Download A Guide to Pilgrims Therapy Centres

A Guide to Pilgrims
Therapy Centres
Wellbeing and Social Programme
There’s a misconception of hospices
as being frightening places, but now
I have experienced it for myself I will have
absolutely no hesitation in coming back
if I need more support.
Tony
I had always thought of hospices as
only being for those who needed
care at the very end of life but I could not
have been more surprised. I’ve had access
to support services, complementary
therapies and social activities. I feel more
balanced and safe.
Shelagh
Dad first came to the hospice just six
months after being diagnosed because
he needed expert help. They were able to
give him the right support to help to keep him
independent. The care for our family didn’t
end there, we were all offered support too.
Holly
2
HOW
TO TAKE
PART
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
Contents
About Pilgrims Wellbeing and Social Programme
page 4
Wellbeing and Social Programme page 6
Therapeutic Programmes
page 6
Creative Programmes
page 10
Social Programmes
page 11
Activity Calendar
page 12
Education Programmes
page 14
Carers Programmes
page 15
Bereavement Programmes
page 17
How Can I Access the Programme?
page 18
Frequently Asked Questions
page 20
Referral Information for GP’s and Healthcare Professionals
page 22
Contact Information
page 24
www.pilgrimshospices.org
3
Welcome
About Pilgrims Wellbeing and Social Programme
alongside your GP or healthcare
professional to help you identify the
best option for you. All the programmes
are flexible to allow you the right
This new Pilgrims programme is available support when you need it most.
for patients in east Kent who are in the
We can offer:
later stages of a life limiting illness and
their families. It aims to enhance their
• Therapeutic programmes: Our
wellbeing, in mind and body.
team of therapists run a range
Are you, or is someone close
to you, coping with a life
limiting illness?
The Wellbeing and Social Programme is
free for anyone who has been referred
by their GP or healthcare professional.
It is held at Pilgrims Therapy Centres in
Canterbury, Thanet and Ashford.
We know that having the support you
need can help you stay independent,
improve symptoms and make a
difference in enabling you to live
each day well.
What matters most to you?
These programmes have been designed
with you in mind. Each programme
is tailored to the individual. We work
4
HOW
TO TAKE
PART
of programmes to help you feel
better and do more. Many of the
sessions take place in one of our
therapy gyms, where you can
keep active and independent with
gentle exercises taught by these
therapists. Other sessions allow
you to learn medication-free ways
to manage your symptoms, such as
breathlessness and anxiety.
• Creative programmes: Music and
art are increasingly recognised
as having potential to enhance
individual wellbeing.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
• Social programmes: A chance to
meet and connect with other patients
and to gain an understanding of
the full range of Pilgrims services
available. These popular sessions
take place in a relaxed social
environment with practical advice
to enable you to maintain your
independence.
• Education programmes: Pilgrims
Advance Care Planning education
programme allows you to plan your
future care and share your wishes
with friends, family and healthcare
professionals involved.
Read on
This booklet aims to give you and
your GP or healthcare professional the
information you need to talk through
your options and decide on the right
programme of support for you.
Towards the back of the booklet you will
find information on how to be referred,
as well as giving you a few Frequently
Asked Questions.
We look forward to meeting you soon.
www.pilgrimshospices.org/wellbeing
[email protected]
• Carer programmes: We believe
family and friends play an essential
role in supporting patients. Pilgrims
Wellbeing and Social Programme
provides practical, emotional and
social support for carers. This support
extends into our bereavement
programme too.
I’m treated as an individual.
www.pilgrimshospices.org
5
Therapeutic Programmes
Wellbeing and Social Programme
Feeling Good Pamper Morning
Our qualified Pilgrims therapists offer a choice of
treatments that can promote relaxation, reduce stress
and improve self confidence when you are coping
with a life limiting illness. These include massage,
reiki, manicures, foot spas, facials and beauty
treatments. This is a very informal and relaxed session
and like all our sessions is free of charge.
i
Who it’s for
Patients, and
carers are
welcome.
When is it available?
Mon (am) Ashford
Fri (am) Canterbury
Tues (am) Thanet
How many sessions
are there?
