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FAMILY ASSESSMENT PROCESS PAPER Moore 1 Family Assessment Still Alice Movie Cristen Moore Westminster College of Nursing Carrie Huntsman-Jones, Carol Ross, & Diane Van Os Community Nursing September 26, 2016 Moore 2 FAMILY ASSESSMENT PROCESS PAPER Cristen Moore Still Alice Family members Alice Howland John Howland/husband Tom Howland/son Charlie Jones/son in law Anna Howland-Jones/daughter Lydia Howland/daughter 50 Early 50s Mid 20s Early 30s Later 20s Early 20s Still Alice is a movie in which Alice receives news of early onset Alzheimer’s disease. Alice is a 50-year-old white female with 3 children 1 male and 2 females. She is a professor and her husband John does research. Currently all 3 children live away from home. Lydia the youngest lives in LA seeking a career in acting. Tom the middle child is going to college. Anna the oldest is married to Charlie Jones and by the end of the movie they have twins, a boy and a girl. Alice’s father died of cirrhosis due to alcohol in 1999. Alcoholic or Laennec’s cirrhosis is the end result of alcoholic liver disease (Lemone, P., & Burke, K. (2014), p. 736). When asked about his overall health Alice indicated that her father was incontinent and incoherent in the end stage of his life. When pressed for further health Hx. on her father she indicated that they weren’t very close. Alice’s mother and only sister died in a car crash when Alice was 18. Later in the movie it is believed that the genetic component of Alzheimer’s is from her father. HEALTH-PERCEPTION--HEALTH MANAGEMENT PATTERN Alice runs on a regular basis, takes vitamins and supplements (iron, calcium, multi vitamin, and flax seed oil), she claims to be in menopause (last menses in February and September), takes sleeping pills occasionally while traveling, reports no head injuries or undue stress at this time, and eats a regular balanced diet. At this FAMILY ASSESSMENT PROCESS PAPER Moore 3 time Alice is reporting getting lost while running and forgetting words and names. Overall Alice reports her health management as well maintained over the past few years. All three children Tom, Lydia, Anna, and Charlie (son in law) report their health as well maintained with regular exercise and a regular balanced diet over the past year. Diet and exercise important to all family members. John reports little to no exercise due to a busy work schedule and eats high calorie low nutrient meals when not at home. John has also expressed concern that he is 20-30 pounds overweight. All family members report no smoking and moderate alcohol use. Immunizations are current for all family members. No other health problems reported by family members. Objective: Family home was clean, free of clutter and trash, no family pets, and did not have any foul odors. Alice, Tom, Charlie, Anna, and Lydia all looked healthy, well nourished and fit. John looked to be about 30 lbs. overweight and well nourished. All members of family looked well groomed and dressed appropriately for weather. No rashes, acne, wounds, or open sores present. Diagnosis: Knowledge deficit R/T information misinterpretation about Alzheimer’s signs and symptoms, treatments. AEB caregiver burnout, not listening to physician during visits, forgetting things, delusions, anxiety and depression, language problems, etc. This relates to all family members. Risk for 1-falls, 2-poisoning, 3-injury, etc. R/T Alzheimer’s signs and symptoms, memory problems, cognitive problems, sleepiness (Doenges, FAMILY ASSESSMENT PROCESS PAPER Moore 4 Moorhouse & Murr, 2013, p. 362-368), not recognizing surroundings, directional loss, etc. This relates to Alice. Later Stage Diagnosis Impaired home maintenance R/T Alzheimer’s symptoms. AEB memory problems, cognitive problems, sleepiness (Doenges, Moorhouse & Murr, 2013, p. 362-368), not recognizing surroundings, directional loss, forgetting household routine, etc. This relates to Alice. Risk for violence/combativeness R/T not recognizing self, others, surroundings, not recognizing things, places, loosing the ability to understand what is going on, and the feeling of helplessness. This relates to Alice. Risk for injury R/T combativeness of patient, caregiver burnout, not being able to lift and restrain patient, etc. This relates to family members of Alice. NUTRITIONAL-METABOLIC PATTERN Overall Alice reports her nutritional status as well maintained. Alice reports taking vitamins and supplements (iron, calcium, multi vitamin, and flax seed oil), All three children Tom, Lydia, Anna, and Charlie (son in law) report having a regular balanced diet which includes fruits, vegetables, healthy carbohydrates, plenty of water and little to no alcohol use. Alice drinks a lot of tea and John prefers coffee. John reports little to no exercise due to a busy work schedule and eats high calorie low nutrient meals when not at home. John has also expressed concern that he is 2030 pounds overweight. No rashes, acne, wounds, or open sores present for any family members. FAMILY ASSESSMENT PROCESS PAPER Moore 5 Alice may start to exhibit