Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Essential information for the Head and Neck Cancer patient Head and Neck Cancer Services University Hospital Aintree Hospitals NHS Trust Lower Lane, Liverpool. L9 7AL Clinical Nurse Specialists 0151 529 5256 An introduction to the Head and Neck Cancer Centre A diagnosis of Head and Neck Cancer by your local Maxillofacial/ENT team means that you will be referred to the Aintree Head and Neck Cancer Centre. This is based at University Hospital Aintree in Fazakerley, Liverpool. The Clinics are held at the centre, Aintree Walton site of a Wednesday morning, also the team go out to clinics in the local area Royal Liverpool Wednesday afternoon, Whiston Tuesday afternoon and Arrowe Park on the 1st and 3rd of the month in the afternoon. Head and Neck Cancer Centre Head and Neck cancer has been designated as an uncommon cancer and is treated by a medical team with a high degree of expertise. It is therefore better for one central team to see all the patients, rather than many teams in different areas. There are two designated wards within the hospital that have teams of doctors, nurses and other professionals(clinical nurse specialists, dieticians, physiotherapists and speech and language therapists) that will provide specialist care and treatment as part of your journey. Choosing the Best Treatment You will feel reassured to know that to help the team make the right treatment plan for you we will need to gain information about your cancer. Test and Investigations In order to make the right decision you will have to have some test done. This may be done at your local hospital or the Centre. When you attend the clinic a doctor would have listened to an account of your illness and any symptoms you may have developed. He or she will also examine you mouth or throat carefully. The next stage is usually some X-rays/Scans to help the Leaflet Name: Essential information for the Head and Neck Cancer patient Leaflet Lead Name: Lesley Dempsey CNS ENT A biopsy (a small piece of tissue) will need to be taken to tell us what type of cancer it is. This may be done in the form of a short stay operation or under local anaesthetic in the clinic. If you have a lump on your neck a Fine Needle Aspiration (FNA) may be done in the clinic to give them a diagnosis whilst you are there. Sometimes other test may need to be done to help the team decide on the best treatment for you. They will inform you of the tests and the reason that they need to be done. You will then be referred to the Aintree team for an opinion. The Multidisciplinary Team (MDT) Once you have been diagnosed with cancer, you will be discussed at the Head and Neck Multidisciplinary team meeting held at Aintree every Wednesday morning. The MDT Head and Neck team consists of; Head and Neck Consultants Clinical Oncologist(for patients requiring Radiotherapy) Radiologist(responsible for x-rays/scans) Histopathologist/Cytopathologist(responsible for biopsy samples) Restorative Dentist Clinical Nurse Specialist (Key worker) Palliative care representative Speech and Language therapist Dietician MDT coordinator NHS employed user issues and information The MDT is responsible for Making sure the diagnosis is correct and that all the necessary tests have been carried out Deciding on the best treatment options for you Reviewing your progress with the treatment and deciding on any further treatments if necessary Date Leaflet Approved Awaiting approval Review Date March 2008 Version No: 1 Page 1 of 4 team understand more about you cancer. The MDT may decide on one treatment or a variety of options may be available to you. Members of Aintree Head and Neck Team are: Mr E D Vaughan Consultant Maxillofacial Surgeon Mr J S Brown Consultant Maxillofacial Surgeon Decisions made at the MDT will be discussed with you at Mr S N Rogers Consultant Maxillofacial Surgeon your next meeting with your Consultant. Once he has Mr N J Roland Consultant ENT/Head and Neck explained the diagnosis to you, he will discuss the possible Mr S R Jackson Consultant ENT/Head and Neck treatment that you may have. Sometimes there has to be Mr T M Jones Consultant ENT/Head and Neck more than one visit with the Consultant in the clinic as Mr J L Lancaster Consultant ENT/Head and Neck other specialist tests or information may be required to ensure that the correct treatment is decided, this will all be Dr R D Errington Consultant Oncologist explained to you at the time. Dr A Shenoy Consultant Oncologist Dr D Husband Consultant Oncologist This may include surgery with or without radiotherapy, and sometimes radiotherapy and chemotherapy alone or Dr H L Jones Consultant Radiologist combined together. We will help to explain the Dr R Hanlon Consultant Radiologist options/choices to you and make sure you aware of what is happening at each stage of your treatment. Dr J Sheard Histopathologist Dr J Woolgar Histopathologist In the Clinic beside the Consultant there can be more than Dr T Helliwell Histopathologist one person in the room, usually the Clinical Nurse Specialist and other member of the team. This means a Mr C Butterworth Consultant Restorative Dentist lot of people in the room when you are trying to make your decision. Mrs L Dempsey Clinical Nurse Specialist Ms S Lane Clinical Nurse Specialist Many people are worried about their treatment – whether or not it will work or how to cope with the side effects. It Mrs A Zuydam Speech and Language Therapist helps to make a list of questions you wish to ask and do Mrs E Gilmartin Speech and Language Therapist not be afraid to ask the