Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey EVALUATION COMMITTEE 25April2003 -- SH Weiss, S Collini 1 The Evaluation Committee’s Web Site Is Located At: www.umdnj.edu/evalcweb/ 25April2003 -- SH Weiss, S Collini 2 Caveat/Disclaimer: This document reflects a "work in progress." It is meant ONLY as a general guide and overview to some of the many dynamically evolving implementation issues related to the CCCP. This particular set of "slides" includes issues related to the Task Force Workgroups and interactions with OCCP etc, and the new “County Evaluators for the CCCP” for which the 25 NJ CEED programs are receiving NJDHSS funding related to the CCCP objectives. 25April2003 -- SH Weiss, S Collini 3 Evaluation Committee Chair: Stanley H. Weiss, M.D. [email protected] The evaluation committee is part of the Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey This committee will provide some overall guidance to the CE/CCCP and Workgroups Evaluators and Workgroups will report to the OCCP and Peg Knight, who will Synthesize their reports and Relay them to Dr. Weiss and to the Task Force for further assessment 25April2003 -- SH Weiss, S Collini 4 Evaluation Committee Will Also: Consolidate input from evaluation activities both within NJDHSS and external sources, including the county evaluators for the CCCP (CE/CCCP) Seek input from the re-formulated Task Force Workgroups Provide feedback to the Task Force 25April2003 -- SH Weiss, S Collini 5 So, Where Does Everyone Fit in? 25April2003 -- SH Weiss, S Collini 6 Administrative Matrix for CCCP: Who Reports to Who? Task Force Office of the Governor NJDHSS Cancer Registry NJLINCS & Local Health Officers OCCP State NJ CEED Office CINJ – Comprehensive Cancer Center American Cancer Society Battelle Centers for Public Health Research and Evaluation Exec. Director: Peg Knight 25 CEED CE/CCCP on Cancer Prevention, Early Detection and Treatment in NJ Chair: A. Baskies Evaluation Committee Chair: S. Weiss Workgroups – responsible for each cancer/area (8) and key over-arching issues NCI/CDC UMDNJ-NJMS Evaluation UMDNJ-SPH Training S. Weiss (PI) S. Weiss (PI); M. Sass (Co-PI) 25April2003 -- SH Weiss, S Collini 7 Collaboration and Data Exchange Matrix for CCCP Dotted Line: Interaction/Collaboration between two entities Task Force Office of the Governor on Cancer Prevention, Early Detection and Treatment in NJ Chair: A. Baskies NJDHSS Cancer Registry State NJ CEED Office OCCP NJLINCS & Exec. Director: Peg Knight Local Health Officers CINJ – Comprehensive Cancer Center American Cancer Society Arrow: Direction of Data Flow 25 CEED CE/CCCP Evaluation Committee Chair: S. Weiss Workgroups – responsible for each cancer/area (8) and key over-arching issues NCI/CDC Battelle UMDNJ-NJMS Evaluation UMDNJ-SPH Training S. Weiss (PI); M. Sass (Co-PI) 25April2003 -- SH Weiss, S Collini S. Weiss (PI) 8 TASKS for the Workgroups 1. Need to review CCCP and the deadlines set forth in the plan. Are those deadlines realistic today? Will they need to be adjusted? How will they be adjusted? 2. Look at their section of plan critically and what has been completed and what has not? 25April2003 -- SH Weiss, S Collini 9 Workgroup Tasks (Cont) 3. Workgroups will also need to start working with County Evaluators (CEs) for the CCCP to identify cancer resources throughout the state for their specific cancer site. Information on how to contact each Workgroup will be provided to CEs. 4. Make contacts with other Workgroups in areas relevant to their cancer site. Note: The overarching Work Group has been formally split into its constituents: Access and Resources, Advocacy, Palliation, Nutrition and Physical Activity, and Childhood Cancer. 25April2003 -- SH Weiss, S Collini 10 Workgroup Tasks (Cont) 5. 6. Review the administrative and collaboration matrixes and realize their role going forward. Provide OCCP and Task Force with updates… 25April2003 -- SH Weiss, S Collini 11 Tracking Progress in the Workgroups Battelle Centers for Public Health Research is working on developing an electronic tracking system that each Workgroup is to use under the direction of the Workgroup chair or appointee. A draft version is explained in the attached Word document, it should be used with appropriate goal/objective/strategy, names and numbers – replacing those in the draft. These should be modified by each Workgroup so as to create one form for EACH strategy. To modify, simply make a copy and type in the goal/objective/strategy from the CCCP. 29April2003 -- SH Weiss, S Collini 12 Tracking Progress in the Workgroups You should use these immediately for gathering data. If and when more sophisticated electronic versions to capture this information are developed, these will be provided to the Workgroups. On a bi-monthly or quarterly basis, the OCCP requests that each Workgroup provide an update. First updates desired by OCCP during June 2003. See example……. 