This is a single three hour
session and a light lunch
will be provided.
Anxiety Management
and Relaxation
Worry and anxiety is common when you or
someone you support is coping with a life limiting
illness. It can affect our quality of life and ability
to cope. This supportive group is run by our
trained Pilgrims professionals. You will learn about
what anxiety is, and how you can manage it more
effectively in your life to promote relaxation and
find new ways of coping.
i
6
Who it’s for
Patients, and
carers are
welcome.
HOW
TO TAKE
PART
When is it available?
Tues (pm) Ashford
Mon (am) Canterbury
Tues (pm) Thanet
How many sessions
are there?
Four weekly sessions each
lasting two hours.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
Therapeutic Programmes
Energise Exercise Group
This group, held in the therapy gym, can help you
improve your quality of life and stay active through
exercise. We use gentle circuit training exercises
and full body workouts to strengthen your
cardiovascular fitness (stamina). The programme is
adapted to your individual needs and capability.
i
Who it’s for
Patients.
When is it available?
Weds (am) Ashford
Fri (am) Canterbury
Thurs (am) Thanet
How many sessions
are there?
Six sessions each
lasting an hour.
Breathlessness
Management Group
If you have the symptom of breathlessness, this
group can help to improve your quality of life.
The programme uses medication free methods of
Breathlessness Management, including controlled
breathing techniques. We will also help you
practice relaxation and anxiety management.
i
Who it’s for
Patients, and
carers are
welcome.
When is it available?
Mon (am) Ashford
Mon (pm) Canterbury
Tues (am) Thanet
My first experience of Pilgrims
Therapy Centre was to come for
a pamper day, it was lovely.
How many sessions
are there?
Three weekly sessions
each lasting an hour.
www.pilgrimshospices.org
7
Therapeutic Programmes
Oops a Daisy, Stop That Fall
Oops a Daisy, Stop That Fall is an educational and
exercise group for people at risk of falling. It involves
seated and standing exercises designed to strengthen
your legs and improve your balance. Together we
talk you through a range of topics and techniques for
falls prevention. You will also learn exercises you can
continue with at home, after you have completed
the programme.
i
Who it’s for
Patients.
When is it available?
Tues (am) Ashford
Thurs (am) Canterbury
Wed (am) Thanet
How many sessions
are there?
Eight weekly sessions
each lasting an hour.
Maintenance Gym Group
This group is for you if you have already attended
one of the other exercise groups and feel you
would like to continue with supervised exercise in
our therapy gym. Our team will be on hand to
give you guidance and advice. i
8
Who it’s for
Patients.
HOW
TO TAKE
PART
When is it available?
Fri (pm) Ashford
Wed (pm) Canterbury
Fri (pm) Thanet
How many sessions
are there?
Weekly sessions lasting
up to two hours.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
This is a seated exercise programme led by
physiotherapists. The aim of the group is to
strengthen, maintain movement and function.
The group is held in our therapy gym using a
range of exercise equipment. You will also learn
exercises you can continue with at home after
you finish the programme.
i
Who it’s for
Patients.
When is it available?
Thurs (am) Ashford
Tues (am) Canterbury
Mon (am) Thanet
Therapeutic Programmes
Sit Down, Get Fit,
Have Fun Exercise Group
How many sessions
are there?
Eight weekly sessions
each lasting an hour.
Fatigue Management Group
Fatigue can affect people in different ways. You
may feel an overwhelming tiredness or weakness,
or you might struggle to concentrate and find
everyday activities take much more effort than
usual. This group aims to help you and your carer
to understand these symptoms better, and
introduces you to a range of coping strategies so
you feel more in control.
i
Who it’s for
Patients, and
carers are
welcome.
When is it available?
Fri (pm) Ashford
Thurs (am) Canterbury
Tues (am) Thanet
How many sessions
are there?
Three weekly sessions
each lasting an hour.
