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Other Health Matters
ORGANISATION
DESCRIPTION
Action on Hearing Loss
Formerly RNID, Action on
Hearing Loss aims to make
life better for deaf and hard
of hearing people, by
providing information and
support on all aspects of
deafness, hearing loss and
tinnitus, services including
residential care,
communication support,
assistive equipment,
campaigning and
involvement in biomedical,
scientific and technical
research. Checked June 12
Information Line:
Tel: 0808 808 0123
Tinnitus Information Line:
Tel: 0808 808 6666
Website:
www.actiononhearingloss.org.uk
Arthritis Care
Tel: 0808 800 4050 (10.00am4.00pm, Mon-Fri)
UK-wide voluntary
organisation for people with
arthritis. Checked June 12
Website: www.arthritiscare.org.uk
Asthma UK
Adviceline:
Tel: 0800 121 62 44
Website: www.asthma.org.uk
Backcare
Helpline:
Tel: 0845 130 2704
Website: www.backcare.org.uk
The Bladder and Bowel
Foundation
Helpline:
January 2012
© The British Polio Fellowship 2007
Asthma UK is the charity
dedicated to improving the
health and wellbeing of the
5.4 million people in the UK
whose lives are affected by
asthma. Checked June 12
Backcare provides
information and education to
all affected by back pain and
funds research into its
causes, prevention and
management. Checked July 12
The Bladder and Bowel
Foundation is the UK’s
leading charity providing
information and support for
Useful Organisations List
ORGANISATION
Tel: 0845 345 0165
Website:
www.bladderandbowelfoundation.o
rg
Boots Assisted Living
Tel: 0845 070 8090
Website:
http://www.boots.com/en/AssistedLiving_863841/
DESCRIPTION
people with bladder and
bowel control problems, their
carers, families and
healthcare professionals.
Checked June 12
Boots Assisted Living is a
free, national medication
administration system
designed to help residents
living in extra care facilities
maintain their independence.
Regular medication is
provided in 28-day pill packs,
which are colour coded for
the time of day. Checked June 12
Boots Medisure
Boots Medisure is a free
medicine management
Speak to the Pharmacy Team at
system available nationally
you local Boots store
from Boots. Tablets and
Website:
capsules are dispensed into
http://www.boots.com/en/Medisure- 7-day pill packs, clearly
Making-Medicines-Easier_864350/ separated for taking at
different times of the day.
Boots also offer free
Medicines Checks and a free
Prescription Collection
Service. Checked June 12
Brain & Spine Foundation
Helpline:
Tel: 0808 808 1000 (9.00am2.00pm, Mon-Thurs, 9.00am1.00pm Fri)
Information, advice,
factsheets and other
publications relating to
neurological conditions. Checked
June 12
Website:
www.brainandspine.org.uk
Breathe Easy - British Lung
January 2012
© The British Polio Fellowship 2007
Breathe Easy support groups
Useful Organisations List
ORGANISATION
Foundation Support Network
BLF Helpline:
Tel: 03000 030 555 (Mon-Fri,
10.00am-6.00pm)
DESCRIPTION
throughout the UK provide
support and information for
those living with a lung
condition, and for those who
look after them. Checked June 12
Website: www.lunguk.org
British Association for
Counselling & Psychotherapy
Website: www.bacp.co.uk
British Complementary Medicine
Association
Tel: 0845 345 5977
Website: www.bcma.co.uk
British Pain Society
Website:
www.britishpainsociety.org
British Snoring and Sleep
Apnoea Association (BSSAA)
Helpline:
Tel: 0800 085 1097
Website includes lists of local
counsellors and
psychotherapists, factsheets
and other publications as
well as information about
training, supervision and
conferences. Checked June 12
The BCMA website provides
information on different
complementary/alternative
therapies, a directory of
registered practitioners,
events and links. Checked June 12
Website includes
information and resources
about managing pain,
including pain clinics, pain
management programmes,
publications and reading
lists and links to other
organisations. Checked June 12
BSSAA offers information on
snoring and sleep apnoea
causes and treatments and
sells a range of clinically
tested anti-snoring products.
