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Diabetes Information Pack Acknowledgements This pack has been designed for people newly diagnosed with Type 2 diabetes and supports the “Living with Diabetes” education course. It is also used to support people with Type 2 diabetes who attend our Understanding Insulin education course. It has been produced by Bristol Community Health in conjunction with Bristol Clinical Commissioning Group, North Somerset Community Partnership, and South Gloucestershire Clinical Commissioning Group. We are grateful to all health professionals and the people with diabetes who have helped to develop it. We would also like to thank Diabetes UK for their contribution of images to this pack and their ongoing support. Jargon busting There are full explanations for any wording marked in bold throughout the pack in the “jargon buster” section. This can be found on page 48. Contents Section Page Number 1. Introduction How to contact Diabetes Education 1.1. Just been diagnosed with diabetes? 1 4 5 What is diabetes? 6 What’s the difference between Type 1 & Type 2 diabetes? 7 Type 1 diabetes 7 Type 2 diabetes 8 Is there anything else I should know? 8 o Driving 8 o Motor Insurance 10 o Prescriptions 10 o NHS Eyesight Tests 10 o Employment 10 o Pregnancy 11 You and your healthcare team 11 o You 11 o Why are you so important? 11 o Your healthcare team 12 o Doctor 13 o Practice Nurse 13 o Diabetes Specialist Nurse 13 o Dietitian 13 o Podiatrist 13 o Retinal Screening 14 o Pharmacist 15 2. Staying in Control 15 2.1. Lifestyle 15 Healthy Eating 15 Balanced Eating 16 Fats 19 Salt 20 Food Labels 20 Diabetes UK Foodstore 22 Alcohol 22 Keeping Active 24 Weight Management 27 Waist Circumference Measurements 30 Smoking 31 Eyes 31 Feet and foot care 33 General foot care 35 2.2. Blood tests 36 Blood glucose 36 Cholesterol 37 Blood Pressure 38 Kidney Function 38 2.3. Annual Review Checklist 15 Healthcare essentials 3. About your medications 39 39 40 3.1.Treatments for people with Type 2 diabetes 40 3.2 Types of medications for diabetes 41 3.3. How to treat low blood glucose levels (Hypoglycaemia) 43 4. What should I do if I am ill? 46 Jargon Buster 48 Contact information 59 Help improve services 69 Feedback 70 Disclaimer 71 Notes pages 72 We have left some pages blank for you to make your own notes Appendix – Insulin 76-83 Note: (This appendix is only issued for people with diabetes on Insulin) 1. Introduction You have been given this folder because you have been recently diagnosed with diabetes or because you are attending one of our education courses. You may have been feeling unwell recently, in which case it may have come as a relief to find out what was wrong. On the other hand, you may not have been suffering from any symptoms, or even realised that anything was wrong - in which case the diagnosis may have come as quite a shock to you. Although diabetes cannot yet be cured, it can be successfully managed through a variety of treatments, in most cases allowing you to continue to work, travel, have a family and enjoy an active life. Diabetes is different from most other medical conditions in that you, the person with diabetes, have an active role in managing the condition. Your healthcare team may prescribe and give you advice and support on how to manage your diabetes, but the daily choices will really be down to you. This information pack provides a great starting point. It contains some information about diabetes, how to take care of yourself, your local healthcare team, and where to obtain further information and support. The best way to learn about diabetes is to attend one of our local ‘Living with Diabetes’ education courses. This free one day course has been developed by a group of healthcare professionals. Run by a Nurse and a Dietitian, it is designed to provide you with more information to support you to take control of your life with diabetes. All those invited will have been recently diagnosed with Type 2 diabetes. The purpose of the ‘Living with Diabetes’ course is for you to: have the opportunity to gain the skills and knowledge needed to live a healthy life with diabetes explore lifestyle choices that will help keep you well in the future find out about the local groups that are offering support in a variety of settings e.g. walking groups, diabetes support groups etc. meet with other people recently diagnosed with Type 2 diabetes and share your experiences We’ve had really positive feedback from people who have attended our courses. Here is what some of them had to say…. “A very friendly and informative course, easy to follow & well planned. Other peoples experience and pointers also very useful” “A very well planned day. Good presentation. The tutors worked well together and gave me room to ask questions and answered all my questions with patience and understanding.” “I feel that today has been very beneficial to me and my wife in managing my diabetes” “Very interesting course, very helpful with dietary needs and well put across by the teachers. Also good to share & discuss with other people with different stages of diabetes” A referral form should have been sent to the Diabetes Education office for you to attend one of our education courses. However, if this has not happened you may self refer. Our contact details can be found overleaf or at the back of this folder under Bristol Community Health on page 59. If English is not your first language or you would like this information in another format, please contact the Diabetes Education Office on 0117 9598970 as we have a range of other information that you may prefer. You can also contact us by e-mail at: [email protected] We also have a range of videos in different languages, please go to the following link to view these http://briscomhealth.org.uk/patients-and-carers/selfmanagement-information-people-with-diabetes/ If you are able to access the internet you may wish to look at our wide range of video clips (http://briscomhealth.org.uk/patientsand-carers/self-management-information-people-withdiabetes/) or the Diabetes UK website which provides information for people living with diabetes - www.diabetes.org.uk How to contact Diabetes Education If you would like to contact us you can do so in the following ways: Tel: 0117 9598970, Fax 0117 9598971 E mail: [email protected] Write to us at: Diabetes & Nutrition Services, John Milton Clinic, Crow Lane, Henbury, Bristol BS10 7DP 1.1 Just diagnosed with diabetes? If you have just been diagnosed with diabetes, it is likely that you will have many questions and queries and that you will be experiencing a range of emotions. At first it may feel like being on an emotional roller coaster. You may be surprised that you have been diagnosed with a lifelong condition, especially if you have not noticed any symptoms. Or you may feel relieved that you have finally found out what is wrong after feeling unwell. People often feel angry or sometimes guilty. Some people grieve for their former health and this can lead to feelings of sadness or depression. Understandably you may be anxious about what the future will hold and this is perfectly natural. Understanding diabetes and accepting that it will be with you for the rest of your life takes time. It is important to remember that people with diabetes can, in general, continue with their day to day life and take part in activities previously enjoyed. Looking after yourself and learning how to live with your diabetes will give you the best chance of doing this. We discuss this on the ‘Living with Diabetes’ course. Your Practice Nurse, GP and other members of the diabetes team are there to advise and help you live with diabetes. YOU are the most important member of the diabetes team so we strongly encourage you to attend the course to learn as much as you can, particularly as people with diabetes are at greater risk of developing heart disease and stroke, changes in their eyes, feet, kidneys, and blood vessels. These complications are more likely to happen if your blood glucose, blood pressure, and cholesterol levels are not well controlled. Some of the simple ways to keep yourself healthy are: making healthy food choices being more active maintaining a normal weight and losing weight if overweight not smoking attending regular appointments at your diabetes clinic Your diabetes team will discuss the most appropriate targets and treatment for you to keep yourself as healthy as possible. This should be agreed and recorded in your Personalised Diabetes Care Plan, and reviewed regularly. So do remember to take it along to all your health related appointments. This booklet can be found in the back pocket of this folder. What is diabetes? Diabetes is a common condition which can affect both adults and children. Diabetes occurs when the pancreas, a gland near the stomach, fails to produce enough insulin. Insulin helps to control the level of glucose in the blood by converting the glucose from food that we eat into energy. The main problem in diabetes is that there is not enough, or a complete lack of insulin produced and so the blood glucose level rises. Often the glucose will spill over from the blood stream into the urine where it can be detected. Symptoms of diabetes can include increased thirst, passing urine more often (especially at night), tiredness, weight loss, thrush and blurred vision. However, some people may not