29April2003 -- SH Weiss, S Collini 13 Electronic Tracking System Date Form Completed: [AUTOMATED] Work Group: CHILDHOOD CANCER Submitted By: [FIRST NAME] [LAST NAME] Goal CC-1: To improve care for adolescents and young adults. Objective CC-1.1 : To educate healthcare providers about the availability of existing clinical research protocols and the referral of young adults up to the age of 21 to pediatric oncology centers. Strategy CC-1.1.1: Conduct a pilot study to validate the existing research and assess any difference in cancer survival based on treatment regime between adult treatment centers and pediatric treatment centers. Funding Amount: i.e. $25,000 i.e. $30,000 Source: Wonderful Granting Agency's Name Another Wonderful Granting Agency Comments: Grant application – award announcement March2003 On hold for FY 2003 Targets Target Date: Status: 2003 2004……… Date: month/year of anticipated or actual completion Principal Change Agents Last Contact Date: Name: i.e. American Cancer Society 29April2003 -- SH Weiss, S Collini 14 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Fields for Progress Reporting on Specific Strategies for Each Workgroup Process Work Groups Work Group Names Principal Change Agents Agency Names Original Schedule 2003 2004 2005 2006 2007 Ongoing 25April2003 -- SH Weiss, S Collini 15 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Fields for Progress Reporting on Specific Strategies for Each Workgroup Tracking and Monitoring Submitted by Name Date Form Completed Date Funding Amount Dollars Funding Source Text Funding Comments Memo Status Ongoing (O). Completed (C), Suggest Dropping (SD) Actual Target Date Month/year Target Description Memo Target Comment Memo Target Barriers Memo Last Contact Date Date Last Contact Person Name 25April2003 -- SH Weiss, S Collini 16 Additional Project By Battelle Battelle is also developing indexing/cross-indexing of the CCCP according to key parameters Enable tracking by Workgroups of NJ activities with respect to the CCCP, by linkage to the above CCCP database system 25April2003 -- SH Weiss, S Collini 17 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Content Need to be able to select more than one choice Cancer Site or Type Breast Stomach Cervical Other Cancer Childhood Site or Type Colorectal Lung Leukemia/Lymphoma Oral/Oropharyngeal Ovarian Prostate Melanoma Other Skin Cancer (basal/squamous) Liver Continuum of Care Primary prevention Early detection Treatment Rehabilitation Palliation/End of Life Survivorship 25April2003 -- SH Weiss, S Collini 18 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Screening Test Mammography Other Screening Test Pap test (include Thin Prep) Colonoscopy Virtual Colonoscopy Flexible Sigmoidoscopy Fecal Occult Blood Test (FOBT) Double-contrast barium enema Prostate Specific Antigen Oral cancer exam Spiral CT scan Strategy Area Research/Evaluation Health Disparities Public Education Clinical Trials Provider Education Infrastructure Planning Insurance Language Transportation Program/Intervention Collaboration Access to Care Quality Assurance Funding/Resource Development Information Dissemination Policy/Advocacy 25April2003 -- SH Weiss, S Collini 19 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Risk Factor Tobacco Obesity Occupational Exposures Alcohol Other Drug Physical Activity Diet Environmental Hazards Family History Infections UV Radiation Population Factors Gender Geographic Area SES Insurance Status Age Groups Child Adolescent Young Adult (college age) Adult Senior 25April2003 -- SH Weiss, S Collini 20 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Race/Ethnicity Asian Black Hispanic White Native American Disparities Partners for Strategy Grass-roots CBOs Faith-based Organizations Provider