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“Focus” on Vision Impairment & Blindness Conference 11th Annual Meeting the Needs of Individuals with Intellectual Disability & Vision Loss March 9, 2016 8:00 am - 3:30 pm Four Points by Sheraton, Norwood, MA Welcome Remarks: Jane Ryder Deputy Commissioner Department of Developmental Services Keynote Speaker: Randy Pierce President, 2020 Vision Quest ”Reaching Our Peak Potential” Awards at Lunch: Mark Holt “Gift of Lunch” Paul McDade “Focus” Award for Distinguished Service Paul McDade “Focus” Award for Distinguished Leadership “Focus” on Talent!!! Special Closing Performance by: “MAI Group Inc.” A Very Special Thank You… Lead Sponsor: Massachusetts Commission for the Blind Sponsors: Perkins Training Center DDS Southeast Region Training Council Friends: New England College of Optometry Shriver Clinical Services To Our Exhibitors Including: Vendors: AdaptiVision/Optelec American Printing House for the Blind Carroll Center for the Blind Easter Seals Massachusetts Helen Keller National Center Massachusetts Commission for the Blind MA State 911 Department New England Consortium for Deafblind Technical Assistance New England Index Perkins eLearning Perkins Library Perkins Solutions UMass Amherst University without Walls 2 A Very Special Thank You… To Our Exhibitors Including: Literature Table: Eye Care America Hadley School for the Blind Independent Living Aids LS&S MaxiAids National Eye Institute National Institute on Aging Prevent Blindness America and more… Poster Displays: Play the Day Away: Utilizing Music Therapy for Relaxation, Self-Awareness, and Socialization Lisa A. El-Lakis, MT-BC DDS/Hogan Regional Center How Technology Made My Job Accessible for Me Diana Julian DDS/Plymouth Area Office E-News: Employment News You Can Use Kerri Moran Massachusetts Commission for the Blind Self Advocacy Yashira Correa People, Incorporated - Fall River 3 Poster Displays: (continued) Postural Care for Individuals with Intellectual Disability Mary S. Clark RPT, COMS, ATP Northeast Residential Services, DDS Integrative Movement Therapy (Yoga/Pilates) Tina Sorel, PT Erin Dalton, PTA Crystal Springs, Inc DPPC Jennifer Edwards-Hawkins Disabled Persons Protection Commission Let’s Walk Together Tony Miranda, Orientation & Mobility Assistant EDCO/Wrentham Developmental Center Providing Exceptional Eye Care to Children and Adults with Intellectual Disability New England Eye Southeastern Massachusetts 4 Introducing our Keynote: Randy Pierce During two short but significant weeks in 1989, a devastating neurological disease transformed Randy Pierce from a healthy and ordinary man to a blind man completely uncertain of his future. Randy’s passion for experience encouraged him to utilize adversity as a positive catalyst for growth and opportunity, resulting in such amazing adventures as earning his second-degree black belt, making history as a blind hiker, and his induction into the “VISA Hall of Fans” at the Pro Football Hall of Fame. Randy earned his BSEE from the University of New Hampshire and enjoyed a successful career at Digital Equipment Corporation as a hardware design engineer. The practical challenges of blindness encouraged Randy to pursue other productive opportunities. These included tutoring children and adults, teaching martial arts, advising on adaptive technology, and consulting for The Library of Congress. Today Randy holds the positions of Founder and President of 2020 Vision Quest, ViceChair of the Board of Directors of New Hampshire Association for the Blind, and First Vice President of the Hudson, NH Lions Club. The University of New Hampshire’s Alumni Association has named Randy as its 2014 winner of the Award of Excellence for Outstanding Achievement. Randy provides motivational speaking presentations to corporations, schools, and non-profit organizations. Some notable presentations, of the hundreds Randy has provided, include Google, TJX, Yankee Candle, and Bank of New Hampshire. Four compelling documentaries highlight Randy’s historical hiking achievements; the founding of 2020 Vision Quest; and his New England Patriot fandom. The latter documentary was nominated for a Sports Emmy Award. Randy has been on multiple national television shows, most notably Rosie O’Donnell, Jimmy Kimmel Live, and The Best Damn Sports Show Period. 