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Contacts If you require any further information please contact the hospital at the numbers listed below. Identify yourself as a patient and ask to speak to a member of your treatment team. Radiation Treatment Department Wellington Blood & Cancer Centre Wellington Regional Hospital Private Bag 7902 Riddiford St Newtown Telephone: 04 806 2000 Monday - Friday Hours: 8:00am – 4:40pm Counselling for sexual issues for patients and partners is available from the Cancer Society, ph (04) 3898421 Information on Dilators for Women Receiving Radiation Therapy to the Pelvis Radiation Treatment Department Wellington Blood and Cancer Centre Introduction This information is designed to work alongside the information we gave you at the start of treatment. It is also a written guide to the information we will give you when we talk to you about using dilators. We believe you should be able to make choices about your care and be as informed as possible. You may want to show this booklet to your support person so they also have an understanding of your treatment. Dilators Radiation Therapy to the pelvis may cause changes to the tissues lining your vagina. You may notice that your vagina feels tender and irritated and may bleed more easily towards the end of your course of Radiation Therapy, and for some weeks after. Once the treatment finishes, and the tissues start to heal, scarring and shortening/narrowing of the vagina may occur. This can make it uncomfortable for your doctor to examine you at follow up appointments and can make sexual intercourse difficult. To help prevent this from happening you can use vaginal dilators. These are designed to be inserted into the vagina to keep it healthy and supple and to reduce the risk of scarring and shortening/narrowing. Further Information/Support Please ask your treatment team if you need to speak to the person who has talked to you about your dilators. Dilator information provided by …………………………….. They can be contacted by calling the department and then asking by name to speak to them even after treatment has finished. You will receive two follow-ups regarding the use of dilators. The first will de done in person during your treatment, about a week after you are given your dilators. The other will be about 4-6 weeks after your treatment has finished on the telephone. Support Services Please ask a member of your treatment team if you would like more information or to access any of these services. • Cancer Society • Counselling for sexual issues for patients and partners is available from the Cancer Society, Please call (04) 3898421 or ask to be refered by your treatment team. 7 When to start using your dilators We recommend you start using your dilator as soon as we give them to you. Use your dilator at least three times a week if possible. As treatment progresses your vagina may become irritated. If insertion of the dilator becomes too painful let your treatment team know or contact the person who spoke to you about using dilators. Their name is on the last page of this booklet. There are two sections in this booklet which explain how to use your dilator. The first applies during treatment and for the 6 weeks afterwards and the second is for after this time. After Treatment has finished It is recommended to use the dilators for at least 6 months following completion of radiation treatment. At your follow up appointments with your Radiation Oncologist they will advise you on whether or not you need to keep using the dilators. If during your treatment you were told to stop using your dilator wait 3-4 weeks after treatment and then start using them again. Sexual Intercourse Instructions for Use The dilator set consists of 4 dilators, which are graduated in size and length to allow natural progression during use. Assembling the dilator The dilators are stored by sliding them inside each other and placing them in the carry case that comes with them. To assemble the dilators, lay all 4 dilators down in front of you. At the end of the smallest dilator is a screw thread, which fits into the open end of the next size dilator. This allows the dilators to screw together so you can use one end as a dilator, and the other as a handle. If you want to have sexual intercourse you can continue to do so during treatment. This will mean you don’t have to use your dilators as regularly. For example if you are having sex once a week then use your dilators twice that week. Please reread the information you were given at the start of treatment for advice on having sexual intercourse during treatment. 6 3 Using your Dilator During Treatment and for 6 weeks after treatment Using your Dilator after treatment and 6 weeks following treatment. If you are using the dilators for the first time, wash them in hot soapy water then rinse thoroughly to remove all traces of soap to avoid any irritation. Dry your dilators. Once the initial treatment side effects have subsided (after about 6 weeks) the purpose of the dilator changes. Instead of simply stopping the ‘sticking’ together now you are trying to prevent scar tissue forming and the shortening or narrowing of the vagina. • Use the dilators in a place that is comfortable, private and allows you to relax as much as possible. If this space is not available to you at home please let the treatment team know. Some people find it easier to relax in the bath. • • Begin dilation with the smallest size dilator and gradually increase over time. Put the dilator into your vagina gently and as deeply as possible. Apply a little pressure so that you can feel the top of the vagina without causing discomfort. If your vagina feels tight, hold the dilator still while you tense and relax your vaginal muscles, you may then be able to push the dilator in a little bit further. • Do not simply turn the dilator as this may not be sufficient to break down adhesions. There are two movements you can try : - • When you are inserting your dilator apply a small amount of water based vaginal lubricant to the end of the dilator. Lie on your back with your knees slightly bent and slightly apart. If this is not comfortable for you try standing with one foot on a chair or squatting (similar to inserting a tampon) • Move the dilator very gently into the vagina to separate the walls and prevent them sticking together. Try moving the dilator round in a small circular (very gentle grinding) motion, then gently remove the dilator • If it is too uncomfortable stop and resume after treatment has finished Slight bleeding may occur after using the dilator during the the first few weeks. This isn’t unusual but if bleeding persists or is heavy do not hesitate to contact your treatment team. 4 1. Move the dilator slowly in and out of your vagina repeatedly 2. Move the dilator round in a small circular (very gentle grinding) motion. • • To reduce the risk of shortening and narrowing of the vagina use the widest dilator comfortable and if it feels tight just leave it in place for 5-10 minutes, stretching the tissues. Once you have removed the dilator, wash it with mild soap and water and rinse thoroughly. It is important to rinse all the soap off the dilator to prevent any irritation to the vagina from occurring. Ensure your dilators are completely dry before you put them away. Store your dilators in the case provided. 5