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Self-care and self-management Below is a short précis of the main policy, research and guidance papers relating to self care and self management alongside a link to the actual documents themselves for ease of reference. Supporting self-management; A guide to enabling behaviour change for health and wellbeing using person- and community-centred approaches (Realising the Value; Sept 2016) This guide outlines how the science of behaviour can help people to self-manage their health and wellbeing. The guide is written for people who support those living with long-term conditions, or who help people avoid these conditions using personand community-centred approaches. http://www.nesta.org.uk/publications/supporting-self-management-guide-enablingbehaviour-change-health-and-wellbeing-using-person-and-community-centredapproaches At the heart of health; Realising the value of people and communities (The Health Foundation/NESTA; March 2016) Explores the value of people and communities at the heart of health, in support of the NHS Five Year Forward View vision to develop a new relationship with people and communities. The report finds that person- and community-centred approaches for health and wellbeing have significant potential to improve outcomes for individuals, support the development of strong and resilient communities and, over time, help reduce demand on formal health and social care services. There is evidence from both research and practice to demonstrate the benefits of person- and community-centred approaches. http://www.nesta.org.uk/publications/heart-health-realising-value-people-andcommunities A practical guide to self-management support; Key components for successful implementation (The Health Foundation, Dec 2015) Health policy, and increasing evidence of positive outcomes, highlight the benefit of supporting people to manage their own health as effectively as possible. These benefits can be felt by people with long-term health conditions, health professionals, providers (both within and beyond the NHS) and commissioners. Together with good quality clinical care, selfmanagement support ensures that people receive the full range of support they need to manage the physical, emotional and social impact of their long-term health conditions at different stages and ages during their lives. http://www.health.org.uk/publication/practical-guide-self-management-support A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic Review of SelfManagement Support for long-term conditions (Health Services and Delivery Research; Volume 2 Issue 53, December 2014) concludes that supporting good selfmanagement is inseparable from the high-quality care all people with Long Term Conditions (LTCs) should receive. Supporting self-management is not a substitute for care from doctors and nurses but a hallmark of good care. Providers of services for people with LTCs should consider how they can actively support self-management. Effective self-management support usually has many components, should be flexible, tailored to the individual and their LTC, and be underpinned by good collaboration between the patient and a trusted health-care professional, all within a health-care organisation that actively promotes self-management. http://www.journalslibrary.nihr.ac.uk/hsdr/volume-2/issue-53#abstract Supporting people to manage their health; an introduction to patient activation (The Kings Fund, May 2014) Recognises that patients with low activation levels are more likely to attend A&E departments, be hospitalised or re-admitted after discharge, leading to higher health care costs. Intervening to increase activation can improve a patient’s engagement and health outcomes and is an important factor in helping patients to manage their health. In the management of long-term conditions, higher activation scores are positively correlated with adherence to treatment and condition monitoring. Patient activation is not only linked to clinical and economic outcomes, but also to the patient’s experiences. http://www.kingsfund.org.uk/publications/supporting-people-manage-their-health Supporting self-management; Summarising evidence from systematic reviews (National Voices, March 2014) A compilation of information from 228 systematic reviews which found that the top things you can do to support self-management are: providing self-management education for people with specific conditions which is integrated into routine healthcare generic self-management education courses co-led by peers / laypeople interactive online self-management programmes telephone support and telehealth initiatives self-monitoring of medication and symptoms http://www.nationalvoices.org.uk/node/1337 Delivering better services for people with long term conditions; building the house of care (The Kings Fund, October 2013) The management of care for people with long-term conditions should be proactive, holistic, preventive and patient-centred. This report describes a co-ordinated service delivery model – the ‘house of care’ – that incorporates learning from a number of sites in England that have been working to achieve these goals. The house of care model differs from others in two important ways: it encompasses all people with long-term conditions, not just those with a single disease or in high-risk groups; and it assumes an active role for patients, with collaborative personalised care planning at its heart. Implementing the model requires health care professionals to abandon traditional ways of thinking and behaving, where they see themselves as the primary decision-makers, and instead shifting to a partnership model in which patients play an active part in determining their own care and support needs. An important feature of the approach is the link between care planning for individuals and commissioning for local populations; it aims to make best use of local authority services (including social care and public health). http://www.kingsfund.org.uk/publications/delivering-better-services-people-longterm-conditions Sustaining and spreading self-management support; Lessons from Co-Creating Health phase 2 (The Health Foundation, September 2013) The Co-creating Health programme involved the piloting of an approach to implementing self-management support that comprised: self-management training for people with long-term conditions training in self-management support skills for clinicians a service improvement programme to put systems and processes in place to support patients and clinicians in their self-management activities The findings of the evaluation of phase 2 of Co-creating Health show that three broad mechanisms were important in sustaining the Co-creating Health model of self-management support: (1) co-production; (2) changing practice amongst clinicians; (3) the patient journey. http://www.health.org.uk/publication/sustaining-and-spreading-self-managementsupport It is evident from strategic policy drivers and academic literature that public, patient and carer participation, involvement and self-care are intrinsically linked to improved health and well-being outcomes and a reduction in reliance on formal health and care services. Whilst statutory organisations are required to demonstrate involvement and participation of their communities, it is also clear that there are wider benefits to both an individual’s health and the wider community from this approach.