Download Management and Sharing System of Scientific Data for Medicine

Service System for
Management and Sharing of
Scientific Data in Medicine
Depei Liu, Ph.D.
Chinese Academy of Medical Sciences
Service System for Management and
Sharing of Scientific Data in Medicine
The system is :
• The key component of the National Program for
Sharing of Scientific Data
• One of the National Basic Core Platforms for
Science and Technology
Institutions Responsible
• Chinese Academy of Medical Sciences
• Chinese Center for Disease Control and
Prevention
• General Hospital of People’s Liberation
Army
• Chinese Academy of Traditional Chinese
Medicine
Superior Administrations
• Department of Basic Research, Ministry of Science
and Technology
• Department of Science, Technology and Education,
Ministry of Health
• Training Bureau of Science and Technology,
Department of Health, General Department of
Logistics of P.L.A.
• Department of Science, Technology and Education,
State Administration of Traditional Chinese
Medicine
Objectives of the System
• To establish Resources of Scientific Data in
Medicine
• To establish Centers of Scientific Data in
Medicine
• To establish Networks of Scientific Data in
Medicine
Establishment of Resources of
Scientific Data in Medicine
• To integrate available medical data
resources and to set up main databases
• To organize and rescue medical data with
scientific value
• To collect and utilize international resources
of medical data
• To explore and re-utilize data resources
Establishment of Centers of
Scientific Data in Medicine
• Macroscopically adjusted and directed by the
Government
• Based on the current academic systems in
China
• Implemented step by step under the uniform
layout
• Adoption of the polices, regulations and
technical criteria
Establishment of Networks of
Scientific Data in Medicine
• To support the national key programs in science
and technology
• To emphasize data resources in the fields of new
and high technology, basic biomedical sciences,
and important geographical areas
• To connect the related professional main databases
through Internet
• To build up the scientific data network with
reasonable physical distribution and logistic
unification
The System Will Cover Most
Areas of Medicine
• Basic medicine, clinical medicine, public
health, traditional Chinese medicine, special
medicine, meteria medica, innovative drugs,
etc.
• The database for emerging and re-emerging
infectious diseases such as SARS will also
be included
Long-Term Objectives of the
System
• To serve research and education in
biomedical sciences and to improve the
innovation capability in medical sciences
and technology
• To improve the overall level in prevention,
diagnosis and treatment of diseases
Long-Term Objectives of the
System
• To enhance the self-protective consciousness of
Chinese people and thereby to ensure the entire
nation’s health, by opening to the public
• To strengthen the ability to response to the sudden
incidents in public health
• To provide information for government to make
policies and to promote the health care and
economic development
Working Plan of the System
Four Centers/Networks in Phase I
• Scientific data center for basic medicine
• Scientific data network for clinical medicine
• Scientific data center for public health
• Scientific data center for traditional Chinese medicine
A special database for SARS and respiratory diseases
Projects in the System
Projects
Institutions Responsible
Service System of Management and
Sharing of Scientific Data in Medicine
Chinese Academy of Medical Sciences
Establishment of the Center of
Scientific Data in Basic Medicine
Institute of Basic Medical Sciences,
Chinese Academy of Medical Sciences
Establishment of the Network Center of
Scientific Data in Clinical Medicine
Peking Union Medical College Hospital,
General Hospital, P.L.A.
Projects
Institutions Responsible
Establishment of the Center of
Scientific Data in Public Health
Chinese Center for Disease Control
and Prevention
Establishment of the Center of
Scientific Data in Traditional Chinese
Medicine
Chinese Academy of Traditional
Chinese Medicine
Establishment of the SARS Database
and Sharing
Chinese Center for Disease Control
and Prevention
Establishment of the Database of
Respiratory Disease and Sharing
General Hospital, P.L.A.
Mechanism of Organization and
Management Model
• The System will be planned and coordinated as
a whole
• Management and running model featuring the
team work of leading, advisory expert and
working groups
• The establishment and running of a center or a
network will be carried out by the institutions
responsible, in collaboration with related
institutions
Leading Group
• The group will include leaders from the
institutions
responsible,
and
several
professionals in scientific administration
• The group will be responsible for the decisionmaking and coordination of the system
Advisory Expert Group
• The group will include experts from the expert
committee of the National Program for Sharing
of Scientific Data, from institutions
responsible, and in the field of scientific data
sharing
• The group will be responsible for steering and
authorization of general design, selection of
the institutions responsible, as well as phase
inspection and evaluation of individual project
Working group
• The group will include members from the
working group of the National Program for
Sharing of Scientific Data, and principal
investigators from the institutions responsible
• The group will be responsible for the overall
design of the project, writing the proposal and
report for the project, and actual running of
the project
Framework in 2003-2004
Service System for Management and Sharing of Scientific Data in Medicine
Classification
Criteria
Catalog System
Establishment of the Centers/Networks
Establishment of Main
Database for Biomedicine
Establishment of
Main Database for
Neuroinformatics and
Oncology
Scientific Data Center for
Basic Medicine
Scientific Data
Center for
Clinical Medicine
Establishment of
Main Database for
Food Ingredients and
Hygiene
Scientific Data
Center for Public
Health
Establishment of Main
Database for Modern
TCM
Scientific Data Center for
TCM
Establishment of SARS Database
Establishment of Database for Respiratory Disease
Tasks in the Period of 2003-2004
• Finalize the organization to lead the project, the
recruitment of investigators and the mechanism for
project management
• Study and establish the mechanism of co-establishment
and sharing of medical scientific data, aiming at
different users and levels
• Collect and analyze the related medical information and
technical criteria
• Study and define collection scope, methods, technical
criteria, and data type, data source
• Study models of data storage and management for
medical data units. Compile the catalog, index, and
data criteria
• Study and determine exchange methods and
management model
• Establish a network of medical information, and
define interface criteria on database-related service
• Realize the basic service of database network,
including management and affairs processing,
definition of interface criteria of knowledge service,
distributing browse function for language-sense
browser
AIDS Database
Gene Database
Protein
Database
Basic
Preventive
Medicine
Medicine
Epidemiology
Database
Physiological
Constants
Database
Toxicosis
Database
System of Management and
Sharing Service of Scientific Data
for Medicine
Neoplasm
Database
Cerebracardiovascular
Database
Clinical
Medicine
TCM Database
TCM
Chinese Herbs
Diabetes Mellitus
Database
Acupuncture
Digital Human Body
Database
TCM lectures
Neuroinformatics
Database
Expected Results
• To establish a Scientific Data Center/network involved
in basic medicine, clinical medicine, public health, and
TCM, and to form the running environment of network
with reasonable physical distribution and logistic
unification
• To finalize the detailed rules on converge of medical
scientific data, the management of data converge, and
to provide the sharing service of data
• To establish Chinese biomedical database, Chinese
food ingredients and hygiene database, Chinese
neuroinformatics database ,and Chinese modern
prescription of TCM database
• To completely utilize the computer network and
communication Technology to set up the System and
submit the technical report of sharing service
• To recruit talents with informatics, computer sciences,
and medicine, and to strengthen the team pursuing
data sharing, in order to meet the requirements of the
System
• To build up the cooperative environment, and to
undertake the data sharing service on SARS and
respiratory diseases
• Sharing service benefits governments, institutions of
medical, scientific research,and education, and
enterprises and public. Sharing service can be offered
in the means of free and nonprofitable charge.
Thank you for your attention!