experience any symptoms. Reproduced with kind permission of Diabetes UK What’s the difference between Type 1 and Type 2 diabetes? Type 1 diabetes In Type 1 diabetes, the body stops producing insulin. It usually develops in childhood and young adults, although it can occur at any age. The management of Type 1 diabetes requires treatment with insulin, combined with healthy eating and exercise. Type 2 diabetes In Type 2 diabetes, the body still produces some insulin, but often it is not enough for the body’s needs and usually this insulin is not used effectively (insulin resistance). Over three-quarters of people with diabetes have Type 2 diabetes. There is a strong link between this type of diabetes and being overweight, although 20% of people with Type 2 are of normal weight. Those people most at risk of developing Type 2 diabetes include: those with a family history of diabetes those of Asian or African-Caribbean origin those who are overweight women who have had a baby weighing over 4kgs or 8.8 lbs or were diagnosed with gestational diabetes during pregnancy The main treatment is always healthy eating and activity. People with Type 2 diabetes may need a combination of treatments to manage their diabetes effectively such as tablets or insulin. Is there anything else I should know? Driving Having diabetes does not mean you need to give up driving but there are important points you need to consider, if in doubt speak to your GP/Practice Nurse or DVLA. This list is not exhaustive and depends on licence category, but as a general rule you should notify DVLA if: you require treatment with insulin OR if you take other medications for your diabetes and have suffered from more than one disabling hypo in the last 12 months or if you are at high risk of developing disabling hypoglycaemia (see page 42). you require laser treatment to both eyes for retinopathy (see page 30). if both eyes are affected by other eye problems. you develop problems with the circulation or sensation in the legs which make it necessary for you to drive certain types of vehicles only e.g. automatic or modified vehicles (this must also be noted on the licence). an existing medical condition deteriorates or you develop any other condition which may affect safe driving at any time in the future If you are in any doubt as to whether your diabetes may affect your licence. If you drive Group 2 vehicles (LGV/PCV) you should seek specific advice as other restrictions may apply. Remember, if you drive, you must ensure you discuss and understand your hypo risk, monitoring and treatment with your GP/Practice Nurse/Diabetes team Driving regulations can change so keep yourself up to date via the DVLA (see page 62 for contact details). Motor Insurance We recommend that you inform your motor insurance company in writing of your diagnosis to ensure that they will cover you in the event of a claim. Some companies may try to increase your premiums, but many won’t, so by shopping around you can usually obtain a reasonable quotation. Prescriptions People taking tablets or insulin for their diabetes are exempt from all prescription charges. You can obtain a form (FP92a) from your GP or Practice Nurse. If you are not exempt from prescription charges, you may wish to consider obtaining a “prepayment certificate”. This exemption or prepayment certificate should then be shown to the pharmacist when you collect your prescription. NHS Eyesight Tests NHS eyesight tests are free to people with diabetes, but you will have to pay for glasses. Employment If you have any concerns about your employment due to your diabetes you can access information via the Diabetes UK’s Advocacy Service, your local Citizens’ Advice Bureau or the Equality and Human Rights Commission (see Page 62). The only employer where a blanket ban on recruiting people with diabetes applies is the Armed Forces (Equality Act (2010) exemption). Pregnancy If you are a woman of child bearing age and are considering starting a family, prior to conception, you should discuss this with your nurse/GP to ensure you are given the right advice and monitoring for a healthy pregnancy. You and your healthcare team You You are the most important member of the diabetes team. Healthcare professionals can give you information, offer advice and prescribe medication but it is up to you to build these into your life. Remember, ask to be referred to the ‘Living with Diabetes’ course so that you can learn more about managing your condition. You will find more information on this course on the Bristol Community Health website at: www.briscomhealth.org.uk/ under ‘Our Services’ - select Diabetes & Nutrition Service and look up Diabetes Education. Your daily diabetes management will be the core of your diabetes care. If you have any questions about your diabetes management then please ask your diabetes healthcare team for further information. Why are you so important? It is possible that you may only see each member of your healthcare team for a few hours in total each year. Consequently it is vitally important that you understand your condition, what to do if you are having any difficulties and how to access the right help at the appropriate time. It is also important that you prepare for the appointments that you do have and make sure that you write down, if necessary, any questions that you need answered. Remember to make full use of your Care Plan (at the back of the folder). If there is anything that you are concerned about or there appear to be changes, make sure that you contact your relevant healthcare professional. Most of all ensure you have the knowledge to look after yourself. Your healthcare team Your diabetes healthcare team will usually include any of the following people: Doctor This is usually your GP but it may also be a consultant at the hospital, or sometimes both. They will carry out regular medical checks and refer you to other specialists as needed. Practice Nurse Your Practice Nurse is often the key contact person for your routine diabetes care, this will be either the Treatment Room Nurse, Practice Nurse or a District Nurse. Diabetes Specialist Nurse (DSN) A Diabetes Specialist Nurse is a nurse who works exclusively with people living with diabetes. Your GP or Practice Nurse may refer you to see a Diabetes Specialist Nurse. Dietitian A registered healthcare professional who specialises in how food and drink can affect health and disease. They will discuss your diet in detail with you and help you identify dietary targets, based on the healthy eating guidelines, appropriate for you All people with diabetes should receive dietary advice from a Dietitian. Appointments are provided free by the NHS and can be arranged from a referral through your GP or other healthcare professional. Podiatrist A Podiatrist, previously known as a chiropodist, is a healthcare professional who specialises in feet. If you are referred to see one, he or she will check your feet and offer advice about how to look after them. An annual foot assessment is part of the routine diabetes care carried out by your Practice Nurse or GP. If necessary, you will be referred to a Podiatrist, which is provided free by the NHS. If you choose to see a Podiatrist privately, we recommend you see one who is registered with the Health & Care Professions Council (www.hcpc-uk.org) Retinal Screening The Bristol and Weston Diabetic Eye Screening Programme is part of the National Diabetic Eye Screening Programme and is provided locally by Bristol Community Health. We offer annual eye screening for people with diabetes aged 12 and over who live in Bristol, North Somerset and South Gloucestershire. Screening is provided at local GP practices in majority of cases. As soon as a diagnosis of diabetes has been made, your GP will inform the screening programme and you will automatically be invited for eye screening. Diabetic Eye Screening is not to be confused with your usual eye examination that you have with your optometrist. Both are equally important to attend. For further information please see the Eyes section on page ……or visit: www.briscomhealth.org.uk/our-services/diabetic-eyescreening/ Pharmacist A pharmacist (chemist) will provide you with the medicines prescribed by your GP. They will be able to provide you with advice on how best to use or take any medication. It is advisable to try to use the same pharmacy (one that is convenient to you), so the staff get to know you and understand your needs. Ask them how you can get the best out of their service, particularly for dealing with repeat prescriptions. If you buy any other medicines, such as for headaches or for flu, then do tell the pharmacy staff that you have diabetes and the medications you are currently taking. 2. Staying in Control In this section you will find lots of information to help empower you to self-manage your diabetes. In this way you can really reduce the risk of problems occurring which may pose a threat to your long term health. 