The facilities are excellent.
www.pilgrimshospices.org
9
Creative Programmes
Music for Wellbeing
Music can be very powerful in affecting the way we
think, feel and act. It is increasingly recognised as having
the potential to support wellbeing in people with life
limiting illnesses. Pilgrims vibrant Music for Wellbeing
programme combines a range of singing and musical
techniques, supported by gentle physical and vocal
exercises. As well as a chance to express yourself and
enjoy some fun, the sessions can help you achieve
better relaxation in this calm environment. You can also
learn some simple breathing techniques to take home
too. No musical talent is necessary!
i
Who it’s for
Patients, and
carers are
welcome.
When is it available?
We will be in touch once a referral has been made.
Art for Wellbeing
Expression through art can powerfully improve
quality of life for people with a serious illness.
This varied programme gives you the opportunity
to experiment creatively and unwind in a relaxed
space. Being part of the group can also give you
a chance to socialise. Many of those who have
experienced the sessions tell us it has boosted
their self esteem and given them a new sense of
achievement and enjoyment. No artistic talent
is required!
i
10
Who it’s for
Patients.
HOW
TO TAKE
PART
When is it available?
Tues (am) Ashford
Wed (am) Canterbury
Mon (am) Thanet
How many sessions
are there?
Eight weekly sessions each
lasting up to two and a
half hours.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
Social Programmes
Day Hospice Group
A support group for patients with a life limiting illness.
Facing change and uncertainty can have an impact
on how you cope with your daily life and the future.
This structured 12 session programme can help you
to access a range of services in a relaxed, social
environment. You can take part in creative activities,
talk to our team of professionals and develop
new friendships with other group members. Our
experienced team can also give you practical advice
to help you manage your condition to maintain your
independence. Lunch is included.
i
Who it’s for
Patients.
When is it available?
Wed (10am-3pm) Ashford
Tues (10am-3pm)
Canterbury
Thurs (10am-3pm) Thanet
How many sessions
are there?
Twelve weekly sessions
each lasting up to
five hours.
Patient Pop-In
This relaxed and friendly group offers a chance
to meet and connect with other patients and
learn about other services on offer. The group is
supported by Pilgrims staff and volunteers. You can
drop in at any time during the session and bring a
family member if you want to. You will also have the
chance to look around the hospice if you wish.
i
Who it’s for
Patients, and
carers are
welcome.
When is it available?
Thurs (am) Ashford
Mon (pm) Canterbury
Mon (pm) Thanet
It is a joyful environment
and makes me feel very calm
and happy.
How many sessions
are there?
Alternate weekly sessions
each lasting up to
two hours.
www.pilgrimshospices.org
11
Activity Calendar
ASHFORD
CANTERBURY
AM
PM
AM
Breathlessness
Management Group
(weekly)
Advance Care Planning
(alternate weeks)
Feeling Good Pamper Morning
(every 3 months)
Anxiety Management &
Relaxation Group
(alternate weeks)
MON
Art for Wellbeing
(weekly)
Anxiety Management &
Relaxation Group
(alternate weeks)
Sit Down, Get Fit, Have Fun
Exercise Group
(weekly)
Oops a Daisy, Stop That Fall
(weekly)
Carers Skills Group
(alternate weeks)
Day Hospice Group
(weekly)
Day Hospice Group
(weekly)
Art for Wellbeing
(weekly)
Advance Care Planning
(alternate weeks)
Fatigue Management Group
(weekly)
Carers Wellbeing Group
(alternate weeks)
Oops a Daisy,
Stop That Fall
(weekly)
TUES
Day Hospice Group
(weekly)
WED
Energise Exercise Group
(weekly)
Sit Down, Get Fit, Have Fun
Exercise Group
(weekly)
THURS
Patient Pop-In
(alternate weeks)
Carers Café
(alternate weeks)
Maintenance Gym Group
(weekly)
FRI
Music for Wellbeing
(every 3 months)
12
HOW
TO TAKE
PART
Feeling Good Pamper Morning
(every 3 months)
Fatigue Management
Group
(weekly)
Energise Exercise Group
(weekly)
Music for Wellbeing
(every 3 months)
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
For details of our Bereavement Groups, we will be in touch once a referral has been made.
“I am so pleased to have found the care, support
and friendship I have at Pilgrims.”