5 Conference Agenda “At-a-Glance” 8:00 – 8:25 Registration / Vendors Open / Refreshments 8:25 – 8:30 Opening Remarks 8:30 – 8:45 Welcome Remarks 8:45 – 9:45 Keynote 9:45 – 10:00 Break / Exhibits Open 10:00 – 11:00 1st Concurrent Session 11:00 – 11:15 Break / Exhibits Open 11:15 – 12:15 2nd Concurrent Session 12:15 – 12:30 Exhibits Open 12:30 – 1:30 Lunch & Award Presentations: ● Mark Holt Gift of Lunch ● Paul McDade “Focus” Awards for Distinguished Service and Leadership 1:30 – 2:00 Dedicated Time for Exhibits Session 2:00 - 3:00 3rd Concurrent Session 3:00 – 3:15 Break / Refreshments / Exhibits Open 3:15 – 3:45 “Focus” On Talent!!! (Performance) / Raffle Directions!!! Four Points by Sheraton Norwood 1125 Boston-Providence Turnpike Route 1 (18 miles south of Boston) Norwood, MA 02062 Phone: 781-769-7900 www.fourpointsnorwood.com Please see page 16 for a full listing of directions!!!! We look forward to seeing you on March 9th!!! 6 “Focus” on Vision Impairment & Blindness 8:00 – 8:25 Registration / Exhibits Open / Refreshments 8:30 – 8:45 Welcome Remarks: Jane Ryder Deputy Commissioner, DDS 8:45 – 9:45 Keynote: Randy Pierce President, 20/20 Vision Quest ”Reaching Our Peak Potential” Using personal experiences developed through his transition from fully sighted to total blindness, Randy will demonstrate the methodology which enabled him to strive for and achieve his peak potential both figuratively and literally. Anecdotal references are a fundamental part of the goal setting, problem solving and perseverance means by which risk manipulation can help any of us strive to achieve a vision beyond our sight as we all reach for our Peak potential. 9:45 – 10:00 Break / Exhibits Open 10:00 – 11:00 Concurrent Sessions A. Glaucoma: An Overview for Patients and Caregivers Presenter: Bridget C. Hendricks, OD, MS, FAAO Assistant Professor of Optometry, NECO Attending Optometrist, New England Eye Description: This presentation will provide an overview of Glaucoma, a complex eye disease in which damage to the optic nerve leads to progressive and irreversible blindness. We will discuss risk factors, signs/symptoms, tests that are performed to diagnose and evaluate glaucoma, treatment, and patient resources. This presentation will allow patients, health care providers, and caregivers to better understand risks, detection, and management of glaucoma. 7 10:00 – 11:00 Concurrent Sessions (continued) B. Yoga for Everyone! Individuals with Intellectually Disability and Their Service Providers. Presenter: Lynne Bridges, COMS, CYI (Certified Yoga Instructor) Carroll Center for the Blind Description: Yoga can be practiced by anyone. It has been used for centuries to enhance health and wellbeing: physical, emotional and mental. This presentation will share some of the ways I have used yoga to enjoy movement with my students, while simultaneously improving physical, emotional and mental health. This presentation will also consider simple practices for people working with special populations to decrease stress and enhance focus. C. Cerebral/Cortical Vision Impairment and Adults Presenters: Barry S Kran, OD, FAAO Professor, NECO Clinic Director, NE Eye Low Vision Clinic at Perkins Luisa Mayer, PhD Clinical Assistant Professor, Harvard Medical School Associate Professor, NECO Visual Fields/Functional Vision Specialist, NE Eye Low Vision Clinic at Perkins Darick W Wright, MA, COMS, CLVT Adjunct faculty, Vision Studies Program, UMass- Boston Adjunct, Assistant Professor, NECO Clinic Coordinator, NE Eye Low Vision Clinic at Perkins Description: Many adults with Intellectual Disabilities (ID) have other impairments that include vision. Vision impairment relative to ocular causes is well known and is being increasingly diagnosed. What has only recently come to the attention of providers is the possibility of brain based visual impairment. This is the leading cause of pediatric blindness in the developed world and is likely underappreciated in our adult population of adults with ID. This introductory lecture will provide a basic understanding of the differences between an ocular and brain based visual impairment, a pragmatic differentiation between cortical and cerebral visual impairment and case examples of how we determine the presence of CVI. Resources will work-arounds will also be provided. 