malnutrition and loss of weight. This would be due to not knowing when, what foods to eat, and how to cook food and use utensils. Also, she may not recognize her caregivers and/or herself. It is not uncommon for patients to become combative during end stage Alzheimer’s. Alice and family members may be at risk for imbalanced nutrition less than body weight requirements or more than body weight requirements. Each of us handles stress in our own way. Some of us eat more or don’t eat due to stress. Individuals over exercise or stop exercising due to stress and anxiety. Subjective: When asked about taking pills, supplements, medications, Alice replies with “I take a multi vitamin, flaxseed oil, calcium, iron.” When asked about dental problems Alice stated, “No, none of us have problems with our mouths except John”. Alice said, “John has a couple of crowns, he likes the sweets”. Objective: Alice, Tom, Charlie, Anna, and Lydia all looked healthy, well nourished and fit. John looked to be about 30 lbs. overweight and well nourished. All family members observed having a healthy appetite. I observed Alice brushing her teeth on a regular basis. The family eats well-balanced home cooked meals with occasionally eating out. Meals include fruits, vegetables, meat, and very few desserts. Alice, Tom, Charlie, Anna, and Lydia all looked healthy, well nourished and fit. John looked to be about 30 lbs. overweight and well nourished. FAMILY ASSESSMENT PROCESS PAPER Moore 6 Diagnosis: Risk of rotting teeth R/T to Alzheimer’s symptoms of cognitive impairment, memory loss, forgetfulness, not recognizing household items, not remembering teeth brushing routine, etc. This relates to Alice. Risk of infection R/T to Alzheimer’s symptoms of cognitive impairment, memory loss, forgetfulness, not recognizing surroundings etc. Causing patient to not take vitamins, stop cooking, forget to eat, forget what is food and what isn’t food, etc. Later Stage Diagnosis Impaired nutrition less than body requirements R/T cognitive problems from Alzheimer’s. AEB not recognizing self, not recognizing the need to eat and what food is, others, surroundings, not recognizing things, places, loosing the ability to understand what is going on, dysphagia problems, due to loss of regular homeostatic mechanisms (Alice). R/T mother/wife diagnosis with Alzheimer’s. AEB stress and anxiety, caregiver burnout, lack of appetite, extra burden on a busy schedule, etc. (family). Impaired nutrition more than body requirements R/T mother/wife diagnosis with Alzheimer’s. AEB over eating due to stress and anxiety, caregiver burnout, extra burden on a busy schedule and eating high calorie low nutritional meals, eating most meals out due to Alice not cooking, etc. (family). FAMILY ASSESSMENT PROCESS PAPER Moore 7 Elimination OBJECTIVE: Family home was clean, free of clutter and trash, no family pets, and did not have any foul odors. No bugs or rodents observed to be on premises of home. Alice is observed putting trash (from food) in garbage on several occasions. In the beginning family members report having regular bowel and bladder movements without problems. Alice’s overall bladder control changes as the Alzheimer’s progresses. Alice goes inside beach home before she and her husband go running to go pee. However when she gets inside she opens many doors and cannot find the bathroom. When her husband finds her she has urinated all over herself. As time goes by Alice increasingly forgets where bathrooms are and that she needs to go to the restroom. Diagnosis: Impaired urinary elimination R/T cognitive problems due to Alzheimer’s. AEB forgetting to go to restroom when feeling urge (later stage), not remembering where the restroom is, wetting self at home and in public. This relates to Alice. Risk for impaired skin integrity R/T cognitive problems (not understanding when to go to restroom and where they are) and incontinence due to Alzheimer’s. AEB patient forgetting where bathroom at home is, not understanding the urge to go to the restroom in public, area around buttocks and genitals red and warm to touch, incontinent due to unrecognized UTI, pt. FAMILY ASSESSMENT PROCESS PAPER Moore 8 is incontinent of bladder, leading to excessive moisture of skin. This relates to Alice. Risk for garbage build up in home R/T cognitive problems from Alzheimer’s, forgetfulness, memory problems, and lack of sleep. Self-Care Deficit-Toileting R/T cognitive problems from Alzheimer’s. AEB forgetting where restroom is, not recognizing urge to go to restroom, inability to manipulate clothing, inability to recognize UTI, forgetting the routine one does in the restroom, etc. ACTIVITY-EXERCISE PATTERN Alice runs on a regular basis, all three children report regular exercise, and John reports very little exercise due to hectic work schedule as a researcher. Lydia reports, doing a lot of walking while on the hunt for acting jobs. During later stage Alzheimer’s Alice forgets to exercise on a regular basis and stops exercising all together due to getting lost. Lydia and Anna report an increase in exercise to deal with the stress. Tom