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Mapping the palliative care access across Europe Carlos Centeno University of Navarra Clinic SPAIN DIRECT APPROACH Mapping access to palliative care in Europe DATA FROM SURVEY INDIRECT APPROACH Mapping palliative care development in Europe ESTIMATIONS Mapping access to palliative care DATA FROM SURVEY Medline search Term Search details Readding Titles Readding Filter Abstract Filter “PALLIATIVE "palliative National or CARE”, ACCESS, care"[All Fields] International EUROPE AND (access[All perspective Fields] AND ("europe"[MeS H Terms] OR "europe"[All Fields])) Data from Survey (not only barriers studies) Country/region ‐ Results 130 13 3 Belgium Italy England Ralated citations 1 1 1 British Columbia Results: 4 1. Care for patients in the last months of life: the Belgian Sentinel Network Monitoring End‐of‐Life Care study. Van den Block L, Deschepper R, Bossuyt N, Drieskens K, Bauwens S, Van Casteren V, Deliens L. Arch Intern Med. 2008 Sep 8;168(16):1747‐54. 2. Inequity in the provision of and access to palliative care for cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). Beccaro M, Costantini M, Merlo DF; ISDOC Study Group. BMC Public Health. 2007 Apr 27;7:66. 3. Equity of access to adult hospice inpatient care within north‐west England. Wood DJ, Clark D, Gatrell AC. Palliat Med. 2004 Sep;18(6):543‐9. 4. A method to determine spatial access to specialized palliative care services using GIS. Cinnamon J, Schuurman N, Crooks VA. BMC Health Serv Res. 2008 Jun 30;8:140 Care for patients in the last months of life: the Belgian Sentinel Network Monitoring End‐of‐Life Care study. Van den Block L, Deschepper R, Bossuyt N, Drieskens K, Bauwens S, Van Casteren V, Deliens L. Arch Intern Med. 2008 Sep 8;168(16):1747‐54. BMC Public Health. 2007 Apr 27;7:66. Inequity in the provision of and access to palliative care for cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). Beccaro M, Costantini M, Merlo DF; ISDOC Study Group. BMC Public Health. 2007 Apr 27;7:66. BMC Health Services Research 2008, 8:140 Mapping palliative care development ESTIMATIONS Mapping levels of palliative care development: a global view Michael Wright, Justin Wood, Tom Lynch, David Clark International Observatory on End of Life Care, Lancaster University, UK Ranking of specific resources INDICATORS OF RESOURCES BY POPULATION 1. 2. 3. 4. 5. Hospital units Support teams Home care teams Specialized beds Full time physicians Each resource indicator is obtained by assigning points to the relative position of the country with respect to the other 27 countries (27 being the maximum, 1 the minimum). The addition of the points of the five indicators results in a ranking of specific resources. Ranking of Vitality INDICATORS OF THE VITALITY OF THE MOVEMENT OF PALLIATIVE CARE 1. 2. 3. 4. 5. 6. Existence of a National Palliative Care Association Existence of a Palliative Care Service Directory People attending the EAPC general congresses Existence of certification or specialty for palliative medicine Publications of the national development of palliative care Existence of palliative care teams for children Each vitality indicator is obtained by marking it as follows: 0 (non‐existing), 1(existing), 2(maximum development of the indicator, when possible). Thus, 10 is the maximum and 0 the minimum. The addition of the punctuation obtained by the 6 indicators results in a ranking of vitality of the movement of Palliative Care RANKING OF GLOBAL DEVELOPMENT DEVELOPMENT OF PALLIATIVE CARE SPECIFIC RESOURCES AVAILABLE (75%) + VITALITY (25%) The country that achieves the highest position in the resource ranking is given 75 points and the others are marked in relation to this maximum. The country with the highest number of points in the vitality ranking is given 25 points and the others are marked with respect to this maximum. This way, the degree of development of each country can be compared to the most developed country, which is the United Kingdom, and that would have a maximum development at the present of 100% (even though that figure does not mean that it can not improve its palliative care development in the future). To ‘map’ the access of PC in Europe 1. Real access studies – Mortality follow back studies • Through a sample from a sentinels network – Belgium: 41% access to PC services (80% pc approach) • Through a poblacional study – Italy: 14‐20% access to PC Services 2. Accessibility studies (potential accessibility ) – Geographical Information System – UK & Ireland (British Columbia: 81% has potential access to PC less than 1 hour driving) 3. Development studies (estimated accessibility) – Studying the national development of pc – EAPC Ranking of PC in Europe THANKS [email protected]