Website: www.britishsnoring.co.uk
Checked June 12
Chartered Society of
Physiotherapy
The CSP represents the
UK's 50,000 chartered
physiotherapists,
physiotherapy students and
assistants. The website
Tel: 020 7306 6666
Website: www.csp.org.uk
January 2012
© The British Polio Fellowship 2007
Useful Organisations List
ORGANISATION
DESCRIPTION
includes a database of
private physiotherapists,
library and information
service and downloadable
publications. Checked June 12
College of Sexual and
Formerly the British
Relationship Therapists (COSRT) Association for Sexual and
Relationship Therapy,
Tel: 020 8543 2707
COSRT is the national
Website: www.cosrt.org.uk
charity for sexual and
relationship therapy. The
website includes lists of
therapists, links and
information for both
therapists and the public.
Checked June 12
Counselling Directory
Website: www.counsellingdirectory.org.uk
Department of Health
Website: www.dh.gov.uk
Depression Alliance
Tel: 0845 123 23 20
Website:
www.depressionalliance.org
Scotland:
Action on Depression
Counselling Directory lists
qualified and registered
counsellors and
psychotherapists throughout
the UK. The website includes
information about
psychological therapies,
useful articles and events for
the public. Checked June 12
The Department of Health
website contains information
related to health issues, NHS
and patient care. Checked June 12
Depression Alliance is the
leading UK charity for people
affected by depression,
providing information and
national and local support
services. The website
includes downloadable
factsheets and details of
other publications. Checked June 12
Tel: 0808 802 2020
January 2012
© The British Polio Fellowship 2007
Useful Organisations List
ORGANISATION
DESCRIPTION
Website: www.dascot.org
Wales:
Journeys
Tel: 029 2069 2891
Website:
www.journeysonline.org.uk
Northern Ireland:
Aware Defeat Depression
Helpline:
Tel: 08451 20 29 61
Website: www.aware-ni.org.uk
Diabetes UK
Diabetes UK Careline:
Tel: 0845 120 2960 (MondayFriday, 9.00am-5.00pm)
Website: www.diabetes.org.uk
Diabetes UK is the leading
UK charity that cares for,
connects with and
campaigns on behalf of all
people affected by and at
risk of diabetes. Checked July 12
Dr Foster
Dr Foster is the UK’s leading
Website: www.drfosterhealth.co.uk provider of comparative
information on health and
social care services. Search
the database for information
on health conditions and
treatments, hospitals,
consultants and
complementary practitioners
or download the Hospital
Guide. Checked June 12
Expert Patient Programme
Community Interest Company
January 2012
© The British Polio Fellowship 2007
Information about the NHS
Expert Patient Programme
Useful Organisations List
ORGANISATION
(EPPCIC)
Tel: 0800 988 5550
Website: www.expertpatients.co.uk
Fibromyalgia Association UK
Helpline:
Tel: 0844 887 2444 (Mon-Fri,
10.00am-4.00pm).
Website: www.fibromyalgiaassociationuk.org
General Medical Council
Tel: 0161 923 6602
Website: www.gmc-uk.org
DESCRIPTION
with search facilities for
courses, news and
publications. Checked June 12
Fibromyalgia Association UK
is a registered charity that
provides information, advice
and support to people with
the condition, their families
and medical professionals.
Checked June 12
The GMC registers doctors
in the UK. The website
includes information on the
Freedom of Information and
Data Protection Acts,
available publications,
training and registration and
making complaints. Checked June
12
General Optical Council
Tel: 020 7580 3898
Website: www.optical.org
The General Optical Council
is the regulator for the optical
professions in the UK.
