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Developing ActiveME Louise Wilson Network delivery manager Northern Clinical Networks & Senate Whistle stop tour of building an app • How we developed the ActiveME app • What we learnt • Some things to think about if you have an app idea The ActiveME Story • A smartphone app for people with CFS/ME to record and report their activity and energy levels • ActiveME based on well established ‘paper and crayons’ tool widely used by patients and clinicians and pioneered by Dr Esther Crawley from RNHRD, Bath Next steps • Tendered for a technical partner • Fine tuned the project brief – – – – • • • • • • • • Where data is stored (all on the user’s phone) What platform (Apple first) Whether to integrate with other apps (not yet) How much to charge (£1.49) Phoned NHS Innovations North for help with the IP Indigo turned the brief into a prototype Gave it a name! Almost launched… Independent user testing Almost launched… Scary café moment Independent legal advice, profit sharing and SLA LAUNCHED! Live on Apple App Store in January 2012 Promoting the app • • • • Postcards NHS comms team support Patient group story features Live on NHS App Store Story so far • 1642 downloads from around the world • Good feedback about the benefits to people with CFS/ME • Improved communication between clinical team and person with CFS/ME • Plans to develop Android version • Won the 2012 NHS Innovations North Bright Ideas in Health technology category What we learnt • The content is everything (but design important too) • Patient involvement and clinical leadership from the start • It took us longer than we expected (and cost more) • Good to learn from other people’s experiences • App building requires determination • App building does not require loads of technical skills • App building is lots of fun! If you think an app is the answer… • • • • • • • Be clear about the problem you want to solve Is there already an app that does it? Write it down on a side of A4 Protect your IP Have lots of conversations about it How much will it cost? How much will it earn? Is it a medical device? If you think an app is the answer 2 • Keep having conversations and write it down on a side of A4 (again) • Find a tech developer to work with • User testing, medico‐legal disclaimers • Marketing and launch • AFTER you go live…. Maintenance, reviews, improvements and fixes • Keep having conversations! Thank you • [email protected] • 0113 8253016 • www.cfsmenorth.nhs.uk Acknowledgements Esther Crawley, Mark Gibson, Andrew Graney and Dan from Indigo, Caroline Grayson, CFS/ME Clinical Network, NHS Innovations North and everyone living and working with CFS/ME trying for better outcomes and better experience.