THANET
PM
AM
PM
Art for Wellbeing
(weekly)
Patient Pop-In
(alternate weeks)
Sit Down, Get Fit, Have Fun
Exercise Group
(weekly)
Carers Café
(alternate weeks)
Breathlessness Management
Group (weekly)
Patient Pop-In
(alternate weeks)
Carers Café
(alternate weeks)
Fatigue Management Group
(weekly)
Day Hospice Group
(weekly)
Feeling Good Pamper Morning
(every 3 months)
Maintenance Gym Group
(weekly)
Carers Wellbeing Group
(alternate weeks)
Breathlessness
Management Group
(weekly)
Oops a Daisy,
Stop That Fall
(weekly)
Anxiety Management &
Relaxation Group
(alternate weeks)
Advance Care Planning
(alternate weeks)
Carers Skills Group
(alternate weeks)
Carers Wellbeing Group
(alternate weeks)
Day Hospice Group
(weekly)
Day Hospice Group
(weekly)
Carers Skills Group
(alternate weeks)
Energise Exercise Group
(weekly)
Maintenance Gym Group
(weekly)
Music for Wellbeing
(every 3 months)
KEY
Therapeutic programmes
Creative programmes
Social programmes
Carers programmes
Education programmes
13
Education Programmes
Advance care planning: Planning for the Future
When you have a life limiting illness, it is
important to consider your preferences
for future care and share these wishes
with friends, family and the healthcare
professionals involved. This process,
known as ‘Advance Care Planning’,
helps you plan for end of life and
supports you to live well in the moment.
14
i
ho it’s for
W
Patients, and
carers are
welcome.
HOW
TO TAKE
PART
Pilgrims Advance Care Planning session
talks you through this, and shares some
important documents to be aware of.
It will also give you ideas for how to
express your preferences and wishes
to those that need to know.
When is it available?
Thurs (pm) Ashford
Mon (am) Canterbury
Tues (pm) Thanet
How many sessions
are there?
This is a single session
lasting up to two hours.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
Carers Programmes
If you are a carer of a hospice patient,
Pilgrims Carers programmes are
designed to support you with the
practical and emotional issues you
may experience.
Many people who give unpaid care or
support for a friend or family member
approaching the end of life do not think
of themselves as a carer, but the support
you provide is vital.
Caring can have positive and rewarding
aspects, at the same time there are lots
of reasons why caring can leave you
needing support.
You may not always consider your
own needs or be aware of the help
that’s available.
At Pilgrims we recognise that carers
play an essential role in the journey of
our patients and believe you should be
supported throughout this.
If you would like to attend one of the
carer programmes but may worry about
the person you care for being on their
own turn to page 20 for details of how
we can help with this too.
A truly caring, family atmosphere,
the group means a lot to me.
www.pilgrimshospices.org
15
Carers Programmes
Carers Wellbeing
This group aims to reduce the sense of isolation of
being a carer. It offers a supportive environment for
you to discuss and explore how it feels to be a carer.
We look at how caring can affect your emotions and
mood. The sessions also focus on the importance
of self care and gives you some techniques to try
to reduce the impact of caring on your own health
and wellbeing.
i
Who it’s for
Carers of Pilgrims
patients are
invited to attend.
When is it available?
Thurs (pm) Ashford
Thurs (pm) Canterbury
Wed (pm) Thanet
How many sessions
are there?
Four sessions on
alternate weeks each
lasting two hours.
Carers Skills
This practical programme is aimed at empowering
carers through information and interaction,
delivered by members of the hospice team and
dedicated volunteers. Sessions include: practical
support with equipment and maintaining a
patient’s independence; financial information;
understanding some common symptoms,
nutrition and planning ahead.
i
16
Who it’s for
Carers of Pilgrims
patients are
invited to attend.
HOW
TO TAKE
PART
When is it available?
Tues (pm) Ashford
Thurs (pm) Canterbury
Wed (pm) Thanet
How many sessions
are there?
Five sessions on alternate
weeks each lasting two hours
These
To
joinprogrammes
our programmes
are run
your
forGP
carers
or healthcare
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professional
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need toturn
Please
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Carers Programmes
Carers Café
The aim of the Carers Café is to provide a safe and
social space for carers to meet and develop peer
support and coping strategies with fellow carers.
