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TALKING POINTS & OTHER INFO Bill to authorize coverage of ostomy supplies by all major health insurance policies in New York State Title: Ostomy Supply Bill: An act to amend the insurance law, in relation to authorizing insurance coverage for equipment and supplies used for the treatment of ostomies. Senate Bill Number: S5937 Introducer: Senator Dave Valesky, District 53, Syracuse, NY. 333 East Washington St., Room 805, Syracuse, NY 13202. [email protected]. 518 455-2838. Assembly Bill Number: A8137 Introducer: Assemblyman William B Magnarelli, District 129, Syracuse, NY. 333 East Washington St., Room 840, Syracuse, NY 13202. [email protected]. 518 4554826. Other Keyplayers: Senator James Seward (District 51; Cortland, Oneonta, Richfield). 41 S. Main St., Oneonta, NY 13820. [email protected]. 518 455-3131. He is the chair of the Senate Insurance Committee. Assemblyman Kevin Cahill (District 103; Kingston). Governor Clinton Building G-4, 1 Albany Ave. Kingston, NY 12401. [email protected]. 518 455-4436. He is the chair of the Assembly Insurance Committee. Assemblyman Sheldon Silver (District 65; Manhattan). 250 Broadway, Suite 2307, New York, NY 10007. [email protected]. 518 455-3791. He is the Speaker of the Assembly. To contact your local representative: For the Senate: Go to nysenate.gov , under “Find my senator” For the Assembly: Go to assembly.state.ny.us , clicking on “Assembly Members.” WHY IT IS NEEDED 1. Ostomy surgery is necessitated by a number of different conditions including inflammatory bowel disease, cancer, birth defects and injury. People of all ages can be affected; babies, children, and adults. The surgery involves the removal of all or part of the bowel or bladder and the formation of an uncontrolled surgical opening: a colostomy, ileostomy, or urostomy. Availability and coverage for ostomy supplies is crucial. 2. The cost of supplies are not covered by every policy: Not all ‘private’ major medical insurance policies cover the cost of the supplies that are needed after ostomy surgery. United Healthcare policies, for example, often cover the surgery but do not cover ostomy supplies unless the employer buying the insurance specifically both requires it and pays more for it. Even some New York State-sponsored programs cover the surgery but not the supplies! This includes Family Health Plus and Child Health Plus that are specifically for families with low income but who do not quite qualify for Medicaid. Healthy New York, a statesponsored program for small businesses, also does not cover ostomy supplies. Health Care Exchanges (AKA “Obamacare”): The requirements for coverage by health exchanges are written in terms of very general coverage categories (termed Essential Benefits) such as ‘hospitalization’. We very much hope that ostomy will be covered, but cannot be sure that will be the case. It appears that such detailed specifics of coverage on the exchanges will not be known until the New York exchange goes ‘live’ on October 1, and then it will be necessary to choose a specific plan within one’s specific county of residence to get exact details of coverage. We have been told that the intention is to cover ostomy supplies but this will not be known till then at the earliest, and the level of coverage will almost certainly still be unclear. In the light of such uncertainty and the fact that a large proportion of people will still be insured through their (or a family member’s) employer-sponsored insurance which will not be subject to the ‘essential benefits’ requirements, we cannot afford to leave it to individual insurers to decide whether ostomy supplies should be covered. Curiously enough, coverage of diabetic supplies is mandated. Why not ostomy supplies? 3. Covering the cost of ostomy supplies ultimately SAVES costs: The cost of one outpatient visit to a hospital, especially to the ER, would far exceed the costs of ostomy supplies for a significant period. Of course any complication requiring hospitalization would cost the equivalent of years of ostomy supplies. Lengths of stay are extended when patients have skin breakdown (leading perhaps to infection) or are unable to be discharged because of a lack of supplies. Home care agencies’ length of care time may also be extended with lack of supplies, or more frequent visits may be required, leading to greater expense. Patients may also experience extended stays at rehab facilities if appropriate supplies are not available. 4. Quality of life and productivity are negatively impacted. Patients may experience uncontrolled leakage and severe skin problems, the treatment of which is likely to cost considerably more than the cost of suitable products. Social nonacceptance, isolation, loss of work, loss of productivity, loss of income, and depression may ensue. Caregivers may also experience loss of productivity in caring for someone with an out of control ostomy. Not having the proper supplies can make the difference between a return to normal life, function, and productivity, and social isolation for both patients and families.