Search the website for
opticians, optometrists and
registered students. Checked June
12
Hard to Find Medicines
Tel: 0800 567 0102
Website:
www.hardtofindmedicines.co.uk
Staffed by qualified
pharmacists and technicians,
Hard to Find Medicines
provides a free nationwide
sourcing and delivery service
for NHS patients who have
difficulty finding certain
prescribed medications.
Checked June 12
Health Professions Council
Check
January 2012
© The British Polio Fellowship 2007
HPCheck.org allows the
public to check if a particular
Useful Organisations List
ORGANISATION
Tel: 0845 300 6184
www.hpcheck.org
DESCRIPTION
health care professional is
registered with the Health
Professions Council.
Enquirers may call the
helpline or search online by
profession and surname or
registration number. Checked June
12
Healthcall Optical Services
Tel: 0800 089 0166
Website:
www.healthcalloptical.co.uk
Healthcall Optical Services
provides eye examinations at
offices, nursing and
residential homes and at
home for people who are
unable to visit a high street
optician unaccompanied.
Checked June 12
Help with health costs advice
line
Tel: 0845 850 1166 (MondayFriday, 8.00am-6.00pm).
Hypnotherapy Directory
Website: www.hypnotherapydirectory.org.uk
IBS Network
Tel: 0114 272 3253
Website: www.theibsnetwork.org
This helpline advises NHS
patients about entitlements
to prescription charge
exemptions and provides
information on the
requirements to qualify for
charge exemption at
dispensing chemists and
pharmacies. Checked June 12
This website enables visitors
to find a hypnotherapist close
to where they live and
appropriate for their needs.
The site includes useful
articles and FAQs. Checked June 12
The IBS Network is the
national charity for people
with Irritable Bowel
Syndrome (IBS). The
website includes information
about campaigns, research
and support groups. Checked June
12
January 2012
© The British Polio Fellowship 2007
Useful Organisations List
ORGANISATION
DESCRIPTION
Independent Complaints
Advocacy Service (ICAS)
ICAS is a free, independent
service that can help you
make a formal complaint
about your NHS health
practitioner in England. Checked
North East (Northumberland,
Durham, Tyne & Wear): 0808 802
3000
July12
Yorkshire & Humberside: 0808 802
3000
North West (Cumbria, Lancashire,
Merseyside, Cheshire): 0808 802
3000
West Midlands (Birmingham and
Black Country): 0300 456 2370
West Midlands (Coventry,
Warwickshire, Hereford and
Worcester): 0300 456 2370
West Midlands (Shropshire and
Staffordshire): 0300 456 2370
South West (Devon, Dorset and
Cornwall): 0300 440 9003
South West (Bristol, Somerset,
Wiltshire, Gloucestershire): 0300
440 9002
London: 0300 456 2370
Bedfordshire & Hertfordshire: 0300
456 2370
Essex: 0300 456 2370
Cambridge, Norfolk & Suffolk: 0300
456 2370
South East (Hampshire, Isle of
Wight, Berkshire, Oxfordshire,
Buckinghamshire): 0330 440 9001
South East (East and West
Sussex, Surrey and Kent): 0330
440 9000
January 2012
© The British Polio Fellowship 2007
Useful Organisations List
ORGANISATION
DESCRIPTION
East Midlands (Northamptonshire,
Derbyshire, Nottinghamshire,
Lincolnshire, Leicestershire): 0808
802 3000
Scotland:
Contact your local Citizens Advice
Bureau:
www.cas.org.uk
Your local NHS board will also be
able to give you information on help
from an independent advocate if
you need help making your
complaint.
Wales:
Your local Community Health
Council may be found at
www.patienthelp.wales.nhs.uk
Each CHC has a Complaints
Advocacy Service to deal with
individual complaints.
