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http://www.bcs.org/server.php?show=ConWebDoc.13667 The Go-Between Information for Information Users The Go-Between would like to hear from potential contributors. Articles should be on IM&T related matters and around 250-400 words in length. Copy deadline for Issue 88 is 20 May 2009. For contributions etc. please write to the Editor (address on back page). ____________________________________________________ In This Issue ASSIST National Conference Blood Tracking Diabetes Diary Harmonising Data Standards News in Brief Summary Care Record Options Training Centre Accreditation ____________________________________________________ Blood Tracking Every year, around one million blood transfusions are carried out safely and correctly, but occasionally things do go wrong. Administering the wrong blood type – also known as ‘ABO incompatibility’ – is the most serious outcome of blood type error during transfusions. Most of these incidents are due to the failure of final identity checks carried out between patients and the blood to be transfused. Issue 87 April 2009 sample for cross-matching, to administration of the blood transfusion. The pilot will evaluate the blood tracking from the point of view of: • its effectiveness for managing blood; • reducing the likelihood of errors in blood transfusions; and • the potential applicability to other areas of healthcare delivery. A full independent evaluation of the Mayday NHS Trust pilot will be undertaken to ensure that the processes are mapped, the views of all users are taken into account, and the recommendations and lessons learnt are accurate and useful. The pilot includes the passive use of Radio Frequency Identification (RFID) in patients' wristbands to enhance the final patient identification check before transfusion. Mayday NHS Trust intends to track the journey of the blood from the blood issue fridge to its destination. The hospital will be installing a Wi-Fi based asset tracking system to track the location of the blood bags. The anticipated benefits of an electronic blood tracking system include: • a reduction of inpatient safety incidents • automated checking of information • a reduction in the number of samples discarded by the lab; and • improved traceability of blood and blood products. More Information: http://www.connectingforhealth.nhs.uk/systemsandser vices/bloodpilot _______________________________________________ Between 1996 and 2004 five patients died as a direct result of being given ABO incompatible blood. ABO incompatibility also contributed to the deaths of a further nine patients and caused major illness in 54 patients. The National Patient Safety Authority set a goal to reduce the number of ABO incompatible transfusions by 50% within 35 years from January 2005. Mayday Healthcare Trust in Croydon is piloting an electronic blood tracking system to further improve the safety of blood transfusions. A specification has been developed by the National Patient Safety Agency (NPSA), National Blood Transfusion Committee (NBTC) and Serious Hazards of Transfusion (SHOT): and the Electronic Clinical Transfusion Management System (ECTMS). The ECTMS provides guidance on how to ensure patients receive blood which is cross-matched for them i.e. 'right patient, right blood'. The scope of the specification includes the automated tracking of blood products from 'vein to vein'. Guidance is provided on ordering of blood transfusion for a patient, through to the taking of blood Harmonising Data Standards will enable the electronic sharing of information – see page 2. _______________________________________________ Training Centre Accreditation The objective of the Training Quality Improvement (TQI) work-stream within NHS Connecting for Health (CfH) is to improve the overall effectiveness of training to support the National Programme for IT (NPfIT). One key aspect of the programme is the Training Centre Accreditation (TCA) project, which has been initiated in response to requests from the strategic health authorities (SHAs) and other local NHS organisations for CfH to consider the creation and provision of a voluntary, nationally funded NHS accreditation scheme for IT training departments. There are several hundred training centres with approximately 290 that have responsibility for the delivery of training for electronic care records and other national applications, to thousands of NHS staff. NHS training centres are typically based within Trust Information Management and Technology (IM&T) departments and have anything up to 30 people providing a range of training and development support for organisations that are implementing new IT systems. In addition, the centres usually provide general IT skills training, including basic IT skills and training in the use of Microsoft applications such as Microsoft Word, Excel, PowerPoint etc. The Training Centre Accreditation project has been set up to provide a nationally funded scheme for accreditation that NHS IT Training Departments can seek to gain and then retain in the future. The project