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Case Study Christchurch Innovations Shared Care Record View 1. What happened? After the 6.3 magnitude earthquake struck Christchurch on 22 February 2011, people were not necessarily seen by their usual health providers. Many GP practices and pharmacies were damaged and closed and community nursing services severely disrupted. Damaged buildings meant that paper-based patient records were inaccessible and electronic data dispersed. While large IT systems were up and running again fairly quickly, smaller ones – such as those in general practices and pharmacies – were lost or took much longer to restore. Patients presenting for treatment at the various physical locations across the Canterbury health system often came without referral and with no quick way to check their medical records. The situation provided a strong lesson in the importance of having timely and accurate information at points of care. Decisions about people’s treatment and care therefore frequently had to be made in the absence of full medical histories, diagnosis and prescription records. However, there was considerable professional concern that delaying treatment to find necessary documentation would cause more harm in a situation where patients needed the Canterbury health system to work for them right then and there. Although the underlying issue couldn’t be resolved immediately, the quake and its aftermath prompted a new way of sharing health information. Canterbury District Health Board (CDHB) quickly helped bring together a project team that included people not only from CDHB, but also from Pegasus Health (representing general practices), community pharmacies, Nurse Maude, software experts and Orion Health. Together, we developed a secure system for sharing up-to-date patient information across all health professionals providing care for any one patient. The system, called the electronic Shared Care Record View, or eSCRV, displays certain patient information and diagnostic test results sourced from many different e-health systems on one screen. It is neither a central database nor a replacement for existing systems. Much of the health information it handles is routinely collected. When a patient comes in, eSCRV enables clinicians to see their relevant medical history, including a summary of medical conditions, details of recent or long-term illnesses, hospital visits, operations, date of last GP visit, tests and diagnostic results and medications recently dispensed at community pharmacies. The available information also includes details about home care visits, such as care coordination information (eg, name of the provider and the type of care allocated). eSCRV thus makes faster diagnosis, treatment and care possible. In helping health professionals make informed, timely decisions, it contributes to improving patient safety and health outcomes. How is this different to what happened before? Before the Canterbury earthquakes health providers generally agreed that a single patient record accessible by all health professionals involved in caring for a patient would aid patient safety. However, opinions on how this could be achieved differed. Concerns were also expressed over the potential risk a single record posed to patient confidentiality and whether such a system was affordable. These views and concerns prevented progress towards achieving a single patient record. Patient information therefore remained stored in a number of locations and databases, leading to duplication, discrepancies and increased clinical risk. This situation also meant wasted time for patients and clinicians because of each place of care having to collect the same information. Wasted time meant delays in providing timely treatment. A small amount of information was transferred between hospital and primary care services via referral and discharge letters, but the opportunity to reconcile pharmaceutical and treatment regimens was limited. After the February quake CDHB’s Chief Medical Officer, Dr Nigel Millar, called on newly motivated hospital specialists, nurses, pharmacists, GPs, allied health professionals and community health service providers to participate in a series of workshops. Together, we quickly drew up a matrix of all stakeholders in the Canterbury health system, the type of patient information each held and what was already shared. The workshops began with some stakeholders convinced that others had no clinical reason to see their data, but by the end there was a new consensus. The participants collectively agreed that there were valid reasons for sharing key patient information. All were confident that a new system for electronically sharing patient records would improve patient care and safety by ensuring the availability of complete and accurate information at the point of care. The project team realised we could draw on the example and inspiration of “interRAI for Aged Care”. This national project makes available a standard suite of assessment tools and a central database that holds high-quality assessment data on the holistic care needs of older people. InterRAI has been rolled out to 19 District Health Boards over the last two years, and Canterbury was one of the first to start using it. After the quakes CDHB used it to quickly generate a list of the most vulnerable older people living in Canterbury and then contacted them to offer help. 2. What are the results? Benefits to date Just a few weeks on from the February earthquake, the project team began developing a pilot phase of eSCRV. The pilot, which involved a small number of pharmacies, Nurse Maude and CDHB staff sharing information, was well underway by October 2011, and eSCRV is likely to be fully functional by July 2012. We anticipate that more than 90% of Canterbury clinicians will use the system and most, if not all, are eagerly waiting for it. This innovative solution to sharing patient information is the first of its kind in New Zealand. 