January 2012
© The British Polio Fellowship 2007
Useful Organisations List
ORGANISATION
DESCRIPTION
Northern Ireland:
Contact your local Citizens Advice
Bureau:
www.citizensadvice.co.uk
The Patient and Client Council
provides a voice for patients,
clients, carers and communities on
health and social care issues:
www.patientclientcouncil.hscni.net
lnstitute for Complementary and
Natural Medicine (ICNM)
Tel: 020 7922 7980
Website: www.i-c-m.org.uk
Limbless Association
Helpline:
Tel: 0800 644 0186
Website: www.limblessassociation.org
The ICNM provides the
public with information about
complementary medicine,
administers the British
Register of Complementary
Practitioners and promotes
good practice and research
in the field. Checked June 12
The Limbless Association
provides information, advice
and support for people who
are without one or more
limbs. The website includes
information about products
and resources, including
orthotics, grants and funding
and assistive technology.
Checked June 12
Lymphoedema Support Network
Tel: 020 7351 0990
Website: www.lymphoedema.org
The Lymphoedema Support
Network is a national patientled organisation offering
information and support to
people with this condition.
Checked June 12
Medline/PubMed
Website:
www.ncbi.nlm.nih.gov/pubmed
January 2012
© The British Polio Fellowship 2007
This is a website of medical
articles and abstracts. A
search produced several
Useful Organisations List
ORGANISATION
DESCRIPTION
thousand items about polio!
Checked June 12
Mental Health Information For all
Royal College of Psychiatrists
Website:
http://www.rcpsych.ac.uk/mentalhe
althinformation.aspx
MIND
Tel: 0300 123 3393 (MindinfoLine)
Website: www.mind.org.uk
Scotland:
Scottish Association for Mental
Health
Tel: 0141 530 1000
Mental Health Information
Online includes
downloadable leaflets about
various mental health
problems, from alcohol and
drug addiction to older
people’s mental health. The
website also includes links to
relevant organisations and
publications. Checked June 12
MIND is the leading mental
health charity in England and
Wales. Services include a
confidential helpline, support
network, counselling,
befriending, advocacy,
consultancy and training as
well as campaigns and
publications. Checked June 12
Website: www.samh.org.uk
Northern Ireland:
Northern Ireland Association for
Mental Health
Tel: 028 9032 8474
Website: www.niamhwellbeing.org
National Institute for Health and
Clinical Excellence (NICE)
Website: www.nice.org.uk
National Osteoporosis Society
January 2012
© The British Polio Fellowship 2007
An independent organisation
providing national guidance
on promoting good health
and NHS procedures for
preventing and treating ill
health. Checked June 12
The National Osteoporosis
Society is the only national
Useful Organisations List
ORGANISATION
Osteoporosis Helpline:
Tel: 0845 450 0230 (MondayFriday, 9.00am-5.00pm)
Website: www.nos.org.uk
National Voices
Tel: 020 3176 0738
Website:
www.nationalvoices.org.uk
Neuropathy Trust
Tel: 01270 611828
Website: www.neurocentre.com
DESCRIPTION
charity dedicated to the
prevention, diagnosis and
treatment of osteoporosis.
The website has
downloadable information
sheets, details of other
publications, research and
support groups. Checked June 12
National Voices brings
together all national
voluntary organisations
representing users of health
and social care to give them
a stronger voice in policymaking. Checked June 12
The Neuropathy Trust is a
patient-led charity founded to
provide a lifeline to people
affected by peripheral
neuropathy and neuropathic
pain and to raise awareness
amongst the public and
medical professionals. Checked
June 12
NHS Evidence
Website: www.evidence.nhs.uk
NHS Evidence contains a
wealth of resources for NHS
staff, patients and the public.
