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SEER PATTERNS OF CARE Kimberly Kimbler, MS, CCRP, CTR Kentucky Cancer Registry [email protected] WHAT IS PATTERNS OF CARE (POC)? • A population-based snapshot designed to “assess the incorporation of state-of-theart cancer treatments into clinical practice and the extent to which cancer patients receive such treatments” Public Law 100-607, Sec. 413 (a)(2)(C) Mandated in 1988 14 SEER REGISTRIES PARTICIPATED IN 2014 USES OF POC DATA Describe adjuvant therapy use in a community setting Practice patterns in communities Surgery, radiation therapy, chemotherapy, hormonal therapy in specific cancers Compare treatment modalities over time and by age, race, and ethnicity USES OF POC DATA Effects of comorbid conditions Describe treatment by hospital characteristics Describe the usage of biomarkers and diagnostic tests and compare their use by race/ethnicity and geographic region Provide additional data for analyses by linking POC data to SEER Medicare files Address quality control issues related to routine data abstraction wordle Cases submitted to KCR Site-specific cases randomly selected from CPDMS Cases are re-abstracted per POC Manual ALL treatment verified by reviewing records or by physician contact Information is entered into a POC specific local database Data is de-identified and uploaded to a secure SEER website SO…WHAT DOES POC COLLECT? Much of the same information as the abstracted case….. just sometimes in a slightly different way or in greater detail POC VISIT Hospital records Medical Oncology Radiation Oncology Legacy EMR systems/paper charts (if applicable) Cancer is increasingly diagnosed and treated in the outpatient setting PHYSICIAN VERIFICATION …and the path to all treatment POC: WHAT’S NEXT…. Adolescents and young adults (AYA) diagnosed with cancer in 2011 An estimated projection calculated by the Surveillance, Epidemiology and End Results (SEER) Program using SEER 18, 2007-2011. http://www.cancer.gov/researchandfunding/snapshots/adolescent-young-adult#footnote1 (accessed 9/2014) AYA CANCERS (AGES 15-39) ACKNOWLEDGEMENTS Tom Tucker Frances Ross Celia Love Mary Jane Byrne The awesome folks at KCR QUESTIONS?