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Minnesota Department of Health Fact Sheet: Title V (MCH) Block Grant Pregnant Women, Mothers and Infants Children and Adolescents September 2009 Infant and Child Developmental, Social and Emotional Screening About the Title V Block Grant The federal Title V Maternal and Child Health (MCH) Block Grant helps states ensure the health of all mother and children. As part of Minnesota’s Title V Block Grant activity requirements, the MDH conducts a statewide needs assessment every five years. The needs assessment provides guidance to Title V activities for the next five years by identifying priority issues. This fact sheet describes one of Minnesota’s priority issues. Seriousness of the Issue In Minnesota there are almost 400,000 children age 05 years.1 Early identification/screening and referral systems identify children’s strengths and needs in the areas of health and development, including social/emotional development. These systems promote healthy child development and minimize adverse health, social, and emotional effects on children and their families. In addition, through culturally appropriate screening, assessment and early intervention services many children are supported in reaching their full potential. It is estimated that nationally 12-16 percent of children have a developmental or behavioral delay or disorder. Only 20-30 percent of these children are detected prior to starting school. Since 1992, early childhood screening has been required for entrance in Minnesota’s public schools. In fiscal year 2008, screenings generated 20,762 referrals for additional health and educational assessment/evaluation for the 59,375 three to five year old children screened.2 The question that must be asked is how many of these children might have the opportunity for better developmental outcomes had their needs been identified and early intervention services received prior to the age of 3? While data specific to children under age 5 is not available, children below 200 percent of poverty report higher levels of behavioral and emotional Maternal and Child Health Section P.O. Box 64882 St. Paul, MN 55164-0882 (651) 201-3760 www.health.state.mn.us problems compared to higher income youth.3 According to the American Community Survey, in 2006 poverty in Minnesota reached the highest point of the decade.4 Prevalence of mental illness is similar between racial/ethnic minorities and Whites.5 However, racial and ethnic minority populations are less likely to have access to available mental health services or to receive needed mental health care and often receive poor quality care.6 Minnesota’s population is 74.6 percent metropolitan, 12.8 percent micropolitan and 12.6 percent rural.7 The prevalence of mental illness in rural communities is similar to urban or suburban areas8, but many greater Minnesota counties have been identified as Health Professional Shortage Areas for Mental Health.9 Minnesota has about 620 licensed psychiatrists and an estimated 93 percent practice in metropolitan area counties. Seven percent practice in micropolitan area counties and less than 1 percent have their principal 7 practice site in rural counties. Although Minnesota’s system of care for children and their families demonstrates a commitment to promoting developmental and mental health screening as a critical component of well-child care, consistent screening is largely absent from routine use in the primary care setting. In 2001, the American Academy of Pediatrics (AAP), Committee on Children with Disabilities, stated that early identification of children with developmental delays or disabilities can lead to treatment of, or intervention for, a disability and lessen its impact on the functioning of the child and family. Developmental screening is a process that selects children who will receive more extensive evaluation or treatment. For that reason all infants and children should be screened for developmental delays.10 In a 2006 policy statement, the AAP stated “early identification of developmental disorders is critical to the well-being of children and their families.” Despite these recommendations, a national survey found Infant and Child Screening – page 2 substantial variability in surveillance and screening practices among pediatricians and family physicians.11 Evidence-Based Strategies The Centers for Disease Control and Prevention has established the following goals to help children reach their full potential: • Develop and test community-based model programs in primary care settings (and potentially other settings that care for young children) to screen children early on, identify those with autism and other developmental disabilities or delays, and ensure that children with these conditions receive appropriate care. • Increase health care providers’ knowledge and skills in developmental screening by incorporating developmental screening into professional health care training. • Monitor the use of screening for autism and other developmental disabilities or delays in primary care settings. • Raise awareness about the need for and benefits of developmental screening to identify and care for children with autism and other developmental disabilities or delays.12 A 2007 study from the University of Oregon measured the impact of implementing the Ages and Stages Questionnaire (ASQ) developmental screening tool at 12 and 24 month well-child visits. The study found that referrals for early intervention increased by 224 percent with the use of the ASQ. Furthermore, 68 percent of the children with delays, would have been missed by pediatricians using clinical impression as opposed to a screening instrument.13 Studies confirm the effectiveness of early intervention programs. The Infant Health and Development Program 3, a national multi-site-study, found that lowbirth weight, premature infants who received comprehensive early intervention and preschool services score significantly higher on tests of mental ability, and experience lower mental disability rates compared to children who received only health services.14 In addition, the benefits of screening and surveillance are not limited to children with developmental and behavioral delays. Even for typically developing children, families benefit by increased awareness of appropriate developmental and behavioral expectations.15 The Minnesota Child Heath Improvement Project (MNCHIP) Healthy Development through Primary Care Project was a one year collaborative started in November of 2007 and included nine clinic practice teams across Minnesota. The goals were to: • Implement the use of standardized screening tools to screen children for developmental and mental health concerns at well child visits. • Screen mothers for maternal depression during pediatric visits using a standardized screening tool. • Identify and refer children and families in need of services to appropriate