All resources are free to use
and everyone may access
the majority of them. Checked June
12
NHS 24 (Scotland)
Tel: 08454 24 24 24
Website: www.nhs24.co.uk
NHS Choices
Website: www.nhs.uk
January 2012
© The British Polio Fellowship 2007
Provides confidential, out-ofhours health advice in
Scotland. Checked June 12
NHS Choices provides
information and advice on
healthy lifestyle choices, has
a Health A-Z listing more
Useful Organisations List
ORGANISATION
DESCRIPTION
than 800 conditions and
treatments and enables
visitors to access individual
hospital facts and figures and
patient opinions. Checked June 12
NHS Direct
24-hour nurse advice and
health information service for
England and Wales. Checked
Tel: 0845 46 47
English Website:
www.nhsdirect.nhs.uk
June 12
Welsh Website:
www.nhsdirect.wales.nhs.uk
No Panic
Tel: 0800 138 8889 (10.00am10.00pm)
Answerphone service only:
10.00pm-10.00am
No Panic is a charity helping
people with panic attacks,
phobias, obsessive
compulsive and other anxiety
disorders and also their
families or carers. Checked June 12
Website: www.nopanic.org.uk
The Outside Clinic
Tel: 0800 85 44 77
Website: www.outsideclinic.com
Pain Concern
Helpline:
Tel: 0300 123 0789 (Mon-Fri
10.00am-4.00pm).
Website: www.painconcern.org.uk
The Outside Clinic is the
largest and longest
established national provider
of home eye testing in the
UK. Checked June 12
Pain Concern is a
membership charity
providing information and
support for those living with
pain, their families and
carers. The website includes
information about coping and
self-help, Q and As, relevant
news and publications. Checked
June 12
Pain UK
Website: www.pain-uk.org
January 2012
© The British Polio Fellowship 2007
Pain UK is an alliance
providing a voice for people
living with pain. Checked August 12
Useful Organisations List
ORGANISATION
DESCRIPTION
PAPYRUS
PAPYRUS is committed to the prevention
of young suicide and the promotion of
mental health and emotional well being.
HOPELineUK:
Tel: 08000 68 41 41
(10.00am to 5.00pm, 7.00pm to
10.00pm, Monday to Friday and
2.00pm to 5.00pm at weekends.)
Website: www.papyrus-uk.org
Patient Opinion
Tel: 0800 122 31 35
support,
practical advice and
information to anyone who is
concerned that a young
person they know may be
suicidal. Checked June 12
HOPELineUK gives
Patient Opinion is a website where you
can read what other patients are saying
about hospitals and share your opinions
as well. Checked June 12
Website:
www.patientopinion.org.uk
The Patients Association
Helpline:
Tel: 0845 608 4455
Website: www.patientsassociation.com
PhysioFirst
Website: www.physiofirst.org.uk
The Patients Association is an
independent charity that highlights the
concerns and needs of patients. It aims to
reduce health inequalities by helping
patients to be better informed and by
campaigning for them to have the right to
be involved in decision-making. Checked
June 12
PhysioFirst is an
organisation of Chartered
Physiotherapists in Private
Practice (OCPPP). The
website has a database of
private physiotherapists,
articles and events. Checked June
12
PINNT (Patients on Intravenous
and Nasogastric Nutrition
Therapy)
Website: www.pinnt.com
January 2012
© The British Polio Fellowship 2007
PINNT promotes greater
understanding of intravenous
and nasogastric nutrition
amongst patients, potential
patients and the medical
profession through
membership, support and
Useful Organisations List
ORGANISATION
DESCRIPTION
information. Checked June 12
Relate (England and Wales)
Relate provides a
confidential counselling
service for people in
marriage and other personal
relationships. Checked June 12
Tel: 0300 100 1234
Website: www.relate.org.uk
Scotland:
Relationships Scotland
Tel: 0845 119 2020
Website: www.relationshipsscotland.org.uk
Northern Ireland:
Relate Northern Ireland
Tel: 028 9032 3454
Website: www.relateni.org
RLS-UK/Ekbom Syndrome
Association
Helpline:
Tel: 01634 260483 (Mon and
Thurs, 9.00am-11.00am)
Website: www.rls-uk.org.