reports stopping exercise and Jon reports no change in exercise with the Alice’s diagnosis. Objective: Alice is seen running on several occasions during the beginning of the film. Later on in Alice’s diagnosis she is seen walking with a companion/husband and daughter Lydia. Alice and her three children all look healthy and look appropriate weight for size and height. John looks to be overweight for his size and height. Home looks to be well furnished with healthy choices for food. Kitchen is kept orderly and clean. FAMILY ASSESSMENT PROCESS PAPER Moore 9 Diagnosis: Risk for sedentary life style R/T cognitive problems from Alzheimer’s diagnosis. AEB decreased running, walking instead of running, stopping exercise due to confusion and loss of memory, getting lost, not knowing who she/Alice is, her surroundings, and what she is supposed to do. Risk for increased anxiety R/T Alice’s diagnosis of Alzheimer’s. AEB increased family stressors, caregiver responsibilities, knowledge deficient about Alzheimer’s etc. SLEEP-REST PATTERN Subjective: In the beginning of the movie states “It’s fine like 7 hours a night” and “I occasionally take a sleeping pill when I travel” when asked about her sleeping habits. All 3 of her children vocalize problems with sleeping during the course of Alice’s Alzheimer’s. Objective: In the beginning of the movie all family members look well rested without bags under their eyes. Each family member has their own room except married couple who share rooms. They live in a quiet comfortable neighborhood. Family members enjoy spending relaxing time together and by themselves. Before Alice’s diagnosis sleeping doesn’t seem to be a problem for the family. Alice starts to have trouble sleeping after speaking with the neurologist the 2nd time. Alice is observed taking a pill after not being able to go to sleep the first time in the movie. The sleeplessness only increases. FAMILY ASSESSMENT PROCESS PAPER Moore 10 Diagnosis: Sleep pattern disturbance R/T diagnosis of Alice’s Alzheimer’s. AEB trouble going to sleep, not being able to go to sleep even after taking a pill, tossing and turning, patient’s stating trouble sleeping after diagnosis. This can relate to all family members. Risk for fatigue R/T sleep deprivation due to Alice’s Alzheimer’s diagnosis. AEB trouble going to sleep, not being able to go to sleep even after taking a pill, tossing and turning, patient’s stating trouble sleeping after diagnosis, increased stress intolerance of Alice’s family members, moodiness of Alice’s family members. This can relate to all family members. Insomnia R/T anxiety from Alice’s diagnosis of Alzheimer’s. AEB Alice’s inability to sleep through the night, difficulty falling asleep, nightmares. This can relate to all family members. COGINITIVE-PERCEPTUAL PATTERN Family exhibits no visual or hearing problems. Tom is currently in college. Lydia has a high school education however she has an extensive vocabulary due to being around a formally well-educated family. Family has a lot of big decisions to make about how to care for Alice and what their roles are in this care. John, Alice, and Anna all hold Master’s degrees or higher. Alice avoids telling her husband about what is happening in the beginning and then John avoids telling their children. All 3 children face the decision of getting a genetic screening to find out if they are carriers. Anna and her husband Charlie decide to FAMILY ASSESSMENT PROCESS PAPER Moore 11 have children and get rid of embryos carrying the gene. Lydia decides to not get tested and Tom is not a carrier. John is offered a job and decides to take it. Lydia eventually decides to move home and take care of her mother when her father moves. Diagnosis: Anxiety R/T how care for Alice will be impacted by John’s decision to take a new job out of state. AEB him avoiding Alice’s comment about him not wanting to stay and deal with the disease progression, Anna Tom and John’s bickering about him leaving, and John’s decision to not tell his wife about his new job. Decreased work performance for Alice R/T Alzheimer’s. AEB reduced cognitive function, forgetting which lecture she is on, being late to lecture, getting lost at school, etc. SELF-PERCEPTION--SELF-CONCEPT PATTERN/ROLE RELATIONSHIP PATTERN Family members appear to be happy and content in their relationships and roles within the family. Normal sibling bickering occurs throughout movie. This family is a traditional nuclear family. Income needs are met as shown through their comfortable life style. After all family members become aware of the diagnosis their stress levels, bickering amongst family members, and anxiety increase. John exhibits denial behavior and eventually leaves out of state for a new job. As a whole the family rallies together to support their mother. At the end stage Lydia moves back home from LA when her father moves. The family finances seem to be more than adequate due to house size, well furnished home, eating out, etc. FAMILY ASSESSMENT PROCESS PAPER Moore 12 John is assertive and at times aggressive in his opinions of Alice’s new