Organizations/Professional Associations Schools Worksites Hospitals and Clinics Academic Institutions Legislators Insurers – Third-party Payers Advocacy Organizations Survivors Parents Health Department Laboratories Pharmaceutical Companies Other Industry Other Partner 25April2003 -- SH Weiss, S Collini 21 Who are some of the various agencies and groups aiding the CCCP efforts? Office of Cancer Control and Prevention Cancer Registry NJ Cancer Education and Early Detection (CEED) Programs Training of NJ CEED CE/CCCP – UMDNJ-SPH Technical Assistance to NJDHSS/Task Force, and External Evaluation – UMDNJ-NJMS 25April2003 -- SH Weiss, S Collini 22 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 1. Office of Cancer Control and Prevention - Office of the CCCP Executive Director Peg Knight, RN, MEd 2 new staff positions [On HOLD] 25April2003 -- SH Weiss, S Collini 23 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 2. Cancer Registry - Office of Cancer Epidemiology Betsy A. Kohler, MPH, CTR 2-3 new staff positions [On HOLD] 25April2003 -- SH Weiss, S Collini 24 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 3. NJ Cancer Education and Early Detection (CEED) Programs • • • 25 new positions at each program (programs in all 21 NJ counties with 4 counties having 2 programs) Administered by: Doreleena Sammons-Posey, SM and Anna Ruth Thies, RN, MA 1 new central State staff position in fiscal 2003 [On HOLD] 25April2003 -- SH Weiss, S Collini 25 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 3. CEED Programs [continued]: $57,100 to each program in Fiscal 2003: • $52,100 for a staff/consultant position for Capacity/Needs Assessment and Evaluation as the “County Evaluators for the CCCP” (CE/CCCP) • $5,000 for support resources - computer equipment 25April2003 -- SH Weiss, S Collini 26 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 3. CEED Programs [continued]: On March 5, the above mentioned $57,100 in funds received an extension for use beyond JUNE 30th - to permit use through SEPTEMBER 30th. As of April 1, 2003, this has CHANGED and the extension will be through DECEMBER 31st, providing a more adequate time frame to accomplish the goals. 29April2003 -- SH Weiss, S Collini 27 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 4. Training of NJ CEED “CE/CCCP” [County Evaluators for the CCCP] Fiscal 2003 MOA with UMDNJ-SPH 4 day-long programs in preparation, for training in basic skills and applying standardized methodology (1st day of training set for May 14th) Drs. Marcia Sass [co-PI] and Stanley H. Weiss [PI] 29April2003 -- SH Weiss, S Collini 28 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: 5. Technical Assistance to NJDHSS/Task Force, and External Evaluation: MOA with UMDNJ-NJMS Stanley H. Weiss, MD [PI] Susan Collini, MPH William Halperin, MD Judith B. Klotz, MS, DrPH [after May 1st ] Funding after June 30, 2003 [ON HOLD] 25April2003 -- SH Weiss, S Collini 29 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: 5. Technical Assistance to NJDHSS/Task Force, and External Evaluation: Review assessment/evaluation plans and implementation of other States identified by CDC as exemplary models Assess instruments and systems for data collection and systemization by NJDHSS and its contractors Public health/epidemiologic assessment of the Comprehensive Cancer Control Plan (CCCP) 25April2003 -- SH Weiss, S Collini 30 Additional Funding by the State in Cancer Research Cancer Institute of New Jersey William N. Hait, MD, PhD NCI-Comprehensive Cancer Center, with NCI mandates related to the community Added allocations of $20M Fiscal 2003, $18M Fiscal 2004 Including for development of a system to foster communication about treatment programs RFAs issued March 2003 25April2003 -- SH Weiss, S Collini 31 Non-state Funding Sources • CDC National Breast and Cervical Cancer Early Detection Program (NBCCEDP) operates in all 50 states, D.C., 6 US territories, 12 Am Indian/Alaskan Native organizations Federal funding -- established 1990 stability of NJ CEED programs • American Cancer Society (ACS) Plans to share with OCCP (and the CE/CCCP) results of regional ACS C/NA ACS is adopting the NJ CCCP in its own forward planning, which is important in terms of long-term goals 25April2003 -- SH Weiss, S Collini 32 Implementation Is Moving Forward: An Update 25April2003 -- SH Weiss, S Collini 33 New County Evaluators for the CCCP (CE/CCCP) As part of the Implementation Process of the CCCP, the new CE/CCCP will be hired by each CEED program to conduct a Capacity and Needs Assessment (C/NA) and evaluation of all aspects concerning cancer prevention, detection and treatment in their county. These “County Evaluators” will either be consultants or employees. 25April2003 -- SH Weiss, S Collini 34 New County Evaluators for the CCCP (CE/CCCP): Key Responsibilities Investigates cancer needs and capacity assessments in their County Describes impediments to best cancer prevention practices in their County Describes the system for early detection and prompt therapy of cancers in their County Develops guidelines to implement a comprehensive cancer C/NA and a work plan to implement the capacity and needs guidelines Works with OCCP and the Cancer Registry to identify communities and populations where cancer burden is highest 25April2003 -- SH Weiss, S Collini 35 Purpose of Capacity Needs Assessment To provide the best approach to implementing the CCCP To help keep the implementation process on target To provide both baseline and (over time) follow-up information for evaluation purposes 25April2003 -- SH Weiss, S Collini 36 Collaboration Information will be gathered by the County Evaluators through collaboration with multiple sources, such as: American Cancer Society - already conducting their own C/NA State Cancer Registry Task Force Workgroups Local and county health officers Battelle Centers for Public Health Research and Evaluation CDC and NCI’s Cancer Information Service and Partnership Program 25April2003 -- SH Weiss, S Collini 37 CCCP, ACS & CEED Priority Areas CCCP ACS CEED 1. BREAST Y Y Y 2. CERVICAL Y NO Y 3. COLORECTAL Y Y Y-recent 4. LUNG Y Y NO 5. MELANOMA Y Y NO 6. ORAL/O-P Y NO NO 7. PROSTATE Y Y Y 25April2003 -- SH Weiss, S Collini 38 CCCP Priority Area: Over-Arching Issues Access and resources Advocacy Palliation Nutrition and physical activity Childhood cancer 25April2003 -- SH Weiss, S Collini 39 CCCP Priority Area: Emerging Trends Access to clinical trials Cancer survivorship Complementary/alternative medicine Infection and cancer • EBV • HIV • H. pylori • HPV • HBV [vaccine], HCV 25April2003 -- SH Weiss, S Collini 40 CCCP Priority Area: Short-Term Issues Historic geographic issues: i.e. bladder cancer - What has been happening? “Cluster Busters” – Drs. Dan Wartenberg and Eddy Bresnitz, and Betsy Kohler CCCP Priority Area: Long-Term Issues Emerging Cancers - i.e. HCC, especially issue of HCV 25April2003 -- SH Weiss, S Collini 41 Long Term Issues Sequential, prioritized analysis from an epidemiologic standpoint, of relative efficacy and cost-benefit (including BOTH direct and indirect effects) of extant primary, secondary, and tertiary prevention efforts for each cancer type, with comparison to actual effort and $ expended, to assist policy makers in resource allocation. 25April2003 -- SH Weiss, S Collini 42 ACS’s 6 New Jersey Regions Region 1. Northwest 2. Northern 3.. Metro 4. Central 5. Shore 6. South No Counties Counties 5 Morris, Warren, Sussex, Somerset & Hunterdon 5 2 Bergen & Passaic 3 3 Essex, Hudson & Union 5 2 Middlesex & Mercer 2 2 Monmouth & Ocean 2 7 Camden, Gloucester, Burlington, Salem, Atlantic, Cumberland & Cape May 25April2003 -- SH Weiss, S Collini 2002 Report Received 4/1/03 Number of CEED Programs 8 43 The Comprehensive Cancer Control Plan on the Web….. Copies are available via the Internet at the Office of Cancer Control and Prevention Program's Website http://www.state.nj.us/health/ccp/ccc_plan.htm 25April2003 -- SH Weiss, S Collini 44 Additional Resources: Researchers Dataset From the NJ Cancer Registry http://www.state.nj.us/health/cancer/webroll.htm An individual-level dataset is available from the New Jersey State Cancer Registry without identifiers, which includes data from 1991-1998 A Public Use Agreement must be signed File is available in both ASCII and ACCESS '97 formats Accompanied by a file containing populations counts appropriate for calculating rates 25April2003 -- SH Weiss, S Collini 45 Additional Resources: NJDHHS Website Resources can be explored on the New Jersey Department of Health and Senior Services Website Related Cancer Links http://www.state.nj.us/health/cancer/links.htm 25April2003 -- SH Weiss, S Collini 46