8 10:00 – 11:00 Concurrent Sessions (continued) D. Community Inclusion for Individuals with Vision and Additional Disabilities Presenter: Stephen Perreault New England Representative - Helen Keller National Center Description: This presentation will focus on a process and plan to expand inclusion in community-based social/recreation activities for individuals with visual and/or multiple disabilities. The content will be based on personcentered planning to identify personal preferences in developing individual planning. Presentation will include strategies for addressing access/support needs and provide suggestions for achievement of successful outcomes. E. New Products and Services Five different companies/agencies will discuss the services and products they provide, including assistive technology, that are helpful to individuals with visual impairment or blindness and those who support them. AdaptiVision/Optelec: Traveller HD Perkins eLearning: Professional Development opportunities Perkins Solutions: Digital accessibility, emerging technology for navigation Massachusetts Commission for the Blind: Benefits and Services New England Consortium for Deafblind Technical Assistance: Services PLEASE NOTE: CEU’s are not offered for this session. 11:00 – 11:15 Break / Exhibits Open 9 11:15 – 12:15 Concurrent Sessions A. Why Your Patient May Not See: A Presentation of Ocular Diseases Commonly Seen in Patients With Intellectual and Developmental Disability and the Currently Available Treatment Presenter: Jean Ramsey, MD, MPH Associate Professor for Ophthalmology and Pediatrics Boston University School of Medicine Vice-Chair of Education and Program Director Department of Ophthalmology, Boston Medical Center (BMC) Associate Dean for Alumni Affairs Boston University School of Medicine Description: Ocular diseases to be discussed will include cataract, glaucoma, retinal detachment, diabetic retinopathy, macular degeneration, retinal vascular diseases, retinopathy of prematurity, strabismus, keratoconus, and cortical visual impairment. Treatment options will be discussed and will include the new anti-angiogenic drugs currently being used with dramatic results in vascular disorders. B. Public Speaking & Communication Skills for Improved Self Advocacy Presenters: Susannah Locketti, Wellness Coordinator New England Village Ginger Comeau, Director of Enrichment & Community Services New England Village Description: This training is devoted to improving the communication skills of the visually impaired to improve their self advocacy efforts. The skills taught will allow an individual to gain more awareness of their posture, body language, tone, emotions, volume, and clarity of thought when advocating for their personal needs in small or large group settings. Participants will have an opportunity to practice these skills in small breakout groups as well as large group work. If you want to self advocate effectively or support someone to do the same, this training is for you! 10 11:15 – 12:15 Concurrent Sessions (continued) C. We See Things a Bit Differently Presenters: Marianne Gilmore, Workforce Development Specialist Carroll Center for the Blind Theresa E. Kane, Ph.D., Chief Operating Officer The Polus Center for Social & Economic Development, Inc . Joe R. Buizon, Employment Services Specialist Massachusetts Commission for the Blind Description: In the spring of 2015, The Massachusetts Commission for the Blind funded The Carroll Center for the Blind and the Polus Center to implement a transition to work program called Project SEARCH. Project SEARCH combines business partners with onsite supports for a full immersion in the workplace for individuals to gain marketable skills and gain competitive employment. D. Transition Perspectives and Lessons Learned: A Candid Discussion with Parents of Youth and Young Adults Who Have Combined Vision and Hearing Loss Presenter: Tracy Evans Luiselli, Ed.D. Project Director New England Consortium for Deafblind Technical Assistance and Training Description: For many parents of