will provide a co-ordinated scheme for the accreditation of NHS IT Training Departments, against a set of specific standards, to drive up quality of training delivery over the short and long term. This will incorporate best practice products and services designed and developed by the National ETD team in conjunction with the SHAs and wider NHS. In order to better understand how current NHS IT Training Departments currently work, how they are staffed and what training they provide to their users the TCA project team ran a survey recently. Contact: [email protected]. _______________________________________________ ASSIST National Conference The theme of this year’s ASSIST National Conference is “Quality Informatics: your role in delivering the NHS Next Stage Review” and takes place on Thursday, 4th June 2009 10.00am – 4.00pm at The Gallery, National Exhibition Centre, Birmingham. The Government is committed to providing a first class, modernised National Health Service for all. This requires the best possible use of information and technology to support the delivery of the NHS Next Stage Review. The work and commitment of the health informatics professional is fundamental to this goal, and the conference will allow you to hear directly from the people at the forefront of informatics in the NHS about its future development. Speakers will include: • Christine Connelly, Director General of Informatics, Department of Health (subject to Parliamentary commitments); • • Tim Straughan, Chief Executive, NHS Information Centre for health and social care (NHS IC); Dr Mark Davies, Medical Director, NHS IC and leading on clinical metrics, and practising GP. Delegates will also be able to attend a choice of workshops, including: • Clinical Metrics • Electronic Document and Records Management • Social Care • Summary Care Record and HealthSpace • Technical Innovations in Health Care • World Class Commissioning and its impact on Informatics The conference will also have an exhibition involving a number of suppliers and delegates will have ample opportunity for networking with other participants during the day. The Conference is free to ASSIST members, and non-members can attend the conference by joining ASSIST in advance of the conference. To book and for more information: www.bcs.org/assist/natconf09 _______________________________________________ Harmonising Data Standards Providing holistic care to patients among the various care settings, agencies and practitioners is dependent upon good information sharing and good information flows. As these become increasingly electronic it is vital that the component data sets are compatible – harmonised – to ensure that the correct information is shared and systems can “talk” to one another. The Logical Record Architecture (LRA) for Health and Social Care is an initiative that has arisen out of the increasing need to treat information flows holistically throughout the NHS, from one care encounter to another, through to public health and strategic planning services. The LRA initiative is part of the CfH Informatics Data Standards Programme set up following the publication of The Darzi Review and the Health Informatics Review. Breaks in the information flow, unavailable information (e.g. through patient records going missing, not being shared appropriately, or not being immediately accessible), and large amounts of manual transcription result in patient safety issues and significant inefficiencies in care planning and care delivery. The LRA will harmonise the way that data standards are specified and used, and provide a process that allows application designers to fit together information systems in a way that will allow for better information sharing. The LRA will determine what data should be shared across multiple applications, and how data will be managed, accessed and interpreted between independent information systems. The initial release of the LRA is now available (see web site at the end of this article). It includes: • An overview of the LRA • A draft of the LRA Release management strategy • A description of the scope of release 1 • A description of the purpose and structure of the key artefacts that will be produced by the programme. Release 1 will provide users of the LRA with a set of Knowledge and Technical Models that accurately reflect the type of content to be published in future releases. LRA Release 1 is also intended to test the process for generating LRA content and to develop metrics that the LRA team will use to scope the content of future LRA Releases. The content of LRA Release 1 is not comprehensive or fully validated and therefore not suitable to be used in a live environment. More Information: http://www.uktcregistration.nss.cfh.nhs.uk/ _______________________________________________ Summary Care Record Options The Summary Care Record (SCR) has been central to the vision of the National Programme for IT (NPfIT) since its inception. Whilst the notion of making critical clinical information available at the point of care – wherever care is needed in the NHS – is widely supported