situation. Anna is passive, tries to avoid talking about the serious things, and tries to support her mother as much as she knows how (lets her hold the baby). Lydia is assertive and doesn’t shy away from talking to her mother about feelings and the situation as a whole. Tom isn’t around that much due to attending college. When he is around he is supportive to his mother. Charlie is on the offensive when Alice asks to hold one of the babies after they are born. Alice becomes part of the Alzheimer’s community and gives a speech at a convention. Alice feels pain and sadness as she is required to leave her college community due to student complaints and her employers becoming concerned with her abilities after they found out about her diagnosis. It is obvious that Alice is the glue that holds her family together. As her Alzheimer’s increases her husband tries to take over but ends up giving up. Lydia steps up to the plate and takes over the family home and becoming her mother’s main caregiver. Anna and her husband Charlie are trying to have a family of their own. Tom doesn’t know what to do other than show unconditional love and support when he is available. Originally Alice decides not to let her family know about what is going on even though the neurologist keeps asking for her to bring a family member. Then her husband John doesn’t want to tell the family. Once the family is aware each of them try to support Alice in the only way they know how to. John eventually succumbs to his denial and leaves the state for another job. Lydia asks imploring questions to her mother and her contact increase eventually leading her to move FAMILY ASSESSMENT PROCESS PAPER Moore 13 back home to take care of her mother. This family is full of love for each other. Each one rallies to support Alice and each other. Objective: This family is a traditional nuclear family. Alice the mother works, cooks, and cleans. John makes Alice tea and does no other cooking. He goes to work and is the main breadwinner of the family. All three children love each other and exhibit normal family bickering. Subjective: When Alice finally tells her husband he tries to deny what she is telling him. She responds with, “I know what I’m feeling, it feels like my brain is dyeing everything in my entire life is going”. In the end John says to Lydia “You’re a better man than me” when she moves back home to take care of her mother. Diagnosis: Anxiety R/T mother/wife diagnosis of Alzheimer’s. AEB increased bickering amongst family members, John’s denial of situation eventually leading him to move, family members crying throughout movie, “I don’t know what to do” statements, etc. This relates to all family members. Risk for family dysfunction R/T not being able to handle anxiety of progression of Alice’s’ Alzheimer’s. This relates to all family members. Compromised dignity R/T not being able to handle anxiety of Alice’s Alzheimer’s. AEB Alice anxiety from UI, getting lost, forgetting names, forgetting objects, etc. John’s denial and eventually moving away. FAMILY ASSESSMENT PROCESS PAPER Moore 14 SEXUALITY-REPRODUCTIVE PATTERN At the beginning of the movie family members comfortable with their sex lives. Except Lydia who doesn’t have a partner. As the movie goes on all family members sexual lives are affected by the stress/anxiety of the situation Diagnosis: Ineffective child bearing process R/T unknown factors given in movie for Anna and Charlie. AEB unable to have children on their own, seek medical intervention, multiple visits to physician about infertility. Risk for sexual dysfunction R/T increased stress/anxiety due to Alice’s diagnosis of Alzheimer’s. AEB John moving to another state for a job, sleeplessness, increased anxious behaviors, stating no desire, etc. COPING-STRESS-TOLERANCE PATTERN/VALUE-BELIEF PATTERN All family members exhibited stress throughout movie. Alice often grabbed pendant on her necklace during stressful moments as well as having moments of crying. John exhibited stress as using avoidance tactics. Right after meeting with the neurologist (going over PET scan and further genetic testing) he repeatedly pushed elevator button while swearing. At this time he also said “I don’t think we should tell them, I would like to wait till the test results ” when he and Alice were speaking about telling their children. During the visit with the neurologist husband kept grasping for reasons why his wife didn’t have Alzheimer’s disease. He stated “I also read that high amyloid is associated with other conditions other than Alzheimer’s?” Lydia had tears in her eyes after her mother explained what it felt like having FAMILY ASSESSMENT PROCESS PAPER Moore 15 Alzheimer’s. Tom had tears in his eyes while listening to his mother’s speech on Alzheimer’s. Diagnosis: Readiness for enhanced knowledge on how to cope with anxiety R/T family dealing with Alice’s Alzheimer’s. As evidence by Alice researching her condition, Alice finally telling her husband about her condition, when condition is confirmed Alice tells her family of her condition, Alice saying “I don’t know what to do