Carers will have the opportunity to discuss the full
range of services provided by the hospice and in the
wider community including health, social care and
voluntary organisations.
Who it’s for
Carers of Pilgrims
patients are
invited to attend.
When is it available?
Thurs (am) Ashford
Mon (pm) Canterbury
Mon (pm) Thanet
How many sessions
are there?
Sessions run on alternate
weeks, each lasting
two hours.
Bereavement Groups
Although grieving is a natural response to the death
of someone close, it can by very distressing and
traumatic. Many people need extra support to get
through this time. Our Bereavement Groups offer
support for the whole family and close friends of
those who have died while receiving end of life care
from Pilgrims.
Supported groups allow people to talk about feelings
and share experiences in a confidential setting. We
also find people benefit a great deal from meeting
others going through a similar experience.
i
Who it’s for
Bereaved carers of
hospice patients
invited to attend
by letter.
Bereavement Programmes
i
When is it available?
We will be in touch once a
referral has been made. Going to the group has helped
me to think about the future. I’m
feeling much more in control.
www.pilgrimshospices.org
17
18
To find out more
the programme
email
To joinabout
our programmes
youryou
GP can
or healthcare
professional will
[email protected].
To
read
this
need to refer you. Please turn to page more
18 to about
find out
more.
and Pilgrims wide range of services visit www.pilgrimshospices.org
How can I access the programme?
I am a patient or carer – how do I access the Pilgrims
Therapy Centres Wellbeing and Social Programme?
1
2
3
The first step – talk
to your GP
Selecting the right
programme for you
The first step is to talk
to your GP or healthcare
professional. They can
advise if you are at the
appropriate stage of
your illness to access
the service.
Everyone’s needs
are different so we
encourage you to talk this
through with your GP or
healthcare professional to
find the right support for
you. The Pilgrims team
can also help by looking
at your individual needs
once the referral has
been made. What happens next?
Once we have received
a referral you will be
contacted by a member
of the Pilgrims Therapy
Centre team to discuss
the next steps. At this
stage you will be able
to ask further questions.
“I had to experience Pilgrims services to see what was offered
and it’s changed my point of view. I’m not treated as though
I’m fragile because of my illness – I’m treated as an individual.”
www.pilgrimshospices.org
19
Frequently Asked Questions
Who can access the Wellbeing
and Social Programme?
However at certain times the car parks
can be very busy.
This service is for people who are in
the later stages of a life limiting illness
and their carers. Your GP or healthcare
professional will then be able to advise
as to whether you are at the appropriate
stage to access the service. See page
18 for more details.
What access and facilities are available
for people with a disability?
Where does the Wellbeing and Social
Programme take place?
I am a carer and would like to attend a
carer event but may worry about the
person I care for being on their own.
Can you help?
At Pilgrims Therapy Centres located
at our three main hospice buildings in
Canterbury, Ashford and Thanet. How do I get to the Pilgrims
Therapy Centre?
Most patients and carers arrange their
own transport wherever possible. If you
do not have access to transport please
ask, we have a small team of volunteer
drivers who may be able to help. Please
discuss this with us as soon as possible,
especially if you have difficulty getting
in and out of a car.
Is there free parking?
Yes there is free parking at each site.
20
HOW
TO TAKE
PART
Accessible parking is available alongside
each of the main hospice buildings.
Guide dog and assistance dog owners
are welcomed. Each site also has facilities
and full access for people with a disability.
We work very closely with other local
carers organisations, such as Crossroads
Care and Carers Support, who may be
able to arrange specific support for you.
We will be happy to help you make these
arrangements, which will need to be
planned in advance.
Will there be any refreshments
available?
Each hospice has a small cafe area
where you can buy a selection of light
refreshments. Hot and cold drinks are
always available free of charge.
To join our programmes your GP or healthcare professional will
need to refer you. Please turn to page 18 to find out more.
I take regular medication each day –
what should I do?