2 It is something of a mini-revolution because of its shift from a 19th-century paper-based approach to health information to a 21st-century one that is electronically based and smartphone capable. It is also being accomplished without the huge transition required to move numerous organisations to a single IT system. The potential benefits, denoted by the pilot at this point, are enormous – faster, more informed treatment for patients, improved patient safety and reduced clinical risk, and less duplication and waste because of patients and clinical staff not having to repeat tests and record information multiple times in multiple places. eSCRV can also act as a platform to support integrated health care delivery and improve communication among health professionals caring for the same patient. Because the system is designed with patients’ best interests in mind, security of information is paramount. As a built-in safeguard, all access to information by authorised users is monitored and audited. eSCRV will empower the broader health workforce, by making appropriate health information more readily available, which is particularly important given current workforce constraints. Community pharmacies, for example, can obtain information about patient allergies much faster. They can also access dispensing information entered into the system by other Canterbury pharmacies. Experience shows that differing IT systems are a major barrier to integrated care. eSCRV – along with CDHB’s other integrative tools including HealthPathways, Electronic Referral Management System (ERMS), and the Collaborative Care Management System (CCMS) – has gone a long way towards establishing the platform for an integrated health system for Canterbury. From the perspective of health stakeholder behaviour, eSCRV is a substantial break-through in terms of reform. This is because it covers the entire patient population rather than selected populations. The system has also effectively lowered the barriers to integrated health care brought about by different professionals across the health system’s public and private sectors divvying up patient care according to their perceived roles. eSCRV, ERMS and CCMS (the latter is still under development) all work on the premise of distributed information – routing information through a single point rather than attempting to create oneto-one communication pathways between and across many disparate systems. The benefits that eSCRV offers should further emergencies arise is obvious. While no one wishes for another major earthquake, if it happens eSCRV will provide both clinicians and patients with a sense of security and confidence, as well as faster and safer care. Measuring success The success of the pilot phase confirmed that rolling out the innovation in full will be successful. Use of the system in the interim by Christchurch Hospital’s emergency department and the 24 Hour Surgery has brought home to clinicians the true value of eSCRV. As noted earlier, surveys show that more than 90% of Canterbury clinicians intend to use the system once it is fully underway. 3 Feedback from those using the system so far shows that poor patient outcomes have already been avoided through having the right information available at the right time at the point of care. A number of benefits across the entire health system have already been highlighted. These include: Improved patient safety and less clinical risk – as one survey respondent put it, “better able to manage the patient in the context you are in” Less duplication of tests and x-rays A more humane process for patients because of fewer procedures and not having to repeat their medical history many times over Collaboration – practitioners, specialists and other stakeholders drawing on a range of expertise and creative thinking to bring a new concept into being Courage, ie, “to get better results, you must change the way you do things” Managing within constrained resources, being resilient to adversity and learning from setbacks. Costs The eSCRV development cost is around NZ$1 million (CDHB’s total operating budget is approximately $1.4 billion per annum). This cost includes a considerable amount of clinical staff time, over and above clinicians’ day jobs. The cost is also partly attributable to eSCRV bringing together existing information for clinicians to “view”, adding a small margin to normal business and communications costs. However, those costs are offset by the new system being substantially more cost-effective over time than the system used before the quakes. After roll-out, ongoing costs will be minimal and easily absorbed by CDHB’s usual information technology infrastructure. The flow of information typically required to complete simple transactions, such as dispensing a prescription, will be minimised because each clinician in the patient’s pathway has access to the previous clinician’s information and thinking. For example, previously in hospitals, the time of two people – the prescriber and community pharmacist – was taken up answering queries about prescriptions written on discharge. Using eSCRV will avoid most of these queries because prescribers will have access to information on patients’ current medications, and pharmacists will have access to prescribers’ records. 3. What capability enabled it? Critical success factors Effective and timely intervention by a key clinical leader to address patient privacy concerns Shared trust and a high desire not to harm patients because of delayed treatment 4 Seeing, from the example of interRAI for Aged Care, that a new way of working is possible. Relationships eSCRV is overseen by a clinically-led governance group that represents the major clinical groups in the Canterbury health system. A small project team of key stakeholders worked on developing the system and piloting it. The relationship between the front-line users of the system and the software developers Orion Healthcare has been extremely important. This close working relationship meant the technology behind the system was developed to meet the needs of clinicians and to improve patient care. It also meant that a number of protections could be built into the system to ensure privacy of information. Orion’s implementation experience was invaluable in getting the system up and running so quickly, and a pilot group of GPs, pharmacists and community nurses played a vital role by lending their expertise and giving advice that has enabled Orion to fine-tune eSCRV for roll-out. Innovation experience and capability Before the quakes the Canterbury health system had gained experience in developing clinically-led, system-wide innovations and models. An example of existing capability – supported by use of web technology – is the Canterbury health system’s patient referrals pathways and its “Health-Pathways” website. The first of its kind in New Zealand, the website was developed to support