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Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 ALLIED TEAM TRAINING FOR PARKINSON 2014 –San Diego Session Three Occupational Therapy in Early Stage Parkinson’s Disease Rick VandenDolder, OTR/L Linda Tickle-Degnen, PhD, OTR/L, FAOTA Disclosures for Rick VandenDolder, OTR/L: Linda Tickle-Degnen, Phd, OTR/L, FAOTA None I will not be discussing the off-label use of various medications. 1 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Objectives: • Describe PD symptoms as they limit function in specific tasks and cause disability • Develop Intervention plans based on client’s goals and evidenced based desired treatment outcomes, using the PEO model • Participate effectively as an interdisciplinary or inter-professional team member • Describe the unique and complementary role of each discipline in your care team • Identify strategies for building interprofessional networks and community partnerships OT in PD -Best Practice Guidelines -Deane (2003) • Cueing • Cog mvmt strategies • Education • Provision of equipment/environmental adapt • Techniques for managing meds, on/off • Fatigue, anxiety • Involvement of carer (teaching, handling techniques) 2 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Cueing Strategies in PD • Rescue Project • • • Consortium of Universities in Europe collaborating in research about cueing in PD as a method to improve mobility Clinical trial confirmed use of cueing as effective treatment in home setting Cues: prompts that give information on how an action should be carried out Allied Team Training for Parkinson II 15-18 years after onset of PD: Falls occur in 81% of patients (23% sustained fractures) Cognitive decline is present in 84% 48% fulfill criteria for dementia Hallucinations and depression in 50% Choking in 50% Symptomatic postural hypotension in 35% Urinary incontinence in 41% 40% live in aged care facilities -Hely, et al. Movement Disorders (2005) 3 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 PD Symptoms affecting visual function • Visual loss of contrast sensitivity and altered ocular movement affecting functioning within the home and community Visual Deficits • Decreased scanning speed interferes with reading • Defective occulomotor function gives blurring of vision 4 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Visual Deficits Adaptations • Ensure adequate lighting • Eliminate clutter • Ultra Optix line magnifier • Gathers light, magnifies, eye on line • Large print books • Books on tape. Visual Deficits Adaptations 5 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 PD and Eating • • • • Dexterity Wrist rigidity Bradykinesia Tremor PD and Eating • Appetite may be diminished • Medications-nausea • Olfactory changes • Gastroparesis slowed • Rigidity increases caloric expenditure • Fatigue • Participation for self esteem, swallow reflex, socialization 6 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 PD and Eating • Swallowing problems can affect adequate nutrition and have an impact on physiological functioning OT Intervention Strategies for PD • Modify with client and carepartner the routines in meals: • Time of meals • Texture • Amount • Environment 7 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD • • • • • Only needed items on table Small portions Posture, proximity to table Contrasting colors Adaptive equipment • Plate guard • Offset spoon, fork, universal knife Swallowing • Warm / cold food and liquid are easier to track and swallow • Posture • Chin tuck • Double swallow • May need to have mechanical soft diet • Thickened liquids 8 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Swallowing: Adaptations • “Nosey” cup • Straw • Head position neutral Foods Hard to Chew and Swallow • Long spaghetti • Stringy, tough meat • Wild rice • Popcorn • Peanut butter • Fried eggs • Coarse, dry cereal • White bread • Course grainy bread • Hard, raw fruits and vegetables 9 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Foods Easy to Chew and Swallow • Turkey • Chicken • Ground meat • Casseroles • Boneless fish • Soft pasta • Moist rice • Mashed potatoes and gravy • Medium white bread • Creamed soups • Mashed or cooked vegetables and fruit • Custard, yogurt, ice cream • (Will increase phlegm and saliva) Offset Fork, Color Contrast 10 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 PD and Eating Raise level, Non-slip liner 11 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Offset Spoon Oriental Soup Spoon 12 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Universal Knife PD and Eating Mobility 13 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Mobility and Transfers Services and Support • Teach carepartner optimal body mechanics and safe methods to assist client with transfers, bed mobility, toileting, bathing, lifting wheelchair and lifting client from floor. Carepartner Instruction Chair Transfers • Body Mechanics • Client positioning in chair • Transfer Belt • Cue patient (less is more) 14 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Adaptations • Satin/flannel over fabric surface • Raise seat height • Foam cushion • Folded blanket or quilt • Blocks or platform • Electric lift chair 15 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 16 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 17 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Impact of Advanced Parkinson’s on Posture Education/Positioning • Increased muscle rigidity and progressing balance changes result in: Loss of automatic position change or inability to independently change position Reduced activity levels Potential skin changes Seating Systems • • • Correction for asymmetries ie: trunk lean/pelvic obliquity Reclining back to compensate for fixed forward lean Cushion to maintain integrity of integumentary system 18 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Wheelchairs • Hemi-height • Seat dimensions specific to patient • Removable leg rests • Extended brake levers –marked for visibility • Pelvic belt • Anti-tip bars • Pressure relief cushion 19 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 