2.1 Lifestyle Healthy Eating You may be thinking that all you want to know is what you can and can’t eat now that you have diabetes. You will be pleased to know there is no need to follow a special ‘diabetic’ diet, prepare special meals, or completely cut out all the foods you enjoy. There is also no need to buy special ‘diabetic’ foods (they are often expensive, high in fat and calories, and can have a laxative effect!) The healthy diet for people with diabetes is the same as the healthy diet recommended for everyone. So you should be able to enjoy a wide variety of different foods, in moderation as part of a well-balanced diet while keeping your blood glucose, blood pressure and cholesterol levels under control. Balanced Eating To get the balance of what we eat right we need to make sure meals and snacks are based mostly on the two larger food groups – fruits and vegetables and high fibre starchy foods. Moderate amounts of meat, fish and poultry (or vegetarian alternatives) and dairy products are also important. Fats, salt and sugar should be eaten in the smallest amounts. You could use this picture of a plate as a daily/weekly guide to making balanced, healthy meals Picture reproduced with kind permission of the Food Standards Agency The following guidelines may also help if you have identified that you need to make some small changes to what you normally eat and drink now: eat regular meals across the day remember to include some starchy carbohydrate at each meal eat less fat, especially saturated fat S ome more small changes you can make: cut down on sugar, sweet foods and sugary drinks Aim to have at least 5 portions* of fruit and vegetables or salad each day, the more variety the better eat oily fish regularly cut down on salt drink alcohol in moderation eat the right amount of food to maintain a healthy weight avoid overcooking vegetables – which can destroy the vitamin/mineral content spread fruit portions throughout the day – due to the natural sugar content …and don’t forget to balance this with increased physical activity * examples of a portion size include: one apple, one pear, one small banana, one orange, slice of melon or a small handful of grapes. Two satsumas/kiwi or a cupful of berries. A small bowl of salad. A small glass of unsweetened fruit juice. 2-3 heaped tablespoons of vegetables or pulses. Here are some practical tips that other people have found helpful in making permanent changes to their eating habits. Old habits Forming new habits Missing meals Eat regular meals – i.e. breakfast, lunch, and evening meal. Meals don’t have to be large and spreading your food across the day will help keep blood glucose levels steady Eating when bored Figure out when this is likely to happen and try to do something else rather than eat e.g. go for a walk, listen to music, work on a hobby, phone a friend etc. Eating when watching TV or relaxing Try to avoid doing anything else when eating – eat only while at the table, at meal times or planned snack times Eating everything on your plate Eat slowly and chew thoroughly. Make meal times a relaxing experience and enjoy the flavour and taste of the food you are eating. You don’t HAVE to eat everything on your plate if you are already feeling satisfied Eating large portions Try using a smaller plate and/or serving up smaller portions of food Eating treat foods regularly Treat yourself with things other than food e.g. flowers, music, a magazine, taking time out for yourself etc. Eating fried food Grill, casserole, microwave or bake foods instead For some people, a few changes to the types of foods eaten or the portions sizes at main meals may be all that is required. You can visit the Diabetes UK website www.diabetes.org.uk for more information. If you would like more specific advice tailored to your own lifestyle and favourite foods, then please ask to see a Dietitian via your GP Surgery. Fats We all need to be careful about the amount of fat that we eat as a high fat diet may increase our risk of heart disease and strokes. This is particularly important for people who have diabetes. High fat foods are also high in calories, so should be reduced if you want to lose weight. We all need some fat in our diet, but it is important that we have the right sort. Saturated fats and partially hydrogenated vegetable fats tend to raise our blood cholesterol and should ideally be restricted. However, unsaturated fats, particularly monounsaturated fats and fish oils offer some health benefits so should be included in our diet in small amounts. Fats to limit or reduce Butter/hard margarine Suet Creamed coconut Crème fraiche Meat fats/sausages Pasties Dairy fats including whole milk, full fat cheese, hydrogenated vegetable oil Fats to choose instead Margarines labelled in “high monounsaturates” e.g. olive or rapeseed Olive oil Soya oil Oily fish e.g. sardines, mackerel, pilchards, salmon including tinned Nuts and seeds Salt Reducing your intake of salt is recommended due to the link between salt intake and high blood pressure. Try these tips to help you cut down: use herbs, spices, onion or garlic to give your food added flavour (watch out for added salt in ready-made spice mixes though) cut down on packet and processed foods such as noodles, instant rice/couscous, stock cubes, crisps, salted nuts and yeast extracts all of which are high in salt avoid adding salt to your cooking – train your taste buds to have less salt avoid low-salt alternatives Food Labels It isn’t always easy to make sense of food labels; If you find food labelling confusing as a general rule: This is high per (per 100g) More than 17.5 fat More than 5g saturated fat More than 22.5g sugars More than 1.5g salt More than 0.6g sodium This is low per (100g) 3g fat or less 1.5g saturated fat or less 5g sugars or less 0.3g salt or less 0.1g sodium or less There are 4 places to find information about nutrition on packaged goods. Nutrition Labelling All food and drink manufacturers have to provide information about the amount of energy, fat, saturated fat, carbohydrate, sugar, protein and salt per 100 g/ml in their product. They sometimes also include information per portion. The RI is the reference intake for an average adult. This information is a guide only as people’s nutritional needs vary. You can see whether a product is high/medium or low in fat, saturated fat/sugar/salt by comparing it to the table on the other page. Front of pack labelling These labels are usually but not always displayed on products; depending upon the manufacturer. When they are displayed they include information about the amount of energy, fat, saturated fat, sugar and salt in the product. Front of pack labelling is useful to compare products, to see which one is healthier. However do be aware that the manufacturer’s portion size may be different to yours. Some manufacturers also use traffic light colours to help you understand whether a product is high, medium or low in fats, sugar or salt. Red means high – watch how often you have these foods and aim to eat in smaller quantities or occasionally. Amber means medium – okay to have some of the time but the best choice is green Green is low – this is the healthiest choice. Ingredients List All of the ingredients in a product are listed in descending order of weight. The front of pack and nutrition labels are helpful to see at a glance how much of each nutrient is in a portion/100g but it doesn’t tell you where these nutrients come from. A breakfast cereal or yoghurt may be high in sugar but it is not clear whether it’s from the natural sugar in fruit or milk or an added sugar unless you check the ingredients list. If low fat milk products or fruit are listed in the first few ingredients it is often a healthy choice. Nutrition and health claims Nutrition and health claims are based on science and can be trusted, however they are sometimes misleading. For example a product can be labelled as ‘reduced fat’ but still be a high fat product or a food may be labelled as ‘light’ or ‘lite’ this must be at least a third lower in a typical value (e.g. calories or fat) than the standard product. However, it may not be lower when compared to another brand. Use the front of pack or nutrition labels to find out more. Diabetes UK Foodstore This can be found at www.storetour.co.uk . The website provides help on shopping, nutritional information on foods, and will guide you as to how balanced your diet is and can help with menu planning. Alcohol You do not have to give up alcohol just because you have diabetes. Everyone is advised that if they drink alcohol to do so in moderation. Aim to keep within the recommended limits of 3-4 units/day for men and 2-3 units per day for women. You should also try to have at least two alcohol free days per week. What is a unit of alcohol? one small glass (100ml) of wine (10% ABV) (ABV = alcohol by volume) half a pint of beer/lager/cider (3.6% ABV) one pub measure (25ml) of spirits (40% ABV) Remember to choose slimline/low calorie mixers with spirits. Alcohol is high in calories and if you are trying to lose weight it may be worth considering reducing your average weekly intake. If you are taking tablets or insulin to help treat your diabetes then it is important to discuss drinking alcohol with your Practice Nurse or GP. Alcohol can reduce blood glucose levels for several hours after drinking and may increase the risk of blood glucose levels dropping too low. You may be advised to check your blood glucose levels before going to bed and having a snack if it’s low. Never drink alcohol on an empty stomach. Keeping Active If you have diabetes it is also recommended that you keep active. Active people are better able to manage their weight, and also have less risk of high blood pressure, heart disease and stroke. Being physically active and moving more is important for people with diabetes because it: helps lower blood glucose levels can lower blood pressure and cholesterol levels keeps the heart fit helps with weight management makes you feel good keeps you active and more able to perform every day tasks 1. Adults should try to be active daily. This means over a week, about 2½ hours of moderate intensity activity. Try to do this by doing 10 minutes or more during each day or try 30 minutes at least 5 days a week. 2. Or you can get the same results by doing 75 minutes (1hr 15 minutes) of vigorous intensity activity spread across the week or combinations of moderate and vigorous intensity activity. 