dissertation distributed via a cancer network mailing. Page 2 of 2 OSPHE 144 Cancer delays MAIN MARKER EXAMINER PACK OSPHE 144 Examiner situation The candidate will be greeted by a marker examiner who will take their candidate number and name, and then hand over to the role-player by saying: “This is the service user representative. They will now start the station”. Examiner Answer guidance The study seeks to answer an important question and goes about it in a systematic way but is neither large enough to draw conclusions nor does it have a good enough response rate. The overall presentation of the results is loose and lacks elements of detail one would prefer to see, as would usually be the case for a robust, peerreviewed piece. Also, it is not clear from the presented material what professional or academic review of the study has taken place (if any). Subject bias’ may be present as people who have had a poor experience may be more likely to respond in this sort of study. Those from more deprived communities (who generally have poorer cancer outcomes) are less likely to respond. Disease severity (possibly worse in later presenters) itself may preclude some from responding. As such the validity of the findings, even to the whole population being sampled within this relatively narrow list of specialties, is suspect. Systematic sampling is one way of constructing a sample to help to avoid bias, but the method used is not reported, and taken with low response rates, makes judging the usefulness of this theoretically good practice approach more difficult. Average candidates should bring most of these points out in the discussion – failure to do so indicates a very weak performance. All candidates should identify the much higher response rate in Urology – future work in planning any subsequent studies may consider how this was achieved. Examiner briefing pack (these will be inserted by the Faculty office) Candidate pack, Role-player briefing pack. OSPHE 144 Marking Guide for Examiners 1. Has the candidate appropriately demonstrated presenting skills in a typical public health setting (presenting to a person or audience)? Avoids jargon. Is clear. Appropriate language for the audience. contact. Appropriate manner for the situation. Shows empathy. Maintains eye 2. Has the candidate appropriately demonstrated listening skills in a typical public health setting (listening and responding appropriately)? Ensures role-player questions are answered appropriately. Answers totality of the question. Manner of response appropriate to actor scenario. 3. Has the candidate demonstrated ascertainment of key public health facts from the material provided and used it appropriately? Describes the study design. Sets out what the study shows and what it does not show. Draws out the fact that it is a small study in the first place with very small numbers responding. Refers to possibility of response bias and representativeness of findings and that disease severity may influence response. Candidates who fail to identify the weaknesses of the study will have performed very badly. Half the patients responded, half the patients had primary care delays of which a third were GP/system failings. The delays are significant but it is not possible to extrapolate the size of the problem. What about the commonest cancers such as breast? There are too many uncertainties as it stands to use as a basis for intervention. Candidates who need prompting to discuss the Urology data will have performed weakly. 4. Has the candidate given a balanced view and/or explained appropriately key public health concepts in a public health setting? Have they explained how this study might be used to better inform service development? Contains some useful information but cannot be the basis for wholesale changes to cancer care in primary care. Proposes ways in which the study could be usefully built on e.g. looking at other specialties. Reviewing the guidance and guidelines to support those specialties with biggish numbers in the study e.g. Gynaecology, lung and urology. Seek GPs views on the study. 5. Has the candidate demonstrated sensitivity in handling uncertainty, the unexpected, conflict and/or responding to challenging questions? Does not demonstrate complacency about the findings but is realistic about what action can be taken. Is able to justify not jumping in when evidence is thin. Can see the merits of the study and using this as a basis for future work, education, information and further investigation. Simply writing off a poor study and not responding to the prompt about what can be drawn from it would also represent very poor performance. OSPHE 144 Cancer delays ROLE-PLAYER BRIEFING PACK OSPHE 144 Station background As candidate briefing. Role-Player Brief The role-player is a user representative who sits on the local cancer planning forum1. You are well-informed about national and local policy and having had a missed cancer you are keen to ensure that delays are eradicated. That’s why you have become involved in the planning forum. You are a bit impatient with the perceived complacency although your own treatment was very good when you got to it. The candidate has 2 to 3 minutes to describe the study and its limitations, you can then interrupt. Start by saying: “Thank you for coming to meet with me today. Can we start by just reviewing this research?” “This study seems to be saying that we have some major problems with GPs referring patients on time or missing cancers” Depending on the response – if the candidate agrees it’s a poor study: “Well if it’s such a poor study what can we usefully draw out of it?” If they support its findings: “So you think we should accept what this study says - could you comment on the quality of the study?” “What about breast cancer – that isn’t included?” “What about the Urology data – that seems different?” At the one minute bell if the candidate has not made it quite clear to you what their interpretation and/or advice is, ask: “So can we summarise what this research is saying?” Finish with: “Thank you for meeting with me”. Any ‘no go’ areas None. Level of conflict High. 1 Multi-professional group including cancer care specialists, GPs, patients, PCO commissioners and public health/health promotion specialists.