the bigger role GPs were taking in providing more community-based health care and reducing acute and unnecessary hospital admissions. Over 250 health professionals from across the Canterbury system developed and agreed on patient pathways, which were then loaded onto the Health-Pathways website. GPs using the website can find information on how to treat a range of conditions in their own community-based practices and clinics, and receive advice on accessing more complex services and referring patients to them. The site now has 474 treatment plans/patient pathways and procedure information which GPs can access from their desktop computers. The site attracts more than 11,000 visits and 74,000 page views a month from clinicians. These patient pathways and the online access to them also support the delivery of a number of services not previously possible. Eighteen thousand people per year are now cared for in their own homes through the provision of acute demand care “packages”, reducing pressure on constrained hospital facilities and resources. The acute medical admission rate across Canterbury hospitals is now 30% lower than the national average because more of the activity in the hospitals is now elective and waiting times for treatment have dropped right across the system. The success of the Health-Pathways innovation has led to healthcare providers across the whole South Island and in parts of Australia either adopting it or intending to adopt it. The experience of restoring health services after the February earthquake established a new level of trust that made joint decision-making even easier. As one eSCRV project team member said, “Through the earthquake response, we learned to break the rules. We learned that we could trust each other and learned we could put our heads together”. 5 Clinicians knew it was possible to work collaboratively, and they knew they would have CDHB support when endeavouring to make the system better for patients. The clinical risk posed by the lack of access to patients’ clinical records during the emergency was the final catalyst needed to progress an idea that had been waiting in the background and that had the potential to further and substantially transform the Canterbury health system. Tolerance for risk and experimentation Tolerance for risk and experimentation in Canterbury was high before the quakes. The Canterbury health system was in the midst of a process of transformation directed by clinical leadership. Health professionals from across the whole system were engaged in developing integrated patient pathways and innovative models of care with the aim of improving health outcomes. Alliances, relationships and transparent partnerships were built up through a shared commitment to the vision of one health system providing a seamless flow of care. Our mantra has been “the right care, in the right place, at the right time, by right person”. At its core, our vision has focused on everyone working together to do the right thing for the patient. The key measure of success in realising this aim at every point has been reducing the time people waste waiting. Significant success had been made in this regard before the quakes, and confidence was high that when solutions were developed, the necessary support and funding would follow. The collaborative response to the earthquakes and the absolute need to respond quickly to changing need and circumstance further strengthened this conviction and thus the tolerance for innovation. 4. What conditions enabled it? eSCRV did not emerge in isolation or solely as a response to the Canterbury quakes. Over the past several years, Canterbury has established a reputation for supporting and investing in clinical innovation and in whole-of-system partnerships directed at improving patient care. Our shared vision was developed through a series of visioning workshops and showcasing innovative ideas and models of care in 2007. Over 1,000 stakeholders, providers, consumers and health professionals from across Canterbury’s health system participated and helped to set CDHB’s strategic direction by committing to the “whole-of-system” approach that is so ingrained today. Our ability to quickly implement eSCRV was made possible by the work we had done to get all the health providers in Canterbury to see themselves as part of a single system with common goals. This outcome was also made possible not only by empowering clinicians and health professionals on the front-line of service provision, but also by re-orientating the system toward the needs of the patient. This process required us to remove traditional barriers and boundaries related to provider roles, service settings and funding. 6 The transformation that has taken place in Canterbury over the past five years has given health professionals across the system a clear mandate for fully developing the eSCRV. The CDHB’s direction is not just about hospitals or individual providers, but also about a resilient and sustainable health system. Integration of services and service delivery models is real and tangible, and the benefits of working collaboratively for the benefit of the patient and the system are evident every day as duplication, waste and waiting times are visibly reduced. The clinically led, system-wide partnerships, service-level alliances and work streams driving the transformation across Canterbury are inspiring innovation and building the confidence and trust that enabled rapid adoption of the eSCRV. More specifically, the transformation to date is evident in: The 470 clinically-led patient pathways developed across primary/secondary care to streamline referral processes and improve outcomes for patients Twenty-five thousand GP-referred diagnostics being delivered in 2010/2011, with a broader range now available because of GP referrals improving access to diagnostics and reducing waiting times for patients The CDHB’s Acute Demand Management Service now providing over 18,000 packages of care for acutely unwell people in the community rather than in the hospital Minor surgery now being carried out in general practice surgeries, with (for example) average waiting times for skin-lesion removal dropping from 196 days in 2007 to just 53 days in 2011 Our older people being better supported. In its first 11 months, CDBH’s new CREST service provided over 750 older people with additional support on discharge from hospital Less acute-based activity in our hospitals – at 0.78, Canterbury’s acute medical discharge rate is the lowest of any large DHB in the country, and is well below the national average (1.0). The transformation we’d achieved prior to the February earthquake was invaluable immediately after it and in the months since. Without the gains we had made, the Canterbury health system would not have averted crisis in the face of such destruction and could not have coped with the loss of bed capacity and infrastructure. Without this environment, we also would have been unable to commit to and develop the eSCRV. Most important enabler and sustainer of innovation The idea of a shared patient record existed before the earthquakes but it took the worst of times to accelerate support for sharing patient information. A whole-of-system approach and the focus on putting the patient first were already a central part of thinking across the Canterbury health system; we just needed an additional motivational push to take the next step with respect to sharing patient records. By investing in a culture of participation, innovation, continuous quality improvement and system-wide partnerships, we have built up considerable momentum and support for transformation in Canterbury. 7 A critical success factor, particularly in our current extraordinary circumstances, has been the ability to act responsively and decisively to support the immediate needs of our population. Flexibility in our approach over the past 18 months has enabled the Canterbury health system to continue to deliver core health services in the face of significant disruption and constraints. As we continue to respond to our challenging and dynamic environment, we need to maintain this flexibility to keep supporting our vulnerable population. Because traditional policy and service change processes can delay decision-making and take it away from front-line service providers, we are seeking support from the National Health Board to be more flexible in the way we fund, contract and deliver health services. This change will allow us to respond proactively to issues, opportunities and innovations as they present themselves. The post-earthquake situation means that we have a unique opportunity in Canterbury to test innovations and alternative service delivery models. Doing things differently will mean making some allowances, but it will also mean making the most of opportunities. 5. What lies ahead? In terms of the innovation itself – the eSCRV – as one eSCRV team leader said, it will be a case of “tweaking the detail, not the vision”. We are well on track to roll out the system across the Canterbury health sector by the end of 2012, with CDHB continuing to fund this process. Plans are also underway to give St John Ambulance eSCRV access. We are confident that over the winter months, eSCRV will help avoid acute hospital admissions by making available key patient information. As mentioned earlier, other South Island DHBs want to implement eSCRV, and we will be pleased to provide them with whatever support we can. We consider that eSCRV could be adopted throughout New Zealand, thereby integrating delivery and providing timely and effective care regardless of where patients present. The system is scalable for the future and could readily engage other clinical groups and their information systems. It also has the capacity to support a direct patient or consumer view. We also need to address the fact that the component missing from the system is authentication of each healthcare provider within the New Zealand health care sector. Meeting this need will require the Index of National Health providers to be up and running. Another need requiring our attention is that of making sure all health care providers in Canterbury can access the system. eSCRV will not realise its full potential until this is done. Shortly after the February 2011 earthquake we began preparing our recovery plan. The immediate focus was on managing the system, with reduced capacity, through the coming winter. However, we also ensured that the plan continued to recognise the importance of keeping constant the vision of an integrated health system and the need to plan according to short, medium and long-term horizons. 8 We consequently built the recovery plan around four elements: 1. Stabilise 2. Recover 3. Transition 4. Vision 2020. In 2012, we moved into the transition phase of this plan. Most of the strategies detailed in the transition section depend on the integrated nature of the Canterbury health system and the ability of the CDHB to continue working in partnership with a range of people and organisations that share our vision. The quakes created opportunities in this regard that Canterbury is well positioned to take. However, we are well aware that the next few years will continue to be challenging, which means we need to ensure eSCRV is as robust as it can be. Health care buildings are broken, capacity stretched, and the population is more fragile and more likely to require the support of the health system. Fixing buildings while still needing them to deliver care is complex, and each day Canterbury balances the immediate harm of denying access to services for the population with the potential harm of occupying buildings that don’t comply with the new building codes. Our intention for the immediate future is to ramp up the development of a dynamic health system that has the resilience, capacity and connected infrastructure to move the load of health-care delivery to the point in the system that is best prepared to handle it on any one day. This process is not a simple case of moving activity from hospitals to the community because the community is stretched as well. What we need to be able to do is constantly rebalance the load to support every part of the system so that we can effectively manage and minimise the gaps in care. Delivering the right care, in the right place, at the right time, by the right person continues to be the core direction, but the circumstances almost literally thrown up by the earthquakes have highlighted the need to deliver a dynamic solution as the capacity of our system continues to manage on the edge. Fortunately, Canterbury has the building blocks – its integrated system of health care delivery – to achieve this. For more information on Christchurch Innovations go to: www.ssc.govt.nz/christchurch-innovations Written in association with the Canterbury District Health Board, August 2012 9