3. Adults should also try physical activity to improve muscle strength on at least two days a week. Examples of physical activity that meet the guidelines: Moderate intensity physical activities will cause you to get warmer and breathe harder and you heart will beat faster, but you should still be able to carry on a conversation. Examples include: Brisk walking Cycling Gentle swimming Vigorous intensity physical activities will cause you to get warmer and breathe much harder and your heart will beat rapidly, making it more difficult to carry on a conversation. Examples include: Running Sports such as swimming or football Physical activities that strengthen muscles involve using body weight or working against a resistance. This should involve using all the major muscle groups. Examples include: Exercising with weights Carrying or moving heavy loads such as groceries It is also recommended that you try to minimise the amount of time spent sitting down. You could do this by making simple changes to your day which can make a big difference. For example why not: set your phone/timer so you remember to stand every 20 minutes to boost your metabolism choose the stairs at work or when shopping use the car or bus less often and walk or cycle instead (this could include walking part of the way) turn off the TV or computer at home and find ways to be more active, e.g. cleaning/ walking to the shops try to stand instead of sitting more often The important thing to remember is that if you are not very active right now start off gently and build up your fitness gradually. Speak to you Practice Nurse or GP if you are unsure of your limits. Even if you are unable to do the exercise mentioned it is recommended that you start just by moving more. What stops me? Lack of time Too many aches and pains Too tired What can I do about this? Add physical activity to your daily routine e.g. walk or cycle to work or the local shops, take the stairs at work, get off at an earlier bus stop and walk the extra distance etc. Make sure you start off slowly and do some gentle warm-up stretches beforehand. Find an activity you can do now and add other activities over time Plan activity for a time of day when you know you will feel more like being active. Becoming more active can actually increase your energy levels! Lack of motivation Holidays or working away Do an activity that you enjoy and if possible invite a friend or family member to exercise with you to make it more fun Create opportunities to be active on holiday e.g. taking a walking-tour or cycle tour when visiting a new city, use the hotel pool etc. When working away from home, use the exercise facilities available at the place you are staying or seek out local venues etc. Also remember if you take insulin or tablets for diabetes you may need to adjust this or take an extra snack if you are doing more physical activity so speak to your Dietitian or Practice Nurse. Health Trainers are available at many GP surgeries and can offer one to one advice on choosing an activity programme that is right for you. Ask at your surgery as they may be able to refer you to Active Choices which is a scheme with a 12 week tailor made package of exercise sessions, especially for people with or at risk of developing health problems. Weight Management One of the key goals for a healthy heart and good diabetes control is to achieve and maintain a healthy weight. This is best done by making healthy food choices and keeping active over the long term. At your annual diabetes assessment your GP and/or Practice Nurse will measure your height and weight. Your body shape is then assessed by measuring your waist circumference (WC) and overall level of body fat by calculating your Body Mass Index (BMI). If your BMI is 25 or more (23.1 for South Asians) you should think about losing weight because being overweight or obese can increase your risk of health problems, such as: heart disease Stroke some types of cancer high blood pressure (hypertension) kidney disease For most adults, an ideal BMI is in the range 18.5 to 24.9. If your BMI is 25 or more, you’re over the ideal weight for your height: 25 to 29.9 is overweight (23.1 for South Asian) 30 to 39.9 is obese 40 or more is very obese Healthcare professionals use the words obese and obesity as clinical terms to indicate your increased risk of health problems. They do not use these terms to describe what you look like. If you are unsure of your BMI you can ask at your surgery next time you visit. Checking your waist circumference, will show you the amount of weight you carry around your waist. If you need to lose weight, reducing your waist measurement will help to improve blood glucose control and reduce your risk of developing some diabetes complications. To measure your waist, you need to find the bottom of your ribs and the top of your hips. Measure around your middle at a point mid-way between these (for many people this will be the tummy button). Weight Management schemes You can receive 12 weeks of free vouchers for Slimming World or WeightWatchers to help you lose weight. We ask that you commit to attending the group for 12 weeks. It has been proven that weight loss results are much better when you receive weekly support and advice. The sessions only take 90 minutes a week. To check if you are eligible or to find out more see your GP, Practice Nurse or healthcare assistant at your GP surgery to ask them to refer you. Or call us on 0117 922 2921 Email [email protected] Weight Management Service Community Specialist Weight Management Dietitians support adults over 16 to lose weight to help improve their health. We offer patients the option of 1 to 1 or group support at different locations throughout Bristol. Patients receive a combination of nutrition advice and support with increasing physical activity and changing behaviour to lead a healthier lifestyle. We work with patients over a 6-12 month period both to achieve a healthy weight and maintain it in the long term. Our service currently supports patients with conditions such as impaired fasting glucose, diabetes, obstructive sleep apnoea, osteoarthritis and chronic obstructive pulmonary disease to improve their health by losing 5-10% of their body weight. You can be referred by your GP or another health professional, or you can contact us directly. Our service is available to individuals who have a BMI of 28 or more together with another medical condition, or who have a BMI of 30 or over with no other medical problems. Contact: Weight Management Dietitians Greenway Community Practice, Greystoke Avenue, Southmead Bristol BS10 6AF Tel: 0117 959 8935 or 0117 959 8921 Waist circumference measurements: White and African-Caribbean men should be below 94cm (37 inches) Asian men should be below 90cm (35 inches) White, African-Caribbean and Asian women should be below 80cm (31.5 inches) Being overweight or obese has a direct effect on your diabetes and in fact may or may not have been part of the reason why you developed diabetes in the first place. You may have heard of ‘apple’ and ‘pear’ body shapes? In general, the ‘apple’ shaped bodies, where a person carries their weight mostly around the middle, often causes ‘insulin resistance’. This is when your body is resistant to the body’s natural insulin production, and therefore your blood glucose control gets worse. In Summary This may help you to decide whether you need to start losing weight to help you to manage your diabetes or discuss this further with your GP or Practice Nurse. You can also ask to be referred to a Dietitian for individual advice and support. Smoking Smoking is harmful for everyone, and even more so if you have diabetes. It increases your risk of having a heart attack or a stroke. Most practices now run smoking cessation clinics where support and advice is given. A wide range of nicotine replacement therapies are available. Even if you have tried to give up before, we would strongly recommend you seek support to stop smoking. You can contact your local ‘Smokefree’ service (see page 69) or ask at your surgery. Eyes Retinopathy All people with diabetes are at risk of developing diabetic retinopathy. Diabetic retinopathy is caused when diabetes affects the small blood vessels in the retina, the part of the eye that acts rather like a film in a camera. Diabetic retinopathy can affect your sight and is still a significant cause of blindness in the working population. What should people with diabetes do to care for their eyes? The best way to care for your eyes is to achieve good blood glucose control. This can reduce the risk of you developing diabetic retinopathy and slow the rate at which it happens. However, some people may still go on to develop sight threatening retinopathy