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Health Information of Portuguese Population: Health knowledge & Perceived Quality and Accessibility of Health Information Sources HARVARD MEDICAL SCHOOL PORTUGAL FUNDAÇÃO PARA A CIÊNCIA E A TECNOLOGIA (Proj: HMSP-IISE/SAU-ICT/0004/2009 ) Henrique de Barros Isabel do Carmo Nuno Lunet Osvaldo Santos Pedro Alcântara Pedro Moura Ferreira Susana Silva Villaverde Cabral HMS Program • Providing health information to portuguese population • Assessing the efectiveness of HMS health education actions Goals • To get a baseline dataset about health-related knowledge of portuguese population • To identify health information sources perceived as most accessible and reliable • To assess the effectiveness of the HMS health contents web-based products in promoting more health-related knowledge Design • Part I.a) Development of a questionnaire for assessing health knowledge, health information sources and psychosocial indicators • • Qualitative approach Data collection method: focus groups with experts in these health fields • Part I.b) Survey about health knowledge and health information sources • Observational, cross sectional, and descriptive study • Survey with face-to-face administration of the previously developed questionnaire. • Parte II Assessing the impact of HMS health information actions (through website) on health knowledgegains • Semi-experimental design • Test-retest (same instrument) within minimum of one year period • Controled study (exposure vs non-exposed to HMS contents) Part I.a – Questionnaire development • Qualitative approach to define dimensions and items for the questionnaire (content validity) about: • • • • Obesity (including childhood obesity) Diabetes Cardiovascular diseases Cancer Prevention Causes Treatment Prognosis • 10 Focus Groups (theoretical sampling) • 2 F-G with health professionais (medical doctors from different especializations, nurses, pharmacists, nutritionists, exercise-fisiologists, psychologists, …) • 2 F-G with patients (suffering from the pathoogists under study) • 6 F-G with general population (young adults, adults, elderly) • Individual cognitive interviews to assess how each item is understood by people and questionnaire burden • Pre-test of the questionnaire (10 to 20 persons, stratified by gender and age groups) Questionnaire (dimensions) • • • • • • • Self-perception of general health status Chronic diseases Lifestyle / health behaviors Health behavior motivacional determinants Main sources of health information Health literacy Health-related knowledge (about obesity, diabetes, cardiovascular diseases, and cancer) Part I.b Survey • Population-based survey • Multi-stage area sampling: • For each NUTS II, parishes (geog. units with at least 3 000 inhabitants) are selected randomly (with a probability proportional to their size) • Same number of interviews by parish • Random Route sampling of households • Interviewees: last person celebrating birthday among the household residents • Sample: representative of continental portuguese (noninstitutionalised) population, by: • gender • age groups (between 16 and 79 years old) • geographical areas (NUTS II) • Sample size: 2 000 participants Parte II • Semi-experimental controlled prospective study • Sample: subset of the 2000 participants cross-sectional sample • Including those who are willing to participate in the prospective study • Estimated proportion: 40% 800 participants • Two assessment moments: • T0: when recruting the participants • T1: after one year • Two groups: • Exposure group: regular invitation to visit HMS website contents; • Control group: no regular invitation to visit HMS website contents • For both groups, degree of exposure is controled by: • number of access/hits in the HMS website • duration of consultation inside the website Project team • ICS – Instituto de Ciências Sociais. • 3 sociologists • SEDM - Serviço de Endocrinologia, Diabetes e Metabolismo (FML) • 1 medical doctor and 1 psychologist • Serviço de Higiene e Epidemiologia (FMP) • 3 epidemiologists