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NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 2 Portwine stain birthmarks Exceptional healthcare, personally delivered NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 2 Welcome to North Bristol NHS Trust At North Bristol NHS Trust we provide hospital and community healthcare to the residents of Bristol, South Gloucestershire and North Somerset, plus a specialist regional centre for neurosciences, plastics and burns, orthopaedics and renal services. Across our hospitals in Southmead and Frenchay, and our local community work through school nurses, health visitors and therapists, the delivery of exceptional patient healthcare is at the heart of our Trust. Already 92% of our patients are happy with the care they receive from us and every year 6,000 patients and carers make the time to write us a letter thanking us for the care they received. Exceptional care As the largest hospital teaching Trust in the South West we have internationally renowned teams delivering incredible outcomes for our patients through the hard work and dedication of our 9,000 doctors, nurses, healthcare professionals and support staff. For many years we have been at the forefront of new medical innovations, including brain and spinal surgery, joint replacement and the world’s first radar breast imaging system. We provide award-winning services and receive a significant number of referrals from other hospitals for our range of specialist services. We treat over 250,000 patients a year, including the delivery of 5,800 babies, and yet each patient is treated with respect and dignity and, most important of all, as a person. 2 Portwine stain birthmarks NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 3 Personal care We want to make sure that during your stay with us you feel welcome, relaxed and confident in the care you are receiving. All our teams care about the quality of the service provided to you, from the moment you walk through the door until you leave Protecting your privacy and dignity all inpatient beds are in single sex areas and we have instigated protected visiting hours to ensure you get your full rest and recuperation. Safe care Patient and visitor safety is at the forefront of delivering exceptional healthcare, not only the focus on safe medical procedures, cleanliness and infection control but also personal safety whilst visiting us. We are recognised for our excellent patient safety and we gained a ‘5 star’ rating by Dr Foster’s, the UK’s leading independent provider of healthcare information. This rating means we are the safest hospital Trust in the South West and one of the top 10% hospital Trusts for patient safety in England. Patient safety also extends into how we hold your personal data. Our new Medical Records and Data Centre ensure your details are kept within state-of-the-art security with all records such as treatment notes, x-rays and prescriptions all kept in one place. Efficient care By providing efficient healthcare we will further reduce waiting times, you will be treated swiftly during your stay and we’ll build seamless links with your GP and community social service teams. All-in-all at North Bristol NHS Trust we believe in providing you with exceptional healthcare, that’s personally delivered. Portwine stain birthmarks 3 NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 4 Welcome to the Laser Centre of the South West We are part of the Plastic Surgery Department at Frenchay Hospital and were set up in 1992 as one of the first UK centres to offer skin laser treatments. We treat patients from all over the South West area, both private and NHS referrals. All our staff are fully trained doctors and nurses who have received specialist training in skin laser treatment. A variety of lasers are available for different skin conditions and we are able to treat babies and children, as well as adults. We also provide non-laser treatment via our camouflage clinic and Outlook clinic offering emotional support and counselling services. What is a portwine stain? A portwine stain is a birthmark that may look pink, red or purple in colour. It is made up of many layers of blood vessels, which are larger than they should be, and near to the surface of the skin. It is the blood flowing through these blood vessels that causes the colour. The birthmark can occur anywhere on the body, it can be any size and it will grow in proportion as the body grows. Over time a portwine stain may darken, thicken, and/or develop small surface lumps. What has caused it? The cause is unknown. It is not inherited from either parent, nor is it caused by anything related to the mother in pregnancy. No parent should feel responsible for these birthmarks. It occurs in an estimated three children per thousand births. What is laser therapy? The laser is a very powerful energy source that produces a very bright light. By controlling the colour, energy and direction of the laser it is possible to heat the blood in the vessels. This damages them and causes them to shut down. 4 Portwine stain birthmarks NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 5 How successful is treatment? Most portwine stains fade with laser treatment, but they are rarely completely removed. Some portwine stains also reduce in