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Download (Public) 9 OCTOBER 2013 Hannah Batchelor MCRN
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MCRN Hannah Batchelor MCRN Paediatric Formulation Research Fellow www.mcrn.org.uk “Improving the health of children through research, and providing the best infrastructure within England to support the development and delivery of world-class medicines for children research which is relevant and meaningful to children, families and other key stakeholders” Medicines for Children Research Network Coordinating Centre, University of Liverpool Department of Women's and Children's Health Institute of Translational Medicine (Child Health) Alder Hey Children's NHS Foundation Trust, Eaton Road, Liverpool, L12 2AP How can the MCRN assist my research? • The MCRN supports researchers in a number of ways through its worldclass infrastructure, which includes the MCRN Coordinating Centre, Clinical Studies Groups (CSGs), Clinical Trials Units (CTUs), Local Research Networks (LRNs)/Areas and a Neonatal Network. • (CSGs are groups of key opinion leaders that provide advice, identify research priorities and design protocols to address these priorities. • CTUs support all aspects of study design and management. • LRNs, Areas and the Neonatal Network facilitate the conduct of studies across the NHS). • The MCRN also works with the CCRN Paediatrics (non-medicines) Speciality Group to support studies not involving medicines. Clinical Studies Groups (CSGs) • • • • • • • • • • • • • • • Allergy, Infectious Diseases and Immunity (MCRN/British Paediatric Allergy Immunology and Infection Group collaboration) Anaesthesia, Pain, Intensive Care and Cardiology Cleft and Craniofacial Anomalies (MCRN/Healing Foundation/Craniofacial Society of Great Britain and Ireland collaboration) Diabetes and Endocrine (MCRN/British Society for Paediatric Endocrinology and Diabetes collaboration) Gastroenterology, Hepatology and Nutrition (MCRN/British Society of Paediatric Gastroenterology, Hepatology and Nutrition collaboration) General Paediatric Inherited Metabolic Disorders (MCRN/UK Lysosomal Storage Disorders Patient Collaborative Group collaboration) Methodology Neonatal (MCRN/Action Medical Research collaboration) Nephrology Neurosciences Pain and Palliative Care (MCRN/Louis Dundas Development Fund collaboration) Pharmacy and Pharmacology Respiratory and Cystic Fibrosis Rheumatology (MCRN/Arthritis Research UK collaboration) Other expertise that may be useful • Young Persons Advisory Group – The group is made up of children and young people between the ages of 8 and 18, who have experience of living with a chidhood condition or illness. – The group gives children and young people a chance to help researchers make their research the best it can be