despite their best efforts. Diabetic retinopathy does not usually cause a loss of sight until it has reached an advanced stage. Even sight-threatening retinopathy that is close to affecting your sight may not cause symptoms. Therefore it is important that people with diabetes aged 12 years and over attend an annual eye screening appointment. Screening is an effective way of detecting diabetic retinopathy as early as possible. The Bristol and Weston Diabetic Eye Screening Service The Bristol and Weston Diabetic Eye Screening Service provides annual eye screening for all people with diabetes living in Bristol, North Somerset and South Gloucestershire . Screening usually takes place at a person’s GP surgery. Each appointment will be with a trained screener and will last around 30 to 45 minutes. The screening service will visit GP surgeries at least twice a year and you will automatically be sent an invitation to one of these clinics. If you have just been diagnosed with diabetes, you may be invited for a first appointment at a central location, such as the Bristol Eye Hospital. It is important not to confuse your eye screening appointment with the general eye tests you have with your optician. Screening does not replace your regular eye examinations. It is important to attend both. What treatment will be given? If you have mild diabetic retinopathy then you will not usually require any treatment other than controlling any other risk factors (for example, blood pressure, glucose and cholesterol levels). More advanced retinopathy may require laser treatment or other therapies. Laser treatment works well to prevent worsening of retinopathy and so prevents loss of vision, but cannot restore vision that is already lost. The treatment is not usually painful, and vision, in most cases, returns to its previous level after a few hours. Feet/Foot care Uncontrolled diabetes can affect the feet in a number of ways: Nerves can become damaged which can lead to limited or heightened sensation (Neuropathy) Blood flow to the feet can be reduced (Ischaemia) Your foot shape can change Your skin can become dry Any of these complications can increase your risk of developing foot attack. This means that you could develop an ulcer (a wound that is slow to heal). This can increase your risk of infection and ultimately amputation. You should expect to receive a foot check every year by your GP / Practice Nurse team. If you develop any complications you will be referred to your local Podiatry (Chiropody) team which can help and advise you to prevent any of these serious complications occurring. We highly recommend that you attend these appointments and the health care professional can fill in your care plan (at the back of the folder). To prevent foot problems it is recommended that you: Have your feet checked annually as part of your annual assessment and ask what your “risk of a foot attack is” See a Podiatrist (Chiropodist), Practice Nurse or GP for advice if you notice changes to your feet, your nails are ingrowing/causing you a problem or you develop corns/callus on your feet If at anytime you think you have a foot problem or have any concerns, contact your GP, Practice Nurse or a Podiatrist as soon as possible. General Foot Care Daily: check your feet using a mirror if necessary. You are looking for: Callus (areas of thick hard skin) A wound on your foot Changes in colour, swelling, heat or redness Breaks in the skin Changes in shape/texture of your feet Should you notice any of these it is important to get your feet checked quickly. Please contact your health care professional to give you some advice, especially if you have developed neuropathy (decreased sensation) or ischaemia (lack of blood flow) You are advised to: Wash your feet regularly and dry carefully between your toes Cut or file your nails straight across (do not cut down the sides) preferable after a bath when the nails are soft. Avoid cutting your nails too short. Avoid walking without footwear / slippers Wear shoes / slippers that fit well and have your feet measured regularly Check inside your shoes for rough lining or loose objects before putting them on Be careful not to burn your feet o Check the bath temperature before getting in o Avoid the use of hot water bottles / electric blankets or remove / switch off before getting into bed o Use sunblock on your feet if wearing sandals outdoors If your feet are dry or cracked, use a moisturising cream daily (avoid putting between your toes) 2.2 Blood tests Now that you have diabetes you will be asked to have regular blood tests. This is because blood glucose, cholesterol and blood pressure can all have a significant impact on your diabetes if they are not well controlled. The frequency with which they will be checked will vary according to the test results, your medications and general health. Blood Glucose Blood glucose control is very important for people with diabetes. For people on particular treatments home blood glucose testing can help to manage your diabetes but this is not necessary for most people newly diagnosed. If you are home testing then you will have been given your own targets. Average target range is 4-7mmol/l before meals or up to 8.5 mmol/l 2 hours after meals or before bed. Your diabetes team can help you develop a routine for testing that meets your individual needs. Whether home testing or not, as part of your annual diabetes checks you will have your blood glucose levels checked by a blood test called HbA1c. This test measures your average blood glucose level over the previous three months. A result of 48 – 58mmol/mol is desirable to reduce the risk of health problems associated with diabetes. However, you may agree an individual target suitable for you with your GP or Practice Nurse which should be recorded in your Care Plan (at the back of this folder) Lipids -These are the cholesterol of triglycerides in your blood Cholesterol Cholesterol relates to the amount of ‘fats’ in your blood and is known to speed up the blocking of arteries in your heart. There are a number of different measures of cholesterol in the blood. Total cholesterol measures all the cholesterol in your blood and can increase your risk of heart disease and stroke Low density cholesterol (LDL) increases your risk of cholesterol build up in your arteries, increasing your risk of heart disease High density cholesterol (HDL) helps protect against heart disease Triglycerides are a measure of the fat circulating in your blood. The levels of cholesterol will be tested annually in your blood. For the ranges you are looking to achieve consult your Care Plan (at the back of the folder) Non HDL cholesterol Your non-HDL cholesterol is your total cholesterol minus your HDL (good) cholesterol. Non HDL range <2.5 <3.5 <3.6 Blood Pressure Blood pressure tells you how hard your heart has to work to move blood around the body. Having high blood pressure can increase your risk of developing heart disease, stroke and kidney disease. Your blood pressure will be checked by your Practice Nurse as part of your annual checks. Aim for your blood pressure to be less than 140/80 mm/Hg (or the individual target you have been given). If it is higher your GP may prescribe medications to lower it, which is proven to be beneficial for people with diabetes. Kidney Function Kidneys can be affected by a number of things including blood pressure and medication. As a general rule, at least once a year, your blood will be tested for kidney function. In addition you will be asked for a urine sample to check for protein which can be an indication of possible kidney problems. 2.3. Annual Review Checklist In summary here is a list of the care you should be provided with that has been put together by Diabetes UK. The full listing can be obtained by visiting the website: www.diabetes.org.uk 15 Healthcare Essentials Diabetes UK has named them the “15 Healthcare Essentials” and they are: 1 Have your blood glucose levels measured at least once a year 2 Have your blood pressure measured and recorded at least once a year 3 Have your blood fats (cholesterol) measured every year 4 Have your eyes screened for signs of retinopathy every year 5 Have your legs and feet checked – the skin, circulation and nerve supply of your legs and feet should be examined annually 6 Have your kidney functions monitored annually 7 Have your weight checked and have your waist measured to see if you need to lose weight 8 Get support if you are a smoker including advice and support on how to quit 9 Receive care planning to meet your individual needs – you live with diabetes every day so you should have a say in every aspect of your care 10 Attend an education course to help you understand and manage your diabetes 11 Receive paediatric care if you are a child or young person 12 Receive high quality care if admitted to hospital, regardless of whether the stay is because of your diabetes 13 Get information and specialist care if you are planning to have a baby as your diabetes control has to be a lot tighter and monitored very closely 14 See specialist diabetes healthcare professionals to help you manage your diabetes 15 Get emotional and psychological support, if you feel you need it as living with a long term condition can be difficult 3. About Your Medications 3.1 . Treatments for people with Type 2 diabetes The first line of treatment for people with Type 2 diabetes will always be to eat a healthy diet and to keep active. If your GP or Practice Nurse find that this is not enough to keep your blood glucose levels normal you may also need to take medication. There are several kinds of medication for people with Type 2 diabetes which may be prescribed on their own or in combination. This may include medication for your blood pressure and/or cholesterol. If you are prescribed any medication you are advised to make sure that you find out the following information from your GP or Practice Nurse: What the medication is called? What the medication is prescribed for? How much should you take? When should you take it? Possible side effects? What you should do/who to contact if you have any problems It is also advisable to keep a copy of your latest prescription in your wallet/purse and in your Care Plan (at the back of this folder). 