size with treatment. Occasionally these marks do not respond at all to laser treatment. In some people the fading is only temporary and the colour may return in time. Further treatment may then be required. What are the possible side effects? The risk of side effects is low. The treatment can occasionally cause the normal pigment in the skin to decrease or increase. This means a pale or dark mark where the treatment has been. This usually returns to normal but can take a long time to do so. Very rarely a scar can occur in the treated area. Side effects are more common if the skin is tanned when treated, so you should wear sun block on the area before treatment begins and during the course of treatment. Which laser will be used? We have three lasers that can be used for fading portwine stains. The first treatment usually consists of several test patches, at different powers, with one or more of the lasers. At your next appointment we will decide which laser and power suited you best. What does the laser feel like? It depends on which laser is used for treatment. The pulse dye lasers feel like a rubber band being snapped at your skin. Most people find it uncomfortable but not painful. The KTP laser feels like hot pin pricks. What pain relief is available? Many people find they do not need any pain relief. Various skin cooling devices can be used to reduce discomfort. Local anaesthetic injections or creams are available if needed. Young children usually need a general anaesthetic as a day case. Portwine stain birthmarks 5 NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 6 Who will treat me? At your first appointment the specialist doctor will assess you and discuss treatment. This will give you a chance to consider all the factors involved. You may have a test treatment on the same day. Only experienced doctors and laser nurse specialists who have received specialist training will treat you. How can I prepare for treatment? It is very important that your skin is as pale as possible before treatment. You should not have a suntan or use sun beds, false tan or 'holiday skin' moisturisers. You must protect the area from the sun before and during the course of treatment by using sunblock or keeping the area covered. If your skin is dry, use a plain moisturiser over the area. If the stain is in a very hairy area, you may be asked to shave your skin. Some medication and herbal remedies make your skin more sensitive to lasers. Please bring a list of your medicines to your assessment and tell us each time your medication changes. What happens after treatment? The pulse dye lasers leave purple bruises over the treated area, which last for up to fourteen days. With any laser treatment your skin may feel hot and sore, but this does not last long. You may get some swelling over the treated area, and it may itch. Little aftercare is necessary. You will be given written instructions on how to care for the treated area. How many treatments will I require? It depends on the size and position of the birthmark. Most portwine stains require at least 10 treatments for maximum fading. Treatments are spaced at least 8 weeks apart. Unless the area is very large the whole area can be treated at every appointment. 6 Portwine stain birthmarks NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 7 Are photographs necessary? We require photographs of the area to be treated before you start a course of treatment and at intervals during your treatment. This helps us to monitor your progress and any side effects of treatment. You can request a photographer of the same sex as yourself if you wish. Do I have to have treatment? No. Only you will know if fading your birthmark will be of benefit to you. How can I make an appointment? The Laser Centre offers both an NHS and private service. For NHS patients a referral letter from your GP or hospital consultant is required before an appointment can be arranged. A referral letter may not be necessary for private treatment. Some treatments are only available privately. Staff at the centre can give you further details. See back cover for contact details. Other support Sometimes people find these marks distressing, and other people’s reactions can be difficult to deal with. We can put you in touch with organisations that can help. Frenchay Hospital also offers a service called 'Outlook', which offers counselling to adults and children. You may wish to consider using camouflage cover as well as, or instead of, laser treatment. A camouflage make up service is available at Frenchay Hospital. Reference Lanigan, S. 2004. Recent advances in laser treatment of portwine stains. British Journal of Dermatology. Sep: 151(3) 527-33. NHS Constitution. Information on your rights and responsibilities. Available at www.nhs.uk/aboutnhs/constitution [Last Accessed March 2010] Portwine stain birthmarks 7 NBT002016 Portwine Stains.qxd:8pp 13/05/2010 11:35 Page 1 How to contact us: H Laser Centre of the South West North Bristol NHS Trust Frenchay Hospital, Frenchay Bristol BS16 1LE 0117 340 3807 0117 340 3980 www.nbt.nhs.uk If you or the individual you are caring for need support reading this leaflet please ask a member of staff for advice. © North Bristol NHS Trust. First Published November 2002. This third edition published May 2010. NBT002016