now” after she wets herself at the beach. This relates to all family members. Risk for caregiver burnout R/T anxiety from caregiver duties for mother/wife with Alzheimer’s. AEB exhaustion, “I don’t know what to do statements”, not sleeping, etc. This is related to family members of Alice. Ineffective coping R/T Alice/mother/wife having Alzheimer’s. AEB wringing of hands while speaking with neurologist, Alice holding onto pendant while speaking of stressful things, John/husband “I also read that high amyloid is associated with other conditions other than Alzheimer’s?”, Alice and children crying throughout film, husband pressing elevator button over and over and saying “I don’t think we should tell them, I would like to wait till the test results ” after speaking with neurologist about PET scan, etc. This relates to whole family. Healthy People 2020 Assessment 1. Family Planning- Improve pregnancy planning and spacing, and prevent unintended pregnancy. One or more birth control option should be used by FAMILY ASSESSMENT PROCESS PAPER Moore 16 John and Alice to avoid any unintentional pregnancies. Because their children have a 50% chance of getting. Also Alice cannot take care of herself let alone a child. Affected children of John and Alice should also be using birth control due to unintentional pregnancies and passing on the genes to their offspring. 2. Improve health and prevent harm through valid and useful genomic tools in clinical and public health practices. All genetic family members should get genetic testing done to see if they are carriers. Genetic counseling should be used for family members carrying the gene so they understand the risks of passing on the gene. Getting a genetic panel done will also let family members know if they are carriers for cancers, heart disease, at risk for stroke, carry X or Y linked abnormalities, etc. 3. Improve mental health through prevention and by ensuring access to appropriate, quality mental health services. Having a healthy mental health is important to continue living ones life style. When families deal with chronic health issues their anxiety increases, which can lead to depression. Mental health issues commonly lead to disabilities. Anxiety and depression can lead to increase use of alcohol and drugs, which in turn can lead to abuse. 4. Reduce the morbidity and costs associated with, and maintain or enhance the quality of life for persons with dementia, including Alzheimer’s disease. This family is dealing with Alzheimer’s disease. Caregiver costs go up, loss of one income, dehydration, anxiety costs go up for everyone, depression costs go up, if someone has drinking problems they can increase or begin, medication costs, etc. Every family member is at risk for increasing costs due to effects FAMILY ASSESSMENT PROCESS PAPER Moore 17 on them as individuals. Morbidity goes up for Alice and her daughter Anna who both carry the gene. This can be related to accidents, increase in susceptibility to infections, medication over dosing, etc. 5. Promote health and reduce chronic disease risk through the consumption of healthful diets and achievement and maintenance of healthy body weights. John is already impaired nutrition for body requirements. The rest of the family is at risk due to anxiety. Alice is at risk for impaired nutrition for body requirements less than body weight due to stress. All family members are at risk for malnutrition because Alice isn’t cooking meals anymore which leads to eating out. Eating out increases calories, bad carbohydrates, increased sugar and low nutritional values. 6. Improve health, fitness and quality of life through daily physical activity. All family members are at risk for decreased physical activity. Due to Alzheimer’s Alice’s exercise decreases. Since family members are over stressed they might stop exercising. Caregiving is time consuming and exhausting. This could decrease families’ available time, energy, and motivation to exercise. Lack of exercise will lead to an increase in stress/anxiety and other health problems as a whole. FAMILY ASSESSMENT PROCESS PAPER Moore 18 References Doenges, M., Moorhouse, M. F., & Murr, A .C (2014). Nurse’s pocket guide: Diagnoses, prioritized interventions, and rationales (14th Ed.). Philadelphia: F.A. Davis. (ISBN 978-0803622340) Lemone, P., & Burke, K. (2014). Medical-surgical nursing: Critical thinking in client care (6th ed.). Pearson/Prentice Hall: Upper Saddle River, NJ. Maryland Medical Center (2016). Peppermint. Retrieved from http://umm.edu/health/medical/altmed/herb/peppermint. Stanhope, M. & Lancaster, J. (2016). Public Health Nursing: Population-Centered th Health Care in the Community (9 ed.) St Louis, MO: Elsevier Touhy, T.A. & Jett, K. (2012). Ebersole & Hess' Toward healthy aging: Human needs & nursing response (8th Ed.). St Louis: Elsevier Mosby Treas, L. S. & Wilkinson, J. M. (2014). Basic nursing: Concepts, skills and reasoning. Philadelphia: F.A. Davis (ISBN text: 978-0-8036-2778-9, DVDs: 978-0-8036-2403-0) United States Government (2016). Healthy People. Retrieved from https://www.healthypeople.gov