the contention is about what is shared and issues around consent. To address these issues an opt-out option has been piloted by early adopter sites. Initially the SCR will contain only basic information such as current medications, adverse reactions and allergies. Patients will be able make informed choices concerning their participation in the electronic sharing of records in two respects: • Storing – they may decide whether or not to have their GP Summary Record created and uploaded to form their Summary Care Record, on the NHS Spine; • Sharing – a patient whose Summary Care Record is stored on the NHS Spine, will also have options as to whether their record is allowed to be shared between healthcare professionals. Patients can be reassured that not only will their permission be asked before their SCR is accessed by any of the healthcare team, but if they change their mind at any point about their SCR being available to healthcare teams, this can be easily prevented. More information: http://www.connectingforhealth.nhs.uk/systemsandser vices/nhscrs/scr/ _______________________________________________ Diabetes Diabetes is a long term condition affecting nearly 2.5 million people in the UK. People with diabetes often require contact with several medical specialties for the surveillance and monitoring of complications. Even people with no complications still make regular visits to their GP, hospital diabetes service, retinal screening, a dietician and podiatrist, whilst others maybe under review by cardiologists, ophthalmologists, vascular surgeons, renal physicians to name but a few. The electronic care record, which allows all this information to be available in one place and, that can be accessed at anytime day or night, is an opportunity to make patient care safer and more efficient. By ensuring that this information is collected in a standardised way across England, the quality and effectiveness of care can be monitored, whilst helping to inform the commissioning process. People with diabetes will also be able to access their own records through HealthSpace which can also be used as a communication tool between patient and healthcare professional. NHS Connecting for Health (CfH) has set up an early adopter programme designed to discover what works best and to make improvements for the rest of the NHS, based on experience in real-life healthcare situations. Key projects being coordinated by NHS Connecting for Health and priority areas include: • In Bishop Auckland, diabetes templates are being developed by Dr Paul Peters and colleagues for Lorenzo. • Over in Airedale, Richard Pope is the clinical lead developing templates for use across the Yorkshire and Humber region for TPP SystemOne. • The 'National Diabetes Audit' for which data collated from 1.3 million people in England, hosted by the NHS Information Centre. • Ensuring that new IT systems collect data in a standardised way helps to facilitate data extraction and makes it much easier for clinicians to contribute information on patients in England with diabetes. Following feedback from these early adopters and an independent evaluation by University College London, advice has been issued to make it possible to opt out without attending in person. Adrian Scott is the National Clinical Lead for diabetes. He is currently consultant physician in diabetes and general medicine at the Diabetes Centre, Northern General Hospital in Sheffield. The original guidance in 2007 was based on the need to ensure that patients understood the implications of opting out. One of the early adopters, Dorset, has a geographically-dispersed rural community and has successfully used a web form, which can be posted. CfH is also working with the Department of Health's new National Clinical Director for Diabetes, Dr Rowan Hillson MBE and Diabetes UK. As well as collaborating with the Year of Care team to ensure that national IT systems support the care planning process, Adrian is also a member of the National Diabetes Information Service project board which aims to bring together all sources of data on diabetes in England and make them available to health professionals and people with diabetes. Patients will be able to reconsider their choices, if they wish. The original thinking was that a decision not to share the record can be altered by the patient at any connected NHS facility; a decision not to have a record stored can only be altered at the patient’s GP practice. Based on this experience and wider feedback, it will become possible for all patients to opt out by post; an easier way to opt out than through a visit to the GP surgery. Patients who wish to discuss their options still can, either in person or over the phone. While it is important that patients are given the opportunity to talk through options, the aim is to make it as easy as possible for those who have already made up their mind. More information: http://www.diabetes.nhs.uk/ _______________________________________________ News in Brief NHS Mail and Blackberries Until now, Blackberries have not been supported by NHSmail. The use of these devices has broken the NHSmail Acceptable Use Policy. NHS Connecting for Health has been working with suppliers on an Exchange ActiveSync solution for Blackberry users. A licensed Blackberry Exchange ActiveSync solution provided by Notify now allows users to securely connect their device to NHSmail. NotifySync is available to NHS staff at a special discounted rate. See www.nhs.NotifySync.co.uk. Encryption Update The national encryption software for the NHS – Safeboot – has changed its name to Endpoint (although end users continue to see the Safeboot logo). The software is also being upgraded: device control replaces port control and later in the year “ePolicy Orchestrator” management and reporting is being introduced. Service Management Web Site LPfIT (London Programme for IT) has launched a new public service management web site. There is also a secure area for LPfIT user group members. See http://www.london.nhs.uk/lpfit/service-management. ID Management Guidance NHS Spine Upgrade NHS Connecting for Health will shortly publish toolkits to all NHS organisations to support their identity and access management work. The toolkits will focus on strategic decision making, integration of local HR / RA business processes and implementation of Position Based Access Control. Roadshows in the spring and autumn are planned to support the use of the toolkit. In March a new release of the NHS Spine introduced significant changes to the Spine functionality including: • implementation of the Summary Care Record permission to view model • ability to edit demographic data through Summary Care Record Application (SCRa). • postcode search via the Clinical Spine Application. Mental Health Bulletin Midwives Leaflet In England, during 2007/08 nearly 1.2 million people were in contact with NHS specialist mental health services for adults – a rate of 1 in 50 of the population – of which about one in eleven (8.9 per cent) spent time as an inpatient For more statistics see the Information Centre’s Mental Health Bulletin at: http://www.ic.nhs.uk/statistics-and-datacollections/mental-health/nhs-specialist-mental-healthservices/mental-health-bulletin:-second-report. User Management NHS Connecting for Health has centrally procured a software solution for automated user management, prepaid to all English NHS organisations. Automating starters and leavers minimises administrative overheads and improves security. London Info Sharing There is a proposal for a pan London information sharing framework. A shadow board has been established to oversee the rollout which includes representatives from local authorities (both children’s services and adult social services), the police, health and London regional organisations. With one framework, legal requirements can be managed in one place, reducing cost and simplifying the system. The framework will include an information sharing protocol and specific sharing agreements. London organisations are being asked to sign up to the framework and make a contribution to the costs. GP2GP Reaches 500,000 GP2GP is a national system that enables patients' electronic health records to be transferred directly and securely from one GP practice to another. More than 5,000 practices are now using GP2GP. This means that fewer patients have to wait weeks or months for their medical records to reach their new GP practice. GP2GP recently completed the 500,000th record transfer. ESR Users to Use Smartcards On 7 April NHS Connecting for Health (CfH) announced that the Electronic Staff Record (ESR) is moving to smart card access. This is to ensure that staff data is secure to the same level as patient data. The move is scheduled to take place between May and August 2009. Trusts are required to book a slot for the change over and plan for the change. Contact: [email protected]. NHS Connecting for Health has developed a leaflet explaining the relevance of the National Programme for IT to midwifery. See: http://www.connectingforhealth.nhs.uk/ engagement/clinical/ncls/midwives/midwives_lo%20res.pdf FT Compliance Framework The Compliance Framework describes Monitor's (the independent regulator) approach for monitoring compliance by NHS foundation trusts with the terms of their authorisation requirements. The latest revision to the Framework includes assurance of adequate information governance. See: http://www.monitor-nhsft.gov.uk/ under – “Our publications”. ___________________________________________________ Diary 28 - 30 Apr 09 HC2009 (Healthcare Computing 2009), Harrogate (http://www.hcshowcase.org) 05 May 09 Social Care Information Seminar, London (http://www.ic.nhs.uk/news-and-events/events) 20 - 21 May 09 04 Jun 09 Primary Care 2009, NEC, Birmingham (http://www.primarycare09.co.uk) ASSIST National Conference, NEC, Birmingham (www.assist.org.uk) ___________________________________________________________ Address for correspondence: The Go-Between, c/o David Green, Director of IM&T, SW London & St George’s Mental Health NHS Trust, Springfield University Hospital, Tooting, LONDON SW17 7DJ 020 8772 5602 [email protected] London & South East