3.2 Types of medications for diabetes Metformin is usually the first tablet advised if your blood glucose level is not controlled by a healthy diet and activity. It is often used for people who are overweight because it generally does not result in weight gain and can reduce the risk of complications such as a heart attack or stroke. On its own it cannot make your blood glucose level go too low. Sulphonylureas – there are several types of sulphonylurea drugs which include Gliclazide, Glimepiride and Glipizide. They tend to be used if you cannot take Metformin or if you are not overweight. They work by encouraging the pancreas to work and make more insulin to help lower the blood glucose levels. Because sulphonylureas boost your level of insulin, hypoglycaemia (blood glucose less than 4mmol/l) is a possible complication. However, this is an uncommon problem, and unlikely to happen if you have regular meals and avoid missing or taking late meals and avoid too much alcohol. Your GP or Practice Nurse should discuss hypoglycaemia with you and provide advice if necessary on checking your blood glucose levels and how to treat hypoglycaemia (see Page 42). Other medications used in Type 2 diabetes Other medication used in Type 2 diabetes include Pioglitazone, DPP4’s (Sitagliptin, Saxagliptin, Linagliptin, Vildagliptin, Alogliptin), GLP-1’s (Lixisenatide, Exenatide Liraglatide and Dulagutide) and SGLT2’s, Canagliflozin, Dapagliflozin, Emphghtlozin and Acarbose. Insulin For some people with Type 2 diabetes insulin injections may be required to keep blood glucose levels under control. It is rare for someone newly diagnosed with Type 2 diabetes to commence on insulin. If you have been prescribed with insulin please ask your Practice Nurse to issue you with the Insulin Appendix to add to this folder. You should also be referred to our ‘Understanding Insulin’ course to learn about using Insulin. Alternatively, you can request a copy of the Appendix and/or a course referral form from the Diabetes Education Services – see our contact details under Bristol Community Health in the contact details at the back of this folder. 3.3 How to treat very low blood glucose levels (Hypoglycaemia) If you are newly diagnosed and are managing your diabetes with diet and activity or taking Metformin you are not usually at risk of low blood glucose levels. When you have Type 2 diabetes, your blood glucose levels are only able to drop too low, i.e. below 4 mmol/l, if you are taking certain tablets or are on insulin therapy. This is known as hypoglycaemia or ‘hypo’. The symptoms associated with very low blood glucose levels vary for individuals, but may include Early signs Sweating & shaking Trembling Hunger & headaches Blurred vision Tingling lips Palpitations Later signs Anxiety & irritability Forgetfulness & confusion Drowsiness Odd behaviour Speech difficulty Lack of co-ordination Unconsciousness A ‘Hypo’ can be caused by the following: too much insulin / too many tablets delayed or missed meal or snack not enough food - especially carbohydrate containing food such as bread, rice, pasta, potatoes etc.. unplanned or strenuous activity drinking too much alcohol or alcohol without food Who is likely to experience a hypo? – anyone taking insulin or some types of oral hypoglycaemic medication What can be done to prevent a ‘Hypo’?: Eat regular meals including starchy carbohydrates e.g pasta, rice, potatoes or cereals Have an extra snack or reduce your insulin when you do more activity Plan ahead, you may need something to eat if a meal is delayed Check blood glucose levels before and after exercise If you have had alcohol have a starchy carbohydrate snack before bedtime If you do feel any of the symptoms mentioned or if you do have a blood glucose level less than 4 mmol/l then you should: 1. Take 20 grams of rapidly digested sugar, for example: 100ml of Lucozade ‘original’ (approx 1/3 small bottle or 1/2 glass) 5-6 glucose tablets 150ml (approx 1/2 can) of ordinary fizzy drink (not ‘diet’) 200ml (small carton) orange juice 4 Large jelly babies 7 Large jelly beans 2 tubes of glucogel Note: chocolate, biscuits or milk will not bring your blood glucose levels up quickly enough. 2. Check your blood glucose level again after 10 minutes. If it remains below 4 mmol/l take another 20 grams of rapidly digested sugar (as above) and test again in 10 minutes. It is important that you don’t have too much sugar at this time as otherwise your blood glucose levels can swing up too high. 3. When your blood glucose levels return to normal you should have something more substantial to eat within 30 minutes e.g. sandwich, cereal with fruit and yoghurt, your next normal meal etc. This will prevent your blood glucose levels dropping again. NB: It is best to check whether your blood glucose levels are actually too low before taking something sugary. Some people experience the symptoms described above, along with an increased thirst and the need to pass urine more often, when their blood glucose levels have gone too high! If you are taking tablets or insulin to treat your diabetes and find you often have results less than 4 mmol/l then you need to contact your GP or Practice Nurse to discuss this with them as soon as possible. Depending on the problem, you may require a change in your medication. 4. What should I do if I am ill? For people with diabetes not taking insulin Any illness may cause your blood glucose to rise. So when you are ill your blood glucose level tends to go up. This may happen even if are not eating or are vomiting. Conditions that may upset your diabetes include: the common cold or flu diarrhoea and vomiting urine or chest infections leg or foot ulcers other infections, for example tooth abscesses, boils Signs that the illness is affecting your diabetes include: high blood glucose levels excessive thirst passing large amounts of urine, especially at night It is important that you: do not ignore these signs do not stop your medication monitor your blood glucose levels more often try to eat normally but if unable to then try fluids or soft drink plenty of water or sugar-free fluids foods It is recommended that everyone with diabetes has the flu vaccination. This is free and is usually available from your GP surgery in the autumn. Please discuss this with your Practice Nurse or GP. Golden Rules 1. Never ignore the warning signs that your blood glucose levels may be high. Contact your GP or Practice Nurse if you feel unwell 2. Continue taking your prescribed medication (unless otherwise advised by your Medical Professional i.e. vomiting +GLP1/SGLT2) 3. If you usually test your blood glucose levels at home, it is advisable that you do so more often during an illness 4. Drink plenty of water or sugar-free fluids 5.Try to eat your normal diet. If you cannot, try nourishing foods that are easy to eat e.g. soups, soft foods like cottage pie with mashed potato, milky drinks or puddings etc. Low blood glucose levels If you experience blood glucose levels lower than normal (or hypos) you should contact your GP surgery or Practice Nurse for advice on reducing your medications. When to call for help If your blood glucose level stays above 17 mmol/l for more than 24 hours If you are vomiting and can’t keep fluids down If you are worried or don’t know what to do If in doubt contact your GP or Practice Nurse Jargon buster The following are explanations of commonly used terms you may encounter in managing your diabetes. Remember always ask for an explanation if you come across terms or phrases of which you are uncertain. A1c The simple name for the HbA1c test – see HbA1c. Albumin A blood protein that can leak into the urine – if it’s there, it can be a sign of kidney problems Angina A condition caused by problems with the arteries carrying blood to the heart; the person has short periods of chest pain and a feeling of constriction or tightening Aspartame A low-calorie artificial sweetener. Brand names include Nutrasweet and Canderel Basal insulin The background insulin needed to control the normal levels of glucose in the blood between meals and at night Beta Blockers A class of drugs which reduce high blood pressure Blood glucose levels The amount or concentration of glucose (sugar) in the blood. UK measurement is millimoles per litre (mmols/l) Blood glucose meters Electronic devices which can measure your blood glucose levels Blood pressure When your heart beats, it pumps blood round your body to give it the energy and oxygen it needs. As the blood moves, it pushes against the