resources. Preliminary findings in March 2009 showed the developmental screening rate increased from 55 percent at baseline to 89 percent after project implementation. The mental health screening rate for children increased from 3 to 11 percent after project implementation. In North Carolina, the Assuring Better Child Health and Development (ABCD) project focused on integration of screening in primary care practice as a routine and consistent component of well-child visits. This project led to new policy in South Carolina’s EPSDT program including requiring medical practices to use a formal, standardized developmental screening tool at 6, 12, 18 or 24 months and 3, 4, and 5 years of age. The project was successful in increasing screening rates to over 70 percent of the designated well-child visits.15 Current Resources and Capacity As demonstrated previously, comprehensive developmental screening, including social and emotional domains, is critical to the early identification and subsequent referral of young children who would benefit from early intervention services. It is also clear that currently there is no single system which alone can assure ongoing screening using a valid instrument at regular intervals for all children beginning at birth. The Minnesota Interagency Developmental Screening Task Force was convened in spring 2004 to provide a standard of practice for developmental and social/emotional screening of children birth to age five. Criteria were established for developmental and social/emotional screening instrument selection. Instrument properties were evaluated based on the established criteria, and approved or eliminated based on ability to meet or exceed the criteria. A website was created to provide information on the instruments which have been approved for use in Minnesota’s public programs. The website URL is: Infant and Child Screening – page 3 http://www.health.state.mn.us/divs/fh/mch/devscrn/gla nce.html. The task force continues to meet on a regular basis. children at risk for developmental and social/emotional delays. 1 In Minnesota, all local health departments receive funding to provide home visits for at-risk pregnant women, infants and toddlers. In March 2008, each department submitted a plan detailing their home visiting program. As part of that plan local health departments were asked to submit information regarding screening tools used for developmental, social and emotional screening. Of 91 plans submitted, 86 used a tool for developmental screening, while 82 indicated a tool being used for social/emotional screening. In local public health department home visiting programs implementing the Nurse Family Partnership model, 85 percent of the children reaching age 20 months had been screened using the ASQ and 89 percent of 24 month old children received the ASQ – Social Emotional (SE). The Follow Along Program (FAP) is a cooperative agreement between the MDH and local FAP managing agencies and provides periodic tracking and monitoring of the health and development (including social and emotional) of children ages birth to three. The FAP also provides parents ASQ and ASQ – SE screening tools, information about typical child development as well as activities parents and children can engage in together. Parents return the completed screenings which are scored and followed-up on as needed. 16 Minnesota’s public health systems, including all local public health agencies and tribal governments have programs and strategies that promote access to wellchild care such as Child and Teen Checkup (C&TC) Coordinators and PHN home visitors. The MDH’s C&TC program has an online training program “Developmental and Social-Emotional Screening” which was updated in June 2009. This is a joint venture of the Minnesota Department of Human Services and the Minnesota Department of Health to give C & TC providers the knowledge and information they need in regard to developmental and social-emotional screening. Starting in May 2009, the MDH C&TC Program began offering grand rounds style presentations to primary care physicians on developmental and mental health screening and referrals for children, including screening for post partum depression in mothers. The presentations include information from local early intervention staff on how to collaborate on referrals of US Census Bureau. 2000 Census. Online resource: www.census.gov 2 Minnesota Department of Education. (2008). Early Childhood Screening – FY 2008 Participant Data. Retrieved August 26, 2009, from, http://education.state.mn.us/mdeprod/groups/EarlyLearni ng/documents/Report/014507.pdf 3 Snapshots of America’s Families II, Urban Institute. October 2000. Data from the National Survey of America’s Families, 1999. 4 US Census Bureau 2000 Census and 2001 Census; 2002-2007 U.S. Census Bureau American Community Surveys 5 U.S. Department of Health and Human Services, Office of the Surgeon General, SAMHSA. “Mental Health: Culture, Race, Ethnicity 0- A Supplement to Mental Health: A Report of the Surgeon General”. 2001. 6 Minnesota Department of Education. “Minnesota’s Self-Improvement Plan”. February 2002. 7 Minnesota Department of Health Office of Rural Health and Primary Care. Information on Minnesota’s health care workforce is collected through surveys professionals voluntarily complete when renewing their licenses. Aug 2009. 8 Rural Health Advisory Committee’s Report on Mental Health and Primary Care. Minnesota Department of Health, Office of Rural Health and Primary Care. January 2005. 9 Minnesota Department of Health Office of Rural Health and Primary Care. Map of Mental Health HPSA Designations. 2008. 10 American Academy of Pediatrics, Committee on Children with Disabilities. Developmental Surveillance and Screening of Infants and Young Children. Pediatrics, 2001, 108 (1): 195 11 Sices L., Feudtner C., McLaughlin J., Drotar D., Williams M. (2003). How do primary care physicians identify young children with developmental delays? A national survey. Journal of Developmental and Behavioral Pediatrics, 24(6):409-17. 12 Centers for Disease Control, 2005. Online resource: http://www.cdc.gov/ncbddd/child/improve.htm 13 Hix-Small, H., Marks, K., Squires, J., & Nickel, R. (2007). Impact of Implementing Developmental Screening at 12 and 24 Months in a Pediatric Practice. Pediatrics, 120, 381-389. 14 Ramey C., Bryant D., Wasik B. (1992). Infant health and development program for low birth weight, premature infants: Program elements, family participation, and child intelligence. Pediatrics, 89(3):454-65. 15 Earls, M.F., & Shackelford Hay, S. (2006). Setting the Stage for Success: Implementation of Developmental and Behavioral Screening and Surveillance in Primary Care Practice – The North Carolina Assuring Better Infant and Child Screening – page 4 Child Health and Development (ABCD) Project. Pediatrics, 118, e183-e188. 16 Minnesota Department of Health. (2008). Follow Along Program 2008 Report