Provides information and
support for those with Ekbom
(Restless Leg) Syndrome
and their families and raises
awareness of the condition
amongst the medical
profession. The site includes
diagnostic information and
details of research. Checked June
12
Royal National Institute of Blind
People (RNIB)
Helpline:
Tel: 0303 123 9999
RNIB is the UK's leading
charity offering information,
support and advice to almost
two million people with sight
loss. Checked June 12
Website: www.rnib.org.uk
RSI (Repetitive Strain Injury)
Awareness
Tel: 023 8029 4500
Website: www.rsi.org.uk
January 2012
© The British Polio Fellowship 2007
RSI Awareness is an
information resource for
those interested in musculoskeletal disorders. The
website includes
Useful Organisations List
ORGANISATION
DESCRIPTION
downloadable factsheets on
a variety of conditions, such
as Carpal Tunnel Syndrome.
Checked July 12
Samaritans
Tel: 08457 90 90 90
Website: www.samaritans.org.uk
Sane
Saneline:
Tel: 0845 767 8000 (6.00pm11.00pm, every day of the year)
Website: www.sane.org.uk
Scoliosis Association (SAUK)
Helpline:
Tel: 020 8964 1166
Website: www.sauk.org.uk
Samaritans provides 24-hour
confidential emotional
support for people
experiencing feelings of
distress or despair, including
those that may lead to
suicide. Checked June 12
Sane is a charity
campaigning to raise
awareness of mental illness,
providing information and
emotional support to people
experiencing mental health
problems, their families and
carers through its helpline,
Saneline. Checked June 12
The Scoliosis Association is
an independent support
group for people with
scoliosis in the UK, providing
information and support
though its helpline. It offers
contacts for shared
experiences and aims to
educate the public about
treatments and research.
Checked June 12
Sexual Advice Association
Helpline:
Tel: 020 7486 7262
Website: www.sda.uk.net
January 2012
© The British Polio Fellowship 2007
The Sexual Advice
Association is a charity set
up to help people with male
and female sexual problems
and their partners and to
raise awareness of sexual
conditions amongst both the
public and the medical
profession. Checked June 12
Useful Organisations List
ORGANISATION
DESCRIPTION
The Sleep Council
The Sleep Council aims to
raise awareness of the
importance of a good night's
sleep to health and
wellbeing, provide helpful
advice and tips on how to
improve sleep quality and
how to choose the right bed
for optimum sleeping
comfort. Checked June 12
Tel: 0845 058 4595
Freephone leaflet line:
Tel: 0800 018 7923
Insomnia Helpline:
Tel: 020 8994 9874 (Monday to
Friday, 6.00pm to 8.00pm).
Website: www.sleepcouncil.com
Society of Chiropodists &
Podiatrists
Tel: 020 7234 8620
Website: www.feetforlife.org
The professional body for
chiropodists and podiatrists
in the UK. The website has a
search facility for
practitioners, FAQs, foot
health information and
downloadable leaflets. Checked
June 12
The Stroke Association
Stroke Helpline:
Tel: 0303 3033 100 (MondayFriday, 9.00am-5.00pm)
Website: www.stroke.org.uk
Women’s Health Concern (WHC)
Website: www.womens-healthconcern.org
January 2012
© The British Polio Fellowship 2007
The Stroke Association is the
only UK-wide charity solely
concerned with combating
stroke in people of all ages. It
funds research into
prevention, treatment and
better methods of
rehabilitation, and helps
stroke patients and their
families directly through its
Rehabilitation and Support
Services. Checked June 12
WHC provides an
independent, unbiased
service to advise, reassure
and educate women about
their health concerns and
inform the medical
profession. The website
includes factsheets, FAQs
and events. Checked June 12
Useful Organisations List
ORGANISATION
DESCRIPTION
World Health Organisation
The United Nations agency
for health. Checked June 12
Website: www.who.int/en
January 2012
© The British Polio Fellowship 2007
Useful Organisations List