sides of the blood vessels. The strength of this pushing is your blood pressure. Body mass index A measure of a person’s weight in (BMI) relation to their height, showing if they are overweight or underweight There are a number of BMI ‘ready reckoners’ that can be found on the internet which will calculate your BMI for you. e.g. British Heart Foundation www. bhf.org. uk/bmi Height Weight Chart www.nhs.uk/Livewell/healthy-living Even some of the high street stores and large chemists and slimming clubs have some. Alternatively your surgery or local leisure centre will help work it out for you. Carbohydrate foods A class of food which includes both starches and sugars in foods such as bread, potatoes, rice, pasta, beans, fruit, milk, and also sugars in processed food Chiropodist See podiatrist Cholesterol Cholesterol is a fatty substance known as a lipid and is vital for the normal functioning of the body. It is mainly made by the liver but can also be found in some foods we eat. High levels of cholesterol in the blood is known to speed up the blocking of blood vessels CVA Cerebral Vascular Accident – See Stroke Diabetes (Gestational) Diabetes occurring in pregnancy. Usually blood glucose levels return to normal after the birth Diabetes Specialist Nurse (DSN) A nurse who works exclusively with people living with diabetes Diabetologist A doctor who has specialist knowledge about diabetes and its management Dietitian A registered health professional who has specialist knowledge about eating and the effects of different foods and drinks on the body. Dietitians have to be registered with the Health & Care Professions Council www.hcpcheck.org Digestion The process in which food is broken down in the gut into smaller molecules, which are then absorbed into the bloodstream. The whole process takes place in the digestive system which begins at the mouth and ends at the anus Dilated eyes Eyes which have had special drops put in them to make the pupil bigger so that each eye can be examined Energy The strength and stamina needed for everyday activities. The energy in food is measured in kilocalories or kilojoules Erectile dysfunction Often known as impotence, where a man cannot have sex because he cannot get or keep a full erection Fat A nutrient in foods: includes all solid fats as well as oils, e.g. butter, lard, oil, margarine Fibre Fibre is the indigestible part of food. Good sources of fibre are wholegrain cereals, bread, brown rice, pasta and oats. There is also some fibre in fruit and vegetables especially the skin. Fibre absorbs a lot of water and ensures faeces are soft and easy to pass out of the body Fructose One of the sugars occurring naturally in fruit and honey. It can affect blood glucose levels when eaten in large amounts Gastroparesis Where the stomach contents do not empty properly into the intestine Glucose Comes from the digestion of carbohydrates (starches and sugar) and is absorbed into the bloodstream, where it circulates and is used for energy Glycaemic index A measure of how quickly a food is broken down into glucose when a food is digested HbA1c test This is a blood test that gives an indication of how well the blood glucose level has been controlled over the previous six weeks. It measures the amount of glucose attached to the haemoglobin in your blood Health & Care Regulates health, psychological and Professions Council social work professionals Heart attack Where part of the heart is permanently damaged because one of the heart arteries is blocked and blood has been unable to get through to the heart muscle. Also known as Myocardial Infarction (MI) Hydrogenated fats Fats and oils that have been hardened during the manufacturing process. They affect the body in a similar way to saturated fats Hyperglycaemia (Hyper) Blood glucose levels which are above target Hypertension High blood pressure (e.g. more than 140/80) Hypoglycaemic (Hypo) Blood glucose levels which are low (below 4 mmols/l) Insulin A hormone produced by the pancreas which is essential for regulating the levels of glucose (sugar) in the blood Insulin resistance In Type 2 diabetes the body produces some insulin but the body’s cells are unable to use it efficiently Ketoacidosis A condition where the person has raised blood glucose levels and is dehydrated so that a metabolic acidosis develops (where the body’s natural acid–base balance becomes disturbed) Ketones Ketones are the acid breakdown products of fats in the body that occur in people with Type 1 diabetes when blood glucose levels are high Ketostix Ketostix are a brand of urine strips to test for ketones MI Myocardial Infarction – see Heart Attack Minerals The body needs minerals to grow, control body processes e.g. transmission of nerve impulses and they form an essential part of body fluids. Some minerals are required in relatively large amounts e.g. calcium, iron, sulphur, phosphorus, potassium and chlorine. Others are required in minute amounts e.g. iodine, manganese, zinc and fluoride. They are found in certain foods and drinks Monounsaturated Found mainly in olive oil, rapeseed oil, Fats and Oils nut oil, avocados and spreads made from these fats. This is the best sort of fat to include in your diet Multidisciplinary A team of different types of health team professionals who work together to make sure that people have the care they need, at the time they need it; for diabetes, these are known as diabetes care teams Nephrologist A doctor who has specialised in diagnosing and treating kidney conditions Nephropathy Damage to the kidneys Neuropathy Damage to the nerves Nicotine replacement therapies A substitute for nicotine, which is an addictive drug in cigarettes. They can take the form of patches, chewing gum, nasal sprays or inhalers Omega 3 fatty acids Found within oily fish such as pilchards, mackerel, salmon sardines, nuts and seeds (especially linseeds) Can protect the heart and blood vessels from damage Opthalmologist A doctor who has specialised in diagnosing and treating eye conditions Pancreas A gland behind the stomach which produces insulin and other hormones Podiatrist A health professional who looks after people’s feet. Also known as Chiropodist. If you choose to see a podiatrist privately we recommend you see a podiatrist who is registered with the Health & Care Professions Council www.hcpc-uk.org Polyunsaturated Fats Found mainly in fish, nuts, seeds and leafy green vegetables. Examples include omega 3 and 6 fatty acids. Omega 3 can help protect against heart disease Retina The light sensitive area at the back of the eye Retinopathy Damage at the back of the eye (retina) Saturated fats Saturated fats are predominantly found in fats that are solid at room temperature. e.g. animal fats and dairy produce, coconut oil, palm oil. Eating too much can contribute to heart disease Smoking cessation clinics A clinic led by a trained advisor to help you find ways to stop smoking Stroke Where the blood stops getting through to an area of the brain, which may cause weakness in one part of the body. Also known as CVA – Cerebral Vascular Accident Thrush A fungal infection. It can cause creamy white patches and extreme itching and soreness, usually in the genitals or mouth. Repeated attacks may be triggered by excessively high glucose levels in the urine Trans fats Have been strongly linked to an increased risk of coronary heart disease. They are commonly found within highly processed, high fat foods such as cakes, biscuits, pastries and take-away foods Triglyceride Are the circulating levels of fat in the blood. Higher than normal levels are associated with an increased risk of heart disease, strokes and other circulatory diseases Ulcer An open sore or crater that may be hard to heal; in diabetes, one of the aims is to stop ulcers from developing particularly on the feet. Feet are at risk of developing ulcers particularly if diabetes has reduced the blood flow to the feet or if the nerve endings have been damaged resulting in a loss of feeling to the feet Vitamins Vitamins are a group of different chemical substances. The body requires only small amounts of each vitamin but as it cannot make most of them itself they must be supplied by food. Vitamins are needed to help the body grow, to maintain the body and to control metabolic reactions in cells Contact Information Below is a list of organisations that offer support and information for people with diabetes. Name and what they do Contact details Bristol Community Health Provides a wide range of community healthcare services commissioned by the NHS in and around Bristol. Our services cover a diverse range of specialist clinical care, from dermatology nursing to district nursing, physiotherapy to podiatry, walk-in centres to wound care and much more. One of the services is the Diabetes & Nutrition Service, which provides information about the different education courses for patients with both Type 1 and Type 2 diabetes, that are provided across Bristol can be found on the website, or by contacting the team. They can also provide information in different formats. The Service also provides advice and Website: www.briscomhealth.org.uk/ Under ‘Our Services’ Select Diabetes and Nutrition Service Tel: 0117 9598970 E mail: [email protected] support to adult patients and carers locally within the community, via one-to-one counselling and group education. The service is accessed via a written