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Health Information of Portuguese Population:
Health knowledge & Perceived Quality and
Accessibility of Health Information Sources
HARVARD MEDICAL SCHOOL PORTUGAL
FUNDAÇÃO PARA A CIÊNCIA E A TECNOLOGIA
(Proj: HMSP-IISE/SAU-ICT/0004/2009 )
Henrique de Barros
Isabel do Carmo
Nuno Lunet
Osvaldo Santos
Pedro Alcântara
Pedro Moura Ferreira
Susana Silva
Villaverde Cabral
HMS Program
• Providing health information to portuguese
population
• Assessing the efectiveness of HMS health
education actions
Goals
• To get a baseline dataset about health-related
knowledge of portuguese population
• To identify health information sources
perceived as most accessible and reliable
• To assess the effectiveness of the HMS health
contents web-based products in promoting
more health-related knowledge
Design
• Part I.a) Development of a questionnaire for assessing health
knowledge, health information sources and psychosocial indicators
•
•
Qualitative approach
Data collection method: focus groups with experts in these health fields
• Part I.b) Survey about health knowledge and health information
sources
• Observational, cross sectional, and descriptive study
• Survey with face-to-face administration of the previously developed questionnaire.
• Parte II Assessing the impact of HMS health information actions
(through website) on health knowledgegains
• Semi-experimental design
• Test-retest (same instrument) within minimum of one year period
• Controled study (exposure vs non-exposed to HMS contents)
Part I.a – Questionnaire development
• Qualitative approach to define dimensions and items for the
questionnaire (content validity) about:
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•
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Obesity (including childhood obesity)
Diabetes
Cardiovascular diseases
Cancer
Prevention
Causes
Treatment
Prognosis
• 10 Focus Groups (theoretical sampling)
• 2 F-G with health professionais (medical doctors from different especializations, nurses,
pharmacists, nutritionists, exercise-fisiologists, psychologists, …)
• 2 F-G with patients (suffering from the pathoogists under study)
• 6 F-G with general population (young adults, adults, elderly)
• Individual cognitive interviews to assess how each item is understood by
people and questionnaire burden
• Pre-test of the questionnaire (10 to 20 persons, stratified by gender and
age groups)
Questionnaire (dimensions)
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•
•
•
•
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Self-perception of general health status
Chronic diseases
Lifestyle / health behaviors
Health behavior motivacional determinants
Main sources of health information
Health literacy
Health-related knowledge (about obesity, diabetes,
cardiovascular diseases, and cancer)
Part I.b Survey
• Population-based survey
• Multi-stage area sampling:
• For each NUTS II, parishes (geog. units with at least 3 000 inhabitants) are
selected randomly (with a probability proportional to their size)
• Same number of interviews by parish
• Random Route sampling of households
• Interviewees: last person celebrating birthday among the household residents
• Sample: representative of continental portuguese (noninstitutionalised) population, by:
• gender
• age groups (between 16 and 79 years old)
• geographical areas (NUTS II)
• Sample size: 2 000 participants
Parte II
• Semi-experimental controlled prospective study
• Sample: subset of the 2000 participants cross-sectional sample
• Including those who are willing to participate in the prospective study
• Estimated proportion: 40%  800 participants
• Two assessment moments:
• T0: when recruting the participants
• T1: after one year
• Two groups:
• Exposure group: regular invitation to visit HMS website contents;
• Control group: no regular invitation to visit HMS website contents
• For both groups, degree of exposure is controled by:
• number of access/hits in the HMS website
• duration of consultation inside the website
Project team
• ICS – Instituto de Ciências Sociais.
• 3 sociologists
• SEDM - Serviço de Endocrinologia, Diabetes e
Metabolismo (FML)
• 1 medical doctor and 1 psychologist
• Serviço de Higiene e Epidemiologia (FMP)
• 3 epidemiologists