Download Nottinghamshire Children`s Hearing Services Working Group

Nottinghamshire Children's Hearing Services Working Group (CHSWG)
17th October 2013
Minutes
Present:
Claire Benton
Debbie Gamage
Cheryl Gray
Gill Feetham
Suzanne Harrigan
Catherine Harrold
Frances Connor
Sarah Allen
Apologies:
Katherine Martin
Neil Fergie
Lorna Lord
James Harrison
Wendy Murray
Ian Pleasance
Andy Marshall
Jayne Ramirez-Inscoe
Mary McInnes
Jamie McMahon
Uzma Aziz-Ahmed
Amanda Dove
Carl Bown
Andrea Bown
Rosalind Woods
Denise Ramsell
Clinical Lead for Paediatric Audiology, Nottingham Audiology
Services
Teacher of the Deaf and Visually Impaired, Nottingham City
Sensory Team
Team Leader, Sensory Physical Team, City
Consultant Teacher of the Deaf, Nottinghamshire County
Council
Specialist Speech & Language Therapist, The Ear Foundation
Senior Technician, Medical Physics
Joint Chief Executive Officer, Nottinghamshire Deaf Society
Speech and Language Therapist
Consultant in Paediatric Neurodisability, Nottingham
University Hospitals Trust
Consultant Otolaryngologist, Sherwood Forest Hospitals Trust
Family and User Programme Coordinator, The Ear Foundation
Clinical Lead Paediatric Audiology, Sherwood Forest Hospitals
Trust
Newborn Hearing Screening Manager, Nottingham
Local Manager NHSP, Sherwood Forest Hospitals Trust
Consultant Otolaryngologist, Nottingham University Hospitals
Trust
Specialist Speech & Language Therapist, Nottinghamshire
Community Health/ NAIP
Family Support Worker, National Deaf Children’s Society
Interim Regional Director, National Deaf Children’s Society
Parent representative
Parent representative
Parent representative
Parent representative
Screening & Immunisation Coordinator, NHS England
Key Worker, Nottinghamshire County Council
Chair: CB
Minutes of previous of meeting:
Minutes were read and accepted as accurate
Review of previous actions:
CB
DG
CG
GF
SH
CH
FC
SA
KM
NF
LL
JH
WM
IP
AM
JRI
MM
JMcM
UAA
AD
CaB
AB
RW
DR
Meeting with all parent reps
to be arranged
JMcM Meeting held:
Details regarding City Parent
Participation officer to be
investigated
CG
Emailed Edwina Cosgrove from Parent Partnership;
awaiting contact.
Blank care pathway template
to be emailed to all
CB
Completed
Liaison with Health Visiting
Team to be developed
DG & DG and WM to meet with HV heads of service to explain
WM role and remit of ToD. A written piece about ToDs is to be
circulated to all HVs across Nottingham.
DG to inform GF about the date of this meeting to include
County ToD service.
CHSWG Chair to attend Deaf
Focus Group
CB
Meeting attended
Previous minutes to be
published on appropriate
websites
All
To be done once agreed by group
Work to continue on
objectives on Action Plan
All
In progress
CHSWG Action plan:
Objective 1 – Improve Involvement of families with CHSWG
Following the meeting with parent reps, agreed that once CB has received all biographical
information from them it would be placed onto websites and promoted in both audiology
departments. Email address for parent reps to use has been set up; this will be advertised with
their biographies. ([email protected]). JMcM was looking into setting up a regional
training event for CHSWG parent reps.
Objective 2 – Review all care pathways for Deaf children to ensure equity across the county
CB explained the increasing importance of producing this document not only for families and
services, but also for Commissioners, particularly in the light of the forthcoming joint
commissioning of Health, Education and Social care services for children.
DG shared her completed care pathway; it needs further work but is important to have something
to work from. Acknowledged that this is a document that will take time and agreed to circulate the
developing document by email.
Objective 3 – To raise profile of CHSWG with all services at management level and with the
public
CBsuggested targeting HVs and GPs in next year’s Deaf Awareness week, 19-25 May 2014. DG to
contact Toni Wolff about offering deaf awareness training during DA week to Doctors and
trainees.
Objective 4 – to engage with new NHS reforms and with new commissioning pathways
Further meeting about development of paediatric audiology services has been held in London in
September.
CHAC is to be involved in a pilot of a Paediatric Audiology Network. This is a way of trying to
improve quality in services. 4 trial sites are West Midlands, East Midlands, East of England &
London.
CHAC, Kings Mill Hospital, Lincoln, Boston, Burton on Trent, Leicester, Derby are to be included in
our regional network.
This will include providing an annual report of your service to be measured against a set of criteria
(not yet developed!). This will involve local services providing information. Details are as yet
sketchy with further meetings planned in early 2014 to clarify. The aim is to feedback to
commissioners.
Update on Education Health and Care Plan, GF:
This fundamentally alters the tiered approach of School Action, School Action Plus and Statement
of Special Education Needs.
Nottingham County is one of the pilot sites for introducing the EHC plan. It will last until the child
is 25 years old.
It charges Local Authorities to work with health and social care to develop and publish a “local
offer”.
The majority of children will have their needs met by the Local Offer.
Those children whose needs are not met by the local offer, may opt for a EHC Plan.
Example plan attached to minutes
Feedback from Audit of Newly Diagnosed Parents, CB:
Presented findings from postal survey of parents whose child had been through the process of
being diagnosed with a hearing loss. Overall the responses from parents were positive.
Key Recommendations:
 More support from other parents after initial diagnosis
 Develop literature for parents whose children have Auditory Neuropathy Spectrum Disorder
 Where possible have TOD at first CHAC appointment
 Ensure first meeting with TOD does not happen in the waiting room
 All Audiologists and Medical Physicists to attend NHSP Breaking the News course
Service Updates:
Children's Hearing Assessment Centre, Nottingham
New hospital-wide Patient Administration Service: go-live 9th November. This will have an impact
on all processes.
All Hearing Aid Reviews are done on a partial booking system- if family doesn’t opt-in twice, they
are discharged although remain on an open referral, Teachers of the Deaf will be copied into any
discharge letter.
Teenage focus day took place in July: involvement of teenagers in developing the transfer from
child to adult services. One change from this is to develop a separate waiting area for teenagers in
the adult department.
They wanted opportunity for meeting other HI teenagers. The Ear Foundation offer a teenagers
forum.
Speech & Language Therapy
Staffing changes have occurred and there is a reorganisation taking place.
Session to the north of the county now started
Ear Foundation
Busy family programme, particularly for the teenage forum and pre-school groups
Newborn Screening Programme Nottingham
We have now had all our new equipment installed and calibrated. After the new software version
has been signed off we will be having our official training from Otometrics. Continue to engage
with the NSC, NHS England Commissioners and the new QA Commissioner.
County Education
No changes but another re-organisation to a more locality based service is looking likely
City Education
New TOD is now in post
Notts Deaf Society
A new volunteer is now on board
Acquired hearing loss project is up and running; social event to be held.
FC to circulate details of the events.
Panto 12th December
Sign Singing 16th November
Christmas Fayre 30th November
Parent and Toddler session fortnightly on a Friday
Date of Next meeting:
Tuesday 25th February, 5.30 pm at Ear Foundation
For directions please see www.earfoundation.org.uk
Summary of Agreed Actions
Parents to send biographical information to CB
Parent reps
Parent information to go onto websites
CB
Contact Toni Wolff to arrange Deaf Awareness
week event
DG
Liaison with Health Visiting Team to be
developed
DG & WM
Previous minutes to be published on
appropriate websites
All
Work to continue on objectives on Action Plan
All