Download Highlights - the International Primary Care Respiratory Group

Teamwork: Who Cares?
The Value of Multidisciplinary Respiratory Care for
Patients, Clinicians and Healthcare Systems
Recent successes &
Conference highlights
Dr. Jiska Snoeck-Stroband
IPCRG 2016 Programme Chair
Prof. Dr. Niels Chavannes
IPCRG 2016 Conference Chair
UNLOCK: using real life primary care
population data
• UNLOCK - Uncovering and Noting Long-term
Outcomes in COPD and asthma to enhance
Knowledge
• Protocol summary published in Primary Care
Respiratory Journal (2010); 19(4): 408
• An international collaboration between
primary care researchers to coordinate and
share datasets of relevant diagnostic and
follow-up variables for COPD and asthma
management in primary care
Achievements: UNLOCK
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6 years of active collaboration of researchers and clinicians from
15 different countries
9 studies using data from different countries to explore COPD and
asthma management in primary care
Instigated new national datasets
Developed and shared learning on how to undertake
international primary care research
Raised the profile of real life primary care research
Demonstrated that international primary care research is
possible
Data now available
through UNLOCK members
• 14 datasets now active
• Data from 9 countries (Sweden, Spain, Ukraine, Canada,
Greece, UK, Netherlands, Portugal, India)
• 3.8M primary care patients
• 800,000 patients with asthma
• 216,000 patients with COPD
• Three broad types of datasets held by UNLOCK members:
1 Routine primary care datasets
2. Real-life cohort studies:
3. Pragmatic clinical trials in primary care
Tobacco smoke epidemic
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Kitchen smoke epidemic
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Achievements: FRESH AIR
Free Respiratory Evaluation and Smoke-exposure
reduction by primary Health cAre Integrated gRoups
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Horizon 2020 project
International research
Non-communicable lung disease
Low-resource settings
FRESH AIR aim
• Overall aim: to improve health outcomes for people
at risk of or suffering from non-communicable lung
diseases in low-resource settings by developing
capacity for implementation of evidence-based
interventions for prevention, diagnosis and
treatment in these contexts.
• 7 work packages
• Activities over 36 months
• Budget of €2.99M
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FRESH AIR concept
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Different settings
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FRESH AIR Consortium
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Early bird
Highlights: recent trends in asthma
• Patient-centred care
• Nurse as coach
• Receiving better control in children with asthma
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Highlights: innovative technology
• Using technology to get active
• Telemedicine
Spire
X-Halo
NIOX Vero
PIKO
Fitbit
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Highlights: innovative technology
e-Nose and database
Breathprints
BreathCloud
Highlights: innovative technology
Breath Cloud analysis
Patient x
Asthma
Asthma eosinofiic
BLWI
COPD
Hyperventilation
www.breathcloud.org
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Highlights: Personalized medicine
1. Agusti et al. Am J Respir Crit Care Med 2015;191:391-401
2. Agusti et al. Eur Respir J 2016;47:410-419
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Highlights: end of life care
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Highlights: exacerbations
National care pathway COPD
lung attack with hospitalization
Main goal
25% reduction of admission days within 5 years
To be achieved with equal or higher Quality of Life
and patient satisfaction
Highlights:
The Assessment of Burden of COPD (ABC)-tool
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IPCRG conference
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Dr Jiska Snoeck-Stroband, Chair Netherlands
Dr Stephen Brunton, USA
Prof Niels Chavannes, Netherlands
Dr Tjard Schermer, Netherlands
Prof Aziz Sheikh, Nature Partner Journals Primary Care Respiratory Medicine
Dr Ioanna Tsiligianni, Greece
Dr Frederik van Gemert, Netherlands
Prof Thys van der Molen, Netherlands
Prof Onno van Schayck, Netherlands
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Prof Niels Chavannes, Conference Chair
Dr Anders Østrem, Conference Executive
Ms Siân Williams, IPCRG Executive Officer
Mrs Sam Louw, IPCRG Business Manager
Ms Christine Lawson, IPCRG Conference Director
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All over the world !!
WELCOME in AMSTERDAM