Download Improving cancer outcomes for Indigenous Australians

 Improving cancer outcomes for Indigenous Australians Joan Cunningham Menzies School of Health Research 68,850 10.3% 29.8% 88,270 13.2% 3.8% Black = # of Indigenous residents Blue = % of the total Australian Indigenous popula6on Red = Indigenous residents as a % of that State/Territory’s popula6on 188,954 28.2% 4.2% Median age Indigenous: 22 years Non-­‐Indigenous: 38 years Remote/very remote Indigenous: 21% Non-­‐Indigenous: <2% Major ciPes Indigenous: 35% Non-­‐Indigenous: 71% 37,408 5.6% 2.3% 47,333 7.1% 0.9% 208,476 ACT 31.1% 6,160 2.9% 0.9% 24,165 1.7% 3.6% Source: ABS 3238.0.55.001 4.7% What do we know about cancer in Indigenous Australians? •  Higher incidence rate: 461 vs 434 per 100,000 (age-­‐std) for all cancers (2004-­‐08) • 
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Higher mortality rate: 252 vs 172 per 100,000 for all cancers (2007-­‐11) Lower survival: 1-­‐year: 61% vs 74%; 5-­‐year: 40% vs 52% (dx in 1999-­‐2007) Different paYerns of incidence across cancers Higher prevalence of some cancer-­‐related risk factors and lower screening parPcipaPon Source: AIHW & Cancer Australia 2013. Cancer in Aboriginal and Torres Strait Islander peoples of Australia: an Background •  National Roundtable: Cancer and Indigenous people (2010)
–  Call for establishment of collaborative, coordinated and strategic
approach to using research to improve Indigenous cancer outcomes
Ø  Centre of Research Excellence: Discovering Indigenous Strategies to
improve Cancer Outcomes Via Engagement, Research Translation
and Training – “DISCOVER-TT CRE” (funded by NHMRC)
Ø  STrategic REsearch Partnership to improve Cancer Control for
Indigenous Australians - “STREP Ca-CIndA” (funded by Cancer
Council NSW & Cancer Council WA)
DISCOVER-­‐TT Advisory Board • 
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Jill Gallagher (co-­‐chair) – CEO, Victorian Aboriginal Community Controlled Health Organis. Alwin Chong (co-­‐chair) – Transi6on Manager, Aboriginal Health Council SA Pat Anderson – Chair, Lowitja Ins6tute Siddhartha Baxi – Senior Radia6on Oncologist, Genesis Cancer Centre, Bunbury, WA David ‘Tarnda’ Copley – Coord., Aboriginal Cancer Preven6on Team, Cancer Council SA Margarege Fisher – AHW, Chron. Dis./Cancer Facilitator, Derbarl Yerrigan Health Service Aunty Margaret Lawson – Aboriginal Ambassador David Roder – Chair, Cancer Epidemiology & Popula6on Health, University of SA Adelaide Saylor – Torres Strait Islander Ambassador & Senior Youth and Family, Culture and Care Coordinator, Hymba Yumba, Southside Educa6on Rhiannon Briggs – Aboriginal Tobacco Liaison Officer, Cancer Council Victoria Kathy Smith – Chair, Cancer Voices NSW and Australia Patsy Yates –Director, Centre for Pallia6ve Care Research and Educa6on Ian Olver – CEO, Cancer Council Australia Helen Zorbas – CEO, Cancer Australia Sharan Nicholson-­‐Rogers Research program area 1: Pathways & outcomes of care •  Cervical cancer screening par6cipa6on and outcomes for Indigenous Australian women •  Na6onal pagerns of care study for selected cancers in Indigenous Australians •  Effects of co-­‐morbidi6es on cancer treatment and survival •  Na6onal assessment of the unmet suppor6ve care needs of Indigenous cancer pa6ents •  Health care u6lisa6on at the end of life and pallia6ve care needs for Indigenous cancer pa6ents •  Evalua6on of the Aboriginal and Torres Strait Islander component of the Program of Experience in the Pallia6ve Approach (PEPA) Program area 2: Improving models of care and service delivery •  Dis6nc6ve cancer care requirements of Indigenous cancer pa6ents •  Innova6ve models of care for Indigenous cancer pa6ents •  The role of Indigenous cancer survivors in improving cancer awareness and outcomes for Indigenous cancer pa6ents •  Development of an Indigenous cancer advocacy program •  A community-­‐based mixed methods explora6on iden6fying barriers to engaging Indigenous males in cancer treatment and suppor6ve care •  Facilita6ng engagement of Indigenous cancer pa6ents in treatment by improving communica6on between health professionals and Indigenous cancer pa6ents •  Suppor6ve care needs assessment tool – implementa6on project •  Improving systems & quality of cancer care in Aboriginal & Torres Strait Islander primary health care sepngs Other research •  South Australia – Cancer Data and Aboriginal Dispari6es (CanDAD) •  Aims: •  Improve cancer diagnosis, treatment, survival among Aboriginal people; •  Decrease disparity between Aboriginal and non Aboriginal peoples’ access to cancer preven6on, screening and treatment; and •  Improve health service experiences of Aboriginal people at risk of, or diagnosed with, cancer. •  Elements: •  Improving quality and completeness of SA cancer data •  Exploring experiences of cancer care •  Towards a more streamlined and integrated data system. • 
For more info: Dr Paul Yerrell ([email protected]) Na6onal Indigenous Cancer Network (NICaN) www.nican.org.au Forum for sharing and discussing
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DISCOVER-­‐TT/STREP Ca-­‐CIndA team Australian investigators: Gail Garvey, Joan Cunningham, Dianne O’Connell, Patricia Valery, Sandra
Thompson, John Condon, Pam McGrath, Mick Adams, Sabe Sabesan, Jenny Brands,
Samar Aoun, Peter Baade, Ross Bailie, Siddartha Baxi, Srinivas Kondalsamy Chennakesavan, Alwin Chong,
Patricia Davidson , Raghu Gowda, Jane Ingham, Vikki Knott, Ian Olver, David Roder, Shaouli Shahid, Raj
Supramaniam, Jane Young
International investigators: Brenda Elias, Diana Sarfati, Lis Ellison-Loschmann, Linda Burhansstipanov
Research Program Manager: Bronwyn Morris
Research Fellows: Christina Bernardes, Michele Holloway, Beatriz Cuesta-Briand (to 10/14), Sanchia
Shibasaki, Suzanne Moore, Belinda Thewes
Students: Lisa Whop, Abbey Diaz, Kalinda Griffiths, Gail Garvey, Gwenda Gilligan
Engagement/communication/translation staff: Brian Arley, Bridget Kehoe, Alana Gall
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