Download TITLE: Rehabilitation needs of the patient with cancer

ABSTRACT - SPECA
TITLE: Patients evaluate a quality of life scale: whose life is it anyway?
AUTHORS: Speca M; Robinson JW; Goodey E; Frizzell B
SOURCE: Cancer Pract 1994 Sep-Oct;2(5):365-70
CITATION IDS: PMID: 7697075 UI: 95211144
ABSTRACT:
Patients with cervical cancer were interviewed in a focus group format to obtain their retrospective
views of quality of life (QL) in the context of cancer treatment. In addition, they were asked to
evaluate the European Organization for Research and Treatment of Cancer's QL questionnaire
(EORTC QLQ-C30) as an indicator of their QL. Ethnographic analysis of group transcripts revealed
a number of dimensions of QL that these women did not believe were adequately addressed by
the EORTC QLQ-C30. They were: (1) perceived control over one's body, (2) a sense of normalcy
in one's life, (3) invasiveness experienced as a result of medical interventions, and (4) the degree
of predictability of disease and treatment. Patients also indicated that QL was determined more by
the meaning and value they placed on their experience than by the occurrence of specific
functional changes, symptoms, or side effects. The results have implications for how QL is
conceptualized. An alternative model of QL assessment, based on the patient as expert, is
illustrated and described.
MAIN MESH HEADINGS:
Cervix Neoplasms/*psychology
*Quality of Life
Questionnaires/*standards
ADDITIONAL MESH HEADINGS:
Adult
Cervix Neoplasms/therapy
Female
Human
Middle Age
Nursing Methodology Research
1994/09
1994/01 00:00
PUBLICATION TYPES:
JOURNAL ARTICLE
LANGUAGES:
Eng
Source: MEDLINE