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6 THE STRAITS TIMES OCTOBER 25 2012 Orthotics Cushions & Supports Your Every Step From blue to pink W hat most people take for granted, Mr Pang Poi Wong has had to fight for his whole life to get: a clean bill of health. Born 19 years ago with four heart defects that conspired to deprive his body of oxygen, he faced death on countless occasions, turning blue in the face, lips and nails whenever he was exhausted. Madam Lim Lye Kiaw thought the birth of her youngest child had gone normally until the doctors came to her and told her something was wrong with the baby. He had a bluish cast to his skin. She recalled in Mandarin: “My mind went blank and I could only ask myself repeatedly why my child had to be ill.” The 49-year-old sales promoter, whose husband died 13 years ago, has two other sons aged 25 and 22 who were born healthy. Doctors put the tiny baby through an echocardiogram, or ultrasound examination of the heart, and determined he had pulmonary atresia. This means that his pulmonary artery, Polytechnic student went through five operations in 19 years to fix his heart. JOAN CHEW reports Mr Pang, who has a congenital heart condition, chats with his mother while doing stretching exercises at home. ST PHOTO: NURIA LING Mending a heart THE NORMAL HEART ■ Oxygen-poor blood flows from other parts of the body back into the right side of the heart. It flows into the pulmonary artery and then to the lungs where it picks up oxygen. ■ The oxygen-rich blood flows back into the left side of the heart. It is then pumped through the aortic valve and into the aorta to the rest of the body. Oxygen-rich blood flows to other parts the body Oxygen-poor blood from other parts of the body To right lung Aorta Main pulmonary artery To left lung From left lung From right lung Right atrium Left atrium Pulmonary valve Mitral valve Tricuspid valve Ventricular septum Right ventricle Aortic valve Oxygen-poor blood from other parts of the body Left ventricle Oxygen-rich blood flows to other parts the body Four structural defects caused abnormal blood flow in Mr Pang’s heart and made it hard for his blood to get sufficient oxygen. These were corrected in a major operation when he was 13 years old THE DEFECTS 1. Pulmonary atresia The pulmonary artery connecting the heart and lungs was not developed, making it impossible for his heart to pump blood into his lungs to pick up oxygen. What was done: A homograft (a tissue graft, in Mr Pang’s case from a cadaver) replaced the underdeveloped pulmonary artery and allowed blood to pass through this conduit into the lungs. This homograft had to be replaced five years after the first surgery. 2. Wrong aorta connection The aorta, which supplies oxygen-rich blood to the body, was connected to the right ventricle containing deoxygenated blood. It should be connected to the left ventricle instead. What was done: The aorta was reconnected to the left ventricle surgically. 3. Disconnected branches of the pulmonary artery The left and right branches of the pulmonary artery were not joined to each other, so deoxygenated blood could not flow through them. What was done: The two branches of the pulmonary artery were connected with a graft, which was also linked to the reconstructed main pulmonary artery. Left atrium Right atrium Source: Dr Terence Lim, consultant at the division of paediatric cardiology at National University Hospital Right ventricle Left ventricle 4. Ventricular septal defect There was a large hole in the wall separating the lower chambers of the heart, or ventricles. As a result, oxygenated and deoxygenated blood were mixed within the heart. What was done: The hole was closed with a mesh fabric patch. Heart tissue eventually grew over the patch, so that it became part of the heart muscle. Note: Drawing has been simplified for ease of representation. GRAPHICS: MIKE M DIZON TEXT: JOAN CHEW an important blood vessel which carries oxygen-poor blood to the lungs to receive oxygen, was not properly developed. To make things worse, the three branches of the artery were not joined, as they should be. He also had a hole in the wall (septum) separating the right and left ventricles of the heart, so blood that had been depleted of oxygen kept mixing with blood that had been enriched with oxygen. His aorta, which was supposed to carry oxygen-rich blood from the left ventricle, also received oxygen-poor blood from the right ventricle because of the hole in the heart. Most babies now pull through complex heart conditions like his, but Mr Pang’s journey was especially difficult. Associate Professor Quek Swee Chye, head of the division of paediatric cardiology at the National University Hospital (NUH), said congenital heart disease occurs in eight out of every 1,000 live births. Of these, about 3 per cent will, like Mr Pang, have pulmonary atresia with a ventricular septal defect. More boys than girls have the defect. At two days old, Mr Pang had an operation to create a pathway for blood to reach the lungs. As he grew, alternative pathways had to be created to meet his oxygen needs. Due to his heart condition, he never had a single physical education lesson in school. When his brothers played basketball with other kids, he stayed on the sidelines. For his mother, no sacrifice was too great. Every time he fell sick, she would rush him to a clinic before the infection could exacerbate his condition and make breathing difficult. Finally, his doctors scheduled the major operation to repair his heart defects after his Primary School Leaving Examinations. But catastrophe struck just after his first paper. He came down with dengue fever and had to take the rest of his exam in hospital. The operation was delayed by half a year. His mother said she was so worried during the repair operation that she could neither sit nor stand. She said: “I rallied all my family members to come to the hospital to support me round the clock.” He was in hospital for close to a month. When he returned to school, his teacher asked other students to take turns to carry his schoolbag. But Mr Pang was elated. He could Desserts for a good cause feel his body was on the mend. He had more energy and no longer needed his eldest brother to carry him piggyback when they went out. He also started playing basketball regularly with his friends in school, going for 20 minutes at a stretch. Still, his problems were not over. Five years later, the conduit, which was put in his heart when he was 13 to take over the job of his underdeveloped pulmonary artery, had to be replaced. Dr Terence Lim, a consultant at the division of paediatric cardiology in NUH said such grafts have to be replaced periodically because of the calcium deposits on the walls. But again, the operation, scheduled for the beginning of 2010, faced a hitch when Mr Pang was infected with H1N1 – an influenza virus – followed by acute transverse myelitis, a neurological disorder. The operation was finally performed a year later. Doctors also replaced a faulty valve with an artificial one. Prof Quek said that each subsequent surgery Mr Pang goes through carries an incremental risk as the operating time gets progressively longer. Madam Lim said her son was a “very brave child” because he never cried and would take the initiative to learn about his condition and surgical procedures from the Internet. Mr Pang’s final operation resulted in complications that led to a hospital stay of 53 days. After a year-long hiatus, the first-year Ngee Ann Polytechnic student is back in school now, where he studies logistics and supply chain management. He said: “I’m really lucky and grateful to the doctors. Despite my condition, I was never bullied or teased in school.” Prof Quek said Mr Pang’s repaired heart will never “be as pristine as a normal heart”, although he can now do many things just like his peers. Dr Lim said Mr Pang has a higher risk of arrhythmia (abnormal heart rhythm) and infective endocarditis (where the heart valves become infected by bacteria) as compared to a healthy person. Mr Pang’s last two operations cost about $45,000, of which $7,000 was covered by the NUH Kids’ Heart Fund, that provides financial support to children with congenital heart disease. [email protected] Chui Huay Lim Teochew Cuisine will donate 30 per cent of each Twenty-nine restaurants are bowl of sweet yam paste with participating in the Sweet Charity gingko nut sold. The rest will fund-raising campaign for the NUH donate $5 from the sale of each Kids’ Heart Fund, which subsidises designated dessert to the fund. Sweet Charity aims to raise costs of heart surgery for needy $100,000. For more information, children. go to Facebook.com/ This month, Jumbo Seafood and sweetcharitymonth. 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