20 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support • Teach carepartner to help maintain abilities of client, through cueing, assisting client with exercise, recognizing medication fluctuations and side effects. OT Intervention Strategies for PD Services & Support • Incorporate low vision techniques and other techniques to promote task accomplishment within living environment 21 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support • Simplify sensory input within the environment to decrease confusion, increase attention span and concentration for task accomplishment OT Intervention Strategies for PD Services & Support • Simplify cognitive demands within living environment; instructions, directions, and cautions. Incorporate voice and auditory input 22 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD – Simplifying Demands • • • • • • • • Familiar routine Gradual transitions Decrease clutter Activity box Things in predictable place Pictures/labels Calendar on refrigerator Frequent reorientation OT Intervention Strategies for PD Services & Support • Educate client and significant others to recognize changes that may affect performance but are not secondary to PD. 23 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support •Involve individual in simple goal directed task to make use of cognitive, motor, and perceptual abilities OT Intervention Strategies for PD •Involve individual in simple goal directed task to make use of cognitive, motor, and perceptual abilities 24 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support • Incorporate challenges to promote motivation and interest at present and past intellectual levels OT Intervention Strategies for PD 25 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support • Focus on client and carepartner’s adaptation to changes in self-image; teach to identify and validate actual reality; provide sources of respite and support Bed Mobility • Axial Rigidity, decreased spinal and pelvic ROM • Teach principles of leverage – log roll with knees bent, generate momentum with head and top arm, use counterweight of legs to bring trunk up 26 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Bed Mobility • • • • • • • • Chair or bed rail or bed pole Adapt bed height Satin draw sheet Bed cradle (blanket support) Comforter vs. blanket and sheet Visual cues/verbal cues Twin bed Firm mattress 27 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Bed Rail/Satin drawsheet 28 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Floor Transfer • Cue and assist to assume 4 point crawl; use furniture to support to assume half kneeling to sitting before standing • Assess carepartner ability to assist • Ski poles, shovels for outdoor support Tub/Shower • Shower curtain vs sliding glass door • Bathmat • Grab bars • Tub bench • Large movements • Terry robe 29 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Tub/Shower Tub/Shower • Shower curtain vs sliding glass door • Bathmat • Grab bars • Tub bench • Large movements • Terry robe 30 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Tub bench with back Toileting/Incontinence • Strategies • Timing of fluid intake • Timing regular trips to toilet • Medications • Adaptations 31 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Toileting/Incontinence Adaptations • Velcro closure pants • Incontinence pads • Condom catheter • Commode at bedside • Non-spill urinal Multidomain Approach to Predicting Driver Safety Wood (2008) -J. • Vision: Useful Field of Vision, Dot Motion • Motor: Knee extension strength, sway path length • Cognitive: Trail making, Part B, Color choice reaction time • 91% sensitivity, 70% specificity in identifying safe and unsafe drivers. 32 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Toileting/Incontinence Adaptations Balance Changes in Parkinson’s disease One of the four primary symptoms of PD Least responsive to dopaminergic replacement therapy Rarely seen as first symptom; typically seen later (Early balance changes may be “red flag” for Parkinson’s Plus). 33 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Parkinson’s Symptoms Influencing Changes in Balance Rigidity in axial and lower extremity musculature Reduction/loss of postural righting reflexes Narrow base of support Postural changes-center of gravity not aligned over base of support Parkinson’s Symptoms Influencing Changes in Balance Propulsion/Festination Retropulsion Freezing Dyskinesia Dystonia Fatigue 34 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Potential Contributing Factors Unrelated to Parkinson’s Disease • Structural foot deformities (hammertoes, bunions, etc) • Sensory changes, i.e. peripheral neuropathy • Proprioceptive changes • Vestibular dysfunction • Other medical conditions Propulsion/Festination Compensation Strategies • Self monitoring – complete stop if stride length shortens. Restart with longer step. • Wheeled walker with resistance may be helpful • Use of rhythm to maintain speed and pace may be helpful 35 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 U-Step Walker • Consult with physical therapy • May be more effective for for person with PSP to deter backwards or lateral falling. Retropulsion Triggers • Carrying things in both hands. • Stepping backwards while turning. • Pulling/dragging items backward while gardening, yard work, farm chores, vacuuming • Sudden displacement backward (being jostled in a crowd, pets/children jumping up , etc. 36 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Falls Prevention • Home evaluation • Rails (both sides) • Barrier at top of steps • Grab bars at doors • Remove clutter • Adequate lighting • Mark corners, edges thresholds with contrasting colored tape • Impulsivity may be risk factor Stairway Gate 37 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Retropulsion: Compensation Strategies • Carry objects in bag with handles at your side rather than in front • Use vertical grab bar near door • Reduce tension on automatic closing doors • Sit when dressing • Re-arrange cupboards/shelves to place frequently used items within easy reach. Retropulsion: Compensation Strategies • Tai Chi stance • Move forward in wide circle rather than backing up • Marching to pivot • Clock turn 38 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Retropulsion: Compensation Strategies Retropulsion: Compensation Strategies 39 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Retropulsion: Compensation Strategies Retropulsion: Compensation Strategies • In kitchen slide dish along counter top when possible rather than carrying items • Use walker to carry object on walker tray or use rolling kitchen/laundry/garden carts to transport items • Avoid stepstools and ladders • Delegate higher risk activities 40 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Freezing compensation Strategies • Remove floor clutter (plant stands, magazine racks, foot stools) and throw rugs • Move furniture or arrange environment to widen walking paths • Teach visualization techniques (stepping over or kicking through an imaginary object • Estimate steps to a target and count aloud Freezing compensation Strategies • Look for frequent freeze locations in the home environment and provide visual cue (e.g. lines across path in doorway, “x” in front of chair or toilet) • Divert attention from feet/legs; practice deep breathing, unrelated arm movements, or centering activity • Educate family/staff re: triggers and cues 41 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Postural Changes in Parkinson’s Disease Forward head Increased thoracic kyphosis Decreased lumbar lordosis Increased hip and knee flexion Forward trunk lean Narrow base of support Changes in Postural Awareness • Decreased self awareness of posture is evident in those with Parkinson’s • Posture often appears to decline even further when engaged in activity or when fatigued 42 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Posture Enhancement Exercises • • Stretching, including neck, trunk, pectorals, hip flexors, heel cords, and hamstrings. Strengthening of core muscle groups: scapular muscles, trunk, abdominals and legs Posture Enhancement/Exercises • Activities emphasizing pelvic mobility/weight shift/LE weight bearing • Spinal lengthening/supine chin tucks • Therapy ball or Tai chi • Increase self awareness through use of mirror, photos or video 43 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Posture Education/Positioning: Sitting Posture • Assess home environment, car and workplace postures • Instruct in proper ergonomics • Use of lumbar roll/cushion to enhance lumbar curve • Emphasis on lengthening spine, not “leaning backward” Posture Education/Positioning: Sleeping Posture • • • Minimize use of excessive pillows/cushions for sleeping Use of cervical roll/cushion to enhance cervical curve Instruct in techniques to allow position changes during the night 44 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT and ADL’s in PD • Toileting • Dressing • Hygiene Personal Hygiene • Sit if balance deficit or low endurance • Wide based stance • Electric toothbrush • Electric razor • Suction denture brush 45 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Personal Hygiene and Grooming • • • • Sit to apply makeup Support arms on table or vanity Build up handles on brush or comb If possible, wait until meds take effect to decrease difficulty of task. Toilet hygiene • • • • • • • Toilet rails Moist wipes Step stool Bidet Men sit or use urinal Velcro pants Trunk rotation exercises 46 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Dressing Affected by: Rigidity Bradykinesia Posture Balance Multi-tasking Visual/Perception Organizing Coordination Dressing Set up clothing the night before in order it will be put on Allow adequate time to avoid need to hurry Wait 45 min after taking morning meds before dressing Sit to dress – sit on chair not bed Focus on each part of sequence 47 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Dressing Loose-fitting, stretchy clothes- eliminate impractical clothing from wardrobe Slippery underclothes Velcro collar, cuff, or whole shirt Snap closures Polo shirt Button hook if no perceptual deficits (Buttoning is therapeutic if not frustrating) Dressing Over the head shirt 48 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Dressing Button down shirt/jacket Dressing Put more involved arm into sleeve first Flipping shirt/jacket over head is risky Button lowest buttons and pull shirt over head Front closure or velcro closure bra 49 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 Pants • Urgency, stress complicates closures • Velcro fly • Elastic waistband • Suspenders Dressing Adaptations Footstool Elastic laces/velcro closures Slip on shoes Sock aid Reacher Long shoe horn 50 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support Simplify and adapt methods and instructions for safe and independent use of instruments to promote personal hygiene, dressing, functional mobility, home management, work, and leisure tasks OT Intervention Strategies for PD Services & Support Increase client skill with clientspecific compensatory methods and adaptive equipment for IADL and ADL task accomplishment 51 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Intervention Strategies for PD Services & Support Teach client and carepartner to make changes in the environment that will provide visual cues for safety and independent task performance. OT Intervention Strategies for PD Services & Support Teach client and carepartner home exercise program for client to deter losses due to increases in sedentary lifestyle. 52 Allied Team Training for Parkinson's Presentation NameParkinson's Disease OT in Early Stage Arlington , VA March 15, 2012 11/3/2014 OT Goals for PD Services and Support Increase client and carepartner understanding of the fluctuations of PD symptoms and in the client’s need for assistance. Teach coping skills for these fluctuations. Discussion • What is involved in being an effective interdisciplinary or interprofessional team member? • Who are the critical disciplines in your care team? • What are your and their unique and complementary roles? • What are strategies for building inter-professional networks and community partnerships? 53