teenagers and young adults who have combined vision and hearing loss, the transition from school to adult services is often overwhelming. There are many agencies and roads to travel, often resulting in confusion about how to access critical services after graduation. During this session, parents will speak about their journey, what was and was not helpful, and provide a brief roadmap of lessons learned along the way. 11 11:15 – 12:15 Concurrent Sessions (continued) E. Simple Assistive Technology Options for the Blind & Visually Impaired Presenters: Catherine Bly, Program Coordinator Assistive Technology Regional Center, a MassMATCH program, managed by Easter Seals Maureen Coyle, COMS Carroll Center for the Blind & Shriver Clinical Services Description: Please join us to learn about a variety of wonderful devices that help those with low vision or blindness function more effectively at work, their day program, or in their personal life. We will review and demonstrate each device for its functionality with our population. The emphasis will be on devices that assist with daily living, memory, organization, and having FUN! We plan to make this an interactive and hands-on session with our audience. Come and have a chat with a clock! 12:15 – 12:30 Exhibits Open 12:30 – 1:30 Lunch & Award Presentations: ● Mark Holt “Gift of Lunch” ● Paul McDade “Focus” Award for Distinguished Service ● Paul McDade “Focus” Award for Distinguished Leadership 1:30 – 2:00 Dedicated Vendor & Poster Session!!! We listened to you!!! We have again scheduled more time after lunch for meeting our Exhibitors, viewing the Posters, and networking. Enjoy!!! 12 2:00 – 3:00 Concurrent Sessions A. The Power of Technology: Fundus Photography and OCT Use in Diabetes and Macular Degeneration Presenter: Elena Z Biffi, OD, MSc, FAAO Assistant Clinical Professor, NECO Staff Optometrist, South Boston Community Health Center Description: Fundus Photography (photography of the back part of the eye) and Optical Coherence Tomography (OCT) have revolutionized our approach to retinal disease identification, diagnosis and decision making. This lecture will introduce the mechanics of the image acquisition, as well as will demonstrate the applicability of imaging technology in diagnosis and management of ocular conditions. Characteristic, disease-specific Fundus Photography and OCT patterns can be identified; these patterns will be illustrated via engaging case presentations in the overall framework of epidemiology, pathophysiology and clinical features for Diabetic Retinopathy and Macular Degeneration. Furthermore, understating of normal and abnormal retinal layer architecture will be tied to potential visual function; in turn, these conditions will be placed in the overall diagnostic and management framework used in day-to-day primary care and ocular disease. B. Sensory Trails – What’s New in Massachusetts? Presenters: Jerry Berrier National Deaf-Blind Equipment Distribution Program Perkins School for the Blind Marcy Marchello Universal Access Program Coordinator Department of Conservation and Recreation (DCR) Description: This session will focus primarily on the recent work of Massachusetts Audubon in providing over 10 accessible All Persons Trails around the state that include sensory elements and audio tours to make outdoor educational experiences available for people with visual impairments. Learn where these trail opportunities are, key features of sensory trails and best practices for creating them. Other new accessible sensory trails opportunities and adaptive hiking strategies for conventional trails will be briefly described as well. 13 2:00 – 3:00 Concurrent Sessions (continued) C. Focusing on Human Rights Presenters: Teka J. Harris, M.A., BCBA, Senior Human Rights Specialist Department of Developmental Services/Central West Region Rebecca Christie, J.D., Human Rights Specialist Department of Developmental Services/Northeast Region Nathan Hoover, Human Rights Specialist Department of Developmental Services/Southeast Region Richard Santucci, Director, Office for Human Rights Department of Developmental Services Description: This presentation will offer insights into the impact of DDS regulations, the tremendous importance of