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MENTAL HEALTH CARE FOR HISPANICS WITH CHRONIC HEALTH & TERMINAL CONDITIONS ANTONIO N. PUENTE GEORGE WASHINGTON UNIVERSITY & ANTONIO E. PUENTE UNIVERSITY OF NORTH CAROLINA WILMINGTON National Hispanic Medical Association Washington, DC 05.05.17 Hispanics in the U.S.  Any individual with Spanishspeaking background  Central and South America, Mexico, and Spain Share of the Total Change of the U.S. Population between 2000 and 2012 6%  53 million individuals 16% Hispanic White  11 million undocumented Hispanic immigrants Black 55% 15% Asian Other  Hispanics are the largest minority 8% group  17% of the US population Source: Pew Research Center, 2009; U.S. Census Bureau, 2014 Hispanic Population in the US  Hispanic population – a key driver of US population growth since at least 2000  In 2014 55.4 million or 17.4% US Census data Defining Culture & Appreciating the Universal and the Indigenous  Dictates the way in which a group of individuals live  Sharing beliefs and practices to physically and socially survive  Allows for an individual to identify with a particular group  Sharing common ideas, purposes, and social norms, such as religion, economics and politics  Dictate what is important for survival and what is crucial in the development and use of specific cognitive and behavior skills. Culture & Acculturation  Adaptation of an individual to a new culture through prolonged contact - learning language, values, & cognitive style  Impact construct validity more than true population differences  Relevance to patient; consider daily routine & life experiences  Outcomes may misclassify neurocognitive skills  Spanish-speakers tend to underperform on non-verbal measures  No test or intervention is free of cultural or educational influences Complexities Hispanics/Latino/a s ARE NOT THE SAME Healthcare Disparities With Hispanics  Access to Mental Health services for Hispanics is limited  Majority of professionals are unable to provide clinical care in Spanish or another language of origin than English  Lack of well normed, appropriately translated tools  Major disparities exist particularly within the sub-specialty of health and neuropsychology  Available empirical knowledge to support the science and practice with ethnic groups has not kept pace with demographic shifts Educational Issues  Some countries have standards & regulations  Many small towns & cities in Central & South America do not  Poverty, limited academic resources (i.e., few or no textbooks), & few or no qualified instructors  Elementary level of education  Poor attendance; academic advancement by age  High relevance - lower end of continuum Socio-economic Status  Income, education, & occupation  Both SES & relative deprivation affect health  HS completion: Cuban 80%, Puerto Ricans 74%, Mexicans 54%  BA/BS: Cuban-Americans three times the rate of Mexican Americans  Hispanic children more likely to have parents with lower education & less likely to use a computer  Income disparities persist at every level Linguistic Issues  Difficult task because of the linguistic and cultural diversity of this population  Over 20 Spanish-speaking nations represented in the U.S.  Get categorized together because they have the Spanish language in common  Each Spanish-speaking country have their own distinctions regarding customs, words, and expressions Bilingualism  35 million (74%) ages 5 & over speak Spanish at home  “Spanglish” borrowing & code-switching  Screen for level of mastery; dominant language assessment: most valid results  Comparison against American norms if in reference to Englishlanguage environment; both languages (e.g., aphasia)  The challenge of self-report Language Complexities  Tacos  Pinche  Molinillo Assessment & Intervention Practices for Spanish-speakers  Practices have not matched demographic expansion  Problems with translations, cultural adaptations, reliability & validity  In-house translations & poor use of available tools Clinical Interview & Observation  Determine language dominance      Country of origin Initial language exposure Language spoken at home, school/work & socially Music, television programs and/or books read Individual’s preference - caution  Asking questions in both languages; rate speed, length & quality Practical Concerns for the Assessment & Intervention of Hispanics  Bilingual vs. Bicultural  Between Hispanic Subgroup Variability  Translators & Translations  Accommodation VS. Modification Positive Interpretation of Illness by Hispanics  Appreciation of the role of the “doctor”  Acceptance of a social unit, especially the family, in health care  Compliance as acceptance of authority  The concept that illness could be leave  Good social skills and cognition in the ”grey” areas of disease and medicine Hispanics Interpretation of Chronic & Terminal Conditions  Often interpreted as either mystical (e.g., Santeros in Cuba) or religious (e.g., God’s will)  Misunderstanding or mistrust of the medical/health professional and process  Poor appreciation of complex compliance  Limited appreciation of the role of lifestyle and stress with health and disease Summary  Hispanics are not all alike  Differences involve more than linguistic differences  Limited personnel and knowledge base  Hispanics interpret chronic conditions differently  Terminal situations are often interpreted in mystical and/or religious terms  Clinician should place themselves in the position of the patient to understand and guide them through the assessment and intervention process Resources  American Psychological Association  Ethical Standards for Psychologists  Standards for Educational and Psychological Tests & Assessments  Guidelines on Multicultural Education, Training, Research, Practice, and Organizational Change for Psychologists  Available book chapters & articles  www.antonioepuente.com GRACIAS! PREGUNTAS? [email protected] antonioepuente.com