Consultant to repeat any explanations you don’t understand. Mrs R Skelly Senior Dietician It may be helpful to bring a close relative or friend with you to the appointment. If you are feeling anxious or worried they might be able to remember details of the meeting which you may have forgotten or you may want them to ask questions on your behalf. Mr A Devon MDT coordinator A Clinical Nurse Specialist is a nurse working within the cancer field; they provide support and information to people with cancer and their families and carers. They aim to see patients from the point of diagnosis and throughout their treatment. You should be given contact details for your Clinical Nurse Specialist (also know as Key Worker) whilst in the clinic. Head and Neck Cancer Information and Support Service Telephone helpline run by the two Clinical Nurse Specialists at Aintree. When the telephone is not manned there is an answer phone to leave messages. Tel: 0151 529 5256 Sally Lane/Lesley Dempsey Leaflet Name: Essential information for the Head and Neck Cancer patient Date Leaflet Approved Awaiting approval Review Date March 2008 Version No: 1 For further information and advice: Local advice/Groups Liverpool Head and Neck Cancer website If you would like to discuss any aspect of your diagnosis or A local website to provide information for patients and treatment with a particular member of the Team please let carers. It has an online forum and message board for you Key worker/Clinical Nurse Specialist know and they patients and carers. will arrange this. www.headandneckcancer.co.uk Leaflet Lead Name: Lesley Dempsey CNS ENT Page 2 of 4 Knowsley Cancer Support Centre Lyndale 40 Huyton Lane Huyton Liverpool L36 7XG Tel: 0151 489 3538 Mon – Fri 10am – 3pm Answer service out of hours Provides emotional support and practical help to cancer patients, families and carers. Drop in facilities, library, social activities, home and hospital visits. Relaxation classes and benefits advice Liverpool Cancer Support Group 21 Aigburth Road Liverpool L17 4JR Tel: 0151 726 8934 24 hour helpline Provides emotional support and practical advice through an active self help group. Advocacy service, home and hospital visits and complimentary therapies Sefton Cancer Support Group 88 Liverpool Road Formby Liverpool L37 6BS Tel: 01704 879352 10am – 4pm The aim of the group is to be available to lend and helping hand and listening ear for general advice and information for cancer patients and families. Complementary therapies and home visits. The Princess Royal Trust, Knowsley Carers Centre 149 Cherryfield Drive Kirkby Liverpool L32 8SE Tel: 0151 549 1412 They provide information, support and a listening ear for all carers in Sefton. Also benefit, respite care, social events, complimentary therapies and relaxation to encourage carers to take sometime to themselves National Groups Cancerbackup 3 Bath Place Rivington Street London EC2A 3JR Tel: 0808 800 1234 Free phone www.cancerbackup.org.uk This service offers a free and confidential advice and information about all aspects of cancer diagnosis, care, treatment and rehabilitation. Macmillan Cancer Support 89 Albert Embankment London SE1 7UQ Tel: 0845 601 6161 www.macmillan.org.uk This offers a free and confidential advice and information service about cancer to patients, families and carers. It also provides financial help and advice for cancer suffers. Cancer Link 11-21 Northdown Street London N1 9BN Tel: 0808 808 0000 Free phone helpline www.cancerlink.org This service offers advice on all aspects of cancer, it will also help you find cancer support and self help groups within the United Kingdom For Local support groups with patients who have a similar type and site of cancer as yourself and Head and Neck general information leaflets. Please ask your Clinical Nurse Specialist who will put you in touch with your local group. Lesley Dempsey/Sally Lane They provide a listening ear for all carers in Knowsley. They can offer practical help, advice on subject such as welfare benefits and respite for care. Carers can take part in social events, leisure and relaxation courses. Emotional support and information is available. Tel: 0151 529 5256 Direct line/answer phone. The Princess Royal Trust, Sefton Carers Centre 39-41 South Road Waterloo Liverpool L22 5PE Tel: 288 6060 . Leaflet Name: Essential information for the Head and Neck Cancer patient Date Leaflet Approved Awaiting approval Review Date March 2008 Version No: 1 Leaflet Lead Name: Lesley Dempsey CNS ENT Page 3 of 4 If you require a special edition of this leaflet This leaflet is available in large print, Braille, on audio tape or disk and in other languages on request. Please contact the Patient Advice and Liaison Service [PALS] on: Telephone 0151 529 3287 Textphone 0151 529 2523 Fax 0151 529 2019 [for the hearing impaired] Si vous voulez cette brochure en français, contactez le bureau des rendez-vous ou demandez à un membre du personnel. Haddii aad jeclaan laheyd buug-yarahan oo af-Soomaali ku qoran la soo xiriir xarruunta bukaan ballaminta ama wax weydii xubin shaqaalaha ka tirsan. Si desea recibir este folleto en español, sírvase contactar al Centro de Citas para Pacientes o solicitario al personal. Mae’r daflen hon ar gael (ar gais), mewn print bras, ar dâp sain neu ar ddisg, ac efallai mewn ieithoedd eraill ar gais. Cysylltwch â chanolfan apwyntiadau cleifion i ofyn am gopi. Leaflet Name: Essential information for the Head and Neck Cancer patient Leaflet Lead Name: Lesley Dempsey CNS ENT Date Leaflet Approved Awaiting approval Review Date March 2008 Version No: 1 Page 4 of 4