self-advocacy and success stories from the field. D. Creative Teaching Strategies for Working with Deafblind Individuals in a Residential Setting: A Case Study Presenter: Carol Vienneau, Residential Program Manager New England Village Description: Staff working in residential settings are often overwhelmed by the challenges of working with deafblind individuals. This presentation will examine some strategies for teaching and working with individuals with deafblindness and intellectual disabilities. Using a case study, some ideas will be shared on how to offer choices, provide opportunities, foster community integration, and ultimately empower the folks you work with. E. New Products and Services Five different companies/agencies will discuss the services and products they provide, including assistive technology, that are helpful to individuals with visual impairment or blindness and those who support them. Perkins eLearning: professional development opportunities Perkins Solutions: digital accessibility, emerging technology for navigation Massachusetts Commission for the Blind: benefits and services New England Consortium for Deafblind Technical Assistance: services Perkins Library: services, eligibility, and registration information PLEASE NOTE: CEU’s are not offered for this session. 14 3:00 – 3:15 Break / Refreshments / Exhibits Open 3:15 – 3:30 "Focus" On Talent!!! Performance by the “MAI Group Inc.” will put the finishing touch on the day! The MAI Group Inc. is a tax exempt organization under section 501 (c) (3) as of November 15, 2012. The MAI band has been providing opportunities for people of various abilities in music and art since its inception in October 2009. We currently have 10 core group members who have performed in concerts together for several years. Some members of the group are amateurs while others are veteran musicians who have played and continue to play with other bands. MAI has played an average of at least 60 concerts over the past 5 years in more than a dozen towns. MAI will continue to educate the general public and individuals with various abilities about the value of music and arts in people’s lives, provide free entertainment, help build character and confidence, foster friendship and above all, have fun! MAI Group Inc. accepts donations and volunteers. For more information and if interested, please call (508) 577-9436. 3:30 - 3:45 Closing Remarks RAFFLE Wonderful PRIZES!!! Must be present to WIN! Additional Copies of this Registration Brochure: Registration Brochure and Form can be downloaded from "Training Resources and Events" section of the DDS Vision Loss website: www.mass.gov/dds/visionloss and from the “Perkins eLearning Schedule” on the Perkins website: www.perkinselearning.org/events-monthly 15 Directions!!! Four Points by Sheraton Norwood 1125 Boston-Providence Turnpike Route 1 (18 miles south of Boston) Norwood, MA 02062 Phone: 781-769-7900 www.fourpointsnorwood.com From Boston and points North Take I-93 South which turns into I-95 (Route 128) North. Take Exit 15B, Route 1 South toward Norwood. Travel 4.5 miles, the Four Points by Sheraton Norwood Hotel & Conference Center will be on your right after the Staples Plaza. From the West Follow Mass. Turnpike (I-90) East Take Exit 14 onto I-95 (Route 128) South. (Note: From the West, this Exit is number 14, from the East, it is number 15.) Continue South to Exit 15B. Route 1, Norwood, And proceed as above. From Providence, TF Green Airport & points South Take I-95 North to Exit 11B, Neponset Street, Norwood. Drive 7/10 of a mile and turn left onto Dean Street. At traffic light, turn left onto Route 1, heading South. The Four Points by Sheraton Norwood Hotel & Conference Center is on your right after the Staples Plaza. From Logan Airport Exit airport, follow signs through Williams tunnel (toll) to I-90 /I-93 South. Follow signs for I-93 South about 7 miles. I-93 South turns into I-95 (Route 128) North. Proceed on I-95(Route 128) North to Exit 15B, Route 1 Norwood. Travel Route 1 South 4.5 miles to the Four Points by Sheraton Norwood Hotel & Conference Center, located on your right after the Staples Plaza. We look forward to seeing you on March 9th!! 16 Planning for the “Focus” Conference Your Notes: Please Register Early!!! We look forward to seeing you on March 9th!! 17 Registration Information 1. Please fill out the attached form and return BY February 26, 2016 to: Donnamaria Linfield / Shriver Clinical Services Corporation Wrentham Developmental Center, PO Box 144 Wrentham, MA 02093 2. For questions regarding Registration, please contact [email protected] or phone 508-384-5679. Donnamaria: 3. Please make check payable to: Shriver Clinical Services Corporation 4. Refunds: We regret that refunds cannot be given after February 17th 2016, unless by notification from us to you that your check (# and amount) will be returned to you. This refund protocol will also be used if conference capacity is reached at the time we receive your registration and payment. 5. Continuing Education Information: Application for 4 hours of Continuing Education has been submitted to: Academy for Certification of Vision Rehab. & Education Prof. (ACVREP) Commission on Rehabilitation Counselor Certification (CRC) An application has been made for 4 CECs for Social Workers. An application has been made to MA Board of Registration in Nursing for nursing continuing education. Questions: [email protected] NECO/NEEI has applied for 4 hours of MA CE approved credits. Questions: Barry S. Kran, O.D.: [email protected] Perkins Training Center will award 5 Professional Development Points (PDPs) Questions: [email protected] Please indicate your choice of CEUs on the registration form. 6. Scholarships are available for individuals with intellectual disability and their families. Information: [email protected] 7. Reduced room rates of $115.00 per night, exclusive of taxes, will be available at the Four Points by Sheraton, Norwood, phone: 781-769-7900. Please mention Shriver Clinical. Rooms at this rate are held until February 10, 2016 and subject to availability. 8. Registration Brochure and Form can be downloaded from "Training and Events" section of DDS Vision Loss website: www.mass.gov/dds/visionloss and from the “Perkins Training Center Schedule” on the Perkins website: www.perkinselearning.org/events-monthly 9. Questions please contact: [email protected] or 508-384-5539. Please Register Early!!! 18 Registration Form Please return this form by February 26, 2016 Register early if you can! “Focus” On Vision Impairment & Blindness Wednesday March 9, 2016, Four Points by Sheraton, Norwood, Massachusetts Name: ________________________________________________________________ Agency Name: ________________________________________________________________ Address: ________________________________________________________________ ________________________________________________________________ Email: Phone: ________________________________________________________________ Can we share your contact information with sponsors? Yes ___ No___ Lunch Choice: If no choice is indicated, the Vegan lunch will be ordered. ___ Chicken with green grapes, roasted shallots and white wine cream sauce. Served with fingerling potatoes and roasted seasonal vegetables OR ___*Grilled Eggplant with asparagus, spinach, red peppers, & butternut squash. Rolled and cut. Served over rice pilaf. (*Vegan & Gluten Free) Special Accommodations Needed*:_________________________________ _________________________________________________________________ * For Interpreting Services, please let us know by February 10, 2016 Concurrent Session Selection: Circle the letter of the 3 you plan to attend. 10:00 - 11:00 11:15 - 12:15 2:00 - 3:00 A B C D E A B C D E A B C D E Please circle the type(s) of CE you will be requesting: ACVREP CRC CEC Nursing CEU MA CE PDP Conference Rate with Lunch: General Admittance General Admittance Physician (MD, DO, OD) postmarked by 1/31/16: postmarked after 1/31/16 $50.00 $60.00 $110.00 Check enclosed: yes___ no/reason why___________________ Amount: Please make check payable to: Shriver Clinical Services Corporation and mail along with this form to: Donnamaria Linfield / Shriver Clinical Services Wrentham Developmental Center, PO Box 144, Wrentham, MA 02093 Thank You for your support! 19 Lisa DiBonaventura, MA, COMS Statewide Director for Vision & Loss Services, DDS WDC, 131 Emerald Street, PO Box 144 Wrentham, MA 02093 20