You will need to bring in all your own
medication that you normally take during
the day. This includes any additional ‘top
up’ medications for nausea or pain that you
may sometimes need to take in addition to
your normal medications. They remain your
property and responsibility while you are
with us. We cannot supply any medication
to attendees at our programmes.
I may need help with some aspects
of personal care while I am attending
Pilgrims Therapy Centre. Can someone
help me?
Our team will be available to support your
needs while you are with us.
Can I smoke?
Pilgrims Therapy Centres are smoke-free
with the exception of a smoking shelter in
each of the grounds which you can use if
considered medically fit to smoke alone.
Can I use the internet?
Free WiFi is available at all of our centres. What does it cost to use the service?
All of our services are provided to
patients and carers free of charge. As
an independent charity, we are largely
dependent on the generosity of the local
community to fund our services. Turn to
the back page to read more.
to a particular Pilgrims group
or programme you will have the
opportunity to come for a certain number
of sessions, many of which take place
weekly. If you miss a week, or a session,
you can simply join us next time until
you have completed the programme. If
you feel unwell before you attend please
remain at home and contact your GP or
other healthcare professional if needed.
If you feel unwell while you are
attending, please talk to a member of
the Pilgrims team.
Do I need a cancer diagnosis to use
Pilgrims services?
No. Anyone in the later stages of a life
limiting illness can be referred. See page
18 for more information on how to access
the services.
Can I speak to anyone at Pilgrims
before I begin the programme?
Before starting your programme at the
Pilgrims Therapy Centre you will be
contacted by one of the team for an
initial assessment. This may be by
phone, or you may be invited in for an
appointment. This will give you a chance
to ask any questions you or your carers/
family may have.
For more information
Visit www.pilgrimshospices.org or email
[email protected]
What if I feel unwell before I attend?
We understand that how you feel may be
different day to day. When you are referred
www.pilgrimshospices.org
21
22
To see our full
criteria
or make a referral
please
visit
To join
our programmes
your GP
or healthcare
professional will
www.pilgrimshospices.org/referral
or
you
can
email
need to refer you. Please turn to page 18ustowith
find out more.
queries at [email protected]
Information for GPs and
healthcare professionals
The referrals process
The programme is for people with
a life limiting illness thought to
be in the last year of life, and with
specialist palliative care needs. It offers
patients and their carers support to
live well in mind and body through
a range of programmes including
physical, psychological, spiritual and
social support. If an individual may
benefit from more than one of the
programmes please mention this on
the referral form.
You can find Pilgrims full referral
criteria and an electronic form at
www.pilgrimshospices.org
Please ensure that the referral has
been discussed with the patient
and is aware that Pilgrims will be
making contact.
Only family and friends of patients who
have been referred to Pilgrims services
may access the carer programmes.
www.pilgrimshospices.org
23
About Pilgrims
Pilgrims Hospices was established 33 years ago and has gone on to touch
the lives of one in four people in east Kent.
made possible because of the support
we receive from our hugely generous
community.
Our charity’s vision is of a community
where people across east Kent with a
terminal illness and their families are
supported to live well in mind and body
when they need us.
Whether through donations,
fundraising, supporting our shops,
leaving a legacy, playing our lottery,
volunteering or participating in one of
our events – every act of kindness from
you helps us to give our care where and
when it’s needed which provides an
amazing 77% of our income.
We have an extensive range of services
available free of charge.
Most people know about the care
Pilgrims nurses and specialists offer
24/7 to patients on our wards – less
talked about is the support that our
team gives in people’s own homes,
in the community and through our
Pilgrims Therapy Centres Wellbeing
and Social Programme. All of this is
pilgrimshospices 56 London Road,
Canterbury, Kent
CT2 8JA
Connect with your local fundraising team
at [email protected]
or www.pilgrimshospices.org
@PilgrimsHospice
Hythe Road, Willesborough
Ashford, Kent
TN24 0NE
Ramsgate Road,
Margate, Kent
CT9 4AD
Pilgrims Hospices in East Kent is a company limited by guarantee. Registered office 56 London Road, Canterbury CT2 8JA.
Registered charity no 293968 and as a company in England no 2000560. Published August 2016.
www.pilgrimshospices.org
[email protected]