Download Sandra Rowlands Macmillan Cancer Support Recovery Package

Recovery Package- the way
forward
• Sandra Rowlands
• Macmillan Cancer Support
Recovery Package Change
Project Manager
The cancer story is changing
Improvements in early detection and
diagnosis
More advanced treatments
Move from acute to long term condition
Increasing numbers of people living with
and beyond cancer
Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 2012; 107: 1195-1202.
The survival rates are changing
Macmillan Cancer Support (2011) identified median survival times based on research by the Cancer Research UK Cancer Survival Group at the London School of Hygiene and Tropical Medicine
research.
The survival rates are changing
Total Prevalence - now
Total Prevalence - 2030
Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 2012; 107: 1195-1202.
Not everyone is living well
Cancer Patient Experience Survey 2014
Cancer and other morbidities
Source: Macmillan’s Routes from Diagnosis programme
The English National Cancer
Survivorship Initiative
The Five Survivorship Stages
The NCSI defined four priorities
1.
Recovery package
2.
Physical activity
3.
Consequences of treatment
4.
Redesigning follow-up
The Recovery Package Holistic Needs
Assessment and Care Planning
to date
completed (1 July 2013 – 27 June 2014)
completed (1 July 2013 – 27 June 2014)
by September 2014
• Worry, fear or anxiety
(breast, ovarian, head & neck, endometrial,
melanoma)
• Tired/exhausted or fatigued
(breast, kidney, non-hodgkin’s lymphoma, ovarian,
head & neck)
• Sleep problems/nightmares
(breast, head & neck, lung, melanoma, ovarian
• Pain
(breast, ovarian, head & neck, kidney, melanoma
• Eating or appetite
(head & neck, kidney, ovarian, breast, lung)
Treatment Summary
Cancer Care Review
• Post-treatment with GP assessment and care planning
• Financial impact of cancer
• Patient awareness of
prescription exemptions
• Possible late effects of cancer
and treatment
• Information needs in primary
care
Health and Wellbeing events
Types of Health and Wellbeing
Clinics?
•Generic
•Tumour specific/area specific
•Part of Stratification of the Pathway
How can a Health and Wellbeing Clinic benefit
PLWC and their families?
Evidence from pilots in 2010-2011 has shown that
patients who attended a Health and Wellbeing Clinic
event had:
•Better knowledge of the signs and symptoms of cancer
recurrence and consequences of treatment.
•More confidence to question or challenge information
and make informed decisions about their health.
Benefits to patients and their
families continued
•More confidence to deal with the physical discomfort and
emotional distress associated with cancer and its treatment
from interfering with their everyday life.
•A strong sense of reassurance- even if they don’t need
services at that time, they know what’s available and how to
access it in the future.
How can a HWBC benefit my practice and
organisation?
Help provide better patient outcomes, reduce unplanned
admissions helping meet quality agenda by:
•Providing an effective atmosphere for delivering health
and wellbeing messages in an informal and relaxed
setting.
•Empowering patients by providing knowledge and
boosting confidence, leading to earlier intervention and
improved outcomes.
Having discussions about work
and financial concerns early on
in someone’s cancer journey can
be vital in preventing problems
You don’t have to be an expert to
start a conversation about work
and finance, and it doesn't have
to be time consuming
Macmillan has developed a
range of online and offline
resources to support you to have
conversations and direct patients
to information on work and
finance and relevant services
www.macmillan.org.uk/workandprofessionals
www.macmillan.org.uk/financialsupport
The NCSI defined four priorities
1.
Recovery package
2.
Physical activity
3.
Consequences of treatment
4.
Redesigning follow-up
Physical Activity improves health
and wellbeing outcomes
Macmillan Cancer Support (2011). The importance of physical activity for people living with and beyond cancer.
Tools and
resources
Available:
• Evidence reviews
• How to guide,
• Macmillan Partnership
Application template for
physical activity
• Standard Evaluation
Framework
The NCSI defined four priorities
1.
Recovery package
2.
Physical activity
3.
Consequences of treatment
4.
Redesigning follow-up
The NCSI defined four priorities
1.
Recovery package
2.
Physical activity
3.
Consequences of treatment
4.
Redesigning follow-up
Redesigning Follow-Up
•Breast 80% patients
•Colorectal 50% patients
•Testicular 95% patients
•Project management
•Clinician engagement
•Patient support
•Remote Surveillance
Resources
Provides confidential, impartial
information by phone & email.
In 2013 responded to over
146,000 queries and accessed
over £47.7 million of benefits and
financial packages.
Awarded Contact Centre
Association Global
Standard. 0808 808 0000
Q e Quality-assured cancer
information, in 2013 reached over
4.7 million with booklets, leaflets
and 3,000 pages online.
Visits local communities with Pods
and Information Units. In 2013 they
reached 60,851 people, promoting
cancer awareness & local services.
In 2013 32,500 people received Grants of over
£9.5 million for a wide range of items and
services, like extra heating and clothing.
Email addresses and web links