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Easing the Burden for Cancer Patients Alan Powell M. D. Anderson Cancer Center - Houston About M. D. Anderson • Academic medical center – component of the University of Texas System • One of three original Comprehensive Cancer Centers in U.S. • Mission areas: patient care, research, education and prevention About M. D. Anderson • FY2008 profile – Total patients served: 89,110 – New patients: 29,463 – #1 in number of grants awarded and total grants given by the NCI – Active clinical protocols: 1,108 – 6,000 learners participated in educational programs myMDAnderson • Secure web portals for patients and external/community physicians • Goals: – Meet changing needs & expectations for online tools – Improve customer service, support and communication processes – Compliance for security & privacy regulations Strategy Development Patients • Patient research – Focus groups and interviews – User experience mapping – Patients expressed clear priorities • • • • • Help with appointment scheduling Communication with care team and support units Easier ways to fill out forms Information on resources and services Help with anxiety and uncertainties Key Features for Patients • Pre-registration • Appointments – Schedules – Reminders via e-mail – Online change requests • • • • Patient education & FAQs Demographic updates Prescription refills Online billing & payment • Secure web-based messaging – Replaces e-mail for privacy & security – Pushes e-mail notifications – Categorized – Routed to teams – Archived – Tracked & measured • Access to medical records (added May-09) Patient Feedback • “I enjoy being able to check my appointments and messages without using the telephone as I am just 3 weeks post-laryngectomy and talking is difficult.” • “I know your clinic staff are extremely busy and this cuts down on phone time for all.” • “With a secure message, I can get to it between patients and the patient doesn’t have to wait as long to hear back from me.” • “I absolutely love the personalized website and being able to check on my appointments and even reschedule.” Strategy Development Physicians • Physician research – Physician satisfaction surveys – Focus groups – Face-to-face solution sessions – Physician priorities • • • • Efficient patient referral process Effective communications Access to medical records Improved continuity of care Key Features for Physicians • New patient referrals – Includes detailed questions to support automated routing to correct treatment center • Secure web-based messaging • Patient appointments • Access to dedicated physician relations team • Medical Records – – – – – – – – – Vital signs Medications Allergies/reactions Blood bank/transfusion Dictated notes Pathology reports* Radiology reports* Lab test results* Survivorship passport *Real-time for physicians; seven days delay for patients Physician Feedback • “I visited the myMDAnderson site and found it very useful. I didn’t realize how many patients were treated at M. D. Anderson via my referral or involvement.” • “I am very pleased with this web site. My patients seem to be seen sooner. I am going to make all my referrals through myMDAnderson.” • I am very happy with myMDAnderson. The more I use it, the more I like it!” General Metrics • Total patients signed up: 87,000 – Increases about 2,000/month • Patient log-ins per week: 27,000 • Patient secure messages per week: 4,200 • Total physicians signed up: 4,800 – Increases about 130/month Access to Medical Records • Period: May 2009 • Patients – Unique users: 15,814 – Medical records access: 4,810 (30%) • Physicians – Unique users: 480 – Medical records access: 296 (61%) Lessons Learned/Best Practices • Involvement & support from clinical operations leadership and physicians – Drives staff buy-in & utilization • Resources for staff training (ongoing) • Proactive communication with users – E.g., “This is the best way to reach us.” • Minimize impact on physician time • Use metrics to manage the process Recognition • TASSCC (State of Texas) Excellence Award • CHIME-CHT Transformational Leadership Award • e-Healthcare Leadership Award Future Plans • Personal health records – meet emerging standards for exchange of PHI • Documents exchange • Integration with public web site • Support for clinical research • Share more data from medical record • Two-way integration with EMR • Drive more adoption and usage, both internal and external • Do more to address “information anxiety” Questions? Alan Powell Director, Internet Services M. D. Anderson Cancer Center Houston, Texas 713-745-7698 [email protected]