referral from any health care professional in accordance with specific referral criteria. British Heart Foundation (BHF) Website: www.bhf.org.uk A national charity fighting heart and circulatory disease. The BHF funds research, education and life-saving equipment. British Hypertension Society A national charity with the aim of sharing cutting-edge research in Website: www.bhsoc.org order to understand the origin of high blood pressure and improve its treatment. British Dietetic Association (The Association of UK Dietitians) The Association of UK Dietetics www.bda.uk.com National Contact information Diabetes UK is a national charity Diabetes UK, 10 Parkway, for people living with diabetes. London, NW1 7AA Their website has a wealth of Tel: 0345 1232399 useful information, plus (Mon – Fri 9am-7pm) documents that you can Fax: 020 7424 1001 download. You can also Website: purchase items such as recipe www.diabetes.org.uk books from them and subscribe E mail; [email protected] to their newsletters. Diabetes UK See also Local Support Section for local groups. Diabetes UK Careline This is a facility set up by Diabetes UK for any concerns, questions or feelings you may have about living with diabetes. You are able to contact them by e mail or telephone. The telephone number is charged at local rates and the lines are open Monday to Friday 9am 5pm Diabetes UK Store Tour Tel: 0345 123 2399 E mail: [email protected] Diabetes UK Careline Macleod House 10 Parkway London NW1 7AA This is a Diabetes UK website which provides information on food regarding shopping, food labeling, and menu planning. Website: www.storetour.co.uk DVLA You can contact the DVLA Tel: 0300 790 6801 (Monday to Friday, 8am to 7pm www.gov.uk and between 8am to 2pm on a Saturday). Please remember to quote your full name, date of birth and/or driver number (if known), when telephoning. They will then send the appropriate medical questionnaire. Employment Useful links and contact numbers with regard to employment information. Diabetes UK’s Advocacy Service 0345 1232399 (MonFri 9am-7pm) Citizens Advice Bureau : www.citizensadvice.org.uk Tel: 03444 111 444 TextRelay users should call 03444 111 445 Human Rights Commission: www.equalityhumanrights.com Everyone Active The Exercise Referral scheme provides a 12 week tailor made package of exercise sessions, especially for people with, or at risk of developing health problems. Participants will work with their fully qualified instructors to develop an activity programme suitable to their conditions. To access the scheme, you need the support of a GP or other healthcare professional. Once a referral form is received, they will contact you with the time and date of your first appointment. There are fees for the scheme The independent champion for people who use health and/or social care services. They collect stories about using services, look for themes and give feedback to providers and commissioners. They provide information and signpost to health and wellbeing services with Well Aware Tel: 07825 033741 www.everyoneactive.com e mail: alistairmacfarlane@everyone active.com Bristol: www.healthwatchbristol.co.uk email: [email protected] Tel: 0117 2690400 The Care Forum The Vassall Centre Gill Avenue Bristol BS16 2QQ (www.wellaware.org.uk)) They offer advocacy services and support if you wish to complain about health and social care services. Health and Care Professions Council www.hcpc-uk.org Park House, 184 Kennington Park Road, London, SE11 4BU Tel: 0845 300 6184 Link Age Bristol This is a local website that gives details of lots of local activities by area such as arts & crafts, walking groups, cinema groups, and in addition services such as foot care all for the over 55’s. www.linkagebristol.org.uk Tel: 0117 3533042 Email: admin@linkagewestofengland .org.uk Local Library Your local library can be a very useful source of information for local activities and events. Local Support Bristol Diabetes Support Network A network of local groups for Website: www.diabetesbristol.org.uk people with diabetes, their friends and families in the Bristol area. In partnership with Bristol Community Health, Bristol Clinical Commissioning Group and Diabetes UK. Each group meets every other month. http://facebook.com/groups/ diabetesukbristol Tel: 0117 930 9986 [email protected] Bristol Central meets at venues around the city from around contact: [email protected] 17.45 – 19.45. Please check the website or Facebook page. Bristol East meets at the Beechwood Club, Beechwood Road, Fishponds BS16 3TR around 14.00 -16.00 Bristol South meets at Knowle West Health Park, Downton Road, Bristol BS4 1WH from 18.30 – 20.30 contact: [email protected] contact: [email protected] Bristol West Meets at Westbury on Trym Primary Care Surgery, contact: Westbury Hill Westbury on Trym [email protected] Bristol BS9 3AA. 14.00- 16.00 NHS 111 An online/telephone health service offering you advice and information. The telephone lines Website: www.nhs.uk search for 111 Telephone: 111 are open 24 hours a day for any health related enquiry. NHS Choices - Live Well www.nhs.uk/livewell Healthy eating/exercise information Search Healthy eating/exercise for information Podiatry If you think you have a problem with your feet you can be referred by your GP or contact the podiatry teams for advice. Bristol: Knowle Clinic, Broadfield Road, Bristol BS4 2UH Tel: 0117 9190275 Prepayment Certificates If you pay for your prescriptions you may find it more beneficial to purchase a prepayment certificate. You can obtain the details via your pharmacy, by telephone from the “prepayment certificate issue office” and you can organise payments over the phone or apply on line. Website www.nhsbsa.nhs.uk - select prescription certificates Retinal Screening Website Or via www.gov.uk (type in prescription prepayment) Tel: 0300 3301341 www.briscomhealth.org.uk/ou If you would like any further information regarding Retinal Screening, please contact the Bristol and Weston Diabetic Eye Screening Service r-services select Diabetic Eye Screening Tel: 0117 342 0888 E mail: BRCH.BristolDESPAppointments@n hs.net Stopping Smoking Bristol Provides free support if you want to stop smoking. Smokefree Bristol, Public Health, 3rd Floor, Clifton Wing, Brunel House, St George’s Road, Bristol, BS1 5UY. Website: www.smokefreebristol.com Tel: 0117 9222255 Travel Diabetes UK has information sheets about the availability of medication and equipment in other countries. Insulin travel wallets can be purchased from a company called “FRIO” that keep insulin Tel: 0345 1232399 Website: www.diabetes.org.uk (type in travel, select travel & diabetes UK) cool and safe whilst travelling. Tel: 01437 741700 Also available to purchase at the Website: www.friouk.com Diabetes UK website. Well aware Information on health and wellbeing services, support organisations, activities and groups in Bristol, South Gloucestershire, Bath & North East Somerset, North Somerset and Somerset www.wellaware.org.uk Tel: 0808 808 5252 Information Services at The Care Forum, The Vassall Centre, Gill Avenue, Fishponds, Bristol BS16 2QQ. Help Improve Services Your local NHS wants to improve services for people with diabetes. One of the ways they do this is to work with people with diabetes to find out from them how they feel services can be improved. We have people who take part in specific working groups, and we run focus groups to get feedback. If you would like to be involved in any of this work please contact: Matthew Areskog – Public Involvement Manager Tel: 0117 900 2638 E-mail: [email protected] Address: Bristol Community Health South Plaza, Marlborough Street Bristol, BS1 3NX Feedback We welcome your comments and feedback on how to improve this document and our education programmes. You can contact the Diabetes Education team at: [email protected] or Diabetes Education Manager Bristol Community Health John Milton Clinic Crow Lane Henbury BS10 7DP Tel: 0117 9598970 Any complaints should be put in writing to the Diabetes Education Manager at the above address. Disclaimer Bristol Community Health provides all information contained within this information pack in good faith and makes every effort to ensure that the information provided is accurate, informed by specialist expertise, and is up to date. The material within this folder is for information only and is not intended to be used for diagnosis, treatment, or as a substitute for medical advice. Always see your GP, Practice Nurse or member of your Diabetes Team if you have any healthcare questions or concerns. Bristol Community Health is not responsible for the contents or reliability of other websites or organisations and does not necessarily endorse the views expressed by them. Bristol Community Health may be listed on other organisations’ websites or in their publications however such listings should not necessarily be taken as an endorsement of these organisations by Bristol Community Health. We cannot guarantee that other organisations’ website page links will work all of the time and we have no control over the availability of linked pages. Material produced in this folder may only be reproduced by written permission of Bristol Community Health. All other material reproduced in this document is by permission from the copyright holders and may only be reproduced by